The best palliative care books

Mannix is a retired Palliative Care Consultant, and this wonderful book takes case studies from her long career and presents them as vignettes designed to reassure a readership who may be anxious about the process of dying. She relates each story with candour and humility, acknowledging how much she has learnt from her patients and their families whilst glossing over the enormous impact that she has evidently had on their care.

This is an incredibly useful book for those working with people at the end of life, but it is also a really lovely read for anyone fearful of death, anyone who has felt the impact of a family bereavement, and anyone who will one day face death themselves, i.e., every single one of us. 

This book was helpful for me to navigate the finale of my parent’s lives. But The Art of Dying Well isn't just about one's parents. Many baby boomers are unprepared for dealing with their own aging. I suggest reading it well before you need it. Knowledge is power, and Butler's book gave me the gift of learning more now, while things are relatively calm. A crisis visit to an ER isn't the time to cram in education and research. You may need to be an advocate for yourself or someone you love sooner than later. I have suggested the book to my siblings and friends, which will hopefully lead to meaningful conversation and planning to support each other through our elder years. I am grateful for Butler's practical guide, which is filled with wisdom and resources. I anticipate referring to it again and again as I age. 

Dr. Puri is a specialist in palliative care for patients with terminal conditions.

She describes the challenges she has encountered during her medical training and practice in dealing with a medical establishment committed to intensive care even in the face of insurmountable odds that such care will improve patients’ health or quality of life.

She also describes encounters with patients’ families who demand intensive medical treatment and are unwilling to allow patients to transition peacefully through the end of life. Often the demand for intensive care is made without the desires of the patient being considered.

This is a poignant set of stories showing that intensive care in what is often the most expensive medical cases exact a price far higher than the dollars involved in the transaction.

The author, Dr. Zitter, is described as an expert on the medical experience of death and dying. Her specialties of pulmonary/critical care and palliative care brought to life the spectrum between a comfortable, natural death versus a "keep alive at all costs" mentality. This book was thoughtful and presented many sides of difficult dying experiences. I found it incredibly valuable to understand typical trajectories that might occur at the end of life from illness, organ failure, frailty, or dementia. It helped me gain clarity on my own wishes, and I encourage others to read the book and then discuss it with loved ones. Rather than it being a depressing subject matter, it has the potential to be a gift if the reader can move into a place of communicating and documenting wishes for end-of-life.

I sometimes read aloud from this book to hospice patients because when you’re dying, it’s easy to believe that it’s too late—too late to make amends, too late to reconnect, too late to do anything more for the world you’re leaving behind. Byock, a doctor who has worked extensively with dying people, says that’s not the case. Instead, he urges his patients to communicate with their friends and family members, to say thanks, to forgive, to apologize, and to express their love. The book is filled with examples of times people on the edge of death were able to connect more deeply or heal old wounds, changing the lives of those close to them for the better.

Dr. Ira Byock is a well-known authority in palliative care and hospice and a wonderful storyteller. In his stories, he talks about the physical realities of the dying process, the emotional despair we may witness, or how to handle family dynamics. He doesn't shy away from reflecting on his personal growth doing this work, which makes this book deeply human and relatable. Dying Well was published several years ago. It is still an informative and insightful read, especially if you are a family caregiver and care for a loved one. Please also check out his other books, Four Things That Matter Most and The Best Care Possible.

I turned to this book as a meditation on death and dying, which was written by an award-winning author who’s spent more than a decade working in palliative care and as a nurse. The first page of the book asks us to imagine our own death—and the details that follow. I appreciated the focus on preparing a death plan, much like a birth plan for a new mother, as well as advance directives. She helped me think about the question: What makes a good death and to what extent can we plan for it?