Here are 100 books that How to Be Sick fans have personally recommended if you like
How to Be Sick.
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I felt, after the AIDS crisis, as if I had been one person before it and another after it. I lost so many friends, collaborators, colleagues, and then finally, my own lover, I felt like the shell-shocked survivor of a war after it at least abated somewhat. Then my two sisters and both my parents died, and I became someone whose topic, no matter how veiled it is, is grief and loss. I am a living coffin on its way to a funeral to the sound of a cortège I composed.
I didn’t know if I could recommend a play here, but reading this one is how I first experienced it because it premiered in London. I hadn’t seen it yet, so I read its two monumental parts, “Millennium Approaches” and “Perestroika,” on a typewritten marked-up rehearsal script someone had lent me.
Quite simply, Tony Kushner wrote THE play for my generation, a generation that lost probably half of itself to an awful plague most people, especially the government, ignored until it was too late. When my lover Jeffrey died, I went to the Bethesda Fountain in Central Park and wept because Tony had given it to me in his play, a monument for the AIDS generation.
Finally seeing it on Broadway, with Jeffrey, as he was dying, was like having my DNA scratched and resurfaced into something other than who I was before it. It was shape-shifting, soul-stirring, and salve…
Winner of the Pulitzer Prize for Drama Angels in America: A Gay Fantasia on National Themes includes Part One, Millennium Approaches and Part Two, Perestroika
“Glorious. A monumental, subversive, altogether remarkable masterwork…Details of specific catastrophes may have changed since this Reagan-era AIDS epic won the Pulitzer and the Tony, but the real cosmic and human obsessions—power, religion, sex, responsibility, the future of the world—are as perilous, yet as falling-down funny, as ever.” –Linda Winer, Newsday
"A vast, miraculous play... provocative, witty and deeply upsetting... a searching and radical rethinking of American political drama." - Frank Rich, New York Times
Like my main character, I’m a Norwegian writer with ties to the US, who grew up with various chronic illnesses. I discovered the reason for much of my trouble when I was diagnosed with endometriosis. Isolated and in pain, I have always turned to books. I craved seeing my life reflected. Since Please Read This Leaflet Carefully came out, I’ve heard from many readers. I hope that it can help people who haven’t seen themselves in art before. This list addresses the needs of a life with chronic illness and pain: guidance, darkness, humor, comfort, and poetry. I hope these books will help you as much as they did me.
This collection, published by Bloodaxe Books, categorizes poems loosely by theme and contains a treasure trove of the best poems to help you keep on living when life is too hard. There is a wide range of themes, as well as some uplifting poems that explore everything beautiful about being alive.
Staying Alive is an international anthology of 500 life-affirming poems fired by belief in the human and the spiritual at a time when much in the world feels unreal, inhuman and hollow. These are poems of great personal force connecting our aspirations with our humanity, helping us stay alive to the world and stay true to ourselves. Many people turn to poetry only at unreal times, whether for consolation in loss or affirmation in love, or when facing other extremes and anxieties. Staying Alive includes many of the great modern love poems and elegies, but it also shows the power…
Like my main character, I’m a Norwegian writer with ties to the US, who grew up with various chronic illnesses. I discovered the reason for much of my trouble when I was diagnosed with endometriosis. Isolated and in pain, I have always turned to books. I craved seeing my life reflected. Since Please Read This Leaflet Carefully came out, I’ve heard from many readers. I hope that it can help people who haven’t seen themselves in art before. This list addresses the needs of a life with chronic illness and pain: guidance, darkness, humor, comfort, and poetry. I hope these books will help you as much as they did me.
This is the first book where I read about experiences of childhood illness similar to my own. Reading it was both shocking and deeply cathartic in a way that felt almost dangerous. It is also a cold hard look at class, age, and intergenerational trauma in relation to health and healthcare in the US. It exists in its own category in my mind. All I can say is read it, just not on a bad pain day.
Diagnosed with cancer at age twelve and perilously pregnant at eighteen, surviving surgeries and violent accidents: sometimes you can't believe Bee Lavender is still alive; sometimes you think nothing could kill her. Bee Lavender holds nothing back as she recounts her life spent in and out of hospitals and her subsequent dissociation from her own body and emotions. She struggles with health problems from birth, which are compounded by her surroundings, including frequent encounters with street fights, domestic violence and poverty. Her voice is as strong as the front she puts up for the multitude of doctors she sees, and…
Tap Dancing on Everest, part coming-of-age memoir, part true-survival adventure story, is about a young medical student, the daughter of a Holocaust survivor raised in N.Y.C., who battles self-doubt to serve as the doctor—and only woman—on a remote Everest climb in Tibet.
Like my main character, I’m a Norwegian writer with ties to the US, who grew up with various chronic illnesses. I discovered the reason for much of my trouble when I was diagnosed with endometriosis. Isolated and in pain, I have always turned to books. I craved seeing my life reflected. Since Please Read This Leaflet Carefully came out, I’ve heard from many readers. I hope that it can help people who haven’t seen themselves in art before. This list addresses the needs of a life with chronic illness and pain: guidance, darkness, humor, comfort, and poetry. I hope these books will help you as much as they did me.
I was absolutely stunned when I read "Unspeakable Conversations" by Harriet McBryde Johnson, one of the many brilliant pieces included in this reader. My edition is from 2010, but new and updated editions have come out since. It explores questions of interdependency and independence, gender, the body, sexuality, biases in science and medicine, and physical disabilities, and investigates issues around pain, mental disability, and invisible disabilities.
Becoming familiar with some disability theories has been invaluable to me. My capacity to read myself as disabled has grown and still fluctuates. To know that sharp minds have been working on this and that it isn’t only a private issue but a political and theoretical one, one that can be marked by joy and humor as well as grief, struggle, and hardship, is immensely helpful.
The fifth edition of The Disability Studies Reader addresses the post-identity theoretical landscape by emphasizing questions of interdependency and independence, the human-animal relationship, and issues around the construction or materiality of gender, the body, and sexuality. Selections explore the underlying biases of medical and scientific experiments and explode the binary of the sound and the diseased mind. The collection addresses physical disabilities, but as always investigates issues around pain, mental disability, and invisible disabilities as well. Featuring a new generation of scholars who are dealing with the most current issues, the fifth edition continues the Reader's tradition of remaining timely,…
I am a school psychologist and Christian who has lived with multiple debilitating chronic illnesses for 25 years. As a result, I am all too familiar with how disruptive and life-changing they can be to our daily lives. Yet few books exist that offer practical guidance for living with chronic illness. And even fewer of these books are for Christian readers. Written with different areas of expertise and angles, my book and the books below fill this gap. I hope you enjoy these books as much as I have!
I was drawn to this meticulously written book in part because the author is a professor of pharmacy and my father is a retired pharmacist. I found myself thoroughly enjoying, underlining, and learning from the wealth of insight into living with chronic illness. The author offers excellent tips for navigating relationships, the medical field, and evaluating treatment options.
While this book (like mine) is written for readers of all faiths, I appreciated and related to the testimony in the final chapter in which the author discusses the importance of his Christian faith and how it has helped him find meaning and purpose through suffering.
How do you live well when the physical foundation of your life is crumbling? This is the challenge for millions who live with diseases for which there is no cure. These incurable ailments produce a life of constant pain, fatigue, numbness, dizziness, and other debilitating symptoms that create chronic suffering. Can you thrive in life while experiencing the suffering persistent sickness provokes? In When There Is No Cure, Dr. Craig Svensson guides readers to a path of thriving when life’s journey includes an incurable ailment. Drawing on his expertise as a pharmacist-scientist, as well as a fellow sufferer with several…
As a woman who suffers from chronic illness, I am interested in sharing my experience and learning about other women who also suffer and survive their chronic conditions. I have had endometriosis, a painful disease, since I was a teenager. I’ve always enjoyed stories about different kinds of chronic illnesses, and I appreciate the way pain and sickness can be translated into memorable books.
O’Rourke blends personal anecdotes, meticulous research, and compelling conviction as she argues that how we treat chronic illness needs to change.
She unpacks the complex nature of autoimmune conditions offering the history of Western Medicine’s approach to illness and even shedding a light on why so many sick people are often left without definitive diagnoses or helpful treatment plans. This is a multi-dimensional portrait of autoimmune disease and chronic illness that I could not put down.
Reduce stress, ease anxiety, and increase inner peace—one day at a time—with a year of easy-to-follow mindfulness meditation techniques.
Certified mindfulness teacher, bestselling author, ultramarathoner, wife, and dog-mom Nita Sweeney shares mindfulness meditation practices to help anyone break free from worry and self-judgment.
I am a school psychologist and Christian who has lived with multiple debilitating chronic illnesses for 25 years. As a result, I am all too familiar with how disruptive and life-changing they can be to our daily lives. Yet few books exist that offer practical guidance for living with chronic illness. And even fewer of these books are for Christian readers. Written with different areas of expertise and angles, my book and the books below fill this gap. I hope you enjoy these books as much as I have!
As noted in the final chapter of my own book, laughing is something I need to do more. Chronic illness is debilitating as it can (and does) drain my energy and zap my mood. As part of the Sick and Tired series, I thoroughly enjoyedLaughter for the Sick and Tired as it is lighthearted, the humor is clean, the author is a great storyteller, and reading this resulted in several belly laughs.
Amazon Bestselling author Kimberly Rae, who lives with five annoying (and sometimes serious) health conditions, shares her medical mishaps and just plain weird experiences, such as:
*When her blood tests were lost at the hospital and she almost got treated for a random stranger’s liver problem. *When the doctor’s Central IV went up to her jugular instead of down, and he told her he’d fix it tomorrow! *Strange medical adventures from countries around the world.
Along with jokes, fun facts, and stories from other chronically ill friends, Laughter for the Sick & Tired may be just the dose of medicine…
I am a school psychologist and Christian who has lived with multiple debilitating chronic illnesses for 25 years. As a result, I am all too familiar with how disruptive and life-changing they can be to our daily lives. Yet few books exist that offer practical guidance for living with chronic illness. And even fewer of these books are for Christian readers. Written with different areas of expertise and angles, my book and the books below fill this gap. I hope you enjoy these books as much as I have!
As part of the Chronic Joy Thrive Series, President and Co-founder of Chronic Joy Ministry Cindee Snider Re offers a very useful book that consists of part devotional and part workbook. This is not a book to be simply read and passively absorbed; it is a book in which you will fill in the blanks on Bible verses, journal your thoughts, and answer reflection questions as they relate to your chronic illness and walk with Christ. Whether you use this alone or in a group setting, I found it comforting that Cindee walks alongside you, sharing experiences, scriptural insights, and pointing you to whom you can trust. No doubt this will strengthen your faith while dealing with the challenge of chronic illness.
Discovering Hope is a 10-chapter study inviting you to embrace a new perspective, celebrate the small victories, wrestle with difficult questions, and learn to laugh again. Often.No matter how dark the days, how wild the storm, how deep the valley or how long with winter, there is hope. There is always hope.
I am a school psychologist and Christian who has lived with multiple debilitating chronic illnesses for 25 years. As a result, I am all too familiar with how disruptive and life-changing they can be to our daily lives. Yet few books exist that offer practical guidance for living with chronic illness. And even fewer of these books are for Christian readers. Written with different areas of expertise and angles, my book and the books below fill this gap. I hope you enjoy these books as much as I have!
Being a “glass is half-full” person myself, I enjoy reading inspiring, actionable books that encourage me to look on the bright side and stretch myself to be the best version of myself.
In Determined, multiple sclerosis sufferer Mark Fry provides a direct, no-nonsense, forward-looking, Christian approach to living well with a chronic illness. In each chapter, Fry offers a Bible verse with sage advice such as smile; do things for others to take the focus off yourself and become happier in the process; and use your illness as a means to rely on and glorify God. I also enjoyed the 21-day devotional at the end of the book.
Fry, a Nashville native, was diagnosed with multiple sclerosis over 20 years ago and used his experiences living with a chronic illness to write "Determined." In the book, Fry incorporates his Christian faith to offer biblically-based encouragement and a roadmap for others to help them live life with a more positive outlook. It provides suggestions, reassurance and inspiration for those looking for answers post-diagnosis and how to live a more positive and encouraging life for God in the face of their new challenge. The book also has a bonus section with devotionals and links to encouraging songs that will help…
Outdoors has always been a nourishing place for me, even when I edged into risky or dangerous places, especially solo. When I got rid of my car (for financial reasons), I found my options to reach outdoor adventures limited. Soon after, I began working in transportation, tourism, and recreation and sought ways for everyone to access outdoor recreational opportunities, regardless of their abilities or any limiting barriers. Slow travel is broadly inclusive, enabling anyone to benefit from outdoor experiences and their transformative potential. Slow travel helped me feel less alone, more connected, more balanced emotionally, healthier physically, and more creative; it revealed the path to Love.
Before reading this book, I thought the most inclusive version of the slow travel principle of micro-travel and mindfulness was going outside and experiencing the weather. But because of a mysterious illness that left her bedridden, Bailey could not go outside nor look out the window. Yet, she wrote about the habits and hijinks of a tiny snail a friend brought her in a pot of violets.
I loved that Bailey found snail “bites” on paper and then explained how a snail’s mouth works and why the hole in the paper was square-shaped. The snail becomes Bailey’s connection to the outdoors (or wildness), where she finds hope and agency. My lesson: a terrarium can be as (or more) therapeutic to someone’s spirit as walking Spain’s Camino de Santiago.
While an illness keeps her bedridden, Elisabeth Bailey watches a wild snail that has taken up residence in a terrarium alongside her bed. She enters the rhythm of life of this mysterious creature, and comes to a greater understanding of her own confined place in the world. In a work that beautifully demonstrates the rewards of closely observing nature, she shares the inspiring and intimate story of her close encounter with Neohelix albolabris - a common woodland snail.
Intrigued by the snail's world - from its strange anatomy to its mysterious courtship activities - she becomes a fascinated and amused…
