The most recommended books about diseases

What a wonderful way to help children understand that residents in nursing homes and assisted living centers led rich, interesting lives.

So many children have loved ones who are in long-term care facilities and this beautiful book shows children how they can build friendships with residents. I highly recommend this if a loved one can’t communicate but appreciates a visit from a young child. 

This nonfiction book on tuberculosis, published the same year as my book, begins with the discovery of a skull marked by the scars of tuberculosis. Turns out it belonged to a young man who died over 500,000 years ago from the disease. The authors trace the devastating effects of tuberculosis to modern day when our drugs can no longer fully guarantee treatment. This book tells a fascinating, yet worrisome, story about a most dreaded disease.

Andrea Couture’s father, a well-known, recently retired surgeon, develops Alzheimer’s at the age of 67. As someone who also lost a parent at a young age, Embracing What Remains touched a deep place in my heart. I connected with how she processed her emotions through her writing. I also appreciated the way she balances her grief over his disease with the gratitude and joy she discovers in each moment. This is a beautifully written memoir! 

Hands down. Burgess is my favorite writer. And if you read anything from this list, read this one. It is almost impossible to describe this book and give it the justice it deserves. Like the rest of Burgess’ novels, Pontypool Changes Everything is full of beautiful, morbid, and just overall insane ideas. A zombie virus that travels through spoken language is fascinating enough. But what really sets this novel apart is Burgess’ lyrical prose, which can leave you both uplifted and down in the dumps at the same time. I found myself rereading passages of this novel simply because of the beautiful prose. (Also: Be sure to check out his other zombie novel The N-Body Problem. Can’t go wrong shooting zombies out into orbit!)

A totally distinctive coming-of-age novel, set in a desert community where people with environmental illnesses are forced to live, far away from the everyday chemicals and wireless gadgets which make them sick. The author gets so much right about the emotional fallout of this falling away from the normal: the ache that never quite goes for the old life that has been lost; the new bonds that form between disparate characters finding themselves in the same boat; the corrosive extra layer of societal contempt and disbelief (“of course it’s all in the mind…”). which makes these already devastating illnesses even harder to bear - and the lurking temptation of suicide. I gasped with recognition on almost every page. It’s a YA novel, but who cares?

This was a touching book about a mixed Korean girl who tries to help her sick grandmother, Halmoni, get better through the power of stories. With a bit of magical realism and Korean folklore brought to life, Lily finds her own voice (so she is no longer what she describes as a “QAG – quiet Asian girl”) and begins to understand her own ancestry. Like Lily, I found a connection to my heritage via stories and folklore.

When this book was released in 2017 I delayed reading it due to its major theme of a teenager dealing with her father’s diagnosis of early-onset Alzheimer’s Disease.

I usually avoid books or movies where this is a key element of the story due to my own experience. While I was a mature adult in my late forties and well past my teens when my mother was diagnosed with Alzheimer’s, I know too well the devastating impact of slowly losing a loved one to the disease. I’m glad I finally set aside my reservations and read this book.

Julia Lawrinson has drawn on her own and her daughter’s experience to produce a beautifully crafted and memorable story. It’s raw, honest, and heartbreaking yet never heavy. Before You Forget is also full of warmth, humour, and hope. 

This provides the reader with the background to understand what happens when a pathogen invades both an individual and a society. It’s an absolutely brilliant book by a Nobel laureate scientist, one of my all-time favorites on any subject.

Violet Black is the first book in a trilogy set in the near future. Violet Black and Ethan Wright are both in a coma after contracting the lethal M-fever. They have never met:

I couldn’t speak, but I was trying so hard to communicate and then... then... I pushed. And something, someone, pushed back. Her name is Violet. Violet, but she is sunshine-yellow, and I need to find her because I think she might be just like me.

But there is a far more serious reason for Ethan to find Violet: the sinister Foundation is trying to hunt them down.

Violet Black in the first book of a trilogy where Violet must fight for her sanity and her freedom from those who want to control her. It’s always wonderful when you’ve got captured by a story and its characters to know that there are more books to come. I love… show more.

Ani’s Light by Tanu Shree Singh with art by Sandhya Prabhat is about the depression and sadness when Mom is gone to the hospital for chemotherapy. This gentle picture book shows the reader that often fear makes us want to “hide” and find someplace safe.  But little by little the reader sees the importance of reaching out to others and slowly facing and talking about the fears that hurt one’s heart.