The most recommended caregiver books

I have accompanied dying people for more than twenty-five years—as a counsellor, volunteer chaplain, and companion. I feel passionate about changing the perception of dying and death, the way we care for people during their most vulnerable moments, and how we support families through this painful time. Since my twenties I have been immersed in Buddhist practise which inspires and informs my life and work. Together with other clinicians and mindfulness practitioners, we created one of the first contemplative-based training in end-of-life care for caregivers called “Authentic Presence”. Daring to be present might be the hardest thing you may have done in your life, and, you may come to discover, one of the most intimate, beautiful, and rewarding.

I’m a writer, journalist, and occasional translator. Originally from Poland, I now live in the Netherlands with my German husband and three multilingual children. Since my children were born, I’ve become fascinated by the various ways culture and society affect the way we raise our children. I have written about various topics, but mostly parenting for The New York Times, The Washington Post, The Atlantic, The Guardian, and the BBC, among others. When not writing or thinking about writing, I can be found reading books, drinking tea, and doing nothing.

I am a caregiver who became an author. Both my parents had dementia. I found few books written from a personal perspective to give me guidance, so the journal I kept ultimately became the book I wished I could have read during our dementia journey. The journey didn’t end for me with the death of my parents. It led me to form a non-profit with two other dementia authors. This passion project has become a global community of authors who have written about Alzheimer’s and dementia from personal experience. Now more than 300 strong, we provide quality resources for caregivers and others concerned about dementia. Learn more at AlzAuthors.com.

Juggling roles as a professor, nurse practitioner, author, mother, and grandmother would seem to limit my reading time but instead, I always have a book in my car, on my phone, or in my hands. I read broadly and enjoy all genres, from fiction to nonfiction, poetry to medical comics, as well as the creative essay columns nursing journals are beginning to embrace. In particular, I gravitate toward resources that help nurses create a positive relational workplace where their best efforts can be even more effective. Whether it’s ending the RN-RA (relational aggression) Rut, using poetry to express feelings about caregiving, or writing creatively about the many aspects of nursing, I am ready to read! And of course, the best part of reading is having a discussion with colleagues or friends about what exactly that book was about…

As a teenager, I began to question the myths my parents told about our family, but when saying so caused trouble, I confided my stories to paper instead. That’s how I became a writer. My first love has always been fiction, but I broke into print writing history—about quirky subjects in which I find deep meaning, like the potato’s revolutionary influence on the Western world, or how the invasion and occupation of Belgium in 1914 foretold Nazi Europe. My fascination with subversion shapes my novels too—my quiet, lonely protagonists would never storm the barricades yet appear radical because of how they live, a circumstance I know well.

I have been teaching college students about aging since I was in my late 20s. The audacity! Now that I am officially in the “young-old” category I used to describe to my students, I more fully appreciate the social constructions of aging that affect elders, the medical conditions that can derail plans for “a good old age,” and the challenges we all face in attempting to live with meaning and purpose as we grow older. In addition to teaching, writing about, and researching various aspects of aging, especially aging with various type of dementia, my work has addressed the positive and negative ways religious faith can shape how people cope with aging.

I am passionate about raising each human being for lifelong wellbeing and a full set of intelligences. High-income nations don’t do this so much anymore. I conduct empirical studies with children, parents, and other adults to examine how early experience affects capacities for getting along in life and with others. My book has won awards for its holistic view, integrating neuroscience, anthropology, and developmental science. This work led me to start the Evolved Nest website with lots of resources for parents and for all who care about human wellbeing. Humanity is facing many challenges and we need everyone’s gifts to be well grown to help us solve the problems we face.

I’ve been working professionally as a writer for twenty-five years. I’m nothing close to a household name, but a number of my articles have gone viral throughout the years. I’ve had educators reach out to mention they’ve taught my work at both the high school and college levels. Writing is an occupation of passion, and the authors I’ve mentioned are all talented and passionate about their craft. It’s rare to find people who speak the truth anywhere in our society. These writers don’t just speak the truth, they make it sing.

I’ve always loved books about the bad choices good people make, or the good choices bad people make. I like twists and turns and ugly crying and serious “wtf” moments. Books that are like punches to the gut make me swoon. Dig up the dirt. Find the worms. Gnash your teeth, rend your garments, regret your choices and find new ways to love. Those are my favorite stories to read, but also to write. I write romance (Megan Hart), thrillers (Mina Hardy), and horror (Megan E. Hart), but to me, those different genres are all similar. Lots of screaming!

Amidst COVID-19, HIV/AIDS is a touchpoint for journalists, scholars, writers, and a public who seek a usable past in understanding the present and making an uncertain future less so. The challenge of how to love, live, and survive amidst pandemics isn't new, I play here on the title of one of the first safer sex books, How to Have Sex in an Epidemic. As someone who studies how activists document their work and how they bring those materials to life today, I'm both fascinated and troubled by pandemic comparisons. These books offer crucial stories and productive tools to think with as we navigate questions of how to survive, and maybe even thrive amidst intersecting pandemics.