Here are 100 books that Before You Forget fans have personally recommended if you like
Before You Forget.
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As an educator, author of children’s books, and caregiver of a loved one with dementia, I felt that I had to write a story about the disease from a child’s point of view. When I became a caregiver, I was struck by the lack of information for children and the misconceptions of the public about the disease. I wanted to create a story that reassures children and gives them guidance on how they can help be a caregiver. I added the Author’s Note to provide accurate information to adults so that more people are aware of the signs of dementia and to build understanding and compassion.
What a wonderful way to help children understand that residents in nursing homes and assisted living centers led rich, interesting lives.
So many children have loved ones who are in long-term care facilities and this beautiful book shows children how they can build friendships with residents. I highly recommend this if a loved one can’t communicate but appreciates a visit from a young child.
Oak Grove Retirement Home recently got a new resident named Mrs. Inez. She doesn't talk much, and doesn't seem to like her surroundings, but she has a lot of photos on her wall that show she had a life full of memories to be shared. She wants to be left alone, it seems, but that doesn't stop one special little girl from wanting to be her friend.
An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.
Andrea Couture’s father, a well-known, recently retired surgeon, develops Alzheimer’s at the age of 67. As someone who also lost a parent at a young age, Embracing What Remainstouched a deep place in my heart. I connected with how she processed her emotions through her writing. I also appreciated the way she balances her grief over his disease with the gratitude and joy she discovers in each moment. This is a beautifully written memoir!
***Finalist in Next Generation Indie Book Awards***
Andrea struggles to mourn a man who is still alive as she witnesses her father decline into the depths of Alzheimer’s. Denial and devastation color her life when she learns her father, Richard, a recently retired surgeon, is diagnosed with Alzheimer’s at the age of 67. Her dream to grow closer with him is crushed as the reality of his disease is fully realized. Andrea, a mother of three young children, learns to balance motherhood with daughterhood as she grapples to accept her father’s fate. Andrea rides an unpredictable wave…
As an educator, author of children’s books, and caregiver of a loved one with dementia, I felt that I had to write a story about the disease from a child’s point of view. When I became a caregiver, I was struck by the lack of information for children and the misconceptions of the public about the disease. I wanted to create a story that reassures children and gives them guidance on how they can help be a caregiver. I added the Author’s Note to provide accurate information to adults so that more people are aware of the signs of dementia and to build understanding and compassion.
This sensitive, charming book shows how a child learns about what is going on in her granny’s brain.
It addresses the emotions that a young child may feel when they witness confusing changes in a loved one’s behavior. This story provides a wonderful opportunity to discuss dementia and what to do if a child has concerns or questions.
Are you looking for a picture book to talk about dementia or Alzheimer's with a child? This Alzheimer’s book for children explains Alzheimer’s dementia in kid-friendly terms. The book presents memory loss in an easy-to-understand narrative.
Boys and girls alike will benefit from this “must have” children’s read. Alzheimer's has an impact on families around the world. This book allows a family to face this challenge together and make the most of every available moment.
In Granny Needs My Help: A Child's Look at Dementia and Alzheimer's the main character Zéh is excited, happy, and challenged as she helps and…
I’m a physician and a writer. Together, they create a matrix of practice, research, and writing. I care for patients at the Penn Memory Center and am a professor at the University of Pennsylvania, where I teach and study topics at the intersections of bioethics, aging, and the neurosciences. I wrote The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It and the novel Open Wound: The Tragic Obsession of Dr. William Beaumont and essays for The New York Times, The Washington Post, Forbes, The Hill, STAT, and The Philadelphia Inquirer. I raise whippets, and I’m a passionate reader of the physician and poet John Keats.
This first-person account of living with a biomarker-defined diagnosis of Alzheimer’s disease is a clearly written story of two very distinct, even antagonistic experiences. There’s the highly subjective experience of being a patient and the highly objective experience of being a physician who has diagnosed and cared for persons with the same disease. In one book is one narrative of two perspectives embodied in one person. The result is an unadorned account of what it’s like to lose one’s mind just a little bit at a time. Case in point is his account of apathy. I’m routinely prescribing this book to my patients.
Dr Daniel Gibbs is one of 50 million people worldwide with an Alzheimer's disease diagnosis. Unlike most patients with Alzheimer's, however, Dr Gibbs worked as a neurologist for twenty-five years, caring for patients with the very disease now affecting him. Also unusual is that Dr Gibbs had begun to suspect he had Alzheimer's several years before any official diagnosis could be made. Forewarned by genetic testing showing he carried alleles that increased the risk of developing the disease, he noticed symptoms of mild cognitive impairment long before any tests would have alerted him. In this highly personal account, Dr Gibbs…
By Andrew E. Budson and Maureen K. O'Connor
Author
Why are we passionate about this?
As a neurologist and neuropsychologist team who have spent their entire clinical, teaching, and research careers focused on individuals and their families experiencing memory loss, Alzheimer’s disease, and dementia, our goal is simple. We want to empower individuals and their families with the tools they need to manage memory loss, Alzheimer’s disease, and dementia. We work to balance pharmacological and nonpharmacological management, as well as the needs of the individual with those of their family. Reading books like the ones in our list plus articles in medical journals keeps us current with the progress in the science of dementia and the humanity of individuals and families living with the disease.
Reading Patti Davis’s book is like sitting in her living room talking with her, one caregiver to another. Because she not only lived through Alzheimer’s disease and dementia with her father, Ronald Reagan, but ran a support group for a number of years, her knowledge is vast and she shares it with you. For example, chapters with titles such as, “Grief Arrives Early,” “Creative Lying,” “The Battle Over Bathing,” and “Where is the Person I Knew?” discuss important topics in relatable ways. Her story and the way she tells it also make this book a wonderful read.
"For the decade of my father's illness, I felt as if I was floating in the deep end, tossed by waves, carried by currents but not drowning." In a singular account of battling Alzheimer's, Patti Davis eloquently weaves personal anecdotes with practical advice tailored specifically for the overlooked caregiver. After losing her father, Ronald Reagan, Davis founded a support group for family members and friends of Alzheimer's patients; drawing on those years, Davis reveals the surprising struggles and gifts of this cruel disease. From the challenges of navigating disorientation to the moments when guilt and resentments creep in, readers are…
As a shy, dreamy kid, I relied on middle-grade books to learn about the world and feel less alone. That’s why I eventually started writing them. Growing up can be hard. Being grown-up can, too. Fiction can thrill, educate, and stimulate, and I love it for those reasons. But sometimes, I want a book to assure me things are going to be okay. In case you’d forgotten that the world can be scary and unpredictable, the last couple of years probably reminded you. I continue to find comfort in middle-grade books that make my heart feel full, tender, and hopeful. I needed books like these back then, and still need them today.
Attending a private school on scholarship among wealthy classmates, Merci Suárez never feels like she belongs. Her family has always been close, with three generations living in houses nestled next to one another, but lately, things aren’t easy at home, either. Merci’s grandfather is acting in ways she doesn’t understand, and she knows the others are hiding something from her.
I love Merci’s spirited, spunky personality and loving family. She navigates conflicts with courage, pluck, and honesty. The way she faces challenges gives me the confidence to take mine on.
Winner of the Newbery Medal A New York Times Bestseller
“The realistic portrayal of a complex young Latina’s life is one many readers will relate to. . . . Medina cruises into readers’ hearts.” — School Library Journal (starred review)
Merci Suárez knew that sixth grade would be different, but she had no idea just how different. For starters, as strong and thoughtful as Merci is, she has never been completely like the other kids at her private school in Florida, because she and her older brother, Roli, are scholarship students. They don’t have a big house or a fancy…
As an educator, author of children’s books, and caregiver of a loved one with dementia, I felt that I had to write a story about the disease from a child’s point of view. When I became a caregiver, I was struck by the lack of information for children and the misconceptions of the public about the disease. I wanted to create a story that reassures children and gives them guidance on how they can help be a caregiver. I added the Author’s Note to provide accurate information to adults so that more people are aware of the signs of dementia and to build understanding and compassion.
This author does a beautiful job of explaining how individuals with dementia may not be able to recognize their friends and family, but still need love and attention.
The boy in the story figures out how to connect with his grandpa, even though he may not get a smile in return. It is really and truly delightful and reassuring.
With tenderness, sensitivity, and humor, Really and Truly explores the effect that dementia has on a young boy named Charlie and his family.
Charlie is very close to his grandfather, who loves to tell fanciful stories about pirates, witches, and gnomes that amuse Charlie to no end. But lately, Charlie's grandpa doesn't have any new stories to tell — in fact, some days grandpa doesn't even recognize Charlie. A disease has stolen grandpa's memories, his appetite, and even his smile.
Charlie wants so much to make his grandpa smile again that he comes up with a plan to tell him…
I am passionate about aging in America. I was honored to be in health care for over 40 years; I was a leader in home care and hospital systems and was there at the birth of the assisted living movement, now so respected. I specialized in Alzheimer’s as it is the least understood common disease of seniors, one that evokes misery if not handled properly. I started the first Alzheimer’s training for homecare aides in the 90’s. In positions such as Senior Vice President of Northbridge Companies and President of Northbridge Advisory Services, I became an advocate for dementia education, advanced care, and programs for the financially challenged.
Over the years, I’m often asked to recommend books for caregivers about Alzheimer’s or memory loss in general. I often hesitated because so many books are so dreadfully depressing and clinical. In particular, some older books are not in keeping with the more contemporary views on a disease, which is, yes, a cruel and unrelenting villain, but there is hope to be found.
This book showcases many years of experience with thousands of people on the same journey, the opposite of the many books out there that just tell one person’s story. If I have learned anything, it is that all people with Alzheimer’s are different and experience this disease differently.
The late, great Joanne, from whom I got my dementia certification, has a much more useful and uplifting approach for families and friends of those diagnosed with Alzheimer’s. It's a classic.
A guide to more successful communication for the millions of Americans caring for someone with dementia: “Offers a fresh approach and hope.”—NPR
Revolutionizing the way we perceive and live with Alzheimer’s, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Her accessible and comprehensive method, which she calls habilitation, works to enhance communication between carepartners and patients and has proven successful with thousands of people living with dementia.
Learning to Speak Alzheimer’s also offers hundreds of practical tips, including how to -Cope with the…
For nearly 7 years I watched my father decline from Alzheimer’s. It was perhaps the most difficult journey I’ve ever taken. My book, My Father’s Brain, is a memoir of my relationship with my father as he succumbed to his disease, but it is also a scientific and historical inquiry into the fragility of the brain. In the book, I set my father’s descent into dementia alongside my own journey, as a doctor, writer, and son, toward understanding this mysterious and devastating disease.
A British neuroscientist, Jebelli travels around the world to discover the latest in dementia research.
He goes to Papua New Guinea, Japan, India, and China to learn about experimental (but mostly futile) treatments, including stem cells, blood transfusions and repurposed cancer drugs.
In the end, he acknowledges how little medicine currently has to offer patients living with dementia, even as he holds out hope (far-fetched, in my view) for a cure in 10 years.
For readers of Atul Gawande, Siddhartha Mukherjee, and Henry Marsh, a riveting, gorgeously written biography of one of history's most fascinating and confounding diseases -- Alzheimer's -- from its discovery more than 100 years ago to today's race towards a cure.
Alzheimer's is the great global epidemic of our time, affecting millions worldwide -- there are more than 5 million people diagnosed in the US alone. And as our population ages, scientists are working against the clock to find a cure.
Neuroscientist Joseph Jebelli is among them. His beloved grandfather had Alzheimer's and now he's written the book he needed…
Fiction is oftentimes a difficult genre to recommend, as we are in the area of storytelling. Fiction though is also an important genre as it opens the reader to another perspective. I chose off-tangent books because we crave the mystery and fresh perspective these books have to offer. The books I have recommended are books that will lead you to another place you’ve never been to before.
I’ve read this book before I’ve even watched Fight Club. Choke was the reason I opted to see the movie in the first place. Chuck Palahniuk brings his story to you as if he’s guiding you through a dark, risky alleyway that you’ve always been advised not to visit. He brings information, psychological disorders, and more into a strange normality that is scary to find relatable. It has indeed widened my perspective and brought me to see the absurdity, and observe closely.
Victor Mancini, a medical-school dropout, is an antihero for our deranged times. Needing to pay elder care for his mother, Victor has devised an ingenious scam: he pretends to choke on pieces of food while dining in upscale restaurants. He then allows himself to be “saved” by fellow patrons who, feeling responsible for Victor’s life, go on to send checks to support him. When he’s not pulling this stunt, Victor cruises sexual addiction recovery workshops for action, visits his addled mom, and spends his days working at a colonial theme park. His creator, Chuck Palahniuk, is the visionary we need…
