Here are 100 books that The Caregiver's Encyclopedia fans have personally recommended if you like
The Caregiver's Encyclopedia.
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I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.
My mom and I are competing to see who can give away more copies of this book; we love it that much. Both of us have been bedside caregivers for dying relatives and have seen firsthand how beautiful that process can be if people are prepared.
I love how the book is designed with nice, large print, lovely illustrations, and little snacks of insight sprinkled throughout in boxes and “fast facts.” This book is the essential What to Expect When You’re Expecting–but for death.
“A gentle, knowledgeable guide to a fate we all share” (The Washington Post): the first and only all-encompassing action plan for the end of life.
“There is nothing wrong with you for dying,” hospice physician B.J. Miller and journalist and caregiver Shoshana Berger write in A Beginner’s Guide to the End. “Our ultimate purpose here isn’t so much to help you die as it is to free up as much life as possible until you do.”
Theirs is a clear-eyed and big-hearted action plan for approaching the end of life, written to help readers feel more in control of an…
I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.
Don’t bring flowers to a newly diagnosed friend, bring this book. The author, a four-time cancer patient, provides the questions we all should ask about diagnosis, treatment options, and getting the care we need from both loved ones and clinicians.
I love the fierceness and “been there” honesty that shines through on every page. Published in 2007, it is still the best handbook I’ve seen for navigating a devastating diagnosis.
Every year millions of Americans are diagnosed with cancer, stroke, HIV/AIDS, multiple sclerosis, ALS, and other life-threatening or life-altering diseases. When faced with a devastating diagnosis people must quickly understand the diagnosis, prognosis, and choose from several treatment options-while still in shock. AfterShock identifies the processes required to respond to a serious diagnosis, regardless of the specific disease.
Social psychologist Gruman offers practical advice in a 10-stage approach to making clear-headed, informed decisions about who to tell and when; how to get a second opinion or find the right doctor and hospital; where to find reliable online information and telephone…
I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.
The COVID-19 virus swept across the world like a hurricane, and 20 survivors of the storm gathered to share the lessons they had learned.
I love how this book centers on the experiences of people living with Long Covid who not only point out the inequities of our health systems but also give practical advice about getting a diagnosis, navigating care, asking for help, and contributing to research.
You don’t have to have Long Covid to benefit. Their wise advice applies to everyone.
The first patient-to-patient guide for people living with Long COVID - with expert advice and an afterword by the leading research scientist.
For people living with Long COVID, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms, and with doctors continuing to work toward a cure, people experiencing Long COVID are often left with more questions than answers. A support group in book form, The Long COVID Survival Guide is here to help. Twenty contributors - from award-winning journalists, neuroscientists, and patient-researchers to corporate strategists, activists, and artists - share their…
Trusted for more than three decades by family caregivers and professionals alike, this comprehensive and reassuring caregiving guide offers the crucial information you need to look after your elders and plan for the future.
Being a caregiver for aging parents, close friends and family, and other elders in your life…
I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.
Speak up. Ask questions. Be the squeaky wheel. Your life or the life of someone you love may depend on it. That’s the message of Josie’s Story. I could not put this book down even as I had to steel myself to turn the page sometimes, knowing that a tragedy caused by a medical error was at the heart of it.
Grief, the unreleased love for a child, compelled the author to demand–and accomplish–systemic change that has saved lives. Read it, weep, and know that you, too, have the power to shift the axis of medical care.
Ninety-eight thousand people die every year from medical errors, making it a leading cause of death in the United States, but the subject has long been taboo. All that changed with Josie. Sorrel King's eighteen-month-old daughter was badly burned by a faulty water heater in the family's new home, but was taken to the world-renowned Johns Hopkins Hospital, where she made a remarkable recovery. But as she was preparing to leave, the hospital's system of communication broke down and Josie was given a fatal shot of methadone, sending her into cardiac arrest. Within forty-eight hours, the King family went from…
Raphael Cohen-Almagor, DPhil, St. Catherine’s College, University of Oxford, is Professor of Politics, Olof Palme Visiting Professor, Lund University, Founding Director of the Middle East Study Centre, University of Hull, and Global Fellow, Woodrow Wilson International Center for Scholars. Raphael taught,inter alia, at Oxford (UK), Jerusalem, Haifa (Israel), UCLA, Johns Hopkins (USA), and Nirma University (India). With more than 300 publications, Raphael has published extensively in the field of political philosophy, including Liberal Democracy and the Limits of Tolerance; Challenges to Democracy; The Right to Die with Dignity; The Scope of Tolerance; Confronting the Internet's Dark Side; Just, Reasonable Multiculturalism,and The Republic, Secularism and Security: France versus the Burqa and the Niqab.
Like Pellegrino, Daniel (Dan) Callahan is also one of the forefathers of the field of medical ethics.
A prolific author, Dan published 47 books and some 800 articles and blogs. Dan is also the co-founder of the Hastings Center in New York, one of the leading research centers on medical ethics in the world. In many ways, his vision established medical ethics as a legitimate field of studies.
InSetting Limits, Callahan suggests the concept of a “full biographical life span,” meaning the point at which it can be said that a person has lived a complete, fulfilling, whole life. He does not determine a specific age but suggests a range — late seventies, early eighties, which in his opinion is equivalent to a natural, complete life cycle.
Callahan claims that today medical technology can extend life beyond the point that he believes is sensible and worthwhile. He deliberates…
As a student, one day, I noticed that something was wrong with our world. Older people are separated from younger ones and sometimes almost invisible. I decided to focus on researching whether and how older people organize themselves into groups and influence important areas of social, economic, and political life. The study of the social capital of older adults led me to research on age discrimination, intergenerational relationships, age-friendly communities and cities, social innovation, co-design, citizen science, and public policy on ageing. I am convinced that only multi-sectoral and multi-level cooperation can lead to the implementation of constructive responses to today’s global challenges.
Iparraguirre made an extreme effort and contributed with probably the first comprehensive textbook focused on relationships between economics and ageing.
The final volume covers topics essential for the field of public policy on ageing. The analyses start with measurement and policies concerning happiness and quality of life.
Further, the volume undertakes crucial questions regarding inequalities, poverty, intergenerational relationships, housing, behavioral economics, the political economy of ageing, the silver economy, and the consumer society.
This upper level textbook provides a coherent introduction to the economic implications of individual and population ageing. Placing economic considerations into a wider social sciences context, this is ideal reading not only for advanced undergraduate and masters students in health economics and economics of ageing, but policy makers, professionals and practitioners in gerontology, sociology, health-related sciences, and social care. This volume introduces topics in the economics of happiness, quality of life, and well-being in later life. It also covers questions of inequality and poverty, intergenerational economics, and housing. Other areas described in this book include behavioural economics, political economy, and…
After Dr. Shawn Jennings, a busy family physician, suffered a brainstem stroke on May 13, 1999, he woke from a coma locked inside his body, aware and alert but unable to communicate or move. Once he regained limited movement in his left…
As a transplant to California, albeit more than 50 years ago, I am still fascinated by what makes this place at the edge of the Pacific so unique. It has accepted so many people, from so many places over a fairly recent period. I always feel I can deduce more history from well rendered characters set in specific times and places. Their wholeness and their meaning, as well as that of their culture, are to be found in literature.
Susan Ward joins her husband, a mining engineer, at a mercury mine near San Jose, California, coming west from New York.
She is an illustrator and writer and, as her grandson tells it, never completely adjusts to life in the West. We get much description of California, however, in the layered times in which her story is told. She and her husband settle in Grass Valley, where her husband works for quartz and gold mines.
Wallace Stegner’s use of Mary Hallock Foote’s memoir and diaries as the basis for this story is still controversial. Foote lived from 1847 to 1938 and wrote beautifully, illuminating life during this time. The controversy makes the story even more intriguing.
The novel tells the story of Lyman Ward, a retired professor of history and author of books about the Western frontier, who returns to his ancestral home in the Sierra Nevada. Wheelchair-bound with a crippling bone disease, Ward embarks nonetheless on a search to rediscover his grandmother, no long dead, who made her own journey to Grass Valley nearly a hundred years earlier.
Like the Bach sisters in my novel Things We Do For Love, my sisters and I have cared for our mother, who battles Alzheimer's. Witnessing her transformation from a vibrant powerhouse to someone resembling the Walking Dead has been heart-wrenching. Despite the emotional rollercoaster, this journey has deeply connected us with our mother. Delving into the depths of her being has been a privilege, offering profound insights into her true essence. This challenging experience has unfolded as a disguised blessing. In this journey, we've discovered the beauty of unconditional love that binds our family together. It reflects the central question of my novel: What truly makes a happy family?
The moment I started reading this book, its tone gripped me instantly.
It fearlessly presents challenging and daunting situations with a mix of wit and courage. Darkly observant, the story unfolds with a blend of humour, fondness, and a hint of irony, making "The Leisure Seeker" a bittersweet fable of the golden years.
The book fearlessly confronts the realities and indignities of aging and disease, yet it doesn't fail to celebrate life, embracing every precious moment left in the lives of the characters, even if they are old geezers.
While the subject matter could lead to a somber narrative, the book takes an unexpected turn, becoming a genuinely life-affirming and highly entertaining tale, defying the omnipresent shadow of mortality.
This is the unforgettable cross country journey of a runaway couple in their twilight years determined to meet the end of all roads on their own terms. "The Leisure Seeker" is the story of John and Ella Robina, a couple married 50+ years - she has stopped her cancer treatments, he has Alzheimer's - who kidnap themselves from the adult children and the doctors who seem to run their lives, and steal off on a forbidden vacation. Each battling their own infirmities, John pilots their '78 Leisure Seeker RV (it's the one with the left turn signal blinking) along the…
As a career and executive coach for the past 25+ years, I have been on a mission to help people develop more satisfying and meaningful connections to their careers. I am passionate about this because most people spend the better part of their adult lives at work, more time than they do with their families, sleeping, and other priorities. Yet many become unhappy in their work, losing themselves over decades, and get blinded by their financial and career success. It can seem unimaginable to find a way to a more fulfilling career. I am determined to show them the pathways of possibilities, no matter where they are in their lives.
I love the messages, look, feel, content, design elements, and organization of this book. I enjoy the perspectives of the various people profiled in the book. I love the whimsical, humorous style of the messages and illustrations. I appreciate how topics are presented light-heartedly yet are also serious, giving me fresh perspectives on aging, life purpose, relationships, and health.
I also love that I can read a couple of pages, get a valuable thought or two, and put it down without feeling like I have to read the whole thing to ‘get it.’ I feel like it is telling me to take things seriously but hold them lightly at the same time.
Design a long life full of love, purpose, well-being, and friendship, at any age, using the creative tools of award-winning product designer, author, and world's #1 life coach Ayse Birsel.
What does it mean to craft the life you want, as you grow older? For industrial designer and author Ayse Birsel, the answer draws on key principles of design-like optimism, empathy, collaboration, open-mindedness, and holistic thinking-as well as the experiences of older people on the pioneering frontiers of long life. Longer life is a thrilling, modern opportunity, and like so many parts of life it needs to be thoughtfully designed.Thinking…
This book shakes longstanding assumptions of parenting.
Through 99 stories of people who are now changing the world, it shows how to raise creative, confident, resilient children who are filled with joy and purpose. Based on interviews with top entrepreneurs and their parents, it guides you to help your children…
As one of Australia’s bestselling observational comedy authors, I couldn’t pass on the opportunity to write about the fact that I’ve recently become my parents’ go-to expert on just about everything. From solving technological dilemmas to coaching through society’s ever-changing correctness and reminding them to eat their greens, the elders in my life have inspired me to look at the funny side to aging, and to explore how a middle aged child sometimes crosses over from being helpful to just plain interfering.
Quirky, original, and featuring very engaging characters, this very funny read has the added bonus of being set in a fascinating location – India.
Exploring the quirks of falling in love later in life, this book is part holiday from hell, part love story, and full of heartwarming anecdotes that will sound very familiar to a lot of readers.
Now a major motion picture starring Jude Dench, Bill Nighy, Dev Patel, Tom Wilkinson, and Maggie Smith.
When Ravi Kapoor, an overworked London doctor, reaches the breaking point with his difficult father-in-law, he asks his wife: “Can’t we just send him away somewhere? Somewhere far, far away.” His prayer is seemingly answered when Ravi’s entrepreneurial cousin sets up a retirement home in India, hoping to re-create in Bangalore an elegant lost corner of England. Several retirees are enticed by the promise of indulgent living at a bargain price, but upon arriving, they are dismayed to find that restoration of the…
