The best books on living with dementia

Who am I?

I am a registered nurse, author, and dementia daughter. As a nurse and hospital case manager, I spent many years caring for people living with dementia and their families. This inspired me to write a novel, Blue Hydrangeas, an Alzheimer’s love story. I soon encountered difficulties marketing my book. I reached out to two other dementia daughters I’d met online who had also written books on the subject from personal experience and together we founded the non-profit organization AlzAuthors.com. Our mission is to carefully vet resources – stories of personal caregiving – to help busy caregivers find the information and inspiration they need for their own journeys. To date, we are 300+ authors strong.


I wrote...

Book cover of Blue Hydrangeas

What is my book about?

What if the person who knew you best and loved you most forgot your face, and couldn't remember your name? Memory care is everyone's solution for what to do about Sara but Jack can't bear to live without her. He’s committed to saving his marriage, his wife, and their life together from the devastation of Alzheimer’s disease. They retired years ago to the house of their dreams and operated it as a bed and breakfast named Blue Hydrangeas. Jack has made an impossible promise: They’ll stay together in their beautiful home no matter what the disease brings.

He takes them on an impulsive journey to confront their past and reclaim their future. In the end, he realizes that staying together at any cost is what truly matters.

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The books I picked & why

Book cover of Somebody I Used to Know: A Memoir

Marianne Sciucco Why did I love this book?

Wendy Mitchell was devastated to receive a diagnosis of early-onset dementia at age 58. What she learned is that having dementia did not mean her life was over. Instead of getting ready to die, as her physician recommended, she got busy living, became a dementia advocate and speaker across the United Kingdom, earned two honorary doctorates, and realized many of her life’s dreams, including that of becoming a published author, telling her deeply personal story. This is one of the first, if not the first, personal accounts of living with dementia to become a national bestseller. Wendy spares no details and brings the reader deep into her life as a woman living alone with memory loss.

By Wendy Mitchell,

Why should I read it?

3 authors picked Somebody I Used to Know as one of their favorite books, and they share why you should read it.

What is this book about?

THE RICHARD AND JUDY BOOK CLUB PICK THE SUNDAY TIMES BESTSELLER A BBC RADIO 4 BOOK OF THE WEEK CHOSEN AS A 2018 SUMMER READ BY THE SUNDAY TIMES, FINANCIAL TIMES, DAILY TELEGRAPH, THE TIMES AND THE MAIL ON SUNDAY 'Revelatory' Guardian 'A miracle' Telegraph 'A landmark book' Financial Times Brave, illuminating and inspiring, Somebody I Used to Know gets to the very heart of what it means to be human. What do you lose when you lose your memories? What do you value when this loss reframes how you've lived, and how you will live in the future? How…


Book cover of Dementia from the Inside: A Doctor's Personal Journey of Hope

Marianne Sciucco Why did I love this book?

Jennifer Bute is a medical doctor living in the United Kingdom. After being diagnosed with dementia she had to retire from her practice and moved into an assisted living facility. Here, she continues caring for others by offering seminars on living with dementia and writing about her journey on her blog and on Facebook, as well as in this beautiful book. Her story is brave and inspiring and dispels many myths about living with dementia.

By Jennifer Bute,

Why should I read it?

1 author picked Dementia from the Inside as one of their favorite books, and they share why you should read it.

What is this book about?

Jennifer Bute, author of Dementia from the Inside, was a highly qualified senior doctor in a large clinical practice, whose patients included those with dementia. Then she began to notice symptoms in herself. She was finally given a diagnosis of Young Onset Dementia in 2009.

After resigning as a GP, Jennifer resolved to explore what could be done to slow the progress of dementia. She and Louise Morse decided to co-write this book, Dementia from the Inside as a practical resource for those who are living with dementia.

The book tells readers what it's like to live with dementia, how…


Book cover of Slow Puncture: Living Well With Dementia

Marianne Sciucco Why did I love this book?

A love of cycling brought Peter Berry and Deb Bunt together as friends. Deb had not encountered a person with dementia until she met Peter. His positive attitude about living well with dementia and his poetic and insightful musings on his condition inspired her to write his memoir, to preserve his story. This is a deeply moving book, full of beautiful, lyrical language.

By Peter Berry, Deb Bunt,

Why should I read it?

1 author picked Slow Puncture as one of their favorite books, and they share why you should read it.

What is this book about?

This is an account of a year in the life of Peter Berry, an ordinary man living in a sleepy Suffolk village. Happily married and running a successful business, Peter's life changes when, at the age of fifty, he is given a terminal diagnosis of early-onset dementia. Since that day, he has learned to live with his very own 'dementia monster'. From depression and suicide attempts through to his determination to confront his dementia, Peter has embarked on a series of challenges to show that 'life isn't over with dementia, it's just a little different'. Peter has now raised thousands…


Book cover of Memory's Last Breath: Field Notes on My Dementia

Marianne Sciucco Why did I love this book?

Gerda Saunders was diagnosed with cerebral microvascular disease, the leading cause of dementia after Alzheimer’s disease, a few days before her sixty-first birthday. This forced her to confront her mortality and to write an end-of-life plan she could live with. Gerda is a brave, inspiring woman. Her book is a rich, thoughtful accounting of life with dementia.

By Gerda Saunders,

Why should I read it?

1 author picked Memory's Last Breath as one of their favorite books, and they share why you should read it.

What is this book about?

A "courageous and singular book" (Andrew Solomon), Memory's Last Breath is an unsparing, beautifully written memoir -- "an intimate, revealing account of living with dementia" (Shelf Awareness).

Based on the "field notes" she keeps in her journal, Memory's Last Breath is Gerda Saunders' astonishing window into a life distorted by dementia. She writes about shopping trips cut short by unintentional shoplifting, car journeys derailed when she loses her bearings, and the embarrassment of forgetting what she has just said to a room of colleagues. Coping with the complications of losing short-term memory, Saunders, a former university professor, nonetheless embarks on…


Book cover of From the Corner Office to Alzheimer's

Marianne Sciucco Why did I love this book?

Michael was an executive in a Fortune 500 company when he was diagnosed with early-onset Alzheimer’s at age 49. What followed was a cascade of losses: career, income, purpose. Not one to give up easily, Michael turned his efforts and energy to dementia advocacy, speaking across the country and internationally at conferences and before Congress. His book tells the story of his newfound passion and work with raw honesty.

By Michael Ellenbogen,

Why should I read it?

1 author picked From the Corner Office to Alzheimer's as one of their favorite books, and they share why you should read it.

What is this book about?

Imagine having a mysterious illness take over your mind. Over the next 10 years, you try to navigate a health care and social system that is not equipped to address what is happening to you. As you slowly lose your ability to think and remember, you have to try to hide the losses to protect you and your family financially. You encounter doctors who are at best baffled, and order a series of nonspecific, redundant, and uninformative studies. If you want to know what it is like to walk in the shoes of one person with Alzheimer’s, read this book,…


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Anatomy of Embodied Education: Creating Pathways to Brain-Mind Evolution

By E. Timothy Burns, Jim Brown,

Book cover of Anatomy of Embodied Education: Creating Pathways to Brain-Mind Evolution

E. Timothy Burns

New book alert!

What is my book about?

The vast mysterious terrain explored in this book encompasses the embodied human brain, the processes through which humans grow, develop, and learn, and the mystery of consciousness itself. We authors offer this guidebook to assist you in entering and exploring that terrain.

As parents and educators come to understand this terrain and these vital processes more fully, we also begin to see how we have been unnecessarily hampered by erroneous assumptions and flawed educational practices common to our culture. Then, seeing those impediments, we can create ways to move beyond them, allowing our children’s growth, development, and learning to proceed more freely and naturally.

Anatomy of Embodied Education: Creating Pathways to Brain-Mind Evolution

By E. Timothy Burns, Jim Brown,

What is this book about?

Imagine that you have obtained a guidebook for exploring a vast, mysterious forest that you have heard of, but have never known how to approach-a forest so intricate and lush that most people feel reluctant to enter it without an experienced guide, and yet so alluring that you long to wander its paths, follow its streams to their source, gain access to its panoramic views of terrains that have barely begun to be mapped.


What makes this terrain so alluring is that it enfolds largely untold knowledge of the processes through which humans grow, develop, learn. And as explorers understand…


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Interested in Alzheimer's disease, dementia, and rehabilitation?

10,000+ authors have recommended their favorite books and what they love about them. Browse their picks for the best books about Alzheimer's disease, dementia, and rehabilitation.

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