100 books like The Long COVID Survival Guide

By Fiona Lowenstein (editor),

Here are 100 books that The Long COVID Survival Guide fans have personally recommended if you like The Long COVID Survival Guide. Shepherd is a community of 12,000+ authors and super readers sharing their favorite books with the world.

When you buy books, we may earn a commission that helps keep our lights on (or join the rebellion as a member).

Book cover of A Beginner's Guide to the End: Practical Advice for Living Life and Facing Death

Susannah Fox Author Of Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care

From my list on defend yourself U.S. health care system.

Why am I passionate about this?

I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.

Susannah's book list on defend yourself U.S. health care system

Susannah Fox Why did Susannah love this book?

My mom and I are competing to see who can give away more copies of this book; we love it that much. Both of us have been bedside caregivers for dying relatives and have seen firsthand how beautiful that process can be if people are prepared.

I love how the book is designed with nice, large print, lovely illustrations, and little snacks of insight sprinkled throughout in boxes and “fast facts.” This book is the essential What to Expect When You’re Expecting–but for death.

By Bj Miller, Shoshana Berger,

Why should I read it?

3 authors picked A Beginner's Guide to the End as one of their favorite books, and they share why you should read it.

What is this book about?

“A gentle, knowledgeable guide to a fate we all share” (The Washington Post): the first and only all-encompassing action plan for the end of life.

“There is nothing wrong with you for dying,” hospice physician B.J. Miller and journalist and caregiver Shoshana Berger write in A Beginner’s Guide to the End. “Our ultimate purpose here isn’t so much to help you die as it is to free up as much life as possible until you do.”

Theirs is a clear-eyed and big-hearted action plan for approaching the end of life, written to help readers feel more in control of an…


Book cover of Aftershock: What to Do When the Doctor Gives You--Or Someone You Love--A Devastating Diagnosis

Susannah Fox Author Of Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care

From my list on defend yourself U.S. health care system.

Why am I passionate about this?

I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.

Susannah's book list on defend yourself U.S. health care system

Susannah Fox Why did Susannah love this book?

Don’t bring flowers to a newly diagnosed friend, bring this book. The author, a four-time cancer patient, provides the questions we all should ask about diagnosis, treatment options, and getting the care we need from both loved ones and clinicians.

I love the fierceness and “been there” honesty that shines through on every page. Published in 2007, it is still the best handbook I’ve seen for navigating a devastating diagnosis.

By Jessie Gruman,

Why should I read it?

1 author picked Aftershock as one of their favorite books, and they share why you should read it.

What is this book about?

Every year millions of Americans are diagnosed with cancer, stroke, HIV/AIDS, multiple sclerosis, ALS, and other life-threatening or life-altering diseases. When faced with a devastating diagnosis people must quickly understand the diagnosis, prognosis, and choose from several treatment options-while still in shock. AfterShock identifies the processes required to respond to a serious diagnosis, regardless of the specific disease.

Social psychologist Gruman offers practical advice in a 10-stage approach to making clear-headed, informed decisions about who to tell and when; how to get a second opinion or find the right doctor and hospital; where to find reliable online information and telephone…


Book cover of The Caregiver's Encyclopedia: A Compassionate Guide to Caring for Older Adults

Susannah Fox Author Of Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care

From my list on defend yourself U.S. health care system.

Why am I passionate about this?

I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.

Susannah's book list on defend yourself U.S. health care system

Susannah Fox Why did Susannah love this book?

Caring for an aging relative is an incredible honor and, let’s be honest, an incredible burden. When I became the caregiver for an elder cousin, this book gave me the information and tools I needed to get him the best care possible and then, in the end, to spring him from the hospital so he could die at home, as he wished.

This is very much a medical guide written by a physician specializing in geriatrics and palliative care, and I love the detail she provides on both chronic and acute illnesses, as well as how to choose a care facility. 

By Muriel R. Gillick,

Why should I read it?

1 author picked The Caregiver's Encyclopedia as one of their favorite books, and they share why you should read it.

What is this book about?

An indispensable, comprehensive reference for family caregivers.

Caregivers hold the key to the health, well-being, and happiness of their aging relatives, partners, or friends. The Caregiver's Encyclopedia provides you with all of the information you need to take the best care of your loved one-from making major medical decisions to making sure you don't burn out.

Written by Muriel R. Gillick, MD, a geriatrician with more than 30 years' experience caring for older people, this book highlights the importance of understanding your friend's or family member's overall health. With compassion and expertise, this book will help you "think like a…


Book cover of Josie's Story: A Mother's Inspiring Crusade to Make Medical Care Safe

Susannah Fox Author Of Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care

From my list on defend yourself U.S. health care system.

Why am I passionate about this?

I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.

Susannah's book list on defend yourself U.S. health care system

Susannah Fox Why did Susannah love this book?

Speak up. Ask questions. Be the squeaky wheel. Your life or the life of someone you love may depend on it. That’s the message of Josie’s Story. I could not put this book down even as I had to steel myself to turn the page sometimes, knowing that a tragedy caused by a medical error was at the heart of it.

Grief, the unreleased love for a child, compelled the author to demand–and accomplish–systemic change that has saved lives. Read it, weep, and know that you, too, have the power to shift the axis of medical care.

By Sorrel King,

Why should I read it?

1 author picked Josie's Story as one of their favorite books, and they share why you should read it.

What is this book about?

Ninety-eight thousand people die every year from medical errors, making it a leading cause of death in the United States, but the subject has long been taboo. All that changed with Josie. Sorrel King's eighteen-month-old daughter was badly burned by a faulty water heater in the family's new home, but was taken to the world-renowned Johns Hopkins Hospital, where she made a remarkable recovery. But as she was preparing to leave, the hospital's system of communication broke down and Josie was given a fatal shot of methadone, sending her into cardiac arrest. Within forty-eight hours, the King family went from…


Book cover of Why Can't I Get Better?: Solving the Mystery of Lyme and Chronic Disease

Dorothy Kupcha Leland Author Of Finding Resilience: A Teen's Journey Through Lyme Disease

From my list on people with Lyme disease who can’t get well.

Why am I passionate about this?

Nineteen years ago, my 13-year-old daughter became wracked in severe pain for no discernible reason. She found walking, lying flat, or sitting up straight impossible. She had a host of other bizarre physical symptoms, too. The doctors we consulted not only didn’t help us, they decided she was faking it. We had to step outside the medical mainstream to discover she had chronic Lyme disease. After many difficult years, she got better, and I began working to change the system. As president of LymeDisease.org, a national Lyme advocacy and research organization, I write and speak on behalf of Lyme patients and their families.

Dorothy's book list on people with Lyme disease who can’t get well

Dorothy Kupcha Leland Why did Dorothy love this book?

If you had 16 nails sticking in the bottom of your foot, removing only one of them wouldn't fix your problem, would it? That's the question posed by Dr. Richard Horowitz, one of the top Lyme-treating doctors in the world.

In his “16-Point Differential Diagnostic Map” for evaluating chronically ill patients, he looks at many different factors that can prevent you from getting well. Lyme is a complex illness and you might not even realize there is a connection between different things you are experiencing. His book is a good reference manual for many symptoms and physical disorders.

By Richard I. Horowitz,

Why should I read it?

1 author picked Why Can't I Get Better? as one of their favorite books, and they share why you should read it.

What is this book about?

When Dr. Richard Horowitz moved to the Hudson Valley over a decade ago to start his own medical practice, he didn't know that he would be jumping into the centre of one of the fiercest, most heated medical disputes being waged today. The ongoing debate over Lyme disease as a chronic illness has made it difficult for sufferers to find care, as doctors are in many cases unable or unwilling to diagnose it. This is how once-treatable infections can become chronic, causing disabling conditions that may never be cured. In a field where the number of cases is growing each…


Book cover of Female Patients in Early Modern Britain: Gender, Diagnosis, and Treatment

Jennifer Evans Author Of Maladies and Medicine: Exploring Health & Healing, 1540-1740

From my list on early modern medicine.

Why am I passionate about this?

I’m a lecturer in history at the University of Hertfordshire where I teach early modern history of medicine and the body. I have published on reproductive history in the seventeenth and early eighteenth centuries. The history of medicine is endlessly diverse, and there are so many books on early modern medicine, some broad and others more specific, it’s this variety that I find endlessly intriguing. Some conditions from the era, like gout and cancer, are familiar, while others like, greensickness, aren’t recognized any longer. Thinking about these differences and about how people’s bodies ached and suffered helps me to appreciate their relationships, struggles, and triumphs in a whole new dimension.

Jennifer's book list on early modern medicine

Jennifer Evans Why did Jennifer love this book?

I am always fascinated by gender history and women’s experiences in the past. Churchill’s book puts women front and center and considers how medical practitioners understood women’s bodies and health and what women experienced as patients. The book covers traditionally feminine conditions – gynecological and obstetrical issues – but also looks at disorders that affected both men and women, including smallpox, and mental health – hysteria and hypochondria. I like the way this book thinks through all aspects of women’s experiences, how their disorders were understood, who they sought treatment from, and how those treatments were adapted to the specifics of the female body (menstruation and lactation).

By Wendy D. Churchill,

Why should I read it?

1 author picked Female Patients in Early Modern Britain as one of their favorite books, and they share why you should read it.

What is this book about?

This investigation contributes to the existing scholarship on women and medicine in early modern Britain by examining the diagnosis and treatment of female patients by male professional medical practitioners from 1590 to 1740. In order to obtain a clearer understanding of female illness and medicine during this period, this study examines ailments that were specific and unique to female patients as well as illnesses and conditions that afflicted both female and male patients. Through a qualitative and quantitative analysis of practitioners' records and patients' writings - such as casebooks, diaries and letters - an emphasis is placed on medical practice.…


Book cover of Descriptions and Prescriptions: A Biblical Perspective on Psychiatric Diagnoses and Medications

Pierce Taylor Hibbs Author Of Struck Down but Not Destroyed

From my list on anxiety and faith.

Why am I passionate about this?

Pierce Taylor Hibbs (MAR, ThM Westminster Theological Seminary) has lived with an anxiety disorder for over fourteen years and offers a unique perspective on how anxiety and faith are interconnected. He is the award-winning Christian author of many books, including Struck Down but Not Destroyed: Living Faithfully with Anxiety. Other books he's written on anxiety include Still, Silent, and Strong: Meditations for the Anxious Heart and Finding Hope in Hard Things: A Positive Take on Suffering

Pierce's book list on anxiety and faith

Pierce Taylor Hibbs Why did Pierce love this book?

When I was struggling to understand my anxiety, I came across this book from a former doctor and current counselor. It really helped me understand some of the psychological lingo for mental health from a Christian perspective. And as much as I was informed by this short book, I was also encouraged! The author has a clear heart for people suffering from mental illness, and that comes through in his counsel and his explanations. It’s now become one of the books I recommend right away to anyone dealing with mental illness in the context of faith in God.

By Michael R. Emlet,

Why should I read it?

1 author picked Descriptions and Prescriptions as one of their favorite books, and they share why you should read it.

What is this book about?

OCD, ADHD, PTSD, Bipolar Disorder . . . these are not just diagnoses from the DSM; they are part of our everyday vocabulary and understanding of people. As Christians, how should we think about psychiatric diagnoses and their associated treatments?

We can't afford to isolate ourselves and simply dismiss these categories as unbiblical. Nor can we afford to accept the entire secular psychiatric diagnostic and treatment enterprise at face value as though Christian Scripture is irrelevant for these complex mental struggles. Instead, we need a balanced, biblically (and scientifically!) informed approach that is neither too warmly embracing nor too coldly…


Book cover of Toxic: Heal Your Body from Mold Toxicity, Lyme Disease, Multiple Chemical Sensitivities, and Chronic Environmental Illness

Dorothy Kupcha Leland Author Of Finding Resilience: A Teen's Journey Through Lyme Disease

From my list on people with Lyme disease who can’t get well.

Why am I passionate about this?

Nineteen years ago, my 13-year-old daughter became wracked in severe pain for no discernible reason. She found walking, lying flat, or sitting up straight impossible. She had a host of other bizarre physical symptoms, too. The doctors we consulted not only didn’t help us, they decided she was faking it. We had to step outside the medical mainstream to discover she had chronic Lyme disease. After many difficult years, she got better, and I began working to change the system. As president of LymeDisease.org, a national Lyme advocacy and research organization, I write and speak on behalf of Lyme patients and their families.

Dorothy's book list on people with Lyme disease who can’t get well

Dorothy Kupcha Leland Why did Dorothy love this book?

This is one of the first books I recommend to Lyme patients who email me for advice about getting better. It’s a sad fact that most people with chronic Lyme disease don’t have “just” Lyme disease. Their condition is complicated by toxic mold exposure, environmental chemicals, other infectious bacteria and viruses, and/or a highly sensitized nervous system.

Whether they’ve been diagnosed with Lyme disease or not, I think anyone with complex health problems that they just can’t resolve could benefit from reading this book.

By Neil Nathan,

Why should I read it?

2 authors picked Toxic as one of their favorite books, and they share why you should read it.

What is this book about?

Millions of people are suffering from chronic illnesses that, unbeknownst to them, are the result of exposure to environmental toxins and infectious agents such as mold and Borrelia, which causes Lyme disease. Millions. Because the symptoms of these illnesses are so varied and unusual, many of these individuals have sought medical care only to be dismissed, as if what they are experiencing is “in their head.” Many (if not most) have tried to tough it out and continue to function without hope of improvement. Unfortunately, their illnesses are very real.

Toxic is a book of hope for these individuals, their…


Book cover of Diseases of The Goat

Cheryl K. Smith Author Of Goat Health Care

From my list on keeping your goats healthy.

Why am I passionate about this?

I have raised miniature dairy goats since 1998 and encountered many health issues in my goats and those of friends. Only one mainstream book on raising my goats existed when I got them. I decided to write my own book. That plan was put on hold when I became publisher of Ruminations magazine. I frequently wrote about goat health care and reviewed new goat books as they came out. In 2009, I published my book, a comprehensive compilation of articles from Ruminations. Afterwards, I wrote Raising Goats for Dummies. Not many studies are done on goats, but each book has added to the body of knowledge regarding goat health care.

Cheryl's book list on keeping your goats healthy

Cheryl K. Smith Why did Cheryl love this book?

This book is comprehensive and divided into different disease categories. It is written in a way that is accessible to most goat owners and covers initial assessment, causes, signs, diagnosis, and treatment for each disease.

The last chapter addresses surgical techniques, which I haven’t had to refer to much but could be very helpful to goat farmers without access to a veterinarian.

By John G. Matthews,

Why should I read it?

1 author picked Diseases of The Goat as one of their favorite books, and they share why you should read it.

What is this book about?

Diseases of the Goat, 4th Edition, is a revised and updated edition of the popular tool for veterinarians featuring of all aspects of goat medicine-from initial assessment and examination to diagnosis, treatment, and control of conditions. This highly practical, concise handbook is designed for frequent reference, and is suitable for all those treating and keeping goats.

Provides information on to predators, euthanasia, post-mortem technique, and fracture repair Includes expanded coverage of a number of topics to appeal to a wider and more international audience especially in relation to poisonous plants Incorporates the impact of new developments in goat diseases, such…


Book cover of The Mini ADHD Coach: Tools and Support to Make Life Easier--A Visual Guide

Catherine J. Mutti-Driscoll Author Of The ADHD Workbook for Teen Girls: Understand Your Neurodivergent Brain, Make the Most of Your Strengths, and Build Confidence to Thrive

From my list on understanding ADHD in girls and women.

Why am I passionate about this?

After 37 years of being undiagnosed with ADHD, I was so grateful to get my diagnosis! Once I had an inkling that I had ADHD, I began devouring books about it :-) The books in this list are five of many that have helped me understand myself and my brain, and I want to help others have access to them and to the inspiring, affirming, and empowering self-knowledge they provide! These books will help you figure out if you might have an ADHD brain and then, from there, help you work with and celebrate that brain.

Catherine's book list on understanding ADHD in girls and women

Catherine J. Mutti-Driscoll Why did Catherine love this book?

This book is a lovely and practical guide since it communicates information about ADHD easily using visuals. It is an excellent choice for someone who wants to learn more about ADHD and is a visual learner! I also enjoy this book's "day in the life" theme, where it tackles ADHD-related issues and challenges as they arise throughout a day in the life of an ADHDer.

By Alice Gendron,

Why should I read it?

1 author picked The Mini ADHD Coach as one of their favorite books, and they share why you should read it.

What is this book about?

An inclusive guide to ADHD that explores its diverse types, symptoms, diagnoses, and misconceptions, and shares how to work with your ADHD brain to fully understand yourself.

Diagnosed at 29, Alice Gendron offers full and supportive insight into life with ADHD, addresses common challenges and hurdles, and provides tips and ADHD hacks that will help you to get things done and live a more peaceful daily life. This illustrated and informative guide is a must-have for anyone looking to better understand ADHD and how to thrive with ADHD. 

Through Gendron’s motivational voice and relatable illustrations, The Mini ADHD Coach will…


Book cover of A Beginner's Guide to the End: Practical Advice for Living Life and Facing Death
Book cover of Aftershock: What to Do When the Doctor Gives You--Or Someone You Love--A Devastating Diagnosis
Book cover of The Caregiver's Encyclopedia: A Compassionate Guide to Caring for Older Adults

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