Here are 57 books that Josie's Story fans have personally recommended if you like
Josie's Story.
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I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.
My mom and I are competing to see who can give away more copies of this book; we love it that much. Both of us have been bedside caregivers for dying relatives and have seen firsthand how beautiful that process can be if people are prepared.
I love how the book is designed with nice, large print, lovely illustrations, and little snacks of insight sprinkled throughout in boxes and “fast facts.” This book is the essential What to Expect When You’re Expecting–but for death.
“A gentle, knowledgeable guide to a fate we all share” (The Washington Post): the first and only all-encompassing action plan for the end of life.
“There is nothing wrong with you for dying,” hospice physician B.J. Miller and journalist and caregiver Shoshana Berger write in A Beginner’s Guide to the End. “Our ultimate purpose here isn’t so much to help you die as it is to free up as much life as possible until you do.”
Theirs is a clear-eyed and big-hearted action plan for approaching the end of life, written to help readers feel more in control of an…
I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.
Don’t bring flowers to a newly diagnosed friend, bring this book. The author, a four-time cancer patient, provides the questions we all should ask about diagnosis, treatment options, and getting the care we need from both loved ones and clinicians.
I love the fierceness and “been there” honesty that shines through on every page. Published in 2007, it is still the best handbook I’ve seen for navigating a devastating diagnosis.
Every year millions of Americans are diagnosed with cancer, stroke, HIV/AIDS, multiple sclerosis, ALS, and other life-threatening or life-altering diseases. When faced with a devastating diagnosis people must quickly understand the diagnosis, prognosis, and choose from several treatment options-while still in shock. AfterShock identifies the processes required to respond to a serious diagnosis, regardless of the specific disease.
Social psychologist Gruman offers practical advice in a 10-stage approach to making clear-headed, informed decisions about who to tell and when; how to get a second opinion or find the right doctor and hospital; where to find reliable online information and telephone…
I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.
The COVID-19 virus swept across the world like a hurricane, and 20 survivors of the storm gathered to share the lessons they had learned.
I love how this book centers on the experiences of people living with Long Covid who not only point out the inequities of our health systems but also give practical advice about getting a diagnosis, navigating care, asking for help, and contributing to research.
You don’t have to have Long Covid to benefit. Their wise advice applies to everyone.
The first patient-to-patient guide for people living with Long COVID - with expert advice and an afterword by the leading research scientist.
For people living with Long COVID, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms, and with doctors continuing to work toward a cure, people experiencing Long COVID are often left with more questions than answers. A support group in book form, The Long COVID Survival Guide is here to help. Twenty contributors - from award-winning journalists, neuroscientists, and patient-researchers to corporate strategists, activists, and artists - share their…
I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.
Caring for an aging relative is an incredible honor and, let’s be honest, an incredible burden. When I became the caregiver for an elder cousin, this book gave me the information and tools I needed to get him the best care possible and then, in the end, to spring him from the hospital so he could die at home, as he wished.
This is very much a medical guide written by a physician specializing in geriatrics and palliative care, and I love the detail she provides on both chronic and acute illnesses, as well as how to choose a care facility.
An indispensable, comprehensive reference for family caregivers.
Caregivers hold the key to the health, well-being, and happiness of their aging relatives, partners, or friends. The Caregiver's Encyclopedia provides you with all of the information you need to take the best care of your loved one-from making major medical decisions to making sure you don't burn out.
Written by Muriel R. Gillick, MD, a geriatrician with more than 30 years' experience caring for older people, this book highlights the importance of understanding your friend's or family member's overall health. With compassion and expertise, this book will help you "think like a…
As a cancer doctor, I have spent two decades dedicated to understanding the causes and therapy of cancer, how my patients experience their diagnosis and treatment, and how meaningful improvements in their experience should be reflected in the criteria we use to approve cancer drugs approval in the U.S., to improve their lives. In over 100 essays published in outlets like The New York Times and The Washington Post and in two books, I sing the stories of my patients as I learn from their undaunted spirits and their utter humanity, as I try to figure out how to be a better doctor, and a better person.
Nobody is perfect. But in medicine, not being perfect can cause injury in another person, or even death.
In When We Do Harm, Ofri tells the stories of patients who fell victim to medical errors, conducting root-cause analyses of how errors occur in the complicated practice of medicine, and the mundane interventions and cultural shift that will be necessary to prevent them in the future.
Medical mistakes are more pervasive than we think. How can we improve outcomes? An acclaimed MD’s rich stories and research explore patient safety.
Patients enter the medical system with faith that they will receive the best care possible, so when things go wrong, it’s a profound and painful breach. Medical science has made enormous strides in decreasing mortality and suffering, but there’s no doubt that treatment can also cause harm, a significant portion of which is preventable. In When We Do Harm, practicing physician and acclaimed author Danielle Ofri places the issues of medical error and patient safety front and…
Born and raised in the Chicago area, I worked in the automotive industry as a car salesperson and racing team manager, financial services as a Registered Representative, and a member of the Chicago Board Options Exchange. An expat in Panama since 2004, I worked in business development for several healthcare products and co-founded an air medical transport service. Over the last decade, I’ve represented two businesses delivering protective medical care to high-net-worth individuals where I learned care’s gold standard from former White House physicians. My research included the books I recommend here and inspired me to write the Expat Health Guide for current and future expats.
Ever hear of MLR or Medical Loss Ratio? I had, but it didn’t click why it was a cruel joke on American healthcare consumers until I read Marshall’s book. His give a kid a bowl of ice cream analogy is so spot on that I asked for and received his permission to quote it in my book. My dad used to say that a sure sign of genius is making a complex subject understandable to an eighth grader. Marshall’s a genius. His insights stem from over 15 years of investigative reporting on the healthcare industry are critical to combatting a downright evil billing system. Whenever a friend mentions they’ve been in the hospital, or will be, I tell them to read this book.
From award-winning ProPublica reporter Marshall Allen, a primer for anyone who wants to fight the predatory health care system--and win.
Every year, millions of Americans are overcharged and underserved while the health care industry makes record profits. We know something is wrong, but the layers of bureaucracy designed to discourage complaints make pushing back seem impossible. At least, this is what the health care power players want you to think.
Never Pay the First Bill is the guerilla guide to health care the American people and employers need. Drawing on 15 years of investigating the health care industry, reporter Marshall…
I'm an author of books for young readers. These days, there’s nothing more important than having conversations about the Coronavirus disease. It can be hard for grown-ups to start a conversation about Covid with their kids. But they can read a book about the subject and invite the kids to respond to what they heard and saw. My book COVID-19 Helpers was the first place winner of the Emery Global Health Institute’s e-book contest back in May 2020. Through the pandemic, I’ve been reading and talking about the virus with kids from around the world. If you're interested in having me read one of my books to your school, clinic, or your daycare center feel free to get in touch.
This picture book biography does so many things at once—and does it all with a masterful, lyrical storytelling voice. Of course, the primary thing this book does is tell the story of a real person’s life: Dr. Anthony Fauci, the Director of the National Institute of Allergy and Infectious Diseases. In this story, we learn about his ordinary childhood, his personal interests, and the ways his family inspired and encouraged him. It shows that even people we see on the news were once children, just like the kids reading this book. More than that, this book is a celebration of science and the excitement of scientific discoveries.
It reminds kids (and grown-ups) that science is a creative endeavour. So once the urgency of learning about the COVID virus wanes, this book will be still valuable as a primer on how scientists do their work. Additionally, though the narrative part of…
The definitive picture book biography of Dr. Anthony Fauci, the director of the National Institute of Allergy and Infectious Diseases and one of the most crucial figures in the COVID-19 pandemic.
Before he was Dr. Fauci, director of the National Institute of Allergy and Infectious Diseases, Anthony Fauci was a curious boy in Brooklyn, delivering prescriptions from his father's pharmacy on his blue Schwinn bicycle. His father and immigrant grandfather taught Anthony to ask questions, consider all the data, and never give up-and Anthony's ability to stay curious and to communicate with people would serve him his entire life.
In my younger days, as the son of a medical professor and a public health nurse, I was more interested in healing society than patients. But my political interests and research agenda as a professor of political science ultimately led back to medicine. I found that profit-maximizing market competition in health care failed miserably to promote value in therapeutics and economize on society’s scarce resources. I became aware of the neglect of public health to prevent disease for vulnerable groups in society and save money as well as lives. Pervasive and enduring economic conflicts of interest in the medical-industrial complex bear primary responsibility for severe deficits in quality, equality, and economy in American health care.
If you think that medical journals published by respected medical societies are full of good science, think again.
For me, Abramson’s Sickeningnailed the case for a conclusion that the net effect of the many hundreds of medical journals published here and around the world is to subtract from the sum of human medical knowledge.
Abramson, as an expert witness in criminal and civil cases against drug companies, draws in part on subpoenaed documents to expose how medical science, as part of the entire medical-industrial complex, is corrupted from start to finish by the drug industry’s funding of most clinical trials, their control over the data analysis, and even their ghost-writing of articles submitted to journals.
New and disturbing was the withholding of clinical trials’ raw data from journals’ peer reviewers. Instead, they get biased summaries bearing drug manufacturers’ fingerprints.
The inside story of how Big Pharma’s relentless pursuit of ever-higher profits corrupts medical knowledge—misleading doctors, misdirecting American health care, and harming our health.
The United States spends an excess $1.5 trillion annually on health care compared to other wealthy countries—yet the amount of time that Americans live in good health ranks a lowly 68th in the world. At the heart of the problem is Big Pharma, which funds most clinical trials and therefore controls the research agenda, withholds the real data from those trials as corporate secrets, and shapes most of the information relied upon by health care professionals.…
I am a doctor who is lucky enough to have worked in many countries with many people. I wanted to do this ever since I read Albert Sweitzer’s biography when I was about thirteen. I enrolled in medicine as a single parent in my thirties, then built up experience in emergency departments, pediatrics, obstetrics, remote area locum work, and a year in a hospice before beginning my career overseas. Being a doctor was, at one and the same time, exhilarating and terrifying, heartbreaking and absolutely filled with joy. The more I was able to connect to my patients, the more I loved every moment of my work. I hope the books on this list will give that same gift to you.
I absolutely loved the simplicity and clarity of this approach.
It’s almost the opposite end of the spectrum to my first selection and a method that I found more and more common over the years of my career: checklists and flowcharts for the serious and frequent presentations in the Emergency Department, in the operating theatre, and at Triage. And Gawande was right: they did and do save lives.
More generally, I used this process all the time when I was training other staff in my posts with Doctors Without Borders. Preventing and avoiding problems with fail-safe systems is so much better than trying to solve them after they occur!
In his latest bestseller, Atul Gawande shows what the simple idea of the checklist reveals about the complexity of our lives and how we can deal with it.
The modern world has given us stupendous know-how. Yet avoidable failures continue to plague us in health care, government, the law, the financial industry—in almost every realm of organized activity. And the reason is simple: the volume and complexity of knowledge today has exceeded our ability as individuals to properly deliver it to people—consistently, correctly, safely. We train longer, specialize more, use ever-advancing technologies, and still we fail. Atul Gawande makes a…
I spent nearly 30 years consulting with employers about the design and operation of the health insurance and retirement benefits they provided their workers. In my work, I was familiar with economic studies showing that workers’ wages and salaries have been increasingly skewed toward higher earners and was convinced the results were less pronounced for workers' total rewards.. In developing my analysis I came to understand that the cost of employees’ health insurance was consuming a large share of workers’ growing rewards. This led me to explore how the US health system was imposing much higher costs on workers than any other segment of society and how we might address the problem.
One prevailing theory about the high cost of U.S. health care compared to other highly developed nations is that the prices charged for goods and services are simply higher in the United States and elsewhere.
Reinhardt is one of the leading proponents of this school of thought and this book summarizes his reasoning on the subject and how to deal with it.
From a giant of health care policy, an engaging and enlightening account of why American health care is so expensive-and why it doesn't have to be
Uwe Reinhardt was a towering figure and moral conscience of health care policy in the United States and beyond. Famously bipartisan, he advised presidents and Congress on health reform and originated central features of the Affordable Care Act. In Priced Out, Reinhardt offers an engaging and enlightening account of the U.S. health care system, explaining why it costs so much more and delivers so much less than the systems of every other advanced country,…
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