Sylvia Barry is our invention, a solitary witch who writes queer romance from her lighthouse keep. As a pair of co-authors, one of us grew up with the dry humor of Terry Pratchett and Douglas Adams, and the other grew up with fanfiction and romance tropes. We came together to write quirky, queer romances that are playful and ironic but also deal with deeper themes of self-discovery, trauma healing, and community. Rivals-to-lovers and grumpy/sunshine are our favorite tropes to write, especially in dual (or more!) POV, because the Yearning is always juicy, and we play off each other’s energy as we write our opposing characters.
We loved the steamy romance between clever, uptight Chloe and broody artist Red.
To be perfectly honest, we don’t usually go for heterosexual romances, but Chloe and Red are wonderfully queer to us in their own special way. We really enjoyed the dual POV, getting to experience Chloe and Red falling head over heels for each other from both perspectives.
It had so many of the tropes we enjoy: the vivacious yet rigid (for good reason, she spends a lot of her time in pain) Chloe slowly learning to let go, and the kind yet gruff (for good reason, he’s had his heart smashed) Red coming into his own.
A big motivation for writing Cursedwas what I saw as a dearth of authentic disability and chronic illness rep in books for kids. Where were the characters who were angry, messy, scared? Where were the kids in real pain—physically, emotionally, socially—who maybe weren’t surrounded by supportive friends and family and maybe didn’t handle their diagnoses with grace? When I was first diagnosed with juvenile arthritis at thirteen, I was all of the above—and then some. I’ve identified as disabled for 30+ years and am active in various disability groups and spaces. It’s my pleasure to champion kids’ books with authentic disability and chronic illness representation.
It was such a pleasure to read about a teen navigating high school with arthritis, as I had. Better yet, a sweet, awkward romance is the heart of this book rather than its focus being on Isabel’s chronic illness. In my experience, life with chronic illness is just that—life, with all its ups, downs, pleasures, absurdities, etc. Sasha is a swoon-worthy love interest, and neither character’s chronic illness is downplayed or mined for soapy dramatics. There’s an authenticity here, particularly in the often mundane hospital scenes, that signifies this is an author who’s sharing, to at least some degree, her own lived experiences.
All the women in her family are heartbreakers, and she's destined to become one, too, if she's not careful. But when she goes to the hospital for her RA infusion, she meets a gorgeous, foul-mouthed boy who has her rethinking the no-dating rule and ready to risk everything.
Aleksander is chronically ill, too, and there's a softer side underneath all his jokes. Isabel finds herself unraveling the secrets of a real person, rather than crowd-sourcing her decisions through her online column Sick Girl Wants to Know.
They fall for each other hard and fast, but Isabel has known all along…
Like my main character, I’m a Norwegian writer with ties to the US, who grew up with various chronic illnesses. I discovered the reason for much of my trouble when I was diagnosed with endometriosis. Isolated and in pain, I have always turned to books. I craved seeing my life reflected. Since Please Read This Leaflet Carefully came out, I’ve heard from many readers. I hope that it can help people who haven’t seen themselves in art before. This list addresses the needs of a life with chronic illness and pain: guidance, darkness, humor, comfort, and poetry. I hope these books will help you as much as they did me.
This collection, published by Bloodaxe Books, categorizes poems loosely by theme and contains a treasure trove of the best poems to help you keep on living when life is too hard. There is a wide range of themes, as well as some uplifting poems that explore everything beautiful about being alive.
Staying Alive is an international anthology of 500 life-affirming poems fired by belief in the human and the spiritual at a time when much in the world feels unreal, inhuman and hollow. These are poems of great personal force connecting our aspirations with our humanity, helping us stay alive to the world and stay true to ourselves. Many people turn to poetry only at unreal times, whether for consolation in loss or affirmation in love, or when facing other extremes and anxieties. Staying Alive includes many of the great modern love poems and elegies, but it also shows the power…
I’m writing this around the time of Thanksgiving. A time when many of us are making plans for a feast. How can we make it special and create lasting memories as we plan and choose what’s going on the table that special day. And a majority of us have one thing in common - our choices are leading us on a straight path to heart disease, the number one killer in our society.
When Dr. Dean Ornish's best-selling book, ‘Reversing Heart Disease’ came out in 1995, I made it required reading in the college yoga classes I taught. I now lead book discussions on his latest book with his wife, Anne Ornish, ‘Undo It!” As Dean and Anne direct readers to: "Eat Well. Move More. Stress Less. and Love More," it reminds me of a similar yogic path I embarked on years ago and have dedicated my long life teaching.…
NATIONAL BESTSELLER • By the pioneer of lifestyle medicine, a simple, scientifically program proven to often reverse the progression of the most common and costly chronic diseases and even begin reversing aging at a cellular level! Long rated “#1 for Heart Health” by U.S. News & World Report, Dr. Ornish’s Program is now covered by Medicare when offered virtually at home.
Dean Ornish, M.D., has directed revolutionary research proving, for the first time, that lifestyle changes can often reverse—undo!—the progression of many of the most common and costly chronic diseases and even begin reversing aging at a cellular level.
As a woman who suffers from chronic illness, I am interested in sharing my experience and learning about other women who also suffer and survive their chronic conditions. I have had endometriosis, a painful disease, since I was a teenager. I’ve always enjoyed stories about different kinds of chronic illnesses, and I appreciate the way pain and sickness can be translated into memorable books.
Huber is an author and teacher whom I adore, and I am lucky enough to call friend and mentor, but her writing will make everyone fall in love with her.
Heartfelt, lyrical, brutally honest, and funny, this collection of essays will give you new insight into what it means to live in chronic pain. She writes in a way that makes illness and pain itself almost beautiful. If you want poetic writing, a compelling narrative, and an experimental approach to understanding the pain that is an inextricable part of life for some of us, this book is for you.
Rate your pain on a scale of one to ten. What about on a scale of spicy to citrus? Is it more like a lava lamp or a mosaic? Pain, though a universal element of human experience, is dimly understood and sometimes barely managed. Pain Woman Takes Your Keys, and Other Essays from a Nervous System is a collection of literary and experimental essays about living with chronic pain. Sonya Huber moves away from a linear narrative to step through the doorway into pain itself, into that strange, unbounded reality. Although the essays are personal in nature, this collection is…
I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.
The COVID-19 virus swept across the world like a hurricane, and 20 survivors of the storm gathered to share the lessons they had learned.
I love how this book centers on the experiences of people living with Long Covid who not only point out the inequities of our health systems but also give practical advice about getting a diagnosis, navigating care, asking for help, and contributing to research.
You don’t have to have Long Covid to benefit. Their wise advice applies to everyone.
The first patient-to-patient guide for people living with Long COVID - with expert advice and an afterword by the leading research scientist.
For people living with Long COVID, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms, and with doctors continuing to work toward a cure, people experiencing Long COVID are often left with more questions than answers. A support group in book form, The Long COVID Survival Guide is here to help. Twenty contributors - from award-winning journalists, neuroscientists, and patient-researchers to corporate strategists, activists, and artists - share their…
I am a school psychologist and Christian who has lived with multiple debilitating chronic illnesses for 25 years. As a result, I am all too familiar with how disruptive and life-changing they can be to our daily lives. Yet few books exist that offer practical guidance for living with chronic illness. And even fewer of these books are for Christian readers. Written with different areas of expertise and angles, my book and the books below fill this gap. I hope you enjoy these books as much as I have!
Being a “glass is half-full” person myself, I enjoy reading inspiring, actionable books that encourage me to look on the bright side and stretch myself to be the best version of myself.
In Determined, multiple sclerosis sufferer Mark Fry provides a direct, no-nonsense, forward-looking, Christian approach to living well with a chronic illness. In each chapter, Fry offers a Bible verse with sage advice such as smile; do things for others to take the focus off yourself and become happier in the process; and use your illness as a means to rely on and glorify God. I also enjoyed the 21-day devotional at the end of the book.
Fry, a Nashville native, was diagnosed with multiple sclerosis over 20 years ago and used his experiences living with a chronic illness to write "Determined." In the book, Fry incorporates his Christian faith to offer biblically-based encouragement and a roadmap for others to help them live life with a more positive outlook. It provides suggestions, reassurance and inspiration for those looking for answers post-diagnosis and how to live a more positive and encouraging life for God in the face of their new challenge. The book also has a bonus section with devotionals and links to encouraging songs that will help…
Nineteen years ago, my 13-year-old daughter became wracked in severe pain for no discernible reason. She found walking, lying flat, or sitting up straight impossible. She had a host of other bizarre physical symptoms, too. The doctors we consulted not only didn’t help us, they decided she was faking it. We had to step outside the medical mainstream to discover she had chronic Lyme disease. After many difficult years, she got better, and I began working to change the system. As president of LymeDisease.org, a national Lyme advocacy and research organization, I write and speak on behalf of Lyme patients and their families.
If you had 16 nails sticking in the bottom of your foot, removing only one of them wouldn't fix your problem, would it? That's the question posed by Dr. Richard Horowitz, one of the top Lyme-treating doctors in the world.
In his “16-Point Differential Diagnostic Map” for evaluating chronically ill patients, he looks at many different factors that can prevent you from getting well. Lyme is a complex illness and you might not even realize there is a connection between different things you are experiencing. His book is a good reference manual for many symptoms and physical disorders.
When Dr. Richard Horowitz moved to the Hudson Valley over a decade ago to start his own medical practice, he didn't know that he would be jumping into the centre of one of the fiercest, most heated medical disputes being waged today. The ongoing debate over Lyme disease as a chronic illness has made it difficult for sufferers to find care, as doctors are in many cases unable or unwilling to diagnose it. This is how once-treatable infections can become chronic, causing disabling conditions that may never be cured. In a field where the number of cases is growing each…
Like my main character, I’m a Norwegian writer with ties to the US, who grew up with various chronic illnesses. I discovered the reason for much of my trouble when I was diagnosed with endometriosis. Isolated and in pain, I have always turned to books. I craved seeing my life reflected. Since Please Read This Leaflet Carefully came out, I’ve heard from many readers. I hope that it can help people who haven’t seen themselves in art before. This list addresses the needs of a life with chronic illness and pain: guidance, darkness, humor, comfort, and poetry. I hope these books will help you as much as they did me.
This is the first book where I read about experiences of childhood illness similar to my own. Reading it was both shocking and deeply cathartic in a way that felt almost dangerous. It is also a cold hard look at class, age, and intergenerational trauma in relation to health and healthcare in the US. It exists in its own category in my mind. All I can say is read it, just not on a bad pain day.
Diagnosed with cancer at age twelve and perilously pregnant at eighteen, surviving surgeries and violent accidents: sometimes you can't believe Bee Lavender is still alive; sometimes you think nothing could kill her. Bee Lavender holds nothing back as she recounts her life spent in and out of hospitals and her subsequent dissociation from her own body and emotions. She struggles with health problems from birth, which are compounded by her surroundings, including frequent encounters with street fights, domestic violence and poverty. Her voice is as strong as the front she puts up for the multitude of doctors she sees, and…
I am a school psychologist and Christian who has lived with multiple debilitating chronic illnesses for 25 years. As a result, I am all too familiar with how disruptive and life-changing they can be to our daily lives. Yet few books exist that offer practical guidance for living with chronic illness. And even fewer of these books are for Christian readers. Written with different areas of expertise and angles, my book and the books below fill this gap. I hope you enjoy these books as much as I have!
As noted in the final chapter of my own book, laughing is something I need to do more. Chronic illness is debilitating as it can (and does) drain my energy and zap my mood. As part of the Sick and Tired series, I thoroughly enjoyedLaughter for the Sick and Tired as it is lighthearted, the humor is clean, the author is a great storyteller, and reading this resulted in several belly laughs.
Amazon Bestselling author Kimberly Rae, who lives with five annoying (and sometimes serious) health conditions, shares her medical mishaps and just plain weird experiences, such as:
*When her blood tests were lost at the hospital and she almost got treated for a random stranger’s liver problem. *When the doctor’s Central IV went up to her jugular instead of down, and he told her he’d fix it tomorrow! *Strange medical adventures from countries around the world.
Along with jokes, fun facts, and stories from other chronically ill friends, Laughter for the Sick & Tired may be just the dose of medicine…
