The most recommended HIV/AIDS books

Who picked these books? Meet our 65 experts.

65 authors created a book list connected to HIV/AIDS, and here are their favorite HIV/AIDS books.
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Book cover of Where We Go from Here

Abdi Nazemian Author Of Only This Beautiful Moment

From my list on queer youth to make you laugh, cry, and grow.

Why am I passionate about this?

I grew up feeling invisible in media, and absent in history. My Iranian history was hidden from me by a culture that believed shielding young people from trauma was the right thing to do, and my queer history was hidden from me by a homophobic time. I’m passionate about the power of seeing yourself represented in storytelling and in history, and have devoted much of my life to telling queer stories, and queer historical stories. As a parent, as a queer Iranian storyteller, as a passionate believer in art as a tool for empathy, these are books I think will both entertain readers and inspire them to love their fellow humans a little more.

Abdi's book list on queer youth to make you laugh, cry, and grow

Abdi Nazemian Why did Abdi love this book?

My personal wish is that Americans start reading a whole lot more books from other countries, especially books that shine a light on the queer experience around the world.

Ours is a global community, and we can’t fall into the trap of thinking diversity only exists in our own country and language. Lucas Rocha’s novel tells the story of three Brazilian teens who are dealing with the impact of HIV in their own unique ways. It’s engrossing, tender, and transporting.

Anyone who loves this should also seek out the work of Vitor Martins, and should demand more books in translation so we can travel through literature.

By Lucas Rocha, Larissa Helena (translator),

Why should I read it?

1 author picked Where We Go from Here as one of their favorite books, and they share why you should read it. This book is for kids age 14, 15, 16, and 17.

What is this book about?

Henrique has had HIV for three years.
Ian has just tested positive.
Victor got with Henrique last night and thinks he might have it.

Ian, Victor and Henrique must navigate treatment, friendship and love, and eventually learn to trust each other.

Because with judgement and ignorance lurking round every corner, the real challenge isn't the disease - it's other people.

Brazilian author Lucas Rocha unveils the common misconceptions and prejudices that still surround HIV in the twenty-first century, showing how far we've come while shining a light on just how far we have yet to go.


Book cover of Heaven's Coast: A Memoir

Ricky Ian Gordon Author Of Seeing Through: A Chronicle of Sex, Drugs, and Opera

From my list on saving my life when I was miserable.

Why am I passionate about this?

I felt, after the AIDS crisis, as if I had been one person before it and another after it. I lost so many friends, collaborators, colleagues, and then finally, my own lover, I felt like the shell-shocked survivor of a war after it at least abated somewhat. Then my two sisters and both my parents died, and I became someone whose topic, no matter how veiled it is, is grief and loss. I am a living coffin on its way to a funeral to the sound of a cortège I composed.

Ricky's book list on saving my life when I was miserable

Ricky Ian Gordon Why did Ricky love this book?

Mark Doty writes of a time when his lover Wally was dying of AIDS. They were living in Provincetown on Pearl Street. It was recommended to me by my friend, the poet Michael Klein. I read it immediately following my partner Jeffrey’s death from AIDS when I was deranged and inconsolable.

Mark’s descriptions of daily life, including never-ending exquisite descriptions of walking his dog Beau along the ocean, hypnotized me as if it were not a book but a spell. After I finished the book, I tracked down Mark and told him he had to be my friend, and we were, for a summer.

By Mark Doty,

Why should I read it?

1 author picked Heaven's Coast as one of their favorite books, and they share why you should read it.

What is this book about?

HEAVEN'S COAST is an anatomy of loss: tender, heartbreaking, consoling and, ultimately, incredibly moving. Beginning with the first onset of AIDS and its lengthening shadow over a blissful relationship, the book follows the shifting patterns between two loves as the illness takes hold - the change in them and the change in the way they perceive the world, through the lens of grief. Doty examines the nature of AIDS as opposed to other illnesses, the responses of society, the frustration of medical care and the exhausting - and occasionally uplifting - burden of caring for the dying at home.


Book cover of Modern Nature

Linda Newbery Author Of Set in Stone

From Linda's 3 favorite reads in 2024.

Why am I passionate about this?

Author Campaigner Animal advocate Vegan Photographer Walker

Linda's 3 favorite reads in 2024

Linda Newbery Why did Linda love this book?

Derek Jarman's memoir immerses us in his world, or rather worlds - his life as a film-maker in London, and as an out gay man diagnosed with HIV at a time when that gave a grim outlook, and his other life at Prospect Cottage on Dungeness, where he enjoyed the complete contrast of quietness and often solitude. He says that in another life he could have been a gardener, and loves creating his iconic garden of pebbles, maritime plants and objects found on the shore. We go back and forth from childhood memories to the present, from accounts of making his films and being in the media spotlight to details of herbs and remedies. Derek Jarman is an engaging diarist, full of contradictions and charm.

By Derek Jarman,

Why should I read it?

2 authors picked Modern Nature as one of their favorite books, and they share why you should read it.

What is this book about?

Derek Jarman tells the story of his discovery that he is HIV+ and, in a series of flashbacks, looks at his life - his difficult relationship with his father, his discovery of his homosexuality and the dramatic exposure of his first homosexual relationship, his university days and his coming out at art school in the company of contemporaries such as David Hockney and Patrick Proctor. He goes on to describe his early work as a stage designer , his affair with Robert Mapplethorpe and his early encouragement of David Lynch. The cast list also includes Francis Bacon, Andy Warhol, Kenneth…


Book cover of Walking Through Clear Water in a Pool Painted Black

Joseph Ridgwell Author Of Burrito Deluxe

From my list on road novels of all time.

Why am I passionate about this?

I’ve been obsessed with travel and novels that feature travel in the narrative since my early teens. A near-death experience at the age of nineteen, forced me to confront my own limited life experiences and encouraged me to travel the globe and see some of the world we live in before it was too late, as there’s nothing worse than too late. Also growing up on an inner city council estate instilled a desire to escape the urban environment and international travel and travel writing satisfied those compelling urges.

Joseph's book list on road novels of all time

Joseph Ridgwell Why did Joseph love this book?

This is a collection of short stories by John Waters bit-part actress—Cookie Mueller. Most of the well-crafted stories in this cult classic are autobiographical, and most feature the author’s travels around America and Europe, and the rest of the world. Cookie has a unique literary voice, and reading her stories it’s like you are actually getting to know the author personally. Criminally out of print for many years, this excellent book was recently re-published in the UK by Canongate. Unfortunately, Cookie died at the tender age of 40, and so was unable to fulfill her undoubted potential. 

By Cookie Mueller,

Why should I read it?

1 author picked Walking Through Clear Water in a Pool Painted Black as one of their favorite books, and they share why you should read it.

What is this book about?

The first collected edition of legendary writer, actress, and adventurer Cookie Mueller's stories, featuring the entire contents of her 1990 book Walking through Clear Water in a Pool Painted Black, alongside more than two dozen others, some previously unpublished.

Legendary as an underground actress, female adventurer, and East Village raconteur, Cookie Mueller's first calling was to the written word: "I started writing when I was six and have never stopped completely," she once confessed. Muellerís 1990 Walking through Clear Water in a Pool Painted Black, the first volume of the Semiotext(e) Native Agents series, was the largest collection of stories…


Book cover of Carved in Bone

John Copenhaver Author Of The Savage Kind

From my list on slow burn psychological suspense.

Why am I passionate about this?

I’m a historical mystery writer, English teacher, and book reviewer for Lambda Literary. I love to write and explore buried and forgotten histories, particularly those of the LGBTQ+ community. Equally, I’m fascinated by the ways in which self-understanding eludes us and is a life-long pursuit. For that reason, as a reader, I’m attracted to slow burn psychological suspense in which underlying, even subconscious, motivations play a role. I also love it when I fall for a character who, in life, I’d find corrupt or repulsive.


John's book list on slow burn psychological suspense

John Copenhaver Why did John love this book?

One of the qualities of mystery fiction that continues to draw me to the genre is the complex interplay between past and present. Nava’s 8th Rios novel utilizes separate narrative lines that resonate and then, like a parallel perspective drawing, converge in a powerful emotional twist. The first line is the story of Bill Ryan, a young gay man who, after being cast out of his home in Illinois, flees to 1970s San Francisco to discover himself and the gay community. The second line is Rios’s recovery from alcoholism and his investigation of Ryan’s suspicious death during the beginning of the AIDS epidemic. Ryan and Rios serve as foils: Ryan is a man losing the war with his self-loathing. Rios, in contrast, is winning his war.

By Michael Nava,

Why should I read it?

1 author picked Carved in Bone as one of their favorite books, and they share why you should read it.

What is this book about?

November, 1984. Criminal defense lawyer Henry Rios, fresh out of rehab and picking up the pieces of his life, reluctantly accepts work as an insurance claims investigator and is immediately is assigned to investigate the apparently accidental death of Bill Ryan. Ryan, part of the great gay migration into San Francisco in the 1970s, has died in his flat of carbon monoxide poisoning from a faulty gas line, his young lover barely surviving. Rios’s investigation into Ryan’s death–which Rios becomes convinced was no accident–tracks Ryan’s life from his arrival in San Francisco as a terrified 18-year-old to his transformation into…


Book cover of Contagious: Cultures, Carriers, and the Outbreak Narrative

Andrea Kitta Author Of The Kiss of Death: Contagion, Contamination, and Folklore

From my list on reads before the next pandemic.

Why am I passionate about this?

I’ve been interested in medicine and how stories influence the decisions that people make for as long as I can remember. Watching family and friends make choices about their own healthcare was always fascinated to me and I was always curious as to why some narratives had more staying power than others. After getting my BA in history, I was lucky enough to talk to someone who suggested that I study folklore. I ended up with both a MA and PhD in folklore and became a professor who studies the intersection of folklore and how it affects the medical decisions we all make in our own lives and the lives of others. 

Andrea's book list on reads before the next pandemic

Andrea Kitta Why did Andrea love this book?

This is an amazing book if you want to understand that disease isn’t just medical, it’s also cultural.

Contagious really describes how culture influences how we understand illness and how that affects treatment and care of individuals, including who we blame and how we understand risk.

People like to think of medicine and science as being detached and objective, but this book shows that simply isn’t true. 

By Priscilla Wald,

Why should I read it?

1 author picked Contagious as one of their favorite books, and they share why you should read it.

What is this book about?

How should we understand the fear and fascination elicited by the accounts of communicable disease outbreaks that proliferated, following the emergence of HIV, in scientific publications and the mainstream media? The repetition of particular characters, images, and story lines-of Patients Zero and superspreaders, hot zones and tenacious microbes-produced a formulaic narrative as they circulated through the media and were amplified in popular fiction and film. The "outbreak narrative" begins with the identification of an emerging infection, follows it through the global networks of contact and contagion, and ends with the epidemiological work that contains it. Priscilla Wald argues that we…


Book cover of Tinderbox: How the West Sparked the AIDS Epidemic and How the World Can Finally Overcome it

Stephanie Nolen Author Of 28: Stories of AIDS in Africa

From my list on understanding Africa’s AIDS pandemic and feeling hopeful.

Why am I passionate about this?

I’m the global health reporter for The New York Times, the latest iteration in 30 years as a foreign correspondent. I’ve covered wars and humanitarian disasters, but it’s health stories that have always drawn me most. Health stories are intimate and personal, but they’re also about politics and economics, and social norms – about power. I’ve written about the Zika virus crisis in Brazil, child malnutrition in India, teen suicide in the Arctic – but no story has drawn me in and kept me riveted like Africa’s AIDS pandemic has over the past 25 years. I intend to keep reporting on it until the day a cure is found.

Stephanie's book list on understanding Africa’s AIDS pandemic and feeling hopeful

Stephanie Nolen Why did Stephanie love this book?

Craig Timberg was a reporting colleague when I was a correspondent in South Africa, and became a friend, one with whom I often passionately disagreed.

That’s why I suggest this book: it offers a very different perspective than mine. Craig and his co-author Halperin, an epidemiologist whose work had a big influence on Craig’s thinking, draw a clear through-line for how Western powers created the sparks of the African epidemic then vigorously fanned them.

A significant chunk of the book focuses on solutions (Halperin is a vociferous champion of male circumcision as an intervention to drive down the spread of the virus). It’s a brisk read that makes complex epidemiological dynamics accessible.

By Craig Timberg, Daniel Halperin,

Why should I read it?

1 author picked Tinderbox as one of their favorite books, and they share why you should read it.

What is this book about?

In this groundbreaking narrative, longtime Washington Post reporter Craig Timberg and award-winning AIDS researcher Daniel Halperin tell the surprising story of how Western colonial powers unwittingly sparked the AIDS epidemic and then fanned its rise. Drawing on remarkable new science, Tinderbox overturns the conventional wisdom on the origins of this deadly pandemic and the best ways to fight it today.

Recent genetic studies have traced the birth of HIV to the forbidding equatorial forests of Cameroon, where chimpanzees carried the virus for millennia without causing a major outbreak in humans. During the Scramble for Africa, colonial companies blazed new routes…


Book cover of Arkansas

Clark T. Carlton Author Of A Bitch for God

From my list on full of intimate self-revelations.

Why am I passionate about this?

I’ve always been drawn to artists who expose their lives in a way that makes you feel you know them. The best of them have a raw honesty that shows their flaws, their wounds and struggles and hopefully the lessons they learned. Nobody likes bragging, but we’re captivated by accounts that echo our own secrets, embarrassments, and darker emotions, especially if told with a sense of humor. For decades, I’ve been addicted to the confessional lyrics of Joni Mitchell and have always been drawn to the unguarded openness of certain memoirs and the roman-à-clef or thinly disguised autobiography. In showing us their vulnerabilities, these authors have been heroic.  

Clark's book list on full of intimate self-revelations

Clark T. Carlton Why did Clark love this book?

If I have to pick one of David’s books, it’s Arkansas - Three Novellas.

The first of them, Saturn Street, came out of the time he volunteered at Project Angel Food, a nonprofit where I worked as a chef. David described us chefs as “fussy” (we were) in his intimate account of a driver who delivers meals to a client homebound with AIDS, a man the driver falls in love with. David also alludes to one of my favorite episodes of Star Trek.  

In The Term-Paper Artist, we get an even more confessional novella in which a writer by the name of David Leavitt trades the writing of term papers for the sexual favors of attractive college boys. Whether a true story or a fictionalized one, it doesn’t get more emotionally honest than this and it’s a novella as funny as it is outrageous. 

By David Leavitt,

Why should I read it?

1 author picked Arkansas as one of their favorite books, and they share why you should read it.

What is this book about?

Here are three novellas of escape and exile, touching and funny and at times calculatedly outrageous. In "Saturn Street," a disaffected L.A. screenwriter delivers lunches to homebound AIDS patients, only to find himself falling in love with one of them. In "The Wooden Anniversary," Nathan and Celia - familiar characters from Leavitt's story collections - reunite after a five-year separation. And in "The Term-Paper Artist," a writer named David Leavitt, hiding out at his father's house in the aftermath of a publishing scandal, experiences literary rejuvenation when he agrees to write term papers for UCLA undergraduates in exchange for sex.


Book cover of Incredible Hulk Epic Collection: Fall Of The Pantheon

Reginald Wiebe Author Of The Cancer Plot: Terminal Immortality in Marvel's Moral Universe

From my list on superhero comics that consider illness.

Why am I passionate about this?

I’ve been a devoted reader of superhero comics since I was bequeathed a battered pile of comics (along with a giant felt-covered Denver Broncos cowboy hat. The love of superheroes stuck; I’m ambivalent about the Broncos). In that pile was Superboy #195, a comic I can still recite from memory decades later. The combination of clever plotting, visual storytelling, and fantastical escapism hooked me immediately. While building an academic career as a university professor, I held on to this “secret origin” and never stopped wondering what made superhero stories tick.

Reginald's book list on superhero comics that consider illness

Reginald Wiebe Why did Reginald love this book?

This book contains a rare examination of HIV/AIDS in superhero comics. It’s much more likely a superhero story will deal with HIV/AIDS allegorically (see the recommendation above!) than directly.

Given the Hulk’s own fears about his blood contaminating his loved ones (his cousin Jennifer Walters became the She-Hulk after a transfusion of his blood), he is uniquely sympathetic to the illness of a friend who contracts HIV. As longtime Hulk writer David advances subplots (at this point, Bruce Banner and the Hulk have merged into a more-or-less well-adjusted form of the famous giant green rage monster), he builds space to linger on character details.

David himself has struggled with health issues in recent years, and this comic is also a reminder of one of the genre’s great writers.

By Peter David, John Estes (illustrator), Jim Craig (illustrator)

Why should I read it?

1 author picked Incredible Hulk Epic Collection as one of their favorite books, and they share why you should read it.

What is this book about?

Hulk goes to Hel and back! First, Hulk and the Pantheon face a painful - and all-too-human - loss. But Hela herself soon claims the Hulk in an Asgardian underworld epic! Then, it's the end of an era as the Pantheon is torn apart from within! Agamemnon stands trial, one among them falls and the Hulk's rage transforms him into a savage…Bruce Banner?! While Doc Samson strives to save Bruce's mind, Betty battles for her life - and the stage is set for a new status quo. In hiding and struggling to remain calm, the Hulk takes on Man-Thing, the…


Book cover of Tell the Wolves I'm Home

Shannon Takaoka Author Of The Totally True Story of Gracie Byrne

From my list on totally awesome stories set in the 80s.

Why am I passionate about this?

My soul still possesses a little of my teenage self, which is why I set my latest book in 1987. Whitney Houston had one of the biggest songs, Dirty Dancing was released, and a little girl nicknamed Baby Jessica was rescued from a well. I’m told this makes The Totally True Story of Gracie Byrne “historical fiction” which, honestly, is a little alarming, because sometimes 1987 doesn’t seem like that long ago. Other times it feels ancient. I picked a few of these books because they’re full of nostalgia for a slower, analog time. But mainly I chose them for the voice, characters, and great writing.

Shannon's book list on totally awesome stories set in the 80s

Shannon Takaoka Why did Shannon love this book?

Tell the Wolves I’m Home is literary and lyrical and it broke my heart into a thousand pieces while simultaneously piecing it back together again.

When June loses her beloved Uncle Finn at the height of the AIDs epidemic, she also loses the person who understands her the most. Then she forms a friendship with the partner he left behind, Toby, and together they help each other through the loneliness they both feel without him.

I liked that this book isn’t afraid to explore complicated relationships – especially between siblings. It also shines a light on a time when ignorance caused so much pain, through characters who are confused, flawed, and deeply human. The writing is beautiful.  

By Carol Rifka Brunt,

Why should I read it?

1 author picked Tell the Wolves I'm Home as one of their favorite books, and they share why you should read it.

What is this book about?

NEW YORK TIMES BESTSELLER • A heartfelt story of love, grief, and renewal about two unlikely friends who discover that sometimes you don’t know you’ve lost someone until you’ve found them

“A dazzling debut novel.”—O: The Oprah Magazine
“Tremendously moving.”—The Wall Street Journal
“Touching and ultimately hopeful.”—People
 
1987. The only person who has ever truly understood fourteen-year-old June Elbus is her uncle, the renowned painter Finn Weiss. Shy at school and distant from her older sister, June can be herself only in Finn’s company; he is her godfather, confidant, and best friend. So when he dies, far too young, of…


Book cover of Where We Go from Here
Book cover of Heaven's Coast: A Memoir
Book cover of Modern Nature

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