Here are 74 books that The Revised Fundamentals of Caregiving fans have personally recommended if you like
The Revised Fundamentals of Caregiving.
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I'm an author of dark fiction from Wales, UK, who, for many years, taught primary school children. In my own writing I often gravitate towards the child’s point of view, and the same can be said of the fiction I choose to read. As a teacher I dealt with children’s issues on a day-to-day basis, and sometimes you wonder how these kids survive, or at least you understand the trauma they carry for the rest of their lives. But what about those who manage to rise above it? Those are the characters whose stories I love to read. The child lurks in all of us, and we must never lose sight of that fact.
I taught primary school children for many years, including children with a variety of learning difficulties.
It just so happened that at the time I was reading The Curious Incident I was also teaching a young boy with autistic spectrum disorder. The main character in the novel, Christopher Boone, shared so many character traits with the boy in my class that I pictured him the whole way through.
It’s not easy to write about neurodivergent people, you have to get it right as the last thing you want to do is patronize or stereotype. In my opinion, the author did an incredible job. I laughed and I cried, and I’m sure you will do the same.
'Mark Haddon's portrayal of an emotionally dissociated mind is a superb achievement... Wise and bleakly funny' Ian McEwan
The Curious Incident of the Dog in the Night-Time is a murder mystery novel like no other. The detective, and narrator, is Christopher Boone. Christopher is fifteen and has Asperger's Syndrome. He knows a very great deal about maths and very little about human beings. He loves lists, patterns and the truth. He hates the colours yellow and brown and being touched. He has never gone further than the…
I have lived in the US, and particularly lived and worked in New York, for many years. How the events of 9/11 changed the city, its people, and the perceptions of the people all around the country and the world has always intrigued me. 9/11 has put up a prism through which experiences have emanated out in a kaleidoscopic range of stories. A banker by day and a cynical blogger by night, I have traveled the world and have met many interesting people with compelling backgrounds and have experienced many peculiar and beautiful things. I love to explore the confluence of fascinating narrative arcs and life-altering events.
A precocious and inquisitive child Oskar goes on a treasure hunt around New York to solve a mystery left behind by his father who had died on 9/11.
In his quest, you see a child seeking to stay close to his father a little while longer. In his streams of consciousness and hyperactive imagination, you feel him trying to fill the void left behind by a supportive father figure.
With the sheer weight of his innocence, he gets strangers to open up to him, let him into their lives, and add to their life stories. In a moving manner, the narrative follows the path that Oskar, his mother and his grandfather take in dealing with trauma and finding closure in their own personal ways.
From the critically acclaimed author of Here I Am, Everything is Illuminated and We are the Weather - a heartrending and unforgettable novel set in the aftermath of the 9/11
'Utterly engaging, hugely involving, tragic, funny and intensely moving... A heartbreaker' Spectator
'The most incredible fictional nine-year-old ever created... a funny, heart-rending portrayal of a child coping with disaster. It will have you biting back the tears' Glamour
'Pulsates with dazzling ideas' Times Literary Supplement
'It's a miracle... So impeccably imagined, so courageously executed, so everlastingly moving' Baltimore Sun…
I’m a fiction writer and visual artist. My volunteer work with Amnesty International on a documentary photography project introduced me to 15 people from all over the world. During that time, I volunteered at a camp in Maine for kids who had life-threatening illnesses. I met a boy who had Progeria. Those two experiences fueled the writing of What Ben Franklin Would Have Told Me. I’m interested in characters who don’t fit the traditional mold and have to carve their own paths. People who are born with life-threatening diseases, imperfections, handicaps, brilliance. I see a kind of bravery in these characters, and in all they have to do to overcome the odds.
Renée is the concierge in an elegant Paris hotel. Widowed and in her 50s, she calls herself “short, ugly and plump,” a working-class nobody. She takes refuge in aesthetics and ideas but refuses to let her knowledge show. Renée’s friend in the building is 12-year-old Paloma, beyond precocious, who feels so let down by the meaningless in the world that she plans to commit suicide. Both characters are philosophers of sorts. “Beauty consists of its own passing, just as we reach for it,” says Paloma. In the end, they rescue one another from despair and loneliness. The experience of the book that was so satisfying for me, is the exchange of ideas about life and happiness, which are expressed more as a kind of philosophical discourse rather than a traditionally plotted novel. The ideas, expressed so intelligently and poetically, kept me going.
Rene is the concierge of a grand Parisian apartment building. She maintains a carefully constructed persona as someone uncultivated but reliable, in keeping with what she feels a concierge should be. But beneath this facade lies the real Rene: passionate about culture and the arts, and more knowledgeable in many ways than her employers with their outwardly successful but emotionally void lives. Down in her lodge, apart from weekly visits by her one friend Manuela, Rene lives with only her cat for company. Meanwhile, several floors up, twelve-year-old Paloma Josse is determined to avoid the pampered and vacuous future laid…
As a massively dyslexic writer. I have always felt like I was standing outside a party I wasn’t invited to. Reading writers with diverse backgrounds and brain types from me but a common humanity makes me feel less alone. I grew up on the activist hippy side of the 60’s culture wars. I grew up poor. I went to a mostly white hippy grammar school. I went to a mostly Black inner-city high school. My oldest son is intellectually disabled. I have committed petty crimes, done drugs, been a drunk. I am one diverse mother-trucker. But then again, aren’t we all.
Lionel Essrog is a low-rent detective with Tourette’s syndrome. Under pressure Lionel is guaranteed to blurt out the worst possible thing. This is much more than a literary gimmick, he is a full-rounded character, in way over his head and struggling to do the right thing. Motherless Brooklyn remains one of my favorite detective novels, it delivers the pace and style of Raymond Chandler or Walter Mosley, but adds a neurodiverse protagonist that speaks to my dyslexic soul.
NATIONAL BOOK CRITICS CIRCLE AWARD WINNER • A complusively readable riff on the classic detective novel from America's most inventive novelist.
"A half-satirical cross between a literary novel and a hard-boiled crime story narrated by an amateur detective with Tourette's syndrome.... The dialogue crackles with caustic hilarity.... Unexpectedly moving." —The Boston Globe
Brooklyn's very own self-appointed Human Freakshow, Lionel Essrog is an orphan whose Tourettic impulses drive him to bark, count, and rip apart our language in startling and original ways. Together with three veterans of the St. Vincent's Home for Boys, he works for small-time mobster Frank Minna's limo…
With more than 6-million Americans living with Alzheimer’s, my story is a shared narrative. Because reading creates empathy, I work to widen the perspective of my writing and include voices different from my own. Thanks to neuroplasticity, healthy brains have the ability to keep changing and learning. Each one of these books offers a helpful nudge in a new direction. My essays and articles have appeared in numerous publications including the Washington Post, Luxe, and Variable West, and are listed as notable in the 2019 Best American Science and Nature Writing. I’m currently at work on a second memoir about motherhood and the way travel cultivates a willing acceptance of uncertainty.
The title poem in this collection, (made from lines spoken by the poet’s mother,) manages to embody both caregiver and loved one as Constantine gives gentle structure to a string of seemingly disconnected utterances. Each poem in the book explores themes of loss, memory, and family through a different lens, creating an almost kaleidoscopic vision of the world. The collection is a rumination, a celebration, and a beautiful example of how poetry can expand our perspectives and teach us to speak and hear new rhythms.
As with Constantine's previous titles, Dementia, My Darling can be enjoyed at random or in order. However, when taken in sequence, the poems construct a thesis on life as we remember it from moment to moment. What is your first memory of love? How soon will you forget answering that question?
After my dad died, I didn’t know where to turn. People felt uncomfortable talking to a seventeen-year-old girl about her dead dad. They felt even more uncomfortable talking to me about it one, two, ten years later. Still, I couldn’t, can’t, stop thinking about it. I turned, then, to books. These books made and make me feel seen. They aren’t about “moving on” or “letting go” but the ways in which leaning into grief’s deep well connects us to love’s true depths. These books are honest and pure, and if you don’t know what to say to a friend who’s mourning, let these authors speak for you.
Joy might not be the first thing you think of when
considering grief, but then maybe you haven’t read Ross Gay.
Gay understands
that joy exists because of grief, not as a counterbalance, but in a deeply
reciprocal relationship. As his father is dying, he presses their faces
together, and in his father’s freckles, he sees seeds, a garden. It is just one
instance in this book where Gay recognizes that what grows from loss is love.
His book clarifies what I know to be true: that when we fall into the hole of
loss, we find ourselves in a deep well of love.
A collection of gorgeously written and timely pieces in which prize-winning poet and author Ross Gay considers the joy we incite when we care for each other, especially during life's inevitable hardships.
In "We Kin" he thinks about the garden (especially around August, when the zucchini and tomatoes come on) as a laboratory of mutual aid; in "Share Your Bucket" he explores skate-boarding's reclamation of public space; he considers the costs of masculinity in "Grief Suite"; and in "Through My Tears I Saw," he recognizes what was healed in caring for his father as he was dying.
I have been teaching college students about aging since I was in my late 20s. The audacity! Now that I am officially in the “young-old” category I used to describe to my students, I more fully appreciate the social constructions of aging that affect elders, the medical conditions that can derail plans for “a good old age,” and the challenges we all face in attempting to live with meaning and purpose as we grow older. In addition to teaching, writing about, and researching various aspects of aging, especially aging with various type of dementia, my work has addressed the positive and negative ways religious faith can shape how people cope with aging.
Janet Ramsey’s experiences as a chaplain, therapist, and family caregiver have taught her that people living with dementia deeply desire interactions with others that uphold their dignity and offer them love and forgiveness. She interviewed many dementia caregivers and throughout the book, she lets them express what dignity and grace mean in their everyday interactions with loved ones. Each chapter concludes with a reflection on a different Psalm, reflections that speak directly to the challenges and opportunities for growth that come with caregiving. Readers need not be Christian or in any way religious to appreciate the warmth and humanity conveyed throughout this book.
"I'm a stranger in a strange land," sighed the dignified gentleman Janet L. Ramsey met walking down the care-center hallway. Those words, her first glimpse of the confusion that comes with dementia, led her into a lifetime of work with older adults.
If you have been diagnosed with dementia or you are accompanying someone with this illness, you may find yourself on a journey that began with a sudden diagnosis and an acute sense of panic. Or perhaps your journey started gradually, as you noticed changes in yourself or in your partner or parent.…
Like my main character, I’m a Norwegian writer with ties to the US, who grew up with various chronic illnesses. I discovered the reason for much of my trouble when I was diagnosed with endometriosis. Isolated and in pain, I have always turned to books. I craved seeing my life reflected. Since Please Read This Leaflet Carefully came out, I’ve heard from many readers. I hope that it can help people who haven’t seen themselves in art before. This list addresses the needs of a life with chronic illness and pain: guidance, darkness, humor, comfort, and poetry. I hope these books will help you as much as they did me.
How to Be Sick is a soothing and strengthening book that offers tools that are useful for any creature living a life with a human body and heart. It contains many Buddhist-inspired mindfulness techniques that I use daily, such as ways to adjust one’s thoughts and approach, ways to work with acceptance and grief, and ways to find pleasure and joy when they are hard to come by.
A brand-new edition of the best-selling classic with added and updated practices.
In 2001, Toni Bernhard got sick and, to her and her partner’s bewilderment, stayed that way. As they faced the confusion, frustration, and despair of a life with sudden limitations—a life that was vastly different from the one they’d thought they’d have together—Toni had to learn how to be sick. In spite of her many physical and energetic restrictions (and sometimes, because of them), Toni learned how to live a life of equanimity, compassion, and joy. This book reminds us that our own inner freedom is limitless, regardless…
By Andrew E. Budson and Maureen K. O'Connor
Author
Why are we passionate about this?
As a neurologist and neuropsychologist team who have spent their entire clinical, teaching, and research careers focused on individuals and their families experiencing memory loss, Alzheimer’s disease, and dementia, our goal is simple. We want to empower individuals and their families with the tools they need to manage memory loss, Alzheimer’s disease, and dementia. We work to balance pharmacological and nonpharmacological management, as well as the needs of the individual with those of their family. Reading books like the ones in our list plus articles in medical journals keeps us current with the progress in the science of dementia and the humanity of individuals and families living with the disease.
First, this book provides a wonderful history of the important discoveries of the different aspects of the disease. You also learn the stories behind many aspects of the disease that are now taken for granted—even with our 25+ years of treating people with this disease and conducting research to understand it better, we learned a lot. Dr. Karlawish also explains why research into dementia languished for more than 50 years. Finally, he raises many thought-provoking ethical issues that people with dementia, doctors, and society will need to wrestle with if we are going to solve “The Problem of Alzheimer’s.”
A definitive and compelling book on one of today's most prevalent illnesses.
In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050.
Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its…
I have worked in senior living for over 25 years. I was the administrative director of both an assisted living facility as well as a memory care facility and then I worked for over 18 years in one of the top national Life Care Communities in the country. During this time, I helped thousands of families navigate the complex and confusing world of senior living. I wrote my book to help families make educated and informed decisions and know what they could do before a crisis! It is not if your parents will need help, it is when! I am passionate about passing on the knowledge of my years in this field.
Dr. Kernisan is a well-known geriatrician who writes an educational newsletter that is as useful as her book!
She has years of expertise on dealing with all kinds of senior health issues and concerns. Excellent book for any caregiver! She covers a wide range of critical things to know if you are caring for an elder loved one that I can’t recommend this book enough!
It’s scary and stressful when it happens…. noticing changes in your parent and becoming increasingly worried about their health and safety. Maybe it’s Mom leaving the stove on, Dad getting lost on his way home, or unpaid bills that trigger this realization. Or perhaps there have been falls or emergency room visits. Whatever it is, you know something’s wrong. You wonder about a diagnosis. And you want your aging parent to accept help, or perhaps move.
Helping an older parent can be gratifying. But it’s especially hard if they’re blowing off your concerns, refusing to make changes, or otherwise resisting…
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