As a cancer doctor, I have spent two decades dedicated to understanding the causes and therapy of cancer, how my patients experience their diagnosis and treatment, and how meaningful improvements in their experience should be reflected in the criteria we use to approve cancer drugs approval in the U.S., to improve their lives. In over 100 essays published in outlets like The New York Times and The Washington Post and in two books, I sing the stories of my patients as I learn from their undaunted spirits and their utter humanity, as I try to figure out how to be a better doctor, and a better person.
Less than a century ago, having a diagnosis of cancer was almost universally a death sentence, if the word was even uttered at all.
In The Emperor of All Maladies, Mukherjee (who overlapped in training with me) takes us back in time to the heroic – and at times cavalier and even brutal – procedures and discoveries that led to the very first cancer treatments, some of which are told by the people who pioneered those therapies.
In The Emperor of All Maladies, Siddhartha Mukherjee, doctor, researcher and award-winning science writer, examines cancer with a cellular biologist's precision, a historian's perspective, and a biographer's passion. The result is an astonishingly lucid and eloquent chronicle of a disease humans have lived with - and perished from - for more than five thousand years.
The story of cancer is a story of human ingenuity, resilience and perseverance, but also…
When my mother enrolled in hospice after years of living with cancer, the nurse asked her: Do you want to know what will happen to your body as it starts shutting down? That was the first time anyone talked with us about the dying process. The question came as an immense relief, eventually inspiring this book. After witnessing the difficulties and surprising joys of my mother’s dying experience, I began hospice volunteering. Later, I spent three intensive stints volunteering at San Francisco’s Zen Hospice Project. And as a former journalist and associate professor of English, I began researching and interviewing experts. Their deep caring and knowledge inform this book.
Until I began researching death and dying, I hadn’t realized my quest was so literal-minded. Despite the satisfyingly large number of relevant books, most circle around the subject, focusing on areas such as grief, the importance of creating a living will, or funeral planning—all important topics, but I wanted to learn about dying itself.
Then I discovered Nuland’s book. Chapter by chapter, he describes what we know about the physical experience of dying, depending on the type of death: Heart attacks, murders, falls, Alzheimer’s, cancer. Nuland’s background is in surgery, and his descriptions are neither graphic nor gory, but he doesn’t flinch from providing details. Although his book was first published in 1993, no one has yet matched its straightforward, informative approach.
NATIONAL BOOK AWARD WINNER • NATIONAL BESTSELLER • The definitive resource on perhaps the single most universal human concern: death.
Even more relevant than when it was first published, this edition addresses contemporary issues in end-of-life care and includes an all-embracing and incisive afterword that examines the state of health care and our relationship with life as it approaches its terminus. How We Die also discusses how we can take control of our own final days and those of our loved ones.
"Nuland's work acknowledges, with unmatched clarity, the harsh realities of how life departs… There is compassion, and often…
I am an advocate for end-of-life planning. When my dad entered his eighties, and while still raising my own children, I found myself unprepared for my father’s steady health decline. Suddenly, I was thrust into the role of overseeing his care and making hard decisions. Our difficulties were exacerbated by a western medical system that fell short to prepare us for the end of his life. After my dad’s death, I began researching end-of-life issues to educate myself and plan for my own senior years. I have a goal to support others who face losing a parent and to facilitate healing for those who have already lost one. I also strive to inform and inspire the next generation to learn and plan early to guide themselves and their families to minimize avoidable problems and enhance quality elder years.
This book was helpful for me to navigate the finale of my parent’s lives. But The Art of Dying Well isn't just about one's parents. Many baby boomers are unprepared for dealing with their own aging. I suggest reading it well before you need it. Knowledge is power, and Butler's book gave me the gift of learning more now, while things are relatively calm. A crisis visit to an ER isn't the time to cram in education and research. You may need to be an advocate for yourself or someone you love sooner than later. I have suggested the book to my siblings and friends, which will hopefully lead to meaningful conversation and planning to support each other through our elder years. I am grateful for Butler's practical guide, which is filled with wisdom and resources. I anticipate referring to it again and again as I age.
This "comforting...thoughtful" (The Washington Post) guide to maintaining a high quality of life-from resilient old age to the first inklings of a serious illness to the final breath-by the New York Times bestselling author of Knocking on Heaven's Door is a "roadmap to the end that combines medical, practical, and spiritual guidance" (The Boston Globe).
"A common sense path to define what a 'good' death looks like" (USA TODAY), The Art of Dying Well is about living as well as possible for as long as possible and adapting successfully to change. Packed with extraordinarily helpful insights and inspiring true stories,…
I first started tending patients at age 15, as a candy striper at St. Joseph Hospital. That was a long time ago, and since then I’ve learned much at patients’ bedsides, in Congress, statehouses and courtrooms. Through sequential careers in nursing, medicine, law, and advocacy, I learned that end-of-life experiences have the most to teach us about being truly present to our lives, about learning to love well and growing in wisdom. Personal autonomy, individual empowerment, and guided planning are all key to moving past our fear of death. In the end, as Seneca observed, “The art of living well and dying well are one.”
Diane is the curious and savvy public radio journalist who educated even as she entertained so many Americans, presenting conversations on every aspect of life in arts, science, and politics. I came to know Diane when I appeared on her show and was transfixed by watching her expertly navigate advanced broadcast technology even as she sized up her guests, crafted questions from her own astute observations, and coaxed her guests to reveal things they perhaps did not intend. In this book, she shares her most personal side as she considers options at the end of a life well-lived. Her wisdom is gleaned from personal history plus thousands of interviews, and she generously shares it with us.
The renowned radio host and one of the most trusted voices in the nation candidly and compassionately addresses the hotly contested right-to-die movement, of which she is one of our most inspiring champions. The basis for the acclaimed PBS series.
Through interviews with terminally ill patients and their relatives, as well as physicians, ethicists, religious leaders, and representatives of both those who support and vigorously oppose this urgent movement, Rehm gives voice to a broad range of people personally linked to the realities of medical aid in dying. With characteristic evenhandedness, she provides the full context for this highly divisive…
I’ve been a little bit morbid since childhood. My father died when I was not quite 10 years old, and my mother was a huge fan of horror novels and scary movies. But I became seriously interested in death and dying when my mother got cancer and was facing the end of her own life. I acted as her medical advocate and participated in many aspects of her care. I'm also a sociologist who studies taboo elements of culture and I'm invested in creating a consciousness shift so that the United States is less death-phobic, allowing us all to live our lives more fully by addressing our mortality head-on!
Atul Gawande is a doctor who writes like he’s a warm-hearted friend. I love the way that Gawande weaves stories about his medical practice into the story of his father’s life and death, while making deep insights into how we can improve hospital care, nursing home care, and end-of-life care for all.
I especially loved the chapters focused on re-envisioning health care and housing options for the elderly and ill. I love Gawande’s accessible style and the way he offers hope by looking at these issues from a very human perspective even when revealing problems that seem insurmountable from a distance.
'GAWANDE'S MOST POWERFUL, AND MOVING, BOOK' MALCOLM GLADWELL
'BEING MORTAL IS NOT ONLY WISE AND DEEPLY MOVING; IT IS AN ESSENTIAL AND INSIGHTFUL BOOK FOR OUR TIMES' OLIVER SACKS
For most of human history, death was a common, ever-present possibility. It didn't matter whether you were five or fifty - every day was a roll of the dice. But now, as medical advances push the boundaries of survival further each year, we have become increasingly detached from the reality of being mortal. So here is a book about the modern experience of mortality - about what it's…
I have accompanied dying people for more than twenty-five years—as a counsellor, volunteer chaplain, and companion. I feel passionate about changing the perception of dying and death, the way we care for people during their most vulnerable moments, and how we support families through this painful time. Since my twenties I have been immersed in Buddhist practise which inspires and informs my life and work. Together with other clinicians and mindfulness practitioners, we created one of the first contemplative-based training in end-of-life care for caregivers called “Authentic Presence”. Daring to be present might be the hardest thing you may have done in your life, and, you may come to discover, one of the most intimate, beautiful, and rewarding.
If you are looking for a ‘quick fix' or 'how to’ read, this book may at first glance not be the most obvious choice. Awake at the Bedside is not your traditional guidebook. It is a moving and insightful collection of essays written by clinicians, chaplains, caregivers, pioneers in end-of-life care, contemplative teachers, and poets. Each essay sheds light on the different facets of what it means to show up at the bedside and the opportunity to wake up to each moment. I contributed a chapter on spiritual care, but that’s not why I recommend this volume. I recommend it because it is written by caregivers for caregivers—honest, reflective, compassionate, inspirational, and practical. A human and compassionate vision for end-of-life care.
This book isn’t about dying. It’s about life and what life has to teach us. It’s about caring and what giving care really means.
In Awake at the Bedside, pioneers of palliative and end-of-life care as well as doctors, chaplains, caregivers and even poets offer wisdom that will challenge, uplift, comfort—and change the way we think about death.
Equal parts instruction manual and spiritual testimony, it includes specific instructions and personal accounts to inspire, counsel, and teach. An indispensable resource for anyone involved in hospice work or caregiving of any kind.
Contributors include Anyen Rinpoche, Coleman Barks, Craig D. Blinderman,…
As mom to a special needs child and an Asian American author, I’m passionate about diversity and inclusion. My mission is to inspire hope and empathy for people and planet. I believe that love can conquer all, whether it be familial, romantic, or love for humankind. Star-crossed love puts that power to the test. That’s why I’m drawn to these emotional, beautiful books. I’m proud that author Karin Tanabe recommended my work in Glamour Magazine as “a modern, important take on the power of love,” that my books have won Royal Dragonfly Awards for Disability Awareness and Cultural Diversity, and that Springboard Consulting named me Disability Hero of the Year.
The Next Thing You Know resonated with me on several levels. First, main character Mason grapples with a disabling injury that hampers his career as a musician. Second, the death doula that works with him to heal emotionally is faced with the difficult decision whether she should cross professional client lines to share her true feelings.
There are beautiful scenarios that reminded me of my series. In moving scenes, Nova shows Mason that there are other ways to create music other than performing. And he realizes that he has a lot to live for.
This is an emotional story told with heart and insight!
When Nova Husson, an end-of-life doula, meets Mayson Shaylor, everything she knows is cast into doubt. Committed to a world and profession that allows the elderly to bow out gracefully, taking on a younger man's case is unique, and tragic. Not to mention the fact that the once beloved singer-songwriter now must hang up his guitar for good, after a debilitating degenerative disease takes away the use of his hands. He's determined that there is no future for him, while she's determined to make him see there's life, even as death approaches. But Nova also holds powerful secrets of her…
I have accompanied dying people for more than twenty-five years—as a counsellor, volunteer chaplain, and companion. I feel passionate about changing the perception of dying and death, the way we care for people during their most vulnerable moments, and how we support families through this painful time. Since my twenties I have been immersed in Buddhist practise which inspires and informs my life and work. Together with other clinicians and mindfulness practitioners, we created one of the first contemplative-based training in end-of-life care for caregivers called “Authentic Presence”. Daring to be present might be the hardest thing you may have done in your life, and, you may come to discover, one of the most intimate, beautiful, and rewarding.
Mainly written for patients who decided to end treatment and want to prepare for death, this is a enlightening read for caregivers as well. It is a newer publication and will walk you through all the things you need to consider and talk about with the person as you plan ahead. Talking about these matters openly is uncomfortable and will bring up sadness. The gentle tone of this book will help you along the way. It will also help you prepare for your own death.
“A gentle, knowledgeable guide to a fate we all share” (The Washington Post): the first and only all-encompassing action plan for the end of life.
“There is nothing wrong with you for dying,” hospice physician B.J. Miller and journalist and caregiver Shoshana Berger write in A Beginner’s Guide to the End. “Our ultimate purpose here isn’t so much to help you die as it is to free up as much life as possible until you do.”
Theirs is a clear-eyed and big-hearted action plan for approaching the end of life, written to help readers feel more in control of an…
I am an advocate for end-of-life planning. When my dad entered his eighties, and while still raising my own children, I found myself unprepared for my father’s steady health decline. Suddenly, I was thrust into the role of overseeing his care and making hard decisions. Our difficulties were exacerbated by a western medical system that fell short to prepare us for the end of his life. After my dad’s death, I began researching end-of-life issues to educate myself and plan for my own senior years. I have a goal to support others who face losing a parent and to facilitate healing for those who have already lost one. I also strive to inform and inspire the next generation to learn and plan early to guide themselves and their families to minimize avoidable problems and enhance quality elder years.
The author, Dr. Zitter, is described as an expert on the medical experience of death and dying. Her specialties of pulmonary/critical care and palliative care brought to life the spectrum between a comfortable, natural death versus a "keep alive at all costs" mentality. This book was thoughtful and presented many sides of difficult dying experiences. I found it incredibly valuable to understand typical trajectories that might occur at the end of life from illness, organ failure, frailty, or dementia. It helped me gain clarity on my own wishes, and I encourage others to read the book and then discuss it with loved ones. Rather than it being a depressing subject matter, it has the potential to be a gift if the reader can move into a place of communicating and documenting wishes for end-of-life.
For readers of Being Mortal and Modern Death, an ICU and Palliative Care specialist offers a framework for a better way to exit life that will change our medical culture at the deepest level
In medical school, no one teaches you how to let a patient die.
Jessica Zitter became a doctor because she wanted to be a hero. She elected to specialize in critical care—to become an ICU physician—and imagined herself swooping in to rescue patients from the brink of death. But then during her first code she found herself cracking the ribs of a patient so old and…
As an active senior who seeks outdoor adventures and who cringes whenever I hear someone say, “I’m too old to [fill in the blank]…”, I love both writing and reading books with older characters who believe instead, “You’re never too old.” I’m drawn to stories where older folks defy stereotypes and continue to relish new experiences, especially those involving the things I most enjoy: camping, hiking, and climbing. Toss in some fun and laughter and I’m there!
Young Lewis is a believable and relatable character and the aging Chester Wheeler is a classic curmudgeon (at first). Their highly unusual cross-country journey in an old RV is an absolute delight, with both the young man and the old man demonstrating that age is not a barrier to friendship and personal growth.
Unlikely road trip companions form an unexpected bond in an uplifting novel about the past-lost and found-by the New York Times and #1 Amazon Charts bestselling author.
Lewis Madigan is young, gay, out of work, and getting antsy when he's roped into providing end-of-life care for his insufferable homophobic neighbor, Chester Wheeler. Lewis doesn't need the aggravation, just the money. The only requirements: run errands, be on call, and put up with a miserable old churl no one else in Buffalo can bear. After exchanging barbs, bickering, baiting, and pushing buttons, Chester hits Lewis with the big ask.
