Here are 100 books that Dementia from the Inside fans have personally recommended if you like
Dementia from the Inside.
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Like the Bach sisters in my novel Things We Do For Love, my sisters and I have cared for our mother, who battles Alzheimer's. Witnessing her transformation from a vibrant powerhouse to someone resembling the Walking Dead has been heart-wrenching. Despite the emotional rollercoaster, this journey has deeply connected us with our mother. Delving into the depths of her being has been a privilege, offering profound insights into her true essence. This challenging experience has unfolded as a disguised blessing. In this journey, we've discovered the beauty of unconditional love that binds our family together. It reflects the central question of my novel: What truly makes a happy family?
Receiving a dementia diagnosis at just 58 years old can be paralysing, but Wendy Mitchell chose a different path. Instead of preparing for the end, she embraced life with newfound determination.
Wendy became a passionate advocate and speaker for dementia awareness. Her remarkable journey includes earning two honorary doctorates and achieving many of her life's dreams, including becoming a published author to share her deeply personal story.
With engaging wit and unwavering courage, Wendy candidly narrates her daily battle with the illness. Her story is both heartwarming and inspirational, as she shows us that despite the challenges, dementia can also bring unexpected gifts alongside sorrow.
Wendy's character is endearing, and her resilience shines through, leaving readers with a profound sense of hope and a deeper understanding of the human spirit in the face of adversity.
THE RICHARD AND JUDY BOOK CLUB PICK
THE SUNDAY TIMES BESTSELLER
A BBC RADIO 4 BOOK OF THE WEEK
CHOSEN AS A 2018 SUMMER READ BY THE SUNDAY TIMES, FINANCIAL TIMES, DAILY TELEGRAPH, THE TIMES AND THE MAIL ON SUNDAY
'Revelatory' Guardian
'A miracle' Telegraph
'A landmark book' Financial Times
Brave, illuminating and inspiring, Somebody I Used to Know gets to the very heart of what it means to be human.
What do you lose when you lose your memories? What do you value when this loss reframes how you've lived, and how you will live in the future? How…
I am a registered nurse, author, and dementia daughter. As a nurse and hospital case manager, I spent many years caring for people living with dementia and their families. This inspired me to write a novel, Blue Hydrangeas, an Alzheimer’s love story. I soon encountered difficulties marketing my book. I reached out to two other dementia daughters I’d met online who had also written books on the subject from personal experience and together we founded the non-profit organization AlzAuthors.com. Our mission is to carefully vet resources – stories of personal caregiving – to help busy caregivers find the information and inspiration they need for their own journeys. To date, we are 300+ authors strong.
A love of cycling brought Peter Berry and Deb Bunt together as friends. Deb had not encountered a person with dementia until she met Peter. His positive attitude about living well with dementia and his poetic and insightful musings on his condition inspired her to write his memoir, to preserve his story. This is a deeply moving book, full of beautiful, lyrical language.
This is an account of a year in the life of Peter Berry, an ordinary man living in a sleepy Suffolk village. Happily married and running a successful business, Peter's life changes when, at the age of fifty, he is given a terminal diagnosis of early-onset dementia. Since that day, he has learned to live with his very own 'dementia monster'. From depression and suicide attempts through to his determination to confront his dementia, Peter has embarked on a series of challenges to show that 'life isn't over with dementia, it's just a little different'. Peter has now raised thousands…
I am a registered nurse, author, and dementia daughter. As a nurse and hospital case manager, I spent many years caring for people living with dementia and their families. This inspired me to write a novel, Blue Hydrangeas, an Alzheimer’s love story. I soon encountered difficulties marketing my book. I reached out to two other dementia daughters I’d met online who had also written books on the subject from personal experience and together we founded the non-profit organization AlzAuthors.com. Our mission is to carefully vet resources – stories of personal caregiving – to help busy caregivers find the information and inspiration they need for their own journeys. To date, we are 300+ authors strong.
Gerda Saunders was diagnosed with cerebral microvascular disease, the leading cause of dementia after Alzheimer’s disease, a few days before her sixty-first birthday. This forced her to confront her mortality and to write an end-of-life plan she could live with. Gerda is a brave, inspiring woman. Her book is a rich, thoughtful accounting of life with dementia.
A "courageous and singular book" (Andrew Solomon), Memory's Last Breath is an unsparing, beautifully written memoir -- "an intimate, revealing account of living with dementia" (Shelf Awareness).
Based on the "field notes" she keeps in her journal, Memory's Last Breath is Gerda Saunders' astonishing window into a life distorted by dementia. She writes about shopping trips cut short by unintentional shoplifting, car journeys derailed when she loses her bearings, and the embarrassment of forgetting what she has just said to a room of colleagues. Coping with the complications of losing short-term memory, Saunders, a former university professor, nonetheless embarks on…
I am a registered nurse, author, and dementia daughter. As a nurse and hospital case manager, I spent many years caring for people living with dementia and their families. This inspired me to write a novel, Blue Hydrangeas, an Alzheimer’s love story. I soon encountered difficulties marketing my book. I reached out to two other dementia daughters I’d met online who had also written books on the subject from personal experience and together we founded the non-profit organization AlzAuthors.com. Our mission is to carefully vet resources – stories of personal caregiving – to help busy caregivers find the information and inspiration they need for their own journeys. To date, we are 300+ authors strong.
Michael was an executive in a Fortune 500 company when he was diagnosed with early-onset Alzheimer’s at age 49. What followed was a cascade of losses: career, income, purpose. Not one to give up easily, Michael turned his efforts and energy to dementia advocacy, speaking across the country and internationally at conferences and before Congress. His book tells the story of his newfound passion and work with raw honesty.
Imagine having a mysterious illness take over your mind. Over the next 10 years, you try to navigate a health care and social system that is not equipped to address what is happening to you. As you slowly lose your ability to think and remember, you have to try to hide the losses to protect you and your family financially. You encounter doctors who are at best baffled, and order a series of nonspecific, redundant, and uninformative studies. If you want to know what it is like to walk in the shoes of one person with Alzheimer’s, read this book,…
By Andrew E. Budson and Maureen K. O'Connor
Author
Why are we passionate about this?
As a neurologist and neuropsychologist team who have spent their entire clinical, teaching, and research careers focused on individuals and their families experiencing memory loss, Alzheimer’s disease, and dementia, our goal is simple. We want to empower individuals and their families with the tools they need to manage memory loss, Alzheimer’s disease, and dementia. We work to balance pharmacological and nonpharmacological management, as well as the needs of the individual with those of their family. Reading books like the ones in our list plus articles in medical journals keeps us current with the progress in the science of dementia and the humanity of individuals and families living with the disease.
This book is wonderful for so many reasons. It reminds us that simple, commonsense approaches often work to solve or ameliorate daily problems. It shows us ways that communication is possible even when language fails. It encourages us to see through the individual’s eyes and live in their world. It urges us to focus on what the person is still able to do, and to compensate for or simply ignore what they cannot. And it inspires us to create moments of success and laughter along the way.
A guide to more successful communication for the millions of Americans caring for someone with dementia: “Offers a fresh approach and hope.”—NPR
Revolutionizing the way we perceive and live with Alzheimer’s, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Her accessible and comprehensive method, which she calls habilitation, works to enhance communication between carepartners and patients and has proven successful with thousands of people living with dementia.
Learning to Speak Alzheimer’s also offers hundreds of practical tips, including how to -Cope with the…
As a physician and attorney, I’ve always been fascinated by the nexus where my two professions meet. During the course of my career, I have been asked to advise colleagues on topics as far-reaching as whether a death row inmate should receive an organ transplant to how to offer psychotherapy ethically to a conjoined twin. Although questions like these do not arise every day, even the everyday questions in my field – on such topics as confidentiality, boundaries, and informed consent – never grow old.
Fins combines personal narratives of patients he has encountered who have suffered severe neurological injuries with data from the field of neurology to explore the complex question of what it means to be in a persistent vegetative state—as well as one’s prognosis for recovery. A deeply compassionate volume that will make readers question what they believe about comas, death, and the gray area in between.
Through the sobering story of Maggie Worthen and her mother, Nancy, this book tells of one family's struggle with severe brain injury and how developments in neuroscience call for a reconsideration of what society owes patients at the edge of consciousness. Drawing upon over fifty in-depth family interviews, the history of severe brain injury from Quinlan to Schiavo, and his participation in landmark clinical trials, such as the first use of deep brain stimulation in the minimally conscious state, Joseph J. Fins captures the paradox of medical and societal neglect even as advances in neuroscience suggest new ways to mend…
I am a practicing clinical psychologist, often at odds with the mainstream of my mental health profession. I have a strong interest in how society, culture, politics, philosophy, and psychology intersect, and my previous books about depression, activism, and anti-authoritarianism reflect that. The late historian Howard Zinn described me this way: “It is always refreshing to find someone who stands at the edge of his profession and dissects its failures with a critical eye, refusing to be deceived by its pretensions. Bruce Levine condemns the cold, technological approach to mental health and, to our benefit, looks for deeper solutions.”
I found Rethinking Madness to be a highly original book. Clinical psychologist Paris Williams interviewed individuals who had been diagnosed with schizophrenia and other psychoses, and he integrated this research with prominent alternative explanations for madness.In contrast to the gloomy picture painted by establishment psychiatry, Williams describes how full recovery from schizophrenia and other related psychotic disorders is not only possible but is surprisingly common, and that many people who recover from these psychotic disorders do not merely return to their pre-psychotic condition, but often undergo a profound positive transformation with far more lasting benefits than harms.
As the recovery research continues to accumulate, we find that the mainstream understanding of schizophrenia and psychosis has lost nearly all credibility:
* After over 100 years and billions of dollars spent on research looking for schizophrenia and other related psychotic disorders in the brain, we still have not found any substantial evidence that these disorders are actually caused by a brain disease. * We have learned that full recovery from schizophrenia and other related psychotic disorders is not only possible but is surprisingly common. * We've discovered that those diagnosed in the United States and other "developed" nations are…
I am a radiologist specializing in emergency room and breast imaging and a lifelong book nerd. Though I chose radiology as my medical specialty, I have always been fascinated by the complicated workings of the human mind. I majored in psychology in college and strongly considered careers in both psychiatry and neurology. Books exploring the fragility and fallibility of the human brain never fail to catch my attention. These stories explore the essence of what it means to be human and highlight the resilience of the human spirit.
This touching memoir reminds me of my father who was hospitalized in midlife with a new diagnosis of Crohn’s disease. Unable to tolerate food, he watched The Food Network from his sick bed, ultimately becoming an accomplished, amateur chef.
Jessica Fechtor was twenty-eight years old graduate student when an aneurysm suddenly burst in her brain. Left with multiple disabilities which made her life challenging to navigate, Fechtor turned to cooking to nourish her wounded soul. Will exploring the world of food help heal her broken brain?
A national bestseller and winner of a Living Now Book Award, Stir is an exquisite memoir about how food connects us to ourselves, our lives, and each other.
At 28, Jessica Fechtor was happily immersed in graduate school and her young marriage, and thinking about starting a family. Then one day, she went for a run and an aneurysm burst in her brain. She nearly died. She lost her sense of smell, the sight in her left eye, and was forced to the sidelines of the life she loved.
Jessica’s journey to recovery began in the kitchen as soon as…
I’m a seeker and fascinated by spirituality. Books were among some of my best friends growing up and I’ve been reading and writing for as long as I can remember. I started my business Write On Creative in 2003 and have helped mission-driven business owners, entrepreneurs, and corporate leaders craft their messages, create marketing messages with integrity, and develop strategies to get their work out into the world. I firmly believe that business is personal so it makes sense that my first book released via the Write On Creative Publishing imprint is my story of healing with love. I live in magical, Ashland, Oregon and love spending time in nature.
Radical Remission was my go-to healing guide when faced with cancer.
What impressed me most about Dr. Kelly Turner is her ability to connect the dots and realize that spontaneous remission wasn’t actually spontaneous. She did extensive research to determine the 9 key factors that help people heal from cancer (and they are not what you might think).
This is a must-have for all resource libraries. I’m also deeply honored that my book was included in The Radical Remission Projects newsletter as recommended reading.
In her New York Times bestseller, Radical Remission: Surviving Cancer Against All Odds, Dr. Kelly A. Turner, founder of the Radical Remission Project, uncovers nine factors that can lead to a spontaneous remission from cancer—even after conventional medicine has failed.
While getting her Ph.D. at the University of California, Berkley, Dr. Turner, a researcher, lecturer, and counselor in integrative oncology, was shocked to discover that no one was studying episodes of radical (or unexpected) remission—when people recover against all odds without the help of conventional medicine, or after conventional medicine has failed. She was so fascinated by this kind of…
My life is divided into two parts: before I left the cult I was involved in during my 20s, and after. Leaving the cult created a reckoning in my life unlike anything I’ve experienced before or since. It was both the worst thing that had ever happened to me, and the best. As a result, I connect deeply with others’ stories of grief, loss, and the challenging times in life that make us. As an author, I have carried these themes into my mystery novels. I hope you experience as much resonance from the books on this list as I have.
What if the worst possible thing that happened to you was the best possible thing? After a cataclysmic injury to her brain, author Bolte Taylor walks us through what she learned about being human because of this event. ‘Everything is energy’ is the message I walked away from this book with, and I remember that message weekly.
Somehow, this neuroscientist is able to discuss our spiritual nature by explaining what happened to her when her ‘brain went offline.’ It is a beautiful and affecting book that, as I say, has stuck with me for years.
"Transformative...[Taylor's] experience...will shatter [your] own perception of the world."-ABC News
The astonishing New York Times bestseller that chronicles how a brain scientist's own stroke led to enlightenment
On December 10, 1996, Jill Bolte Taylor, a thirty-seven- year-old Harvard-trained brain scientist experienced a massive stroke in the left hemisphere of her brain. As she observed her mind deteriorate to the point that she could not walk, talk, read, write, or recall any of her life-all within four hours-Taylor alternated between the euphoria of the intuitive and kinesthetic right brain, in which she felt a sense of complete well-being and peace, and…
