10 books like American Dementia

By Daniel R. George, Peter J. Whitehouse,

Here are 10 books that authors have personally recommended if you like American Dementia. Shepherd is a community of 7,000+ authors sharing their favorite books with the world.

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Book cover of The Structure of Scientific Revolutions

Richard Botelho Author Of The Full Extent: An Inquiry Into Reality and Destiny

From the list on reality and destiny.

Who am I?

I'm an author, thinker, philosopher, and social critic. My previous books include gold award winner The New Individualism: Personal Change to Transform Society, Leah’s Way, and Reason for Existence. My works are used in hundreds of colleges and universities and have been featured in several publications. I received my B.A. in Government and M.A. in Government from California State University, Sacramento. My thesis was entitled “Toward a Credible Central Intelligence Agency.” The research included interviews with the intelligence community and national security officials, including a former CIA Director. That process enabled vast insights into the structures and functions of society, specifically the confluence of politics, economics, power, technology, security, order, religion, and transformation.

Richard's book list on reality and destiny

Discover why each book is one of Richard's favorite books on reality and destiny .

Why this book?

Perhaps one of the greatest books ever written. Kuhn is one of the most brilliant thinkers in human history, the creator of the word “paradigm.” This book examines how science progresses over time, one worldview replacing another. More significantly, Kuhn argued that defenders of the current paradigm resist any challenge to its tenets to maintain respect and privilege. In short, science is limited by human insecurity and ego. I found this book to be imperative to any understanding of how the world works. 

The Structure of Scientific Revolutions

By Thomas S. Kuhn,

Why should I read it?

6 authors picked The Structure of Scientific Revolutions as one of their favorite books, and they share why you should read it.

What is this book about?

A good book may have the power to change the way we see the world, but a great book actually becomes part of our daily consciousness, pervading our thinking to the point that we take it for granted, and we forget how provocative and challenging its ideas once were-and still are. "The Structure of Scientific Revolutions" is that kind of book. When it was first published in 1962, it was a landmark event in the history and philosophy of science. And fifty years later, it still has many lessons to teach. With "The Structure of Scientific Revolutions", Kuhn challenged long-standing…


How the Brain Lost Its Mind

By Allan H. Ropper, Brian Burrell,

Book cover of How the Brain Lost Its Mind: Sex, Hysteria, and the Riddle of Mental Illness

Alberto Espay Author Of Brain Fables: The Hidden History of Neurodegenerative Diseases and a Blueprint to Conquer Them

From the list on rethinking brain aging and neurodegeneration.

Who am I?

I am a professor of neurology at the University of Cincinnati, interested in the many ways in which we acquire impairments in movements, in cognition, or in both. I have sought to measure these behaviors, quantify their responses to different pharmacological treatments, and determine how they inform the biology of the aging brain. In publications along the way, I have increasingly questioned how we classify neurological diseases and treat those affected.

Alberto's book list on rethinking brain aging and neurodegeneration

Discover why each book is one of Alberto's favorite books on rethinking brain aging and neurodegeneration .

Why this book?

This book offers a captivating tale of how the increasing knowledge of one disease, syphilis, created the foundations to understanding that the brain and mind are one and the same. The authors narrate the stories of patients whose “hysteria” (today referred to as functional neurological disorder) were traced to degenerative brain lesions that only belatedly were understood to be complications caused by remote infections with the bacterium Treponema pallidum. Several chapters follow the story of the important characters depicted by André Brouillet in the Une leçon clinique à la Salpêtrière (A Clinical Lesson at the Salpêtrière), one of the most recognized paintings by neurologists, as it depicts Jean-Martin Charcot, shown among many of his disciples, demonstrating a “hysteric” seizure in one of his patients. The authors illustrate how we have gotten away with conceptualizing behaviors without biological basis and put the reader on notice that “mental illnesses” are neurological problems…

How the Brain Lost Its Mind

By Allan H. Ropper, Brian Burrell,

Why should I read it?

1 author picked How the Brain Lost Its Mind as one of their favorite books, and they share why you should read it.

What is this book about?

'Hugely entertaining' Guardian

'Fascinating' Mail on Sunday

In 1882, Jean-Martin Charcot was the premiere physician in Paris, having just established a neurology clinic at the infamous Salpetriere Hospital, a place that was called a 'grand asylum of human misery'. Assessing the dismal conditions, he quickly upgraded the facilities, and in doing so, revolutionized the treatment of mental illness.

Many of Charcot's patients had neurosyphilis (the advanced form of syphilis), a disease of mad poets, novelists, painters, and musicians, and a driving force behind the overflow of patients in Europe's asylums. A sexually transmitted disease, it is known as 'the great…


Madness and Memory

By Stanley B. Prusiner,

Book cover of Madness and Memory: The Discovery of Prions--A New Biological Principle of Disease

Alberto Espay Author Of Brain Fables: The Hidden History of Neurodegenerative Diseases and a Blueprint to Conquer Them

From the list on rethinking brain aging and neurodegeneration.

Who am I?

I am a professor of neurology at the University of Cincinnati, interested in the many ways in which we acquire impairments in movements, in cognition, or in both. I have sought to measure these behaviors, quantify their responses to different pharmacological treatments, and determine how they inform the biology of the aging brain. In publications along the way, I have increasingly questioned how we classify neurological diseases and treat those affected.

Alberto's book list on rethinking brain aging and neurodegeneration

Discover why each book is one of Alberto's favorite books on rethinking brain aging and neurodegeneration .

Why this book?

Stan Prusiner received the Nobel Prize of Medicine in 1997 for identifying what at the time was considered a novel mechanism of neurodegeneration: the prions. These “infectious proteins” were responsible for ravaging the brains of animals suffering from scrapie and mad cow disease, and of humans with Creutzfeldt-Jakob disease. Although I have come to doubt that prions are a cause of rapidly progressive dementia and may instead represent a consequence, Prusiner’s memoir is filled with moments of skepticism, self-doubt, adversity, and intellectual rivalries –the ingredients for a gripping drama in neurosciences. 

Madness and Memory

By Stanley B. Prusiner,

Why should I read it?

1 author picked Madness and Memory as one of their favorite books, and they share why you should read it.

What is this book about?

A first-person account of a revolutionary scientific discovery that is now helping to unravel the mysteries of brain diseases

In 1997, Stanley B. Prusiner received a Nobel Prize, the world's most prestigious award for achievement in physiology or medicine. That he was the sole recipient of the award for the year was entirely appropriate. His struggle to identify the agent responsible for ravaging the brains of animals suffering from scrapie and mad cow disease, and of humans with Creutzfeldt-Jakob disease, had been waged largely alone and in some cases in the face of strenuous disagreement.

In this book, Prusiner tells…


This Idea Must Die

By John Brockman,

Book cover of This Idea Must Die: Scientific Theories That Are Blocking Progress

Alberto Espay Author Of Brain Fables: The Hidden History of Neurodegenerative Diseases and a Blueprint to Conquer Them

From the list on rethinking brain aging and neurodegeneration.

Who am I?

I am a professor of neurology at the University of Cincinnati, interested in the many ways in which we acquire impairments in movements, in cognition, or in both. I have sought to measure these behaviors, quantify their responses to different pharmacological treatments, and determine how they inform the biology of the aging brain. In publications along the way, I have increasingly questioned how we classify neurological diseases and treat those affected.

Alberto's book list on rethinking brain aging and neurodegeneration

Discover why each book is one of Alberto's favorite books on rethinking brain aging and neurodegeneration .

Why this book?

This collection of essays blew my mind. Researchers in a range of disciplines were asked to elaborate on why a given idea in their field should be put to rest. There is a chapter dedicated to big data, nature versus nurture, cause and effect, race, Linnaean classification, etc. The book’s essays inspired me to shape a section on “Reductionism and related ideas that will die” as part of a solicited article I wrote with Tony Lang in 2018 aiming to predict the future of Parkinson’s disease research in the 2020s (Ben Stecher credited it as his reason to relocate to Cincinnati to work with us in our CCBP study). This book is also a reminder that progress requires new ideas, and most cannot emerge without first abandoning outdated ones (as Kuhn articulated).  

An idea that must die in neurology is the clinico-pathologic model of classifying neurodegenerative diseases: abnormalities on brain…

This Idea Must Die

By John Brockman,

Why should I read it?

1 author picked This Idea Must Die as one of their favorite books, and they share why you should read it.

What is this book about?

The bestselling editor of This Explains Everything brings together 175 of the world's most brilliant minds to tackle Edge.org's 2014 question: What scientific idea has become a relic blocking human progress? Each year, John Brockman, publisher of Edge.org-"The world's smartest website" (The Guardian)-challenges some of the world's greatest scientists, artists, and philosophers to answer a provocative question crucial to our time. In 2014 he asked 175 brilliant minds to ponder: What scientific idea needs to be put aside in order to make room for new ideas to advance? The answers are as surprising as they are illuminating.
In : *…


Book cover of Alzheimer's Daughter

Ann Campanella Author Of Motherhood: Lost and Found: A memoir

From the list on inspiring memoirs about Alzheimer’s and Dementia.

Who am I?

An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.   

Ann's book list on inspiring memoirs about Alzheimer’s and Dementia

Discover why each book is one of Ann's favorite books on inspiring memoirs about Alzheimer’s and Dementia .

Why this book?

I can’t even imagine having both parents diagnosed with Alzheimer’s on the same day. But Jean Lee handles this situation with grace and devotion. Through her parents’ letters, she shares their love story. Ed and Ibby have a beautiful bond as do their daughters, yet the girls face a challenging road of caregiving that is sad, humorous, and touching, but always a model for how to love well. In Jean’s book, she casts a spell of nostalgia, faith, and whimsy, pulling the reader into a circle of intimacy. 

Alzheimer's Daughter

By Jean Lee,

Why should I read it?

2 authors picked Alzheimer's Daughter as one of their favorite books, and they share why you should read it.

What is this book about?

What would you do if both parents were diagnosed with Alzheimer’s?At the time of their diagnosis, Ed Church struggles to his feet, yelling, “How dare you use the A. word with me,” while Ibby wags her finger at the doctor scolding, “Shame on you.”They protect each other, Ibby by asserting, “We’re not leaving our home,” and Ed reassuring, “We’re just fine.”About his driving Ed defends, “I’m an excellent driver, I’ve never had an accident.” When their daughter, Rosie, finds dings in Ed’s car, he dismisses, “Someone must have bumped into me.”After Rosie moves them to assisted living, convinced they are…


Embracing What Remains

By Andrea Couture,

Book cover of Embracing What Remains: A Memoir

Ann Campanella Author Of Motherhood: Lost and Found: A memoir

From the list on inspiring memoirs about Alzheimer’s and Dementia.

Who am I?

An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.   

Ann's book list on inspiring memoirs about Alzheimer’s and Dementia

Discover why each book is one of Ann's favorite books on inspiring memoirs about Alzheimer’s and Dementia .

Why this book?

Andrea Couture’s father, a well-known, recently retired surgeon, develops Alzheimer’s at the age of 67. As someone who also lost a parent at a young age, Embracing What Remains touched a deep place in my heart. I connected with how she processed her emotions through her writing. I also appreciated the way she balances her grief over his disease with the gratitude and joy she discovers in each moment. This is a beautifully written memoir! 

Embracing What Remains

By Andrea Couture,

Why should I read it?

1 author picked Embracing What Remains as one of their favorite books, and they share why you should read it.

What is this book about?

***AlzAuthors.com recommended book***

***Finalist in Next Generation Indie Book Awards***

Andrea struggles to mourn a man who is still alive as she witnesses her father decline into the depths of Alzheimer’s.
Denial and devastation color her life when she learns her father, Richard, a recently retired surgeon, is diagnosed with Alzheimer’s at the age of 67. Her dream to grow closer with him is crushed as the reality of his disease is fully realized. Andrea, a mother of three young children, learns to balance motherhood with daughterhood as she grapples to accept her father’s fate. Andrea rides an unpredictable wave…


Book cover of From the Corner Office to Alzheimer's

Marianne Sciucco Author Of Blue Hydrangeas

From the list on living with dementia.

Who am I?

I am a registered nurse, author, and dementia daughter. As a nurse and hospital case manager, I spent many years caring for people living with dementia and their families. This inspired me to write a novel, Blue Hydrangeas, an Alzheimer’s love story. I soon encountered difficulties marketing my book. I reached out to two other dementia daughters I’d met online who had also written books on the subject from personal experience and together we founded the non-profit organization AlzAuthors.com. Our mission is to carefully vet resources – stories of personal caregiving – to help busy caregivers find the information and inspiration they need for their own journeys. To date, we are 300+ authors strong.

Marianne's book list on living with dementia

Discover why each book is one of Marianne's favorite books on living with dementia .

Why this book?

Michael was an executive in a Fortune 500 company when he was diagnosed with early-onset Alzheimer’s at age 49. What followed was a cascade of losses: career, income, purpose. Not one to give up easily, Michael turned his efforts and energy to dementia advocacy, speaking across the country and internationally at conferences and before Congress. His book tells the story of his newfound passion and work with raw honesty.

From the Corner Office to Alzheimer's

By Michael Ellenbogen,

Why should I read it?

1 author picked From the Corner Office to Alzheimer's as one of their favorite books, and they share why you should read it.

What is this book about?

Imagine having a mysterious illness take over your mind. Over the next 10 years, you try to navigate a health care and social system that is not equipped to address what is happening to you. As you slowly lose your ability to think and remember, you have to try to hide the losses to protect you and your family financially. You encounter doctors who are at best baffled, and order a series of nonspecific, redundant, and uninformative studies. If you want to know what it is like to walk in the shoes of one person with Alzheimer’s, read this book,…


Motherhood

By Ann Campanella,

Book cover of Motherhood: Lost and Found: A memoir

Vicki Tapia Author Of Somebody Stole My Iron: A Family Memoir of Dementia

From the list on Alzheimer’s and dementia caregiving stories.

Who am I?

I am a caregiver who became an author. Both my parents had dementia. I found few books written from a personal perspective to give me guidance, so the journal I kept ultimately became the book I wished I could have read during our dementia journey. The journey didn’t end for me with the death of my parents. It led me to form a non-profit with two other dementia authors. This passion project has become a global community of authors who have written about Alzheimer’s and dementia from personal experience. Now more than 300 strong, we provide quality resources for caregivers and others concerned about dementia. Learn more at AlzAuthors.com.

Vicki's book list on Alzheimer’s and dementia caregiving stories

Discover why each book is one of Vicki's favorite books on Alzheimer’s and dementia caregiving stories .

Why this book?

Ann Campanella’s memoir details her journey through caregiving for her mother with Alzheimer’s at the same time she was struggling to start her own family. I felt it all: the anxiety, the frustration, as well as the pain, as she watched her mother decline while coping with an inability to conceive. Ann’s book reminded me to appreciate life’s joys, no matter how small, whether riding a beloved horse, marveling at a sunset, smelling a beautiful flower, or offering a simple hug. 

Motherhood

By Ann Campanella,

Why should I read it?

2 authors picked Motherhood as one of their favorite books, and they share why you should read it.

What is this book about?

Ann Campanella, a freelance writer and horsewoman, returns to North Carolina after a several year absence. In her mid thirties and ready to start a family, she is used to setting goals and accomplishing them. But when Ann experiences a series of miscarriages at the same time her mother shows signs of Alzheimer’s, she plunges into an emotional journey that leads her to a deeper understanding of herself and what it means to love.

"One of the best Alzheimer's books of all time." - Book Authority


Sticky Notes

By Dianne Touchell,

Book cover of Sticky Notes

Shannon Wiersbitzky Author Of What Flowers Remember

From the list on when a loved one has Alzheimers dementia.

Who am I?

The inspiration to write about Alzheimer’s came from my own life. My grandfather had the disease. He and I were very close and it broke my heart when I realized I’d been forgotten. He only remembered my voice, that it sounded like a little girl he used to know. I wanted to capture the truth of that in a story. Sadly, dementia is so common, but for some reason, we don’t talk about Alzheimer’s as openly as we do other diseases. Kids need to be able to have everyday conversations about what they might be experiencing in regards to whomever they know with the disease. My hope is that books like Flowers can help.

Shannon's book list on when a loved one has Alzheimers dementia

Discover why each book is one of Shannon's favorite books on when a loved one has Alzheimers dementia .

Why this book?

Sticky Notes centers on a parent who has early-onset Alzheimer’s and is told from the perspective of a 10-year-old boy, Foster. The voice is a genuine one and the writing is heartfelt, as Foster compares his own forgetting to Dad’s forgetting and sometimes convinces himself that there is no need to worry. The confusion and lack of clear discussion with Foster about what is happening is a real challenge for many dealing with the disease. As the forgetting gets worse and Dad begins to change, Touchell documents the family changes that Foster and his mother go through too, with a sensitive touch. 

Sticky Notes

By Dianne Touchell,

Why should I read it?

1 author picked Sticky Notes as one of their favorite books, and they share why you should read it.

What is this book about?

For fans of The Thing About Jellyfish, a touching story about the power of love and family in the face of a parent's early-onset Alzheimer's disease.

Ten-year-old Foster has always loved listening to his dad's stories. But lately, Dad's memory hasn't been so great, and Mom's placed sticky notes around the house to help him. As Dad's condition worsens, it's Foster who will need to look deep into his heart and remember for them both.

Sticky Notes is a touching story about the power of love and family in the face of a parent's Alzheimer's disease, and a moving reminder…


In Search of Rainbows

By Susan Landeis,

Book cover of In Search of Rainbows: A daughter's story of loss, hope, and redemption

Jean Lee Author Of Alzheimer's Daughter

From the list on personal experience with Alzheimer’s and dementia.

Who am I?

Both of my parents were diagnosed with Alzheimer’s on the same day. The time period from the beginning hints of subtle oddities in their behavior and cognition, through their diagnosis and until their deaths was a decade. I worked full time as an elementary teacher during their illness and had always read to solve problems. Therefore, I sought any authors who would share their personal experiences with me. These stories sustained me. They saved me. They allowed me to know I was not alone. From that experience grew my own memoir, Alzheimer’s Daughter.

Jean's book list on personal experience with Alzheimer’s and dementia

Discover why each book is one of Jean's favorite books on personal experience with Alzheimer’s and dementia .

Why this book?

Susan Landeis dealt with rejection and jealousy from her own mom as she was a little girl and through her teenage years. What does one do when an estranged parent is diagnosed with dementia and needs care? It is a rare individual who reacts with the kindness and forgiveness of Landeis. Because of that generosity and love, or perhaps because her mother forgot the meanness and rejection she inflicted on her daughter in years past, Susan and her mom grew a beautiful relationship during those caregiving years, giving them both comfort in the end.

In Search of Rainbows

By Susan Landeis,

Why should I read it?

1 author picked In Search of Rainbows as one of their favorite books, and they share why you should read it.

What is this book about?

Susan always knew her relationship with her mother was different from that of other mothers and daughters. As a young girl, she struggled to cope with her mother's unpredictable behavior, rejection, and abandonment. At the age of sixteen, she left home and put it all behind her. Years later, her mother was diagnosed with a devastating illness, and Susan was suddenly faced with the difficult decision to care for both of her parents. In this inspiring, soul-searching memoir, Susan tells the story of a troubled childhood, her struggles as an adult, and her determination to find peace with her mother…


5 book lists we think you will like!

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