Like my main character, I’m a Norwegian writer with ties to the US, who grew up with various chronic illnesses. I discovered the reason for much of my trouble when I was diagnosed with endometriosis. Isolated and in pain, I have always turned to books. I craved seeing my life reflected. Since Please Read This Leaflet Carefully came out, I’ve heard from many readers. I hope that it can help people who haven’t seen themselves in art before. This list addresses the needs of a life with chronic illness and pain: guidance, darkness, humor, comfort, and poetry. I hope these books will help you as much as they did me.
I was absolutely stunned when I read "Unspeakable Conversations" by Harriet McBryde Johnson, one of the many brilliant pieces included in this reader. My edition is from 2010, but new and updated editions have come out since. It explores questions of interdependency and independence, gender, the body, sexuality, biases in science and medicine, and physical disabilities, and investigates issues around pain, mental disability, and invisible disabilities.
Becoming familiar with some disability theories has been invaluable to me. My capacity to read myself as disabled has grown and still fluctuates. To know that sharp minds have been working on this and that it isn’t only a private issue but a political and theoretical one, one that can be marked by joy and humor as well as grief, struggle, and hardship, is immensely helpful.
The fifth edition of The Disability Studies Reader addresses the post-identity theoretical landscape by emphasizing questions of interdependency and independence, the human-animal relationship, and issues around the construction or materiality of gender, the body, and sexuality. Selections explore the underlying biases of medical and scientific experiments and explode the binary of the sound and the diseased mind. The collection addresses physical disabilities, but as always investigates issues around pain, mental disability, and invisible disabilities as well. Featuring a new generation of scholars who are dealing with the most current issues, the fifth edition continues the Reader's tradition of remaining timely,…
I’ve been reading ever since kindergarten, and when I entered high school and discovered YA books, I found my home. Even when I read adult books now, I tend to gravitate towards rough-around-the-edges male leads. There’s just something fun and tempting about an anti-hero, bad boy, or morally gray male lead that always delivers spice and yearning. I’m a sucker for those bad boys who are only good for the girl who has their heart. While not all of my male leads are “bad boys,” naturally, I do tend to find myself writing quite a few of them and enjoying them, especially when you can show they’re multidimensional and have a soft side.
First things first, Simone Elkeles is my favorite YA author, and I couldn’t do a list of recs without mentioning one of her books, and my all-time favorite has always been Leaving Paradise. I also recommend LP because it’s close to my own book in that it features a reformed bad boy, Caleb, freshly on probation who’s trying to navigate his way into society and fix his “mistakes.” I so love the sorta forbidden dynamic between him and Maggie, because Caleb is actually on probation for hitting Maggie in a hit-and-run while drinking and driving. So not only is he trying to win over his former friends, parents, and town, he’s gotta make things right with Maggie, who is not giving him any play whatsoever—in the beginning! Love love Caleb’s voice in this novel.
Nothing has been the same since Caleb Becker left a party drunk, got behind the wheel, and hit Maggie Armstrong. Even after months of painful physical therapy, Maggie walks with a limp. Her social life is nil and a scholarship to study abroad―her chance to escape everyone and their pitying stares―has been canceled.
After a year in juvenile jail, Caleb’s free . . . if freedom means endless nagging from a transition coach and the prying eyes of the entire town. Coming home should feel good, but his family and ex-girlfriend seem like strangers.
I love writing and illustrating all sorts of children's stories. The only thing my stories have in common is that none of their heroes eat meat, drink milk, or take part in the egg and spoon race. I write the kind of stories I want to read. I don't want to read about sex or violence. And I don't want to read foul language. I want something meaningful, something with a concluding note of optimism. Consequently, well-written children's stories often appeal to me. In fact, I've come to the conclusion that these are not just children's stories, they're good stories that anyone can enjoy.
Armpit (aka Theodore), after his release from Camp Green Lake Juvenile Correctional Facility, follows his counsellor's advice to take small steps to get his life back on track. Unfortunately, because of how other people perceive him, one of his steps – avoiding situations that might turn violent – is not always easy to do. I've read this a few times and love it because Theodore is such a kind character. If you've ever been in a situation where you're trying to do the right thing while juggling the conflicting needs of a friend who wants help, and a boss who depends on you, you'll relate. The story is fast-paced, funny at times, filled with diverse characters, and has plenty of dialogue, which I love.
Armpit and X-Ray are living in Austin, Texas. It is three years since they left the confines of Camp Green Lake Detention Centre and Armpit is taking small steps to turn his life around. He is working for a landscape gardener because he is good at digging holes, he is going to school and he is enjoying his first proper romance, but is he going to be able to stay out of trouble when there is so much building up against him? In this exciting novel, Armpit is joined by many vibrant new characters, and is learning what it takes…
I have no wilderness survival skills and certainly no wish to be thrown into any of the scenarios in the books I’ve recommended. What I do have is great empathy for those who struggle to survive loss—in whatever form it might come—be it loss of home, or security, or family. I know what it is to struggle through darkness and survive what I would have previously thought “unsurvivable.” That’s why two of my middle grade books, but especially MacKenzie’s Last Run, are about speaking up when you’re hurting or frightened. Lost in the dark woods or lost in grief–it’s all ultimately about survival.
I confess, I wasn’t sure I was going to enjoy this novel. I began reading it primarily to see what was percolating in slightly younger middle grade titles and in particular in books that are rooted in stories about differently-abled characters. Was I ever delightfully surprised when I fell in love with Ellie! I thought the novel was going to be about a lot of mean treatment by kids at school, but in truth, there wasn’t nearly as much of that as I expected (which was an enormous relief!). If you’re thinking, wait, I thought this was going to be a novel about survival, I’m here to tell you that every single day in Ellie’s life is its own survival story.
Surviving being left out of nearly all the activities the rest of the kids find fun; surviving the humiliation of having an aide take her from class to class,…
"A big-hearted story that's as sweet as it is awesome." -R.J. Palacio, author of Wonder "An honest, emotionally rich take on disability, family, and growing up." -Kirkus Reviews (starred review)
In the tradition of Wonder and Out of My Mind, this big-hearted middle grade debut tells the story of an irrepressible girl with cerebral palsy whose life takes an unexpected turn when she moves to a new town.
Ellie's a girl who tells it like it is. That surprises some people, who see a kid in a wheelchair and think she's going to be all sunshine and cuddles. The thing…
I’m a sociologist and professor. I’ve written several books about human and animal intersections. From bees to horseshoe crabs to spider goats, I’ve channeled my childhood fascination with animals, both vertebrates and invertebrates, into research projects. Over the past two decades, I use qualitative research methods that put me in direct contact with multiple different species, gently handling the animals as a way to get to know them and understand them. I’m particularly interested in how humans make animals meaningful as companions, research subjects, raw materials, and living factories. I believe we must move past our own speciesism, or our biases that reify human superiority, to fully embrace living in a multispecies world.
As an artist, disabled activist, and advocate with arthrogryposis, Sunaura Taylor has experienced firsthand our cultural and economic biases that surround the disability community. She explains how just as we have placed human animals into categories of being “fit” or “unfit,” “valuable” or “unworthy,” we have applied the same logic to nonhuman animals by objectifying them and trying to find endless reasons to explain why we are so different. In the book, Taylor introduces her service dog, Bailey and describes his aging where he becomes “inefficient” and “dependent” on Taylor due to his disability.
A beautifully written, deeply provocative inquiry into the intersection of animal and disability liberation and the debut of an important new social critic
How much of what we understand of ourselves as "human" depends on our physical and mental abilities how we move (or cannot move) in and interact with the world? And how much of our definition of "human" depends on its difference from "animal"?
Drawing on her own experiences as a disabled person, a disability activist, and an animal advocate, author Sunaura Taylor persuades us to think deeply, and sometimes uncomfortably, about what divides the human from the…
I'm writer, educator, disability advocate, and mother of a teenage son with multiple disabilities. Since my son’s diagnosis with autism at age three, I've been on a quest to not only understand the way that his unique brain works, but also to advocate for a more just and equitable world for people with disabilities and their families. When researching my book The Little Gate-Crasher, I discovered how much my great-grandmother was a powerful advocate for her son Mace who was born with a form of dwarfism. Our society has evolved in the last one hundred years in terms of inclusion and accessibility—and yet, people with disabilities and their loved ones are often isolated.
Alice Wong is an incredible writer and self-advocate and has put together an anthology of writers who share first-person experiences through. Variety of formats, including essays and interviews. It is eye-opening for anyone who is not disabled and also presents all of the work that our society needs to do to create accessibility and disability justice.
“Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again.” —Chicago Tribune
One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for…
I’ve lived most of my life with invisible disabilities that affect my daily activities, and I hope to encourage nuanced, empowering, and inclusive conversations about disabilities with my book, So Much More to Helen! All of my nonfiction picture books—Miep and the Most Famous Diary, Winged Wonders, Cougar Crossing, Ocean Soup, Make Way for Animals!, and more—are about “solutionaries” who help people, animals, and the planet. They’ve won Golden Kite and Eureka! Nonfiction Honor Awards, starred reviews, and spots on best book and state reading lists. Mostly, I hope they inspire compassion, curiosity, and action.
I chose this illustrated collected biography because it highlights a wonderfully diverse array of real people living with visible and invisible disabilities. Featuring both famous and non-famous people of various races, genders, and sexualities, with both physical and mental health conditions, it’s incredibly inclusive. The people’s stories, at one page or less, are short enough to keep kids’ attention and the back matter includes an important glossary of terms for talking about disabilities. This book celebrates many different ways people live and work with disabilities and encourages openness and inclusion.
"Intelligent, politically bold, and beautiful to browse [...] Every bookshelf needs a copy." - Disability Arts Online
In this stylishly illustrated biography anthology, meet 34 artists, thinkers, athletes and activists with disabilities, from past and present. From Frida Kahlo to Stephen Hawking, find out how these iconic figures have overcome obstacles, owned their differences and paved the way for others by making their bodies and minds work for them.
These short biographies tell the stories of people who have faced unique challenges which have not stopped them from becoming trailblazers, innovators, advocates and makers. Each person is a leading figure…
I’d finally watched the documentary Crip Camp: A Disability Revolution,which featured Judy Heumann, and wanted to know more about her life and activism. She had this infectious charm that made me want to be a disability rights activist alongside her and her friends, and when I found she’d written a memoir, I had to read it.
In describing her life’s path and tenaciousness in taking on powerful institutions, she lays out a roadmap for others who need to fight for human rights like those of trans people.
A Publishers Weekly Best Book of the Year for Nonfiction
"...an essential and engaging look at recent disability history."— Buzzfeed
One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job, and just be human.
A story of fighting to belong in a world that wasn’t built for all of us and of one woman’s activism—from the streets of Brooklyn and San Francisco to inside the halls of Washington—Being Heumann recounts Judy Heumann’s lifelong battle to achieve respect, acceptance, and inclusion in society.
Ever since I readIsland of the Blue Dolphinsin 5th grade I’ve loved historical fiction. I am inspired by amazing humans who lived across centuries and around the globe and left their mark on the world. My 2023 book I’m Gonna Paint: Ralph Fasanella, Artist of the People is about a social activist artist. Future published books include middle grade novels on the 1838 Trail of Tears, a day on Ellis Island in 1907, and a 1935 book about Eleanor Roosevelt and the planned community of Arthurdale, WV. Like I said, I love exploring history!I read in many genres, but still enjoy learning about history through fiction.
I’ve had an easy life in so many ways, so I appreciate learning from people whose childhood adversities shaped them to make positive changes in the world. When Emmanuel was born in Ghana with a deformed leg, his future looked bleak. Some considered him “cursed.” His mother encouraged him to dream big and become independent. He refused to be defined by his disability and ended up showing “that being disabled does not mean being unable.” To bring attention to the difficulties disabled people face Emmanuel organized and completed a 400-mile bike ride across Ghana.
I love this book because Emmanuel’s mother believed he was more than his disability, and the way Emmanuel proved this to be true prompted the Ghanaian Parliament to pass the Persons with Disability Act.
Emmanuel Ofosu Yeboah's inspiring true story—which was turned into a film, Emmanuel's Gift, narrated by Oprah Winfrey—is nothing short of remarkable.
Born in Ghana, West Africa, with one deformed leg, he was dismissed by most people—but not by his mother, who taught him to reach for his dreams. As a boy, Emmanuel hopped to school more than two miles each way, learned to play soccer, left home at age thirteen to provide for his family, and, eventually, became a cyclist. He rode an astonishing four hundred miles across Ghana in 2001, spreading his powerful message: disability is not inability. Today,…
Strangers Assume My Nurse Is My Girlfriend is the perfect book to tackle the stigma against disability and dating, and it shows that everyone deserves love and that love is full of diversity.
If you're looking to find motivation and inspiration within a beautiful love story full of humor and life lessons, this book is definitely for you to read. What I loved most about this book was that it dives deeply into how disability does not conquer. Love and beauty are in the eyes of the beholder, and society shouldn't judge someone or assume that a person with a disability can never find love because they can.
With his signature wit, twenty-something author, blogger, and entrepreneur Shane Burcaw is back with an essay collection about living a full life in a body that many people perceive as a tragedy. From anecdotes about first introductions where people patted him on the head instead of shaking his hand, to stories of passersby mistaking his able-bodied girlfriend for a nurse, Shane tackles awkward situations and assumptions with humor and grace.
On the surface, these essays are about day-to-day life as a wheelchair user with a degenerative disease, but they are actually about family, love, and coming of age.
