The most recommended books about terminal illness

Who picked these books? Meet our 59 experts.

59 authors created a book list connected to terminal illnesses, and here are their favorite terminal illness books.
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Book cover of Turtle Boy

Diana Renn Author Of Trouble at Turtle Pond

From my list on young environmentalists.

Why am I passionate about this?

I live in a town near a wildlife refuge. I frequently encounter wildlife, including turtles, in my neighborhood. Trouble at Turtle Pond was inspired by volunteer work my son and I did with a local conservation group, fostering endangered Blanding’s turtles. Although my previous books were mysteries set in other countries, I have become interested in the mysteries we can find in our own back yards and in other community spaces we share with nature. I love eco-fiction about kids who love animals, who are “nature detectives,” who have strong opinions, and who are working for the environment, recognizing that every small step makes a difference.

Diana's book list on young environmentalists

Diana Renn Why did Diana love this book?

This book is one of my favorite middle-grade novels. At first glance, it may not look like it’s about an environmentalist. Indeed, it is about many things. A boy with a medical condition that affects his chin and jaw. Bullying, grief, anxiety, drumming (!), bar mitzvah prep, coming out of one’s shell. And Will is not exactly modeling good conservation practices by taking turtles from the nearby marsh, caring for them in his bedroom, or gifting a Blanding’s turtle to a boy he visits in the hospital. But Will’s learning process about these turtles and their threatened habitat is a major part of this riveting novel. Will’s identification with turtles is deep, symbolic, incredibly moving. Treat yourself to the audio version, narrated in a lively way by this multi-talented author.

By M. Evan Wolkenstein,

Why should I read it?

2 authors picked Turtle Boy as one of their favorite books, and they share why you should read it. This book is for kids age 10, 11, 12, and 13.

What is this book about?

This is a powerful story of hope and friendship, perfect for fans of Wonder and The Goldfish Boy. Exploring self-image, family and grief, this book will make you laugh and cry.

Meet Will Levine.
Here are three things Will loves: turtles, the nature reserve behind school, being left alone.
And one thing Will really hates: his nickname.

Kids at school call Will Turtle Boy because of his funny-looking chin. But when Will meets RJ, he learns not everyone is his enemy. RJ has a bucket list of adventures which extends way beyond his hospital room, and he needs help ticking…


Book cover of The Next Thing You Know

Carol Van Den Hende Author Of Always Orchid

From my list on star-crossed soul mates.

Why am I passionate about this?

As mom to a special needs child and an Asian American author, I’m passionate about diversity and inclusion. My mission is to inspire hope and empathy for people and planet. I believe that love can conquer all, whether it be familial, romantic, or love for humankind. Star-crossed love puts that power to the test. That’s why I’m drawn to these emotional, beautiful books. I’m proud that author Karin Tanabe recommended my work in Glamour Magazine as “a modern, important take on the power of love,” that my books have won Royal Dragonfly Awards for Disability Awareness and Cultural Diversity, and that Springboard Consulting named me Disability Hero of the Year. 

Carol's book list on star-crossed soul mates

Carol Van Den Hende Why did Carol love this book?

The Next Thing You Know resonated with me on several levels. First, main character Mason grapples with a disabling injury that hampers his career as a musician. Second, the death doula that works with him to heal emotionally is faced with the difficult decision whether she should cross professional client lines to share her true feelings. 

There are beautiful scenarios that reminded me of my series. In moving scenes, Nova shows Mason that there are other ways to create music other than performing. And he realizes that he has a lot to live for. 

This is an emotional story told with heart and insight!

By Jessica Strawser,

Why should I read it?

1 author picked The Next Thing You Know as one of their favorite books, and they share why you should read it.

What is this book about?

When Nova Husson, an end-of-life doula, meets Mayson Shaylor, everything she knows is cast into doubt. Committed to a world and profession that allows the elderly to bow out gracefully, taking on a younger man's case is unique, and tragic. Not to mention the fact that the once beloved singer-songwriter now must hang up his guitar for good, after a debilitating degenerative disease takes away the use of his hands. He's determined that there is no future for him, while she's determined to make him see there's life, even as death approaches. But Nova also holds powerful secrets of her…


Book cover of The Top Five Regrets of the Dying: A Life Transformed by the Dearly Departing

Sandi Holst Author Of Breathe! You Got This!: Fortunes Favor The Inspired

From my list on getting what you want in life.

Why am I passionate about this?

I am the first in my family to go into business for myself. Now, it took me years of thinking about it before I made the jump. I was scared to take that step, but I did it. My expertise came from 25 years of managing hundreds of clients in numerous industries. I loved how successful people can be with the craziest of ideas. How can you find your passion so you are happy and loving what you are doing in life? How do you overcome the fear of failure, move forward with your desires, and become abundant in doing it? 

Sandi's book list on getting what you want in life

Sandi Holst Why did Sandi love this book?

I read this book at a time when I was contemplating changes in my life but a little stuck in my direction. The title interested me because I was getting older, and I certainly didn’t want to get to my senior years wishing I had done more.

I loved this book because it gave me a swift kick in the butt to live life to the fullest now, not later. It taught me to stop wasting time. The hopes and desires I kept pushing to the sidelines all the time now became my priorities. 

By Bronnie Ware,

Why should I read it?

1 author picked The Top Five Regrets of the Dying as one of their favorite books, and they share why you should read it.

What is this book about?

'This book had a profound effect on my life.' - Dr Wayne W. Dyer, bestselling author of I Can See Clearly Now

Bronnie was looking for a 'job with heart'. Through circumstance, she became a carer to the dying. Over the years that she assisted people to the end of their lives, Bronnie continuously heard them expressing the same regrets over and over again. Struck by the common threads between these regrets, she wrote a blog post about them, called 'The Top Five Regrets of the Dying'. In just one year, it had reached 3 million views.

Based on Bronnie's…


Book cover of When My Time Comes: Conversations about Whether Those Who Are Dying Should Have the Right to Determine When Life Should End

Barbara Coombs Lee Author Of Finish Strong: Putting Your Priorities First at Life's End

From my list on opening to death to live your most joyful life.

Why am I passionate about this?

I first started tending patients at age 15, as a candy striper at St. Joseph Hospital. That was a long time ago, and since then I’ve learned much at patients’ bedsides, in Congress, statehouses and courtrooms. Through sequential careers in nursing, medicine, law, and advocacy, I learned that end-of-life experiences have the most to teach us about being truly present to our lives, about learning to love well and growing in wisdom. Personal autonomy, individual empowerment, and guided planning are all key to moving past our fear of death. In the end, as Seneca observed, “The art of living well and dying well are one.”

Barbara's book list on opening to death to live your most joyful life

Barbara Coombs Lee Why did Barbara love this book?

Diane is the curious and savvy public radio journalist who educated even as she entertained so many Americans, presenting conversations on every aspect of life in arts, science, and politics. I came to know Diane when I appeared on her show and was transfixed by watching her expertly navigate advanced broadcast technology even as she sized up her guests, crafted questions from her own astute observations, and coaxed her guests to reveal things they perhaps did not intend. In this book, she shares her most personal side as she considers options at the end of a life well-lived. Her wisdom is gleaned from personal history plus thousands of interviews, and she generously shares it with us. 

By Diane Rehm,

Why should I read it?

1 author picked When My Time Comes as one of their favorite books, and they share why you should read it.

What is this book about?

The renowned radio host and one of the most trusted voices in the nation candidly and compassionately addresses the hotly contested right-to-die movement, of which she is one of our most inspiring champions. The basis for the acclaimed PBS series.

Through interviews with terminally ill patients and their relatives, as well as physicians, ethicists, religious leaders, and representatives of both those who support and vigorously oppose this urgent movement, Rehm gives voice to a broad range of people personally linked to the realities of medical aid in dying. With characteristic evenhandedness, she provides the full context for this highly divisive…


Book cover of Extreme Measures: Finding a Better Path to the End of Life

Lisa J. Shultz Author Of A Chance to Say Goodbye: Reflections on Losing a Parent

From my list on end-of-life planning.

Why am I passionate about this?

I am an advocate for end-of-life planning. When my dad entered his eighties, and while still raising my own children, I found myself unprepared for my father’s steady health decline. Suddenly, I was thrust into the role of overseeing his care and making hard decisions. Our difficulties were exacerbated by a western medical system that fell short to prepare us for the end of his life. After my dad’s death, I began researching end-of-life issues to educate myself and plan for my own senior years. I have a goal to support others who face losing a parent and to facilitate healing for those who have already lost one. I also strive to inform and inspire the next generation to learn and plan early to guide themselves and their families to minimize avoidable problems and enhance quality elder years.


Lisa's book list on end-of-life planning

Lisa J. Shultz Why did Lisa love this book?

The author, Dr. Zitter, is described as an expert on the medical experience of death and dying. Her specialties of pulmonary/critical care and palliative care brought to life the spectrum between a comfortable, natural death versus a "keep alive at all costs" mentality. This book was thoughtful and presented many sides of difficult dying experiences. I found it incredibly valuable to understand typical trajectories that might occur at the end of life from illness, organ failure, frailty, or dementia. It helped me gain clarity on my own wishes, and I encourage others to read the book and then discuss it with loved ones. Rather than it being a depressing subject matter, it has the potential to be a gift if the reader can move into a place of communicating and documenting wishes for end-of-life.

By Jessica Nutik Zitter,

Why should I read it?

1 author picked Extreme Measures as one of their favorite books, and they share why you should read it.

What is this book about?

For readers of Being Mortal and Modern Death, an ICU and Palliative Care specialist offers a framework for a better way to exit life that will change our medical culture at the deepest level


In medical school, no one teaches you how to let a patient die.

Jessica Zitter became a doctor because she wanted to be a hero. She elected to specialize in critical care—to become an ICU physician—and imagined herself swooping in to rescue patients from the brink of death. But then during her first code she found herself cracking the ribs of a patient so old and…


Book cover of Mortality

Loren Mayshark Author Of Death: An Exploration: Learning To Embrace Life's Most Feared Mystery

From my list on the art of living and dying.

Why am I passionate about this?

Loren Mayshark is the author of three non-fiction books. His first book Death: An Exploration won the 2016 Beverly Hills Book Award in the category of Death & Dying and was selected as the honorable mention recipient for the book of the year in the 2016 Foreword INDIES Awards in the category of Grief/Grieving (Adult Nonfiction). Mayshark has a BA in World History with a minor in World Religion from Manhattanville College.

Loren's book list on the art of living and dying

Loren Mayshark Why did Loren love this book?

Hitchens was a man on a mission with a razor sharp intellect. These precious words written while Hitchens was losing a fatal battle with cancer are fascinating and he touches on some profound ideas. I was especially struck by the conviction of a man who was a staunch atheist unflinchingly prepared for a godless death. Hitchens was not only witty, but inspirational and courageous.

By Christopher Hitchens,

Why should I read it?

1 author picked Mortality as one of their favorite books, and they share why you should read it.

What is this book about?

The starting point of this book was when Christopher Hitchens found he was being deported 'from the country of the well across the stark frontier that marks off the land of malady'. Over the next year he underwent the brutal gamut of cancer treatment, enduring huge levels of suffering and eventually losing the power of speech.

Mortality is at once an unsparingly honest account of the ravages of his disease and the climax of a lifetime's work of fierce debate and peerless prose. In this confrontation with mortality Hitchens writes eloquently of his fear of losing the ability to write,…


Book cover of Bang the Drum Slowly

Carl Deuker Author Of Golden Arm

From my list on sports books about more than sports.

Why am I passionate about this?

For 20 years, I tried to write politically relevant, “important” novels. I teach. One day I told my students that to succeed as a writer, they needed to write about things they knew and loved. Honesty was the key. That night, I resumed work on a novel set in Prague involving Cold War intrigue, capitalism, communism, and some other "isms" I’ve forgotten. I wrote a paragraph and then stopped. My advice was good. Write about things you know and love. So why not follow it myself? What section of the newspaper did I read first? The sports page. Did I live and die with my favorite sports teams? Yes. I put my hopeless Prague novel aside and started On the Devil’s Court. For better or worse, a sportswriter is who I am.

Carl's book list on sports books about more than sports

Carl Deuker Why did Carl love this book?

Okay, two books--but they’re really one. The Southpaw is about Henry Wiggen the baseball player finding his way in the major leagues.  A sports book by and large.  And then the fastball to the heart--Bang the Drum Slowly. The vagaries and tragedies of life intrude on the pristine baseball field, and Wiggen and the rest have to deal with reality:  boys grow into men; men sicken, men die. These books inspired me when I decided to become a writer of sports novels. They showed me that not only could I write a sports book about more than sports, but also that I needed to write a sports book about more than sports. Why bother otherwise? 

By Mark Harris,

Why should I read it?

1 author picked Bang the Drum Slowly as one of their favorite books, and they share why you should read it.

What is this book about?

Henry Wiggen, hero of The Southpaw and the best-known fictional baseball player in America, is back again, throwing a baseball "with his arm and his brain and his memory and his bluff for the sake of his pocket and his family." More than a novel about baseball, Bang the Drum Slowly is about the friendship and the lives of a group of men as they each learn that a teammate is dying of cancer. Bang the Drum Slowly was chosen as one of the top one hundred sports books of all time by Sports Illustrated and appears on numerous other…


Book cover of Self-Help

Mike Schnaidt Author Of Creative Endurance: 56 Rules for Overcoming Obstacles and Achieving Your Goals

From my list on books to help you achieve your creative goals.

Why am I passionate about this?

As both a professor of graphic design and creative director of Fast Company, I’m dedicated to helping others be more creative. At Fast Company, my job is to ensure the visuals for the world’s leading business media brand are consistently innovative. (Yea…no pressure.) Honestly, sometimes it’s tough to be innovative when I’m faced with a squeezed schedule, a towering to-do list, and a bargain basement budget. But, as a marathoner, I’ve learned that if you want to be successful, you need to push through sub-optimal circumstances. That’s where these five books come into play: they all provide relatable stories and insights into achieving success, despite tough odds. Let’s do this.

Mike's book list on books to help you achieve your creative goals

Mike Schnaidt Why did Mike love this book?

I dig Lorrie Moore’s sense of humor in this book. Before I began my journey as a writer, I read the chapter “How to Become a Writer.” (Ironic, I know.) While this chapter pokes fun at the torture of being a writer, it also taught me that humor can help us feel like our obstacles aren’t so insurmountable.

By Lorrie Moore,

Why should I read it?

1 author picked Self-Help as one of their favorite books, and they share why you should read it.

What is this book about?

From the national bestselling author of A Gate at the Stairs—and a master of contemporary American fiction—comes “a funny, cohesive, and moving collection of stories" (The New York Times Book Review). 

In these tales of loss and pleasure, lovers and family, a woman learns to conduct an affair, a child of divorce dances with her mother, and a woman with a terminal illness contemplates her exit. Filled with the sharp humor, emotional acuity, and joyful language Moore has become famous for, these nine glittering tales marked the introduction of an extravagantly gifted writer.


Book cover of Moonglow

Sid Garza-Hillman Author Of Six Truths: Live by These Truths and Be Happy. Don't, and You Won't.

From my list on fiction books that are secretly philosophy books.

Why am I passionate about this?

This list is specifically “secret” philosophy books. There were plenty of novels (Victor Hugo, Milan Kundera, Robert Pirsig) that I love, but they don’t hide the fact that they’re significantly philosophy books. My degree is in philosophy (BA, UCLA), with a special interest in ethics, ethical questions. I still really love the marriage of fiction and philosophy especially when it’s done subtly and beautifully. I am the author of three books: Approaching the Natural, Raising Healthy Parents. and Six Truths. I hold a BA in Philosophy from UCLA, am a public speaker, podcaster (What Sid Thinks Podcast), certified nutritionist & running coach, Oxygen Advantage breathing instructor, and founder of Small Steppers

Sid's book list on fiction books that are secretly philosophy books

Sid Garza-Hillman Why did Sid love this book?

This is a memoir of sorts, but a fiction book nevertheless. Again, the philosophy of life is shown through the dying grandfather. The book highlights the sometimes blurry lines between right and wrong, but also standing up for what is right, questions of personal sacrifice for the common good, and more.

By Michael Chabon,

Why should I read it?

1 author picked Moonglow as one of their favorite books, and they share why you should read it.

What is this book about?

A NEW YORK TIMES BESTSELLER * A Telegraph Book of the Year * A New York Times Notable Book of the Year * A Washington Post Book of the Year * A Wall Street Journal Book of the Year * A Slate Book of the Year

'Probably Chabon's greatest, a piece of sustained writing that will be hard to see outdone in 2017' The Times

'Entirely sure footed, propulsive, the work of a master at his very best. The brilliance of Moonglow stands as a strident defence of the form itself, a bravura demonstration of the endless mutability and versatility…


Book cover of Inside the O'Briens

Brendan Gerad O'Brien Author Of Gallows Field

From Brendan's 3 favorite reads in 2023.

Why am I passionate about this?

Author Family man Avid reader Passionate walker Swimmer

Brendan's 3 favorite reads in 2023

Brendan Gerad O'Brien Why did Brendan love this book?

Despite the unfortunate subject, this book was a joy to read.

Lisa Genova brilliantly captures the creeping confusion and unease when the family of a decorated Boston City cop notices his increasingly odd behavior, the unusual angry outbursts, the complaints that he was drunk on duty, and the sudden loss of balance.

It worries them enough to insist he gets a medical check-up. Their reaction when he’s diagnosed with Huntington’s Disease is beautifully described with compassion and dignity and an amazing insight into the four sibling’s individual emotions. Wallowing in the knowledge that each of them has a 50% chance of being stricken with Huntington’s disease, the siblings have different views about being tested for it.

Some don’t want to know, wishing to live their lives hoping it won’t catch up on them. The others prefer to know so they can brace themselves, living the life as best they can…

By Lisa Genova,

Why should I read it?

2 authors picked Inside the O'Briens as one of their favorite books, and they share why you should read it.

What is this book about?

A New York Times bestseller ▪ A Library Journal Best Books of 2015 Pick ▪ A St. Louis Post-Dispatch Best Books of 2015 Pick ▪A GoodReads Top Ten Fiction Book of 2015 ▪ A People Magazine Great Read

From New York Times bestselling author and neuroscientist Lisa Genova comes a “heartbreaking…very human novel” (Matthew Thomas, author of We Are Not Ourselves) that does for Huntington’s disease what her debut novel Still Alice did for Alzheimer’s.

Joe O’Brien is a forty-three-year-old police officer from the Irish Catholic neighborhood of Charlestown, Massachusetts. A devoted husband, proud father of four children in their…