The most recommended caregiver books

Who picked these books? Meet our 36 experts.

36 authors created a book list connected to caregiver, and here are their favorite caregiver books.
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Book cover of Dementia, My Darling

Tanya Ward Goodman Author Of Leaving Tinkertown

From my list on alzheimer’s caregivers.

Why am I passionate about this?

With more than 6-million Americans living with Alzheimer’s, my story is a shared narrative. Because reading creates empathy, I work to widen the perspective of my writing and include voices different from my own. Thanks to neuroplasticity, healthy brains have the ability to keep changing and learning. Each one of these books offers a helpful nudge in a new direction. My essays and articles have appeared in numerous publications including the Washington Post, Luxe, and Variable West, and are listed as notable in the 2019 Best American Science and Nature Writing. I’m currently at work on a second memoir about motherhood and the way travel cultivates a willing acceptance of uncertainty. 

Tanya's book list on alzheimer’s caregivers

Tanya Ward Goodman Why did Tanya love this book?

The title poem in this collection, (made from lines spoken by the poet’s mother,) manages to embody both caregiver and loved one as Constantine gives gentle structure to a string of seemingly disconnected utterances. Each poem in the book explores themes of loss, memory, and family through a different lens, creating an almost kaleidoscopic vision of the world. The collection is a rumination, a celebration, and a beautiful example of how poetry can expand our perspectives and teach us to speak and hear new rhythms.  

By Brendan Constantine,

Why should I read it?

1 author picked Dementia, My Darling as one of their favorite books, and they share why you should read it.

What is this book about?

As with Constantine's previous titles, Dementia, My Darling can be enjoyed at random or in order. However, when taken in sequence, the poems construct a thesis on life as we remember it from moment to moment. What is your first memory of love? How soon will you forget answering that question?


Book cover of The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Other Dementias, and Memory Loss

Laura Wayman Author Of A Loving Approach to Dementia Care: Making Meaningful Connections While Caregiving

From my list on dementia and how to find joy while caregiving.

Why am I passionate about this?

During my decades of working with caregivers as a dementia care expert, I have heard many accounts of what the experience is like—from the sad and hollow to experiences rich in significance. Everyone faces obstacles when caring for a loved one; some of these obstacles come in the form of uncomfortable or painful emotional histories or past unresolved conflicts. After each opportunity to raise awareness and understanding about how dementia impacts individuals, their families, and their communities, I have been gratified to witness enhanced feelings of hope and comfort for all involved. It is my hope that through this book I will enter your home or your professional caregiving setting and work alongside you. 

Laura's book list on dementia and how to find joy while caregiving

Laura Wayman Why did Laura love this book?

The 36-Hour Day is a comprehensive guide for caregivers that is often recommended by physicians to the families caring for a loved one with any cause of dementia symptoms or cognitive decline. I found the information provided very practical on the medical, legal, financial, and emotional aspects of caring for an individual presenting any level of dementia symptoms.

The clinical insights provided were very helpful, and the information for the caregiver throughout on the value of accessing outside help is such an important reminder for them to not try and navigate this dementia care journey alone!

Combining practical advice with specific examples on how to cope with the challenges associated with caring for a loved one with dementia symptoms make this an excellent guide for the family caregiver.

By Nancy L. Mace, Peter V. Rabins,

Why should I read it?

2 authors picked The 36-Hour Day as one of their favorite books, and they share why you should read it.

What is this book about?

Through five editions, The 36-Hour Day has been an essential resource for families who love and care for people with Alzheimer disease. Whether a person has Alzheimer disease or another form of dementia, he or she will face a host of problems. The 36-Hour Day will help family members and caregivers address these challenges and simultaneously cope with their own emotions and needs. Featuring useful takeaway messages and informed by recent research into the causes of and the search for therapies to prevent or cure dementia, this edition includes new information on * devices to make life simpler and safer…


Book cover of The Conscious Caregiver: A Mindful Approach to Caring for Your Loved One Without Losing Yourself

Iris Waichler Author Of Role Reversal: How to Take Care of Yourself and Your Aging Parents

From my list on caregiving and the challenges it brings.

Why am I passionate about this?

I have been a medical social worker for over 40 years working with people who have had a catastrophic illness. I counseled them and their family members. Because of this experience, I have a lot of knowledge, experience, and training regarding the challenges caregivers face. In addition, I was the primary caregiver for my parents and helped take care of 2 friends helping them to die with dignity. Finally, I am the author of an 8-time award-winning book called Role Reversal How to Take Care of Yourself and Your Aging Parents. I have written hundreds of articles on health-related topics including aging and caregiving.

Iris' book list on caregiving and the challenges it brings

Iris Waichler Why did Iris love this book?

In my experience working with caregivers burnout is the biggest challenge. This book offers readers real-life case examples and exercises to help caregivers understand themselves better. It helps caregivers closely examine their options as the needs of the person they care for change. It focuses a lot on the psychological issues and challenges the caregiver relationship creates for all who are involved. 

By Linda Abbit,

Why should I read it?

1 author picked The Conscious Caregiver as one of their favorite books, and they share why you should read it.

What is this book about?

Being a caregiver is a difficult role. It requires pateince, tenderness, selflessness, and hard work. Providing care for another human being, whether a parent, loved one, or as a professional requires a level of self love and self care as well that can not be ignored.
While it may be a rewarding experience to care for a loved one, it can also be a stressful, both emotionally and mentally. It is easy to get caught up in taking care of someone else that you forget to take care of yourself and your own physical and emotional well being as well.…


Book cover of My Sibling

Dawn Huebner Author Of The Sibling Survival Guide: Surefire Ways to Solve Conflicts, Reduce Rivalry, and Have More Fun with Your Brothers and Sisters

From my list on for siblings who squabble.

Why am I passionate about this?

I am a Child Psychologist and Author turned Parent Coach who often hears about the bickering, put-downs, jealousy, and conflict sapping families with multiple children. Telling them to “cut it out” clearly does nothing. Kids need not only the skills (how to talk, how to listen, how to manage feelings and resolve conflict) but also the motivation to use them, a combination I have spent my career thinking about, writing about, and teaching. All of the books I have written, and all that I recommend, include this winning combination of skills and motivation with the aim of helping children live happier lives.

Dawn's book list on for siblings who squabble

Dawn Huebner Why did Dawn love this book?

My Sibling is an activity book with drawing prompts, stickers, crafts, and activities just right for 6-10-year-olds. Touching on jealousy, fairness, sharing, and more, the book gently guides children to try new ways of thinking and behaving towards their siblings. An extensive section for parents and caregivers more fully explains what parents can do to help their children get along.

By Isabelle Filliozat, Éric Veillé (illustrator),

Why should I read it?

1 author picked My Sibling as one of their favorite books, and they share why you should read it.

What is this book about?

This helpful activity book offers activities to help kids get along with their brothers and sisters. Kids think that they are expected to love their brothers and sisters unconditionally, but sibling relationships can be really complicated. This book covers jealousy, fairness, sharing, parent-relationship, and tons more and helps kids find a common ground with their siblings if things get too fraught or upsetting. Includes an extensive section for parents and caregivers with tools and tips for exploring the topic.


Book cover of Dying Well

Kirsten DeLeo Author Of Present Through the End: A Caring Companion's Guide for Accompanying the Dying

From my list on how to support a dying person.

Why am I passionate about this?

I have accompanied dying people for more than twenty-five years—as a counsellor, volunteer chaplain, and companion. I feel passionate about changing the perception of dying and death, the way we care for people during their most vulnerable moments, and how we support families through this painful time. Since my twenties I have been immersed in Buddhist practise which inspires and informs my life and work. Together with other clinicians and mindfulness practitioners, we created one of the first contemplative-based training in end-of-life care for caregivers called “Authentic Presence”. Daring to be present might be the hardest thing you may have done in your life, and, you may come to discover, one of the most intimate, beautiful, and rewarding.

Kirsten's book list on how to support a dying person

Kirsten DeLeo Why did Kirsten love this book?

Dr. Ira Byock is a well-known authority in palliative care and hospice and a wonderful storyteller. In his stories, he talks about the physical realities of the dying process, the emotional despair we may witness, or how to handle family dynamics. He doesn't shy away from reflecting on his personal growth doing this work, which makes this book deeply human and relatable. Dying Well was published several years ago. It is still an informative and insightful read, especially if you are a family caregiver and care for a loved one. Please also check out his other books, Four Things That Matter Most and The Best Care Possible.

By Ira Byock,

Why should I read it?

1 author picked Dying Well as one of their favorite books, and they share why you should read it.

What is this book about?

From Ira Byock, prominent palliative care physician and expert in end of life decisions, a lesson in Dying Well.

Nobody should have to die in pain. Nobody should have to die alone.

This is Ira Byock's dream, and he is dedicating his life to making it come true. Dying Well brings us to the homes and bedsides of families with whom Dr. Byock has worked, telling stories of love and reconciliation in the face of tragedy, pain, medical drama, and conflict. Through the true stories of patients, he shows us that a lot of important emotional work can be accomplished…


Book cover of Alzheimer's Daughter

Ann Campanella Author Of Motherhood: Lost and Found: A memoir

From my list on inspiring memoirs about Alzheimer’s and Dementia.

Why am I passionate about this?

An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.   

Ann's book list on inspiring memoirs about Alzheimer’s and Dementia

Ann Campanella Why did Ann love this book?

I can’t even imagine having both parents diagnosed with Alzheimer’s on the same day. But Jean Lee handles this situation with grace and devotion. Through her parents’ letters, she shares their love story. Ed and Ibby have a beautiful bond as do their daughters, yet the girls face a challenging road of caregiving that is sad, humorous, and touching, but always a model for how to love well. In Jean’s book, she casts a spell of nostalgia, faith, and whimsy, pulling the reader into a circle of intimacy. 

By Jean Lee,

Why should I read it?

2 authors picked Alzheimer's Daughter as one of their favorite books, and they share why you should read it.

What is this book about?

What would you do if both parents were diagnosed with Alzheimer’s?At the time of their diagnosis, Ed Church struggles to his feet, yelling, “How dare you use the A. word with me,” while Ibby wags her finger at the doctor scolding, “Shame on you.”They protect each other, Ibby by asserting, “We’re not leaving our home,” and Ed reassuring, “We’re just fine.”About his driving Ed defends, “I’m an excellent driver, I’ve never had an accident.” When their daughter, Rosie, finds dings in Ed’s car, he dismisses, “Someone must have bumped into me.”After Rosie moves them to assisted living, convinced they are…


Book cover of How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers

Karen Havelin Author Of Please Read This Leaflet Carefully: Keep This Leaflet. You May Need to Read It Again.

From my list on to help you keep on living with chronic illness.

Why am I passionate about this?

Like my main character, I’m a Norwegian writer with ties to the US, who grew up with various chronic illnesses. I discovered the reason for much of my trouble when I was diagnosed with endometriosis. Isolated and in pain, I have always turned to books. I craved seeing my life reflected. Since Please Read This Leaflet Carefully came out, I’ve heard from many readers. I hope that it can help people who haven’t seen themselves in art before. This list addresses the needs of a life with chronic illness and pain: guidance, darkness, humor, comfort, and poetry. I hope these books will help you as much as they did me. 

Karen's book list on to help you keep on living with chronic illness

Karen Havelin Why did Karen love this book?

How to Be Sick is a soothing and strengthening book that offers tools that are useful for any creature living a life with a human body and heart. It contains many Buddhist-inspired mindfulness techniques that I use daily, such as ways to adjust one’s thoughts and approach, ways to work with acceptance and grief, and ways to find pleasure and joy when they are hard to come by.

By Toni Bernhard,

Why should I read it?

1 author picked How to Be Sick as one of their favorite books, and they share why you should read it.

What is this book about?

A brand-new edition of the best-selling classic with added and updated practices.

In 2001, Toni Bernhard got sick and, to her and her partner’s bewilderment, stayed that way. As they faced the confusion, frustration, and despair of a life with sudden limitations—a life that was vastly different from the one they’d thought they’d have together—Toni had to learn how to be sick. In spite of her many physical and energetic restrictions (and sometimes, because of them), Toni learned how to live a life of equanimity, compassion, and joy. This book reminds us that our own inner freedom is limitless, regardless…


Book cover of Motherhood: Lost and Found: A memoir

Vicki Tapia Author Of Somebody Stole My Iron: A Family Memoir of Dementia

From my list on Alzheimer’s and dementia caregiving stories.

Why am I passionate about this?

I am a caregiver who became an author. Both my parents had dementia. I found few books written from a personal perspective to give me guidance, so the journal I kept ultimately became the book I wished I could have read during our dementia journey. The journey didn’t end for me with the death of my parents. It led me to form a non-profit with two other dementia authors. This passion project has become a global community of authors who have written about Alzheimer’s and dementia from personal experience. Now more than 300 strong, we provide quality resources for caregivers and others concerned about dementia. Learn more at AlzAuthors.com.

Vicki's book list on Alzheimer’s and dementia caregiving stories

Vicki Tapia Why did Vicki love this book?

Ann Campanella’s memoir details her journey through caregiving for her mother with Alzheimer’s at the same time she was struggling to start her own family. I felt it all: the anxiety, the frustration, as well as the pain, as she watched her mother decline while coping with an inability to conceive. Ann’s book reminded me to appreciate life’s joys, no matter how small, whether riding a beloved horse, marveling at a sunset, smelling a beautiful flower, or offering a simple hug. 

By Ann Campanella,

Why should I read it?

2 authors picked Motherhood as one of their favorite books, and they share why you should read it.

What is this book about?

Ann Campanella, a freelance writer and horsewoman, returns to North Carolina after a several year absence. In her mid thirties and ready to start a family, she is used to setting goals and accomplishing them. But when Ann experiences a series of miscarriages at the same time her mother shows signs of Alzheimer’s, she plunges into an emotional journey that leads her to a deeper understanding of herself and what it means to love.

"One of the best Alzheimer's books of all time." - Book Authority


Book cover of The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease Into a Crisis and What We Can Do about It

Andrew E. Budson and Maureen K. O'Connor Author Of Six Steps to Managing Alzheimer's Disease and Dementia: A Guide for Families

From my list on to understand dementia.

Why are we passionate about this?

As a neurologist and neuropsychologist team who have spent their entire clinical, teaching, and research careers focused on individuals and their families experiencing memory loss, Alzheimer’s disease, and dementia, our goal is simple. We want to empower individuals and their families with the tools they need to manage memory loss, Alzheimer’s disease, and dementia. We work to balance pharmacological and nonpharmacological management, as well as the needs of the individual with those of their family. Reading books like the ones in our list plus articles in medical journals keeps us current with the progress in the science of dementia and the humanity of individuals and families living with the disease. 

Andrew's book list on to understand dementia

Andrew E. Budson and Maureen K. O'Connor Why did Andrew love this book?

First, this book provides a wonderful history of the important discoveries of the different aspects of the disease. You also learn the stories behind many aspects of the disease that are now taken for granted—even with our 25+ years of treating people with this disease and conducting research to understand it better, we learned a lot. Dr. Karlawish also explains why research into dementia languished for more than 50 years. Finally, he raises many thought-provoking ethical issues that people with dementia, doctors, and society will need to wrestle with if we are going to solve “The Problem of Alzheimer’s.” 

By Jason Karlawish, Jason Karlawish,

Why should I read it?

2 authors picked The Problem of Alzheimer's as one of their favorite books, and they share why you should read it.

What is this book about?

A definitive and compelling book on one of today's most prevalent illnesses.

In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050.

Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its…


Book cover of The House on Beartown Road: A Memoir of Learning and Forgetting

Tanya Ward Goodman Author Of Leaving Tinkertown

From my list on alzheimer’s caregivers.

Why am I passionate about this?

With more than 6-million Americans living with Alzheimer’s, my story is a shared narrative. Because reading creates empathy, I work to widen the perspective of my writing and include voices different from my own. Thanks to neuroplasticity, healthy brains have the ability to keep changing and learning. Each one of these books offers a helpful nudge in a new direction. My essays and articles have appeared in numerous publications including the Washington Post, Luxe, and Variable West, and are listed as notable in the 2019 Best American Science and Nature Writing. I’m currently at work on a second memoir about motherhood and the way travel cultivates a willing acceptance of uncertainty. 

Tanya's book list on alzheimer’s caregivers

Tanya Ward Goodman Why did Tanya love this book?

I was a new mother when I read this Alzheimer’s memoir and immediately felt that I’d found a friend. Elizabeth Cohen is funny, lyrical, and sometimes (understandably) frustrated as she takes on the bruising balance of managing a career while simultaneously caring for her aging father and her young daughter. The book is a testimony to the healing power of story and provided a valuable model to me as I sought to make sense of my own family experience by committing my memories to the page.

By Elizabeth Cohen,

Why should I read it?

1 author picked The House on Beartown Road as one of their favorite books, and they share why you should read it.

What is this book about?

'Daddy walks around, dropping pieces of language behind him, the baby following, picking them up. He asks for 'the liquid substance from the spigot'. She asks for 'wawa'. He wants a tissue to wipe his 'blowing device'. She says 'Wipe, Mummy' and points to her runny nose. The brain of my father and the brain of my daughter have crossed. On their ways to opposite sides of life, they have made an X-On his way out of life, Daddy has passed her the keys.' Soon after her daughter's first birthday, her husband walked out of their rambling old house in…