The best books on end of life care

Who picked these books? Meet our 21 experts.

21 authors created a book list connected to end of life care, and here are their favorite end of life care books.
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When My Time Comes

By Diane Rehm,

Book cover of When My Time Comes: Conversations about Whether Those Who Are Dying Should Have the Right to Determine When Life Should End

Barbara Coombs Lee Author Of Finish Strong: Putting Your Priorities First at Life's End

From the list on opening to death to live your most joyful life.

Who am I?

I first started tending patients at age 15, as a candy striper at St. Joseph Hospital. That was a long time ago, and since then I’ve learned much at patients’ bedsides, in Congress, statehouses and courtrooms. Through sequential careers in nursing, medicine, law, and advocacy, I learned that end-of-life experiences have the most to teach us about being truly present to our lives, about learning to love well and growing in wisdom. Personal autonomy, individual empowerment, and guided planning are all key to moving past our fear of death. In the end, as Seneca observed, “The art of living well and dying well are one.”

Barbara's book list on opening to death to live your most joyful life

Discover why each book is one of Barbara's favorite books.

Why did Barbara love this book?

Diane is the curious and savvy public radio journalist who educated even as she entertained so many Americans, presenting conversations on every aspect of life in arts, science, and politics. I came to know Diane when I appeared on her show and was transfixed by watching her expertly navigate advanced broadcast technology even as she sized up her guests, crafted questions from her own astute observations, and coaxed her guests to reveal things they perhaps did not intend. In this book, she shares her most personal side as she considers options at the end of a life well-lived. Her wisdom is gleaned from personal history plus thousands of interviews, and she generously shares it with us. 

By Diane Rehm,

Why should I read it?

1 author picked When My Time Comes as one of their favorite books, and they share why you should read it.

What is this book about?

The renowned radio host and one of the most trusted voices in the nation candidly and compassionately addresses the hotly contested right-to-die movement, of which she is one of our most inspiring champions. The basis for the acclaimed PBS series.

Through interviews with terminally ill patients and their relatives, as well as physicians, ethicists, religious leaders, and representatives of both those who support and vigorously oppose this urgent movement, Rehm gives voice to a broad range of people personally linked to the realities of medical aid in dying. With characteristic evenhandedness, she provides the full context for this highly divisive…


So Long, Chester Wheeler

By Catherine Ryan Hyde,

Book cover of So Long, Chester Wheeler

Diane Winger Author Of Ellie Dwyer's Great Escape

From the list on proving you’re never too old for fun adventures.

Who am I?

As an active senior who seeks outdoor adventures and who cringes whenever I hear someone say, “I’m too old to [fill in the blank]…”, I love both writing and reading books with older characters who believe instead, “You’re never too old.” I’m drawn to stories where older folks defy stereotypes and continue to relish new experiences, especially those involving the things I most enjoy: camping, hiking, and climbing. Toss in some fun and laughter and I’m there! 

Diane's book list on proving you’re never too old for fun adventures

Discover why each book is one of Diane's favorite books.

Why did Diane love this book?

This story is a gem.

Young Lewis is a believable and relatable character and the aging Chester Wheeler is a classic curmudgeon (at first). Their highly unusual cross-country journey in an old RV is an absolute delight, with both the young man and the old man demonstrating that age is not a barrier to friendship and personal growth.

By Catherine Ryan Hyde,

Why should I read it?

1 author picked So Long, Chester Wheeler as one of their favorite books, and they share why you should read it.

What is this book about?

Unlikely road trip companions form an unexpected bond in an uplifting novel about the past-lost and found-by the New York Times and #1 Amazon Charts bestselling author.

Lewis Madigan is young, gay, out of work, and getting antsy when he's roped into providing end-of-life care for his insufferable homophobic neighbor, Chester Wheeler. Lewis doesn't need the aggravation, just the money. The only requirements: run errands, be on call, and put up with a miserable old churl no one else in Buffalo can bear. After exchanging barbs, bickering, baiting, and pushing buttons, Chester hits Lewis with the big ask.

Lewis can't…


Finish Strong

By Barbara Coombs Lee,

Book cover of Finish Strong: Putting Your Priorities First at Life's End

Haider Warraich Author Of Modern Death: How Medicine Changed the End of Life

From the list on death, medicine, and end of life care.

Who am I?

As a physician, I have been in innumerable situations where people and their loved ones were facing off a serious illness but felt like they were completely lost. The reality of the end of life is nothing like how we have experienced it throughout our history. I have written about end-of-life care for the New York Times, Washington Post, and The Atlantic amongst others, but felt that this was such an important and vast issue that it deserved a deeper dive. My research also focuses on end-of-life care and I was able to weave a story presented through stories, historical texts, and research papers in a way that readers will feel like they have a map of just how life and death have evolved with scientific advances and a changing society. It doesn’t hurt that I trained at Harvard Medical School and Duke University, providing me the best environments to shape my views and perspective.

Haider's book list on death, medicine, and end of life care

Discover why each book is one of Haider's favorite books.

Why did Haider love this book?

Barbara Coombs Lee is a nurse, lawyer, and leader of the movement to promote assisted death in the United States and around the world for people with terminal illnesses. Lee is a patient advocate at heart, a position she embodied given her work as a nurse. In this book, she provides a humane, eye witness view of what she saw as a nurse that inspired her to spark a movement that strives to give patients control over their bodies and medical decisions.

By Barbara Coombs Lee,

Why should I read it?

1 author picked Finish Strong as one of their favorite books, and they share why you should read it.

What is this book about?

From the President Emerita/Senior of Compassion & Choices, THE guide to achieving the positive end-of-life experience you want and deserve.It’s hard to talk about death in America. But even though the topic has been taboo, life’s end is an eventual reality. So why not shape it to our values? FINISH STRONG is for those of us who want an end-of-life experience to match the life we’ve enjoyed. We know we should prepare, but are unsure how to think and talk about it, how to live true to our values and priorities, and how to make our wishes stick.The usual advice…


At Peace

By Samuel Harrington,

Book cover of At Peace: Choosing a Good Death After a Long Life

Star Bradbury Author Of Successfully Navigating Your Parents' Senior Years: Critical Information to Maximize Their Independence and Make Sure They Get the Care They Need

From the list on helping you or your loved ones age successfully.

Who am I?

I have worked in senior living for over 25 years. I was the administrative director of both an assisted living facility as well as a memory care facility and then I worked for over 18 years in one of the top national Life Care Communities in the country. During this time, I helped thousands of families navigate the complex and confusing world of senior living. I wrote my book to help families make educated and informed decisions and know what they could do before a crisis! It is not if your parents will need help, it is when! I am passionate about passing on the knowledge of my years in this field. 

Star's book list on helping you or your loved ones age successfully

Discover why each book is one of Star's favorite books.

Why did Star love this book?

I found this book to be totally unique as it is informed by the many many years Dr. Harrington spent in a hospital ER, taking care of patients.

He goes into a great deal of information on the major diagnoses for seniors and at what point should you consider no longer treating a major illness. So many people do not want to spend their last days in a hospital or medical environment but sadly, many do.

If you want to opt out of pointless care, read this book to make an informed, educated decision!


By Samuel Harrington,

Why should I read it?

1 author picked At Peace as one of their favorite books, and they share why you should read it.

What is this book about?

The authoritative, informative, and practical follow up to BEING MORTAL, on end-of-life care for patients over the age of 65.

Most people say they would like to die quietly at home. But overly aggressive medical advice, coupled with an unrealistic sense of invincibility, results in the majority of elderly patients misguidedly dying in institutions while undergoing painful procedures, instead of having the better and more peaceful death they desired.
At Peace outlines specific active and passive steps that older patients and their health care proxies can take to insure loved ones pass their last days comfortably at home and/or in…


A Beginner's Guide to the End

By Bj Miller, Shoshana Berger,

Book cover of A Beginner's Guide to the End: Practical Advice for Living Life and Facing Death

Kirsten DeLeo Author Of Present Through the End: A Caring Companion's Guide for Accompanying the Dying

From the list on how to support a dying person.

Who am I?

I have accompanied dying people for more than twenty-five years—as a counsellor, volunteer chaplain, and companion. I feel passionate about changing the perception of dying and death, the way we care for people during their most vulnerable moments, and how we support families through this painful time. Since my twenties I have been immersed in Buddhist practise which inspires and informs my life and work. Together with other clinicians and mindfulness practitioners, we created one of the first contemplative-based training in end-of-life care for caregivers called “Authentic Presence”. Daring to be present might be the hardest thing you may have done in your life, and, you may come to discover, one of the most intimate, beautiful, and rewarding.

Kirsten's book list on how to support a dying person

Discover why each book is one of Kirsten's favorite books.

Why did Kirsten love this book?

Mainly written for patients who decided to end treatment and want to prepare for death, this is a enlightening read for caregivers as well. It is a newer publication and will walk you through all the things you need to consider and talk about with the person as you plan ahead. Talking about these matters openly is uncomfortable and will bring up sadness. The gentle tone of this book will help you along the way. It will also help you prepare for your own death.

By Bj Miller, Shoshana Berger,

Why should I read it?

2 authors picked A Beginner's Guide to the End as one of their favorite books, and they share why you should read it.

What is this book about?

“A gentle, knowledgeable guide to a fate we all share” (The Washington Post): the first and only all-encompassing action plan for the end of life.

“There is nothing wrong with you for dying,” hospice physician B.J. Miller and journalist and caregiver Shoshana Berger write in A Beginner’s Guide to the End. “Our ultimate purpose here isn’t so much to help you die as it is to free up as much life as possible until you do.”

Theirs is a clear-eyed and big-hearted action plan for approaching the end of life, written to help readers feel more in control of an…


Extreme Measures

By Jessica Nutik Zitter,

Book cover of Extreme Measures: Finding a Better Path to the End of Life

Lisa J. Shultz Author Of A Chance to Say Goodbye: Reflections on Losing a Parent

From the list on end-of-life planning.

Who am I?

I am an advocate for end-of-life planning. When my dad entered his eighties, and while still raising my own children, I found myself unprepared for my father’s steady health decline. Suddenly, I was thrust into the role of overseeing his care and making hard decisions. Our difficulties were exacerbated by a western medical system that fell short to prepare us for the end of his life. After my dad’s death, I began researching end-of-life issues to educate myself and plan for my own senior years. I have a goal to support others who face losing a parent and to facilitate healing for those who have already lost one. I also strive to inform and inspire the next generation to learn and plan early to guide themselves and their families to minimize avoidable problems and enhance quality elder years.


Lisa's book list on end-of-life planning

Discover why each book is one of Lisa's favorite books.

Why did Lisa love this book?

The author, Dr. Zitter, is described as an expert on the medical experience of death and dying. Her specialties of pulmonary/critical care and palliative care brought to life the spectrum between a comfortable, natural death versus a "keep alive at all costs" mentality. This book was thoughtful and presented many sides of difficult dying experiences. I found it incredibly valuable to understand typical trajectories that might occur at the end of life from illness, organ failure, frailty, or dementia. It helped me gain clarity on my own wishes, and I encourage others to read the book and then discuss it with loved ones. Rather than it being a depressing subject matter, it has the potential to be a gift if the reader can move into a place of communicating and documenting wishes for end-of-life.

By Jessica Nutik Zitter,

Why should I read it?

1 author picked Extreme Measures as one of their favorite books, and they share why you should read it.

What is this book about?

For readers of Being Mortal and Modern Death, an ICU and Palliative Care specialist offers a framework for a better way to exit life that will change our medical culture at the deepest level


In medical school, no one teaches you how to let a patient die.

Jessica Zitter became a doctor because she wanted to be a hero. She elected to specialize in critical care—to become an ICU physician—and imagined herself swooping in to rescue patients from the brink of death. But then during her first code she found herself cracking the ribs of a patient so old and…


Awake at the Bedside

By Koshin Paley Ellison, Matt Weingast,

Book cover of Awake at the Bedside: Contemplative Teachings on Palliative and End-Of-Life Care

Kirsten DeLeo Author Of Present Through the End: A Caring Companion's Guide for Accompanying the Dying

From the list on how to support a dying person.

Who am I?

I have accompanied dying people for more than twenty-five years—as a counsellor, volunteer chaplain, and companion. I feel passionate about changing the perception of dying and death, the way we care for people during their most vulnerable moments, and how we support families through this painful time. Since my twenties I have been immersed in Buddhist practise which inspires and informs my life and work. Together with other clinicians and mindfulness practitioners, we created one of the first contemplative-based training in end-of-life care for caregivers called “Authentic Presence”. Daring to be present might be the hardest thing you may have done in your life, and, you may come to discover, one of the most intimate, beautiful, and rewarding.

Kirsten's book list on how to support a dying person

Discover why each book is one of Kirsten's favorite books.

Why did Kirsten love this book?

If you are looking for a ‘quick fix' or 'how to’ read, this book may at first glance not be the most obvious choice. Awake at the Bedside is not your traditional guidebook. It is a moving and insightful collection of essays written by clinicians, chaplains, caregivers, pioneers in end-of-life care, contemplative teachers, and poets. Each essay sheds light on the different facets of what it means to show up at the bedside and the opportunity to wake up to each moment. I contributed a chapter on spiritual care, but that’s not why I recommend this volume. I recommend it because it is written by caregivers for caregivers—honest, reflective, compassionate, inspirational, and practical. A human and compassionate vision for end-of-life care. 

By Koshin Paley Ellison, Matt Weingast,

Why should I read it?

1 author picked Awake at the Bedside as one of their favorite books, and they share why you should read it.

What is this book about?

This book isn’t about dying. It’s about life and what life has to teach us. It’s about caring and what giving care really means. 

In Awake at the Bedside, pioneers of palliative and end-of-life care as well as doctors, chaplains, caregivers and even poets offer wisdom that will challenge, uplift, comfort—and change the way we think about death. 

Equal parts instruction manual and spiritual testimony, it includes specific instructions and personal accounts to inspire, counsel, and teach. An indispensable resource for anyone involved in hospice work or caregiving of any kind.

Contributors include Anyen Rinpoche, Coleman Barks, Craig D. Blinderman,…


Book cover of Advice for Future Corpses (and Those Who Love Them): A Practical Perspective on Death and Dying

Mallory McDuff Author Of Our Last Best Act: Planning for the End of Our Lives to Protect the People and Places We Love

From the list on change your relationship with death and heal Earth.

Who am I?

I teach environmental education at Warren Wilson College outside Asheville, North Carolina, where I’ve raised my two daughters in a 900-square-foot campus rental with an expansive view of the Appalachian mountains. My students work in jobs ranging from managing the herd of cattle to growing vegetables for the cafeteria. After the sudden deaths of my parents, I decided to take this one-year journey to revise my final wishes with climate change and community in mind as a legacy to my children and my students. I’ve written five books, including the forthcoming Love Your Mother: 50 states, 50 stories, & 50 women united for climate justice (April 2023). 

Mallory's book list on change your relationship with death and heal Earth

Discover why each book is one of Mallory's favorite books.

Why did Mallory love this book?

I turned to this book as a meditation on death and dying, which was written by an award-winning author who’s spent more than a decade working in palliative care and as a nurse. The first page of the book asks us to imagine our own death—and the details that follow. I appreciated the focus on preparing a death plan, much like a birth plan for a new mother, as well as advance directives. She helped me think about the question: What makes a good death and to what extent can we plan for it? 

By Sallie Tisdale,

Why should I read it?

1 author picked Advice for Future Corpses (and Those Who Love Them) as one of their favorite books, and they share why you should read it.

What is this book about?

Award-winning writer and nurse Sallie Tisdale offers a lyrical, thought-provoking yet practical perspective on death and dying in this frank, direct and compassionate meditation on the inevitable.
_______________________________________

From the sublime to the ridiculous, Tisdale leads the reader through the peaks and troughs of death with a calm, wise and humorous hand. More than a how-to manual or a spiritual bible, this is a graceful compilation of honest and intimate anecdotes based on the deaths Tisdale has witnessed in her work and life, as well as stories from cultures, traditions and literature around the world.

As Tisdale explores all the…


Being with Dying

By Joan Halifax,

Book cover of Being with Dying: Cultivating Compassion and Fearlessness in the Presence of Death

Anne-Marie Keppel Author Of Death Nesting: Ancient & Modern Death Doula Techniques, Mindfulness Practices and Herbal Care

From the list on love through deathcare.

Who am I?

To care for the dying is not only strenuous physically, emotionally, and spiritually, but it is a challenge in self-care and a constant call to remain non-judgmental. As someone who struggled financially as a single mother for many years, I discovered that compassion and empathy were needed not only for my children but also myself—indeed self-love was at the core of all. Working with the elderly in residential care, in hospice, and with individuals and families I now teach community deathcare with an edge of social activism to help the vulnerable feel safe while living and while dying.

Anne-Marie's book list on love through deathcare

Discover why each book is one of Anne-Marie's favorite books.

Why did Anne-Marie love this book?

This book rattled and awakened me in a place that seemed taboo to tickle. Studying death and dying can be driven by ego (what are you going to wear at your funeral? Do you have your music picked out?) Not to say there is not some good in the ego-driven work-- contemplating that can be done no matter what angle you study. However, Being With Dying cuts to the chase. If you feel ready to dismantle your illusion of living forever (or, if think that you’ll only die on your own terms, but only when you’re ready) this book is for you. 

By Joan Halifax,

Why should I read it?

1 author picked Being with Dying as one of their favorite books, and they share why you should read it.

What is this book about?

A Buddhist teacher draws from her years of experience in caring for the dying to provide inspiring lessons on how to face death with courage and compassion
 
The Buddhist approach to death can be of great benefit to people of all backgrounds—as has been demonstrated by Joan Halifax’s decades of work with the dying and their caregivers. A Zen priest and a world-renowned pioneer in care of the dying, Halifax has helped countless people face death with courage and trained caregivers in compassioante end-of-life care.

In this book, Halifax offers lessons from dying people and caregivers, as well as guided…


The Next Thing You Know

By Jessica Strawser,

Book cover of The Next Thing You Know

Carol Van Den Hende Author Of Always Orchid

From the list on star-crossed soul mates.

Who am I?

As mom to a special needs child and an Asian American author, I’m passionate about diversity and inclusion. My mission is to inspire hope and empathy for people and planet. I believe that love can conquer all, whether it be familial, romantic, or love for humankind. Star-crossed love puts that power to the test. That’s why I’m drawn to these emotional, beautiful books. I’m proud that author Karin Tanabe recommended my work in Glamour Magazine as “a modern, important take on the power of love,” that my books have won Royal Dragonfly Awards for Disability Awareness and Cultural Diversity, and that Springboard Consulting named me Disability Hero of the Year. 

Carol's book list on star-crossed soul mates

Discover why each book is one of Carol's favorite books.

Why did Carol love this book?

The Next Thing You Know resonated with me on several levels. First, main character Mason grapples with a disabling injury that hampers his career as a musician. Second, the death doula that works with him to heal emotionally is faced with the difficult decision whether she should cross professional client lines to share her true feelings. 

There are beautiful scenarios that reminded me of my series. In moving scenes, Nova shows Mason that there are other ways to create music other than performing. And he realizes that he has a lot to live for. 

This is an emotional story told with heart and insight!

By Jessica Strawser,

Why should I read it?

1 author picked The Next Thing You Know as one of their favorite books, and they share why you should read it.

What is this book about?

When Nova Husson, an end-of-life doula, meets Mayson Shaylor, everything she knows is cast into doubt. Committed to a world and profession that allows the elderly to bow out gracefully, taking on a younger man's case is unique, and tragic. Not to mention the fact that the once beloved singer-songwriter now must hang up his guitar for good, after a debilitating degenerative disease takes away the use of his hands. He's determined that there is no future for him, while she's determined to make him see there's life, even as death approaches. But Nova also holds powerful secrets of her…


Being Mortal

By Atul Gawande,

Book cover of Being Mortal: Medicine and What Matters in the End

Martha W. Murphy Author Of CRU Oyster Bar Nantucket Cookbook: Savoring Four Seasons of the Good Life

From the list on the eclectic reader of nonfiction.

Who am I?

I’m a narrative nonfiction writer interested in a broad range of topics, including but not limited to: food and the people who bring it to us; travel and life in faraway places; human health and the role of medicine; memoir as one person’s story yet illustrative of the human spirit; and the unique and remarkable role dogs play in our lives. I am the same kind of reader: I read across a range of topics, mostly nonfiction. The bookshelves in my house and the record of titles I’ve checked out from my local library show an eclectic taste, as do the books I’m recommending here. I hope you’ll enjoy them!

Martha's book list on the eclectic reader of nonfiction

Discover why each book is one of Martha's favorite books.

Why did Martha love this book?

I read Atul Gawande’s first book, Complications: A Surgeon’s Notes on an Imperfect Science, soon after it was published. I loved his writing, and as someone who reads (and writes) about health, healthcare, and medicine, I went on to read every book he’s written since then.

Being Mortal crossed my path at the same time my beloved father was making his way out of this life to whatever lies beyond.

Gawande’s book—an examination of modern medicine’s reluctance to acknowledge the “inescapable realities of aging and death” to focus on “what medicine can do often runs counter to what it should do”—hit close to home. But the book was the genesis for a much needed, ongoing national conversation on a topic that will, sooner or later, touch us all.  

By Atul Gawande,

Why should I read it?

9 authors picked Being Mortal as one of their favorite books, and they share why you should read it.

What is this book about?

THE INTERNATIONAL BESTSELLER

'GAWANDE'S MOST POWERFUL, AND MOVING, BOOK' MALCOLM GLADWELL

'BEING MORTAL IS NOT ONLY WISE AND DEEPLY MOVING; IT IS AN ESSENTIAL AND INSIGHTFUL BOOK FOR OUR TIMES' OLIVER SACKS

For most of human history, death was a common, ever-present possibility. It didn't matter whether you were five or fifty - every day was a roll of the dice. But now, as medical advances push the boundaries of survival further each year, we have become increasingly detached from the reality of being mortal. So here is a book about the modern experience of mortality - about what it's…


The Emperor of All Maladies

By Siddhartha Mukherjee,

Book cover of The Emperor of All Maladies: A Biography of Cancer

Mikkael A. Sekeres Author Of Drugs and the FDA: Safety, Efficacy, and the Public's Trust

From the list on the good, bad, beautiful, and ugly in medicine.

Who am I?

As a cancer doctor, I have spent two decades dedicated to understanding the causes and therapy of cancer, how my patients experience their diagnosis and treatment, and how meaningful improvements in their experience should be reflected in the criteria we use to approve cancer drugs approval in the U.S., to improve their lives. In over 100 essays published in outlets like The New York Times and The Washington Post and in two books, I sing the stories of my patients as I learn from their undaunted spirits and their utter humanity, as I try to figure out how to be a better doctor, and a better person.

Mikkael's book list on the good, bad, beautiful, and ugly in medicine

Discover why each book is one of Mikkael's favorite books.

Why did Mikkael love this book?

Less than a century ago, having a diagnosis of cancer was almost universally a death sentence, if the word was even uttered at all.

In The Emperor of All Maladies, Mukherjee (who overlapped in training with me) takes us back in time to the heroic – and at times cavalier and even brutal – procedures and discoveries that led to the very first cancer treatments, some of which are told by the people who pioneered those therapies.

By Siddhartha Mukherjee,

Why should I read it?

3 authors picked The Emperor of All Maladies as one of their favorite books, and they share why you should read it.

What is this book about?

Winner of the Guardian First Book Award 2011

Winner of the Pulitzer Prize for Non-fiction 2011

Shortlisted for the Duff Cooper Prize 2011

Shortlisted for the Wellcome Trust Book Prize

In The Emperor of All Maladies, Siddhartha Mukherjee, doctor, researcher and award-winning science writer, examines cancer with a cellular biologist's precision, a historian's perspective, and a biographer's passion. The result is an astonishingly lucid and eloquent chronicle of a disease humans have lived with - and perished from - for more than five thousand years.

The story of cancer is a story of human ingenuity, resilience and perseverance, but also…


The Art of Dying Well

By Katy Butler,

Book cover of The Art of Dying Well: A Practical Guide to a Good End of Life

Lisa J. Shultz Author Of A Chance to Say Goodbye: Reflections on Losing a Parent

From the list on end-of-life planning.

Who am I?

I am an advocate for end-of-life planning. When my dad entered his eighties, and while still raising my own children, I found myself unprepared for my father’s steady health decline. Suddenly, I was thrust into the role of overseeing his care and making hard decisions. Our difficulties were exacerbated by a western medical system that fell short to prepare us for the end of his life. After my dad’s death, I began researching end-of-life issues to educate myself and plan for my own senior years. I have a goal to support others who face losing a parent and to facilitate healing for those who have already lost one. I also strive to inform and inspire the next generation to learn and plan early to guide themselves and their families to minimize avoidable problems and enhance quality elder years.


Lisa's book list on end-of-life planning

Discover why each book is one of Lisa's favorite books.

Why did Lisa love this book?

This book was helpful for me to navigate the finale of my parent’s lives. But The Art of Dying Well isn't just about one's parents. Many baby boomers are unprepared for dealing with their own aging. I suggest reading it well before you need it. Knowledge is power, and Butler's book gave me the gift of learning more now, while things are relatively calm. A crisis visit to an ER isn't the time to cram in education and research. You may need to be an advocate for yourself or someone you love sooner than later. I have suggested the book to my siblings and friends, which will hopefully lead to meaningful conversation and planning to support each other through our elder years. I am grateful for Butler's practical guide, which is filled with wisdom and resources. I anticipate referring to it again and again as I age. 

By Katy Butler,

Why should I read it?

1 author picked The Art of Dying Well as one of their favorite books, and they share why you should read it.

What is this book about?

This "comforting...thoughtful" (The Washington Post) guide to maintaining a high quality of life-from resilient old age to the first inklings of a serious illness to the final breath-by the New York Times bestselling author of Knocking on Heaven's Door is a "roadmap to the end that combines medical, practical, and spiritual guidance" (The Boston Globe).

"A common sense path to define what a 'good' death looks like" (USA TODAY), The Art of Dying Well is about living as well as possible for as long as possible and adapting successfully to change. Packed with extraordinarily helpful insights and inspiring true stories,…


And a Time to Die

By Sharon R. Kaufman,

Book cover of And a Time to Die: How American Hospitals Shape the End of Life

Ed Cohen Author Of On Learning to Heal: or, What Medicine Doesn't Know

From the list on learning to heal.

Who am I?

I earned a Ph.D. in Modern Thought from Stanford and have been an award-winning professor of Women’s, Gender, and Sexuality Studies for over three decades. I've also lived with Crohn’s Disease for more than 50 years. At the intersection of these two experiences, I developed a therapeutic practice oriented towards those with chronic and life-threatening illnesses called Healing Counsel. As both a teacher and a counsellor, I ask people to reconsider the ways they make sense of their experiences. I try to assist people to open up new possibilities for healing, not only as individuals, but also as societies, maybe even as a species, or perhaps even as planetary beings.

Ed's book list on learning to heal

Discover why each book is one of Ed's favorite books.

Why did Ed love this book?

Many people imagine that healing and dying are antithetical. However, this is not necessarily so. Sometimes, in the right circumstances, death can be healing not just for the person whose life is ending but for those who love them. 

Unfortunately, American hospital care does not usually facilitate such graceful transitions.  Kaufman, a medical anthropologist, compiles case histories of end-of-life care in medical facilities in order to help us understand the complexities that face us in these contexts. Since most Americans now die in some kind of medical institution, this book should be required reading for everyone—before it happens to us.

By Sharon R. Kaufman,

Why should I read it?

1 author picked And a Time to Die as one of their favorite books, and they share why you should read it.

What is this book about?

Over the past thirty years, the way Americans experience death has been dramatically altered. The advent of medical technology capable of sustaining life without restoring health has changed where, when, and how we die. In this revelatory study, medical anthropologist Sharon R. Kaufman examines the powerful center of those changes: the hospital, where most Americans die today. She deftly links the experiences of patients and families, the work of hospital staff, and the ramifications of institutional bureaucracy to show the invisible power of the hospital system in shaping death and our individual experience of it. In doing so, Kaufman also…


How We Die

By Sherwin B. Nuland,

Book cover of How We Die: Reflections of Life's Final Chapter

Jennie Dear Author Of What Does It Feel Like to Die?: Inspiring New Insights Into the Experience of Dying

From the list on the experience of dying.

Who am I?

When my mother enrolled in hospice after years of living with cancer, the nurse asked her: Do you want to know what will happen to your body as it starts shutting down? That was the first time anyone talked with us about the dying process. The question came as an immense relief, eventually inspiring this book. After witnessing the difficulties and surprising joys of my mother’s dying experience, I began hospice volunteering. Later, I spent three intensive stints volunteering at San Francisco’s Zen Hospice Project. And as a former journalist and associate professor of English, I began researching and interviewing experts. Their deep caring and knowledge inform this book.

Jennie's book list on the experience of dying

Discover why each book is one of Jennie's favorite books.

Why did Jennie love this book?

Until I began researching death and dying, I hadn’t realized my quest was so literal-minded. Despite the satisfyingly large number of relevant books, most circle around the subject, focusing on areas such as grief, the importance of creating a living will, or funeral planning—all important topics, but I wanted to learn about dying itself.

Then I discovered Nuland’s book. Chapter by chapter, he describes what we know about the physical experience of dying, depending on the type of death: Heart attacks, murders, falls, Alzheimer’s, cancer. Nuland’s background is in surgery, and his descriptions are neither graphic nor gory, but he doesn’t flinch from providing details. Although his book was first published in 1993, no one has yet matched its straightforward, informative approach.

By Sherwin B. Nuland,

Why should I read it?

2 authors picked How We Die as one of their favorite books, and they share why you should read it.

What is this book about?

NATIONAL BOOK AWARD WINNER • NATIONAL BESTSELLER • The definitive resource on perhaps the single most universal human concern: death.

Even more relevant than when it was first published, this edition addresses contemporary issues in end-of-life care and includes an all-embracing and incisive afterword that examines the state of health care and our relationship with life as it approaches its terminus. How We Die also discusses how we can take control of our own final days and those of our loved ones.


"Nuland's work acknowledges, with unmatched clarity, the harsh realities of how life departs… There is compassion, and often…