The most recommended caregiver books

I know the pain of separations. Navy doctor father. Missionary kid at boarding school in India. Military wife. Military mother. Separations suck. So when my three-year-old grandchild Lily struggled with her daddy’s deployment in 2010, I felt her pain. I composed the story and used personal photos to illustrate Lily Hates Goodbyes. Whenever we read about book Lily’s emotions, my Lily would say, “Just like me!” Wanting other children to have this cathartic experience, I hired Nathan Stoltenberg, a brilliant illustrator, and self-published the book. It’s available in a Navy version and an All Military version—the only difference is daddy’s uniform. Book Lily is a friend to young military children around the world. 

With more than 6-million Americans living with Alzheimer’s, my story is a shared narrative. Because reading creates empathy, I work to widen the perspective of my writing and include voices different from my own. Thanks to neuroplasticity, healthy brains have the ability to keep changing and learning. Each one of these books offers a helpful nudge in a new direction. My essays and articles have appeared in numerous publications including the Washington Post, Luxe, and Variable West, and are listed as notable in the 2019 Best American Science and Nature Writing. I’m currently at work on a second memoir about motherhood and the way travel cultivates a willing acceptance of uncertainty. 

I founded the All-Weather Friend, which is about helping friends get through difficult situations. My first book, Alzheimer’s: A Crash Course for Friends and Relatives, tells how to help people living with dementia. I’ve had hard times in my life—my husband’s brain tumor and suicide, my father’s dementia, infertility, miscarriage, my brother’s sudden death, and other things that flooded me with grief. But my life is filled with joy; I’ve learned that joy comes from God and from a compassionate connection with friends and people we love. I write and speak about “informed compassion.” I hope you’ll visit my website, where there’s a great dementia resource page with contributions by many readers.

During my decades of working with caregivers as a dementia care expert, I have heard many accounts of what the experience is like—from the sad and hollow to experiences rich in significance. Everyone faces obstacles when caring for a loved one; some of these obstacles come in the form of uncomfortable or painful emotional histories or past unresolved conflicts. After each opportunity to raise awareness and understanding about how dementia impacts individuals, their families, and their communities, I have been gratified to witness enhanced feelings of hope and comfort for all involved. It is my hope that through this book I will enter your home or your professional caregiving setting and work alongside you. 

I’ve published more than 30 books in this genre, and more are on the way. I am passionate about it because I started writing Sapphic romance myself after reading a few really great books in the genre for the first time and the books that made me want to write myself were the ones that made me laugh and had great character development to go along with the laughter. The books I write today are often funny, some are sarcastic, and they’re focused on characters. These books also fit that bill. 

I have been a medical social worker for over 40 years working with people who have had a catastrophic illness. I counseled them and their family members. Because of this experience, I have a lot of knowledge, experience, and training regarding the challenges caregivers face. In addition, I was the primary caregiver for my parents and helped take care of 2 friends helping them to die with dignity. Finally, I am the author of an 8-time award-winning book called Role Reversal How to Take Care of Yourself and Your Aging Parents. I have written hundreds of articles on health-related topics including aging and caregiving.

I have been an educator for over 20 years teaching elementary-aged children. The environment is a passion of mine. After reading the book Plastic Ocean and meeting the author Charles Moore, I realized that the issues facing our environment are going to be best solved by the upcoming generation of children. They understand how important it is to preserve our planet. Combining my love of writing with my education background, I started writing books to teach children about the environment and inspire them to make lasting changes. I love recommending books that have the same mission. Small actions equal great changes! 

An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.   

As a neurologist and neuropsychologist team who have spent their entire clinical, teaching, and research careers focused on individuals and their families experiencing memory loss, Alzheimer’s disease, and dementia, our goal is simple. We want to empower individuals and their families with the tools they need to manage memory loss, Alzheimer’s disease, and dementia. We work to balance pharmacological and nonpharmacological management, as well as the needs of the individual with those of their family. Reading books like the ones in our list plus articles in medical journals keeps us current with the progress in the science of dementia and the humanity of individuals and families living with the disease.