100 books like The Caregiver's Encyclopedia

My mom and I are competing to see who can give away more copies of this book; we love it that much. Both of us have been bedside caregivers for dying relatives and have seen firsthand how beautiful that process can be if people are prepared.

I love how the book is designed with nice, large print, lovely illustrations, and little snacks of insight sprinkled throughout in boxes and “fast facts.” This book is the essential What to Expect When You’re Expecting–but for death.

Don’t bring flowers to a newly diagnosed friend, bring this book. The author, a four-time cancer patient, provides the questions we all should ask about diagnosis, treatment options, and getting the care we need from both loved ones and clinicians.

I love the fierceness and “been there” honesty that shines through on every page. Published in 2007, it is still the best handbook I’ve seen for navigating a devastating diagnosis.

The COVID-19 virus swept across the world like a hurricane, and 20 survivors of the storm gathered to share the lessons they had learned.

I love how this book centers on the experiences of people living with Long Covid who not only point out the inequities of our health systems but also give practical advice about getting a diagnosis, navigating care, asking for help, and contributing to research.

You don’t have to have Long Covid to benefit. Their wise advice applies to everyone.

Speak up. Ask questions. Be the squeaky wheel. Your life or the life of someone you love may depend on it. That’s the message of Josie’s Story. I could not put this book down even as I had to steel myself to turn the page sometimes, knowing that a tragedy caused by a medical error was at the heart of it.

Grief, the unreleased love for a child, compelled the author to demand–and accomplish–systemic change that has saved lives. Read it, weep, and know that you, too, have the power to shift the axis of medical care.

Like Pellegrino, Daniel (Dan) Callahan is also one of the forefathers of the field of medical ethics. 

A prolific author, Dan published 47 books and some 800 articles and blogs. Dan is also the co-founder of the Hastings Center in New York, one of the leading research centers on medical ethics in the world. In many ways, his vision established medical ethics as a legitimate field of studies.

In Setting Limits, Callahan suggests the concept of a “full biographical life span,” meaning the point at which it can be said that a person has lived a complete, fulfilling, whole life. He does not determine a specific age but suggests a range — late seventies, early eighties, which in his opinion is equivalent to a natural, complete life cycle. 

Callahan claims that today medical technology can extend life beyond the point that he believes is sensible and worthwhile. He deliberates… show more.

The moment I started reading this book, its tone gripped me instantly.

It fearlessly presents challenging and daunting situations with a mix of wit and courage. Darkly observant, the story unfolds with a blend of humour, fondness, and a hint of irony, making "The Leisure Seeker" a bittersweet fable of the golden years.

The book fearlessly confronts the realities and indignities of aging and disease, yet it doesn't fail to celebrate life, embracing every precious moment left in the lives of the characters, even if they are old geezers.

While the subject matter could lead to a somber narrative, the book takes an unexpected turn, becoming a genuinely life-affirming and highly entertaining tale, defying the omnipresent shadow of mortality.

As Sallirae ministered to the elderly in an upscale continuing care community, she wondered how some residents aged into a graceful presence that attracted people to them, while others drove people away with their grumpy discontentedness. Some remained curious and engaged in life, but others shrank in interest and spirit. She studied her subjects and their histories closely and rewarded readers with practical tips to adopt in middle age to prevent us from poisoning our later years with grief and regret. What exactly can we do now to live our old age in joy and contentment? Sallirae died in 2007 at age 66, too young to reap the wise and graceful old age she bequeathed to the rest of us. I hold her memory in gratitude as I myself grow old. 

Susan Ward joins her husband, a mining engineer, at a mercury mine near San Jose, California, coming west from New York.

She is an illustrator and writer and, as her grandson tells it, never completely adjusts to life in the West. We get much description of California, however, in the layered times in which her story is told. She and her husband settle in Grass Valley, where her husband works for quartz and gold mines.

Wallace Stegner’s use of Mary Hallock Foote’s memoir and diaries as the basis for this story is still controversial. Foote lived from 1847 to 1938 and wrote beautifully, illuminating life during this time. The controversy makes the story even more intriguing.

This ethnographic work delves into the lives of elders in Calcutta, India, including those who age in place with family nearby, those whose children have migrated abroad, and those who follow their family members to the US. I particularly love the way the author roots the work in traditional South Asian concepts of age and family relationships while dealing simultaneously with social changes such as India’s urbanization and economic liberalization, the out-migration of skilled tech workers, and the introduction of old folks’ homes in urban areas. The sensitive portrayal of life histories made me both laugh and cry. 

When it comes to the literature relating to social justice, class, race, and gender tend to take the lion’s share of interest and coverage.

This means that ageism, which can have devastating effects on older people's lives is often left out of the picture. And, even when it is covered, it tends to be addressed in theoretical and policy terms, with little or nothing said about the practical challenges of tackling ageism on a day-to-day basis.

This book is the clear exception. The author is evidently a passionate champion of treating older people with dignity as part of an overall strategy of anti-ageist practice. Clearly written, with a lovely blend of theory and practice, this is a gem of a book.