Here are 100 books that Dying Well fans have personally recommended if you like
Dying Well.
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I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.
My mom and I are competing to see who can give away more copies of this book; we love it that much. Both of us have been bedside caregivers for dying relatives and have seen firsthand how beautiful that process can be if people are prepared.
I love how the book is designed with nice, large print, lovely illustrations, and little snacks of insight sprinkled throughout in boxes and “fast facts.” This book is the essential What to Expect When You’re Expecting–but for death.
“A gentle, knowledgeable guide to a fate we all share” (The Washington Post): the first and only all-encompassing action plan for the end of life.
“There is nothing wrong with you for dying,” hospice physician B.J. Miller and journalist and caregiver Shoshana Berger write in A Beginner’s Guide to the End. “Our ultimate purpose here isn’t so much to help you die as it is to free up as much life as possible until you do.”
Theirs is a clear-eyed and big-hearted action plan for approaching the end of life, written to help readers feel more in control of an…
I have spent the last 50 years exploring the intersection of Eastern and Western thought and spirituality. Along the way, I experientially learned the details of three of my former lifetimes: as a rabbi in 3rd-century Alexandria, as a tantric yogini and follower of Achi Chokyi Nyima in China, and as the legendary courtesan Lady Mori, who became the disciple and lover of the Zen master Ikkyu in 15th-century Japan. Studying the ways my previous incarnations are interconnected has taught me much about how the principles of karma and reincarnation function in real-time in the actual world, and I treasure the opportunity to share these insights with you.
When it was published in 1992, Rinpoche’s superior translation replaced the first English translation of The Tibetan Book of the Dead from 1927. This has been a go-to for anyone preparing for their own death or that of a loved one, when the Western way of dying falls short. This book is an indispensable guide to the process of life and death.
Explains the Tibetan understanding of what happens when a person dies, and how this can help in a person's daily life, in caring for the terminally ill and the bereaved, and to deepen one's understanding of life.
I have accompanied dying people for more than twenty-five years—as a counsellor, volunteer chaplain, and companion. I feel passionate about changing the perception of dying and death, the way we care for people during their most vulnerable moments, and how we support families through this painful time. Since my twenties I have been immersed in Buddhist practise which inspires and informs my life and work. Together with other clinicians and mindfulness practitioners, we created one of the first contemplative-based training in end-of-life care for caregivers called “Authentic Presence”. Daring to be present might be the hardest thing you may have done in your life, and, you may come to discover, one of the most intimate, beautiful, and rewarding.
If you are looking for a ‘quick fix' or 'how to’ read, this book may at first glance not be the most obvious choice. Awake at the Bedside is not your traditional guidebook. It is a moving and insightful collection of essays written by clinicians, chaplains, caregivers, pioneers in end-of-life care, contemplative teachers, and poets. Each essay sheds light on the different facets of what it means to show up at the bedside and the opportunity to wake up to each moment. I contributed a chapter on spiritual care, but that’s not why I recommend this volume. I recommend it because it is written by caregivers for caregivers—honest, reflective, compassionate, inspirational, and practical. A human and compassionate vision for end-of-life care.
This book isn’t about dying. It’s about life and what life has to teach us. It’s about caring and what giving care really means.
In Awake at the Bedside, pioneers of palliative and end-of-life care as well as doctors, chaplains, caregivers and even poets offer wisdom that will challenge, uplift, comfort—and change the way we think about death.
Equal parts instruction manual and spiritual testimony, it includes specific instructions and personal accounts to inspire, counsel, and teach. An indispensable resource for anyone involved in hospice work or caregiving of any kind.
Contributors include Anyen Rinpoche, Coleman Barks, Craig D. Blinderman,…
I have accompanied dying people for more than twenty-five years—as a counsellor, volunteer chaplain, and companion. I feel passionate about changing the perception of dying and death, the way we care for people during their most vulnerable moments, and how we support families through this painful time. Since my twenties I have been immersed in Buddhist practise which inspires and informs my life and work. Together with other clinicians and mindfulness practitioners, we created one of the first contemplative-based training in end-of-life care for caregivers called “Authentic Presence”. Daring to be present might be the hardest thing you may have done in your life, and, you may come to discover, one of the most intimate, beautiful, and rewarding.
Intimate Death stands out through its spare and poetic language, its astute observation of the experiences of illness and dying, and matters of human dignity. Marie de Hennezel is a French psychologist. With great compassion and sensitivity, she shares her conversations with patients. She tells of life's unfinished business and how she learned to attend to it. Her writing is beautiful and transformative. It will touch your heart and change how you will view death.
Another book I would like to mention is Henri Nouwen’s Our Greatest Gifts: A Meditation on Dying and Caring. Nouwen is a Catholic priest and spiritual writer. Like de Hennezel, he touches the reader through his poetic and direct style.
Marie de Hennezel is a psychologist who works as part of a team of doctors and nurses in a hospital for the terminally ill in Paris. The men and women who come there do not always know that they are dying. It is Marie de Hennezel's aim to bring them - and their loved ones - to this knowledge, and then to encourage them to live each day that remains as fully and serenely as possible. This work seeks to show how precious the final days of a person's life can be, and how deeply moving it is to share…
I’m a doctor working in the NHS and for a national cancer charity. I’m particularly interested in the care of the terminally ill. I‘ve worked closely with hospice teams, feeling enormously privileged to be with patients considering their options at the end of life. I’ve noticed how often people die without having even mentioned their wishes to loved ones, they are reluctant to speak of their fears, and as a result, these discussions never occur. I believe we need to open up the conversation about dying by bringing it into the public domain, dragging it into popular culture, and making it a feature of our films, television, and books.
Mannix is a retired Palliative Care Consultant, and this wonderful book takes case studies from her long career and presents them as vignettes designed to reassure a readership who may be anxious about the process of dying. She relates each story with candour and humility, acknowledging how much she has learnt from her patients and their families whilst glossing over the enormous impact that she has evidently had on their care.
This is an incredibly useful book for those working with people at the end of life, but it is also a really lovely read for anyone fearful of death, anyone who has felt the impact of a family bereavement, and anyone who will one day face death themselves, i.e., every single one of us.
'Impossible to read with dry eyes or an unaltered mindset' Sunday Times
'Illuminating and beautiful' Cathy Rentzenbrink
What if everything you thought you knew about death was wrong?
How should we prepare for the facts of dying and saying our goodbyes?
And what if understanding death improved your life?
By turns touching and tragic, funny and wise, With the End in Mind brings together Kathryn Mannix ' s lifetime of medical experience to tell powerful stories of life and death.
I am a literary and cultural historian who has been studying death for three decades. But I am, first and foremost, a human who has suffered the loss of loved ones and grief and found my immediate culture an inhospitable place to experience, transform, and share those emotions. We have an urgent need to “re-imagine” the way we prepare for our own deaths, as well as experience the deaths of others. I hope my work, both as a scholar and a public citizen, will inspire people to form communities of conversation and action that will reshape the way we think about death, dying, and grief.
Like a lot of people, I am fascinated by “inner vision”: what do people think, feel, and experience in extreme states that they struggle to describe to others?
This book is based on such an approach to the question: a palliative care doctor and team gather the stories of people experiencing visions while undergoing the massive transformation of dying. By re-thinking these deathbed visions not as feverish delusions but as insights into human experience, I was deeply moved on multiple levels. You can sense the dying person’s powerful drive to connect with the past and sometimes with the present, which makes the “hallucinations” quite real emotionally. You can also sense how important sharing the stories is to the loved ones in their grieving process.
Christopher Kerr is a hospice doctor. All of his patients die. Yet he has tended thousands of patients who, in the face of death, speak of love, meaning and grace. They reveal that there is hope beyond cure as they transition to focus on personal meaning. In this extraordinary and beautiful book, Dr. Kerr shares his patients' stories and his own research pointing to death as not purely the end of life, but as a final passage of humanity and transcendence.
Drawing on interviews with over 1,200 patients and more than a decade of quantified data , Dr. Kerr reveals…
I’ve been a little bit morbid since childhood. My father died when I was not quite 10 years old, and my mother was a huge fan of horror novels and scary movies. But I became seriously interested in death and dying when my mother got cancer and was facing the end of her own life. I acted as her medical advocate and participated in many aspects of her care. I'm also a sociologist who studies taboo elements of culture and I'm invested in creating a consciousness shift so that the United States is less death-phobic, allowing us all to live our lives more fully by addressing our mortality head-on!
I read this book for the first time about five years ago, and my first thought when I finished it was, “Everyone who is going to die needs this book.” This is the best thing I’ve read on the personal choices around dying and supporting someone who is dying.
I love the clear, level-headed, plain-spoken, simple, and elegant text and the way that Tisdale uses personal storytelling and philosophical reflection to help us address what we might otherwise avoid. I will return to this book over and over as I support sick or dying friends, and you can bet it will be on my bedside table if I am ever diagnosed with a terminal illness.
Award-winning writer and nurse Sallie Tisdale offers a lyrical, thought-provoking yet practical perspective on death and dying in this frank, direct and compassionate meditation on the inevitable. _______________________________________
From the sublime to the ridiculous, Tisdale leads the reader through the peaks and troughs of death with a calm, wise and humorous hand. More than a how-to manual or a spiritual bible, this is a graceful compilation of honest and intimate anecdotes based on the deaths Tisdale has witnessed in her work and life, as well as stories from cultures, traditions and literature around the world.
I am an advocate for end-of-life planning. When my dad entered his eighties, and while still raising my own children, I found myself unprepared for my father’s steady health decline. Suddenly, I was thrust into the role of overseeing his care and making hard decisions. Our difficulties were exacerbated by a western medical system that fell short to prepare us for the end of his life. After my dad’s death, I began researching end-of-life issues to educate myself and plan for my own senior years. I have a goal to support others who face losing a parent and to facilitate healing for those who have already lost one. I also strive to inform and inspire the next generation to learn and plan early to guide themselves and their families to minimize avoidable problems and enhance quality elder years.
This book was helpful for me to navigate the finale of my parent’s lives. But The Art of Dying Well isn't just about one's parents. Many baby boomers are unprepared for dealing with their own aging. I suggest reading it well before you need it. Knowledge is power, and Butler's book gave me the gift of learning more now, while things are relatively calm. A crisis visit to an ER isn't the time to cram in education and research. You may need to be an advocate for yourself or someone you love sooner than later. I have suggested the book to my siblings and friends, which will hopefully lead to meaningful conversation and planning to support each other through our elder years. I am grateful for Butler's practical guide, which is filled with wisdom and resources. I anticipate referring to it again and again as I age.
This "comforting...thoughtful" (The Washington Post) guide to maintaining a high quality of life-from resilient old age to the first inklings of a serious illness to the final breath-by the New York Times bestselling author of Knocking on Heaven's Door is a "roadmap to the end that combines medical, practical, and spiritual guidance" (The Boston Globe).
"A common sense path to define what a 'good' death looks like" (USA TODAY), The Art of Dying Well is about living as well as possible for as long as possible and adapting successfully to change. Packed with extraordinarily helpful insights and inspiring true stories,…
I’m an Emeritus Fellow of Clare College, Cambridge, and I’ve written several popular books as well as featuring in TV/radio programmes such as In Our Time and Start the Week (BBC). I love the challenge of explaining to general audiences why the history of science is such an exciting and important subject – far more difficult than writing an academic paper. I believe that studying the past is crucial for understanding how we’ve reached the present – and the whole point of doing that is to improve the future. My underlying preoccupations involve exploring how and why western science has developed over the last few centuries to become the dominant (and male-dominated) culture throughout the world.
After I decided to include this old favourite of mine, I discovered to my great delight that Bodies Politic is about to be reissued in paperback. Roy Porter was the most prolific, fluent and insightful academic I have ever been privileged to know, and decades ago, his lectures inspired me to recognise how much fun historical research can be. In my own work, I have focused strongly on images – not only in textbooks, but also in journals, art galleries and albums. As Porter expertly discusses, studying caricatures is immensely enjoyable but also invaluable for uncovering concealed controversies, which provide crucial indicators of what people really thought.
In a historical tour de force, Roy Porter takes a critical look at representations of the body in death, disease and health, and at images of the healing arts in Britain from the mid-seventeenth to the twentieth century. Porter's key assumptions are that the human body is the chief signifier and communicator of all manner of meanings religious, moral, political and medical and that pre-scientific medicine was an art which depended heavily on ritual, rhetoric and theatre. Porter argues that great symbolic weight was attached to contrasting conceptions of the healthy and diseased body, and that such ideas were mapped…
I am an author and illustrator of children's picturebooks, having completed my MA at the Cambridge School of Art. I am endlessly fascinated with the picture book as a rich medium for children to safely and slowly approach topics that might be challenging for them. Picture books can be such a versatile, interesting place for curiosity and confidence to thrive, while also creating a lovely time for closeness between parent/carer and child. As we grapple with the long-term effects of the pandemic, I feel that children will need stories more than ever, to help them make sense of their experiences.
This subtle and tender book is a moving look at life continuing in small moments after a bereavement. I love the marriage of words and images, where each part tells a different piece of the story and the relationship between the boy and his father. The boy asks questions, about the birds, the trees, the fox, and his mother, looking for reassurance. When the father repeats "everything is going to be alright," we are all reassured and comforted, and held safe in arms like a boat.
It's quieter than it's ever been. Unable to sleep, a young boy climbs into his father's arms. Feeling the warmth and closeness of his father, he begins to ask questions about the birds, the foxes, and whether his mom will ever wake up. They go outside under the starry sky. Loss and love are as present as the white spruces, while the father's clear answers and assurances calm his worried son. Here we feel the cycles of life and life's continuity, even in the face of absence and loss, so strongly and clearly that we know at the end that…
