I’m a physician and a writer. Together, they create a matrix of practice, research, and writing. I care for patients at the Penn Memory Center and am a professor at the University of Pennsylvania, where I teach and study topics at the intersections of bioethics, aging, and the neurosciences. I wrote The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It and the novel Open Wound: The Tragic Obsession of Dr. William Beaumont and essays for The New York Times, The Washington Post, Forbes, The Hill, STAT, and The Philadelphia Inquirer. I raise whippets, and I’m a passionate reader of the physician and poet John Keats.
This first-person account of living with a biomarker-defined diagnosis of Alzheimer’s disease is a clearly written story of two very distinct, even antagonistic experiences. There’s the highly subjective experience of being a patient and the highly objective experience of being a physician who has diagnosed and cared for persons with the same disease. In one book is one narrative of two perspectives embodied in one person. The result is an unadorned account of what it’s like to lose one’s mind just a little bit at a time. Case in point is his account of apathy. I’m routinely prescribing this book to my patients.
Dr Daniel Gibbs is one of 50 million people worldwide with an Alzheimer's disease diagnosis. Unlike most patients with Alzheimer's, however, Dr Gibbs worked as a neurologist for twenty-five years, caring for patients with the very disease now affecting him. Also unusual is that Dr Gibbs had begun to suspect he had Alzheimer's several years before any official diagnosis could be made. Forewarned by genetic testing showing he carried alleles that increased the risk of developing the disease, he noticed symptoms of mild cognitive impairment long before any tests would have alerted him. In this highly personal account, Dr Gibbs…
You know when you read a book, and you wish you wrote it? THAT.
The Couple at No.9 is nothing short of pure brilliance, full of deliciously dark twists and constantly whipping the rug out from beneath your feet. I listened to the audiobook and I was honestly OBSESSED.
I thought it was such a good concept – Saffron and Tom move into a cottage that was left to Saffron by her grandmother, Rose. During some building work, a body is discovered in the garden… a body that was put there whilst Rose lived there.
But Rose has Alzheimer’s, and she can’t remember a thing. And the body in the garden is just the tip of the iceberg. Love love loved it!
It was the house of their dreams. Now it's their worst nightmare . . .
'Spine-chilling' SUNDAY TIMES 'A well-plotted tale . . . Intriguing. Twisty. Surprising. Touching' DOROTHY KOOMSON 'Secrets, skeletons, mothers and daughters - and some absolutely corking twists! A cracking thriller, I loved it' EVE CHASE _________
BODIES FOUND UNDER PATIO
When pregnant Saffron Cutler moves into 9 Skelton Place with boyfriend Tom and sets about renovations, the last thing she expects is builders uncovering a body. Two bodies, in fact.
POLICE INVESTIGATE
Forensics indicate the bodies have been buried at least thirty years, which leads the…
As a techno-optimist, I believe that technology can make us better! Technology should make us stronger and healthier, technology should enable us to do things we couldn’t do without it, and technology should create an equitable future. In 25 years, I want superhuman eyesight, joints, and memory. I want to travel with family and friends both physically and virtually through the metaverse. And I want to make sure that all of our data is used responsibly and ethically to optimize our home and community. All of the books I selected (including mine!) build on these themes painting a picture of a future that is optimistic, and show us how we can be active participants in creating the future we want to see.
Neuroscientist Dr. Lisa Mosconi dives into the fascinating world of women's brain health and its connection to Alzheimer's disease. She presents cutting-edge research and insights that aim to empower women to take charge of their cognitive well-being.
One of the reasons I love this book is the exploration of various technologies that are revolutionizing the field. Lisa introduces us to advanced brain imaging techniques like PET scans and MRI, which provide valuable insights into brain health and potential early signs of Alzheimer's.
She also delves into the emerging field of precision medicine, discussing genetic testing and personalized interventions for optimal brain health. In addition, Lisa sheds light on the role of lifestyle factors such as diet, exercise, and sleep in maintaining cognitive vitality.
Lisa’s informal style makes complex scientific concepts accessible and engaging, ensuring that readers can apply the knowledge gained to their own lives.
"In The XX Brain, Lisa meticulously guides us in the ways we can both nourish and protect ourselves, body and mind, to ensure our brains remain resilient throughout our lives." --from the foreword by Maria Shriver
The first book to address cognitive enhancement and Alzheimer's prevention specifically in women--and to frame brain health as an essential component of Women's Health.
In this revolutionary book, Dr. Lisa Mosconi, director of the Women's Brain Initiative at Weill Cornell Medical College, provides women with the first plan to address the unique risks of the female brain.
As an educator, author of children’s books, and caregiver of a loved one with dementia, I felt that I had to write a story about the disease from a child’s point of view. When I became a caregiver, I was struck by the lack of information for children and the misconceptions of the public about the disease. I wanted to create a story that reassures children and gives them guidance on how they can help be a caregiver. I added the Author’s Note to provide accurate information to adults so that more people are aware of the signs of dementia and to build understanding and compassion.
What a wonderful way to help children understand that residents in nursing homes and assisted living centers led rich, interesting lives.
So many children have loved ones who are in long-term care facilities and this beautiful book shows children how they can build friendships with residents. I highly recommend this if a loved one can’t communicate but appreciates a visit from a young child.
Oak Grove Retirement Home recently got a new resident named Mrs. Inez. She doesn't talk much, and doesn't seem to like her surroundings, but she has a lot of photos on her wall that show she had a life full of memories to be shared. She wants to be left alone, it seems, but that doesn't stop one special little girl from wanting to be her friend.
I founded the All-Weather Friend, which is about helping friends get through difficult situations. My first book, Alzheimer’s: A Crash Course for Friends and Relatives, tells how to help people living with dementia. I’ve had hard times in my life—my husband’s brain tumor and suicide, my father’s dementia, infertility, miscarriage, my brother’s sudden death, and other things that flooded me with grief. But my life is filled with joy; I’ve learned that joy comes from God and from a compassionate connection with friends and people we love. I write and speak about “informed compassion.” I hope you’ll visit my website, where there’s a great dementia resource page with contributions by many readers.
Reading this book is like sitting in on a support
group. It’s a collection of quotes about living with dementia from people who
are doing just that.
I love it for churches starting a memory ministry because
these quotes could be quickly read aloud in worship services, as a “ministry
moment,” or read round-robin style in groups beginning to learn about dementia.
I like the collection of many voices speaking out candidly and poignantly about
this difficult journey.
Betsy Peterson spent fourteen years caring for her husband who was suffering from dementia, an experience that put her in touch with others inside the struggle to have or to care for someone with the disease. A combination of contributions from patients, their families, friends, and caregivers, Voices of Alzheimer's gathers the poignant stories, funny quotes, and priceless encouragement that Peterson heard and that helped her along the way. Capturing the many dimensions of the Alzheimer experience-the challenges, the struggles, the humour, and even the rewards-a Voices presents a varied, and realistic, look at what it's like to be affected…
An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.
Andrea Couture’s father, a well-known, recently retired surgeon, develops Alzheimer’s at the age of 67. As someone who also lost a parent at a young age, Embracing What Remainstouched a deep place in my heart. I connected with how she processed her emotions through her writing. I also appreciated the way she balances her grief over his disease with the gratitude and joy she discovers in each moment. This is a beautifully written memoir!
***Finalist in Next Generation Indie Book Awards***
Andrea struggles to mourn a man who is still alive as she witnesses her father decline into the depths of Alzheimer’s. Denial and devastation color her life when she learns her father, Richard, a recently retired surgeon, is diagnosed with Alzheimer’s at the age of 67. Her dream to grow closer with him is crushed as the reality of his disease is fully realized. Andrea, a mother of three young children, learns to balance motherhood with daughterhood as she grapples to accept her father’s fate. Andrea rides an unpredictable wave…
I am a novelist, a journalist, a humanist celebrant, and coauthor with my husband of the best-selling Nicci French thrillers. Witnessing my father’s dementia and his slow-motion dying radically transformed the way I think about what it is to be human. In 2014, I founded John’s Campaign which seeks to make the care of those who are vulnerable and powerless more compassionate, and which is now a national movement in the UK. In 2016, I won the Orwell Prize for Journalism for ‘exposing Britain’s social evils' in the pieces I wrote exploring the nature of dementia.
Erwin Mortier is a poet, and this slim, intense volume is a haunting memorial to his mother in her final months. She died of early-onset dementia, and Mortier struggles to find adequate words for a condition that is profoundly connected to the failure of language and the connection of the self to the world.
'My mother, a house that is slowly collapsing, a bridge dancing to a tremor.'
It started when she could no longer remember the word for 'book'. Then her mind, her language and her identity began to slip away.
This is Erwin Mortier's moving, exquisitely observed memoir of his mother's descent into dementia, as a once-flamboyant woman who loved life and pleasure becomes a shuffling, ghostlike figure wandering through the house. Piecing together the fragments of her lost life, and his own childhood, Mortier asks: what do we become when we lose the repertoire of habits and words that make us…
I grew up in a home with severe emotional abuse and neglect. Scoring 6 on the ACEs (adverse childhood events) test became a wake-up call; according to the test, my life span had been shortened by 20 years and I was determined to get them back. I stopped protecting my abusive family and got honest about what I had been through. This drew an audience who said I helped them feel seen and heard (and they did the same for me). I’ve spent the last decade on a healing journey from addiction and self-sabotage, the culmination of which is my new book and trauma-informed coaching practice that transforms lives.
In this book, a medical doctor makes the connection between suppressed emotions, especially anger and rage, and disease in the body.
When we live inauthentic lives, our bodies manifest this self-abandonment through auto-immune issues (literally the body turning against itself). He notes that women especially have the tendency to abandon themselves to serve others which creates repressed resentments that come out as disease in the body. It helped explain my painful bout with shingles which became a turning point for me in committing to living for myself instead of others.
Can a person literally die of loneliness? Is there a connection between the ability to express emotions and Alzheimer's disease? Is there such a thing as a 'cancer personality'?
Drawing on deep scientific research and Dr Gabor Mate's acclaimed clinical work, When the Body Says No provides the answers to critical questions about the mind-body link - and the role that stress and our emotional makeup play in an array of common diseases.
When the Body Says No:
- Explores the role of the mind-body link in conditions and diseases such as arthritis, cancer, diabetes, heart disease, irritable bowel syndrome…
As a shy, dreamy kid, I relied on middle-grade books to learn about the world and feel less alone. That’s why I eventually started writing them. Growing up can be hard. Being grown-up can, too. Fiction can thrill, educate, and stimulate, and I love it for those reasons. But sometimes, I want a book to assure me things are going to be okay. In case you’d forgotten that the world can be scary and unpredictable, the last couple of years probably reminded you. I continue to find comfort in middle-grade books that make my heart feel full, tender, and hopeful. I needed books like these back then, and still need them today.
Attending a private school on scholarship among wealthy classmates, Merci Suárez never feels like she belongs. Her family has always been close, with three generations living in houses nestled next to one another, but lately, things aren’t easy at home, either. Merci’s grandfather is acting in ways she doesn’t understand, and she knows the others are hiding something from her.
I love Merci’s spirited, spunky personality and loving family. She navigates conflicts with courage, pluck, and honesty. The way she faces challenges gives me the confidence to take mine on.
Winner of the Newbery Medal A New York Times Bestseller
“The realistic portrayal of a complex young Latina’s life is one many readers will relate to. . . . Medina cruises into readers’ hearts.” — School Library Journal (starred review)
Merci Suárez knew that sixth grade would be different, but she had no idea just how different. For starters, as strong and thoughtful as Merci is, she has never been completely like the other kids at her private school in Florida, because she and her older brother, Roli, are scholarship students. They don’t have a big house or a fancy…
I am a caregiver who became an author. Both my parents had dementia. I found few books written from a personal perspective to give me guidance, so the journal I kept ultimately became the book I wished I could have read during our dementia journey. The journey didn’t end for me with the death of my parents. It led me to form a non-profit with two other dementia authors. This passion project has become a global community of authors who have written about Alzheimer’s and dementia from personal experience. Now more than 300 strong, we provide quality resources for caregivers and others concerned about dementia. Learn more at AlzAuthors.com.
I was drawn in by Marianne Sciucco’s novel about a man caring for his wife with Alzheimer’s. It’s a love story between a long-married couple, one of whom has dementia. It’s about a husband’s determination to honor his wife’s request to stay in their home, even though his own health is failing. It’s about the magic of the day they “escape.” I loved this book because it showed me that love endures despite dementia; despite what life throws our way.
What if the person who knew you best and loved you most forgot your face, and couldn't remember your name? The PromiseA care facility is everyone's solution for what to do about Sara, but her husband, Jack, can't bear to live without her. He is committed to saving his marriage, his wife, and their life together from the devastation of Alzheimer’s disease. He and Sara retired years ago to the house of their dreams, and operated it as a Cape Cod bed and breakfast named Blue Hydrangeas. Jack has made an impossible promise: He and Sara will stay together in…
