I’ve always been curious about people and the way they interact. When I was a small child, all our neighbors had their back doors wide open to catch the summertime breeze; they’d get the sense they were being watched… by my small face pressed against the screen door, listening and learning. My parents would get called..” She’s doing it again.” As an introvert, a performing artist, and a coach, I’ve learned to tune my ears to the messaging beneath the words—the unspoken truth in the interaction. And I truly believe that if we can learn to be more effective and compassionate listeners—our world will change for the better.
One of the most powerful benefits of skilled listening is building trust. Empathy is essential to creating trusting relationships. Jamison is a trained actor, and deep listening and empathy are essential to the craft of acting.
This book spans her experiences, from her work in medical training to her research on incarceration, reality TV, and street violence. I was struck by the heartfulness and clarity in Jamison's writing about what she has witnessed and experienced. She pulls no punches.
The stories in this book provide a clarion call for our species to regain our empathy for each other through skilled and intentional listening to connect, extend understanding, and ensure our survival.
From personal loss to phantom diseases, The Empathy Exams is a bold and brilliant collection, winner of the Graywolf Press Nonfiction Prize
A Publishers Weekly Top Ten Essay Collection of Spring 2014
Beginning with her experience as a medical actor who was paid to act out symptoms for medical students to diagnose, Leslie Jamison's visceral and revealing essays ask essential questions about our basic understanding of others: How should we care about each other? How can we feel another's pain, especially when pain can be assumed, distorted, or performed? Is empathy a tool by which to test or even grade…
I’ve lived most of my life with invisible disabilities that affect my daily activities, and I hope to encourage nuanced, empowering, and inclusive conversations about disabilities with my book, So Much More to Helen! All of my nonfiction picture books—Miep and the Most Famous Diary, Winged Wonders, Cougar Crossing, Ocean Soup, Make Way for Animals!, and more—are about “solutionaries” who help people, animals, and the planet. They’ve won Golden Kite and Eureka! Nonfiction Honor Awards, starred reviews, and spots on best book and state reading lists. Mostly, I hope they inspire compassion, curiosity, and action.
This book, for me, is important as the first trade nonfiction picture book about the fight for the Americans with Disabilities Act (ADA). I hope and assume more books on this topic are in the pipeline, as there is so much more to share with kids about this crucial social justice movement! Jennifer Keenan’s story is great for kids because she was a kid herself when she crawled up the U.S. Capitol steps to fight for disability rights. This book offers an inspiring, personal entryway into the disability rights movement and the importance of having laws and systems to back up beliefs about access for all.
2021 Schneider Family Book Award Young Children's Honor Book (American Library Association) Experience the true story of lifelong activist Jennifer Keelan-Chaffins and her participation in the Capitol Crawl in this inspiring autobiographical picture book. This beautifully illustrated story includes a foreword from Jennifer and backmatter detailing her life and the history of the disability rights movement. This is the story of a little girl who just wanted to go, even when others tried to stop her. Jennifer Keelan was determined to make a change-even if she was just a kid. She never thought her wheelchair could slow her down, but…
I’m an autistic science fiction writer myself, and I’ve been reviewing autistic science fiction, fantasy, and horror books for over a decade on my “Autistic Book Party” blog. I’ve learned a huge amount in this time about authors like me and what we have to offer the book world. Autistic people are called unimaginative, but that description couldn’t be more wrong – many of us use our imaginations as a richly detailed escape and coping mechanism. There are many more of us out there today than anyone else realizes, from famous, award-winning names to obscure authors using their unique view of the world to create works of imagination, insight, and beauty.
A comet is about to strike the Earth. Denise, an autistic teenager in the near-future Netherlands, struggles to secure a place for herself, her mother, and her sister on a generation ship bound to escape the coming devastation. Duyvis deconstructs myths about ableism, family relationships, survival dilemmas, and the value of human lives in this wrenching but compassionate and ultimately hopeful book.
A thrilling, thought-provoking novel from one of young-adult literature's boldest new talents.
January 29, 2035. That's the day the comet is scheduled to hit-the big one. Denise and her mother and sister, Iris, have been assigned to a temporary shelter outside their hometown of Amsterdam to wait out the blast, but Iris is nowhere to be found, and at the rate Denise's drug-addicted mother is going, they'll never reach the shelter in time. A last-minute meeting leads them to something better than a temporary shelter-a generation ship, scheduled to leave Earth behind to colonize new worlds after the comet hits.…
I grew up in the Disability Rights movement in Canada, fighting for my brother’s right to go to school, to receive medical care, and to be part of our community. For decades, disabled people were institutionalized away from their families and communities, warehoused instead of schooled. My uncle Robert died of neglect in one of these terrible places as a child. My family has been involved in supporting a class action lawsuit against the Ontario government for its responsibility. Since then, the right to education has been better established, and the institutions were closed. But I continue to fight for inclusion and against ableism in education, healthcare, and across our culture.
I was lucky to get the opportunity to read an advance copy of Dr. Kerschbaum's latest monograph, Signs of Disability (in the press and available in both print and open access in Fall 2022). The book focuses on the signs of disability we can recognize everywhere around us: yellow diamond-shaped “deaf person in area” road signs, that wheelchair parking icon, the telltale shapes of hearing aids, or white-tipped canes sweeping across footpaths. But even though the signs are ubiquitous, Kerschbaum argues that disability may still not be perceived as anything but a token or an apparition. This engaging, accessible book builds on Kerschbaum’s already-award-winning scholarship on difference and discourse, constructing new research methods and approaches, but also building community on these pages. Drawing on a set of thirty-three research interviews, as well as written narratives by disabled people, this book builds a new system of signs and significance for disability.…
How can we learn to notice the signs of disability?
We see indications of disability everywhere: yellow diamond-shaped "deaf person in area" road signs, the telltale shapes of hearing aids, or white-tipped canes sweeping across footpaths. But even though the signs are ubiquitous, Stephanie L. Kerschbaum argues that disability may still not be perceived due to a process she terms "dis-attention."
To tell better stories of disability, this multidisciplinary work turns to rhetoric, communications, sociology, and phenomenology to understand the processes by which the material world becomes sensory input that then passes through perceptual apparatuses to materialize phenomena-including disability. By…
I am an autistic female myself and have worked in the field of autism for 20 years. I’ve written several books on the subject of autism, have an MA in Autism and delivered many hundreds of conference presentations (several of which can be found on Youtube). Frankly, I know my stuff as I live and breathe the world of autistic women. I have an autistic daughter, all of my female friends are autistic and I have diagnosed hundreds of females as autistic.
Steph has a way with words, that will make you laugh and cry at the same time.
Her survival guide to therapy takes us on a journey that I entirely identify with – trying to find therapy for all of our ‘problems’ from therapists who don’t really get it. I learned so much (and know now what to do) and enjoyed myself along the way.
"This is the book that would've saved me nine different therapists, decades of self-analysis, thousands of pounds, twelve different doctors and untold amounts of pain, frustration and trauma - in spending a lifetime looking for the right answers in the wrong places I've become an accidental expert."
In this candid, witty and insightful exploration into therapy, Steph Jones uses her professional and lived experiences as a late diagnosed autistic woman and therapist, as well as consulting therapists from across the world and tapping into the autistic community, to create the ultimate autistic survival guide to therapy.
I have spent 20+ years working on the question of how social and environmental change happens, from my long-time career in progressive politics to my current work writing about the most pressing issues of our time through an economic lens, and occasionally talking about them on my podcast, also called Wallet Activism. So I know well how intimidating it can feel to get involved, whether it’s worrying your voice isn’t needed (trust me, it is!) or not knowing the nuts and bolts of where to start. But we have so much power when we act collectively, and I want you to feel personally invited to take action.
There are a bunch of great anti-racism books out there, but few are all about taking action, as Sophie’s book is. Because I’m guessing if you’ve made it this far into my recommendation list, you are already familiar with anti-racism and many of the systemic problems we must address, and just want someone to point you in the right direction to do the work. This is a great book for that! It’s short but packed with practical tips.
'Gives you the information you need to begin, or continue, your understanding of what it means to be a true anti-racist ally' Pippa Vosper
Do you want to be an anti-racist ally?
This punchy, pocket-sized guide shows you how, whether you're using your voice for the first time, or are looking for ways to keep the momentum and make long lasting change.
Sophie Williams' no-holds-barred posts about racism and Black Lives Matter on @officialmillennialblack have taken the online world by storm. Sharp, simple and insightful, they get to the heart of anti-racist principles and show us all how to truly…
I grew up in the Disability Rights movement in Canada, fighting for my brother’s right to go to school, to receive medical care, and to be part of our community. For decades, disabled people were institutionalized away from their families and communities, warehoused instead of schooled. My uncle Robert died of neglect in one of these terrible places as a child. My family has been involved in supporting a class action lawsuit against the Ontario government for its responsibility. Since then, the right to education has been better established, and the institutions were closed. But I continue to fight for inclusion and against ableism in education, healthcare, and across our culture.
We are incredibly lucky to have so much important work in disability studies and disability justice coming out in the Fall of 2022. The Future Is Disabled is Leah Lakshmi Piepzna-Samarasinha’s much-anticipated follow-up toCare Work: Dreaming Disability Justice.Written during lockdown, this is an urgent and beautiful book, shifting from love letters to songs, recipes for survival, and provocative questions. For instance and central to this work, the book asks: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? The truth is that disabled people have had to weather an unprecedented assault on their value and had to assume huge risks over the past few years, as Nishida also shows. As with Kerschbaum, Nishida, and Schalk’s books, Piepzna-Samarasinha converses with disabled people to carefully document the many ways they have kept and are keeping each other—and the…
In The Future Is Disabled, Leah Laksmi Piepzna-Samarasinha asks some provocative questions: What if, in the near future, the majority of people will be disabled―and what if that’s not a bad thing? And what if disability justice and disabled wisdom are crucial to creating a future in which it’s possible to survive fascism, climate change, and pandemics and to bring about liberation
Building on the work of her game changing book Care Work: Dreaming Disability Justice, Piepzna-Samarasinha writes about disability justice at the end of the world, documenting the many ways disabled people kept and are keeping each other―and the…
I'm writer, educator, disability advocate, and mother of a teenage son with multiple disabilities. Since my son’s diagnosis with autism at age three, I've been on a quest to not only understand the way that his unique brain works, but also to advocate for a more just and equitable world for people with disabilities and their families. When researching my book The Little Gate-Crasher, I discovered how much my great-grandmother was a powerful advocate for her son Mace who was born with a form of dwarfism. Our society has evolved in the last one hundred years in terms of inclusion and accessibility—and yet, people with disabilities and their loved ones are often isolated.
Written with clear down-to-earth language, disability advocate Emily Ladau had written a guide that could revolutionize the way that people think about disability and how to interact with people who have disabilities. Because our society has kept people with disabilities separate for so long, this kind of book is essential in leading us towards inclusion.
An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more inclusive place
ONE OF THE BEST BOOKS OF THE YEAR: NPR, Booklist • “A candid, accessible cheat sheet for anyone who wants to thoughtfully join the conversation . . . Emily makes the intimidating approachable and the complicated clear.”—Rebekah Taussig, author of Sitting Pretty: The View from My Ordinary, Resilient, Disabled Body
People with disabilities are the world’s largest minority, an estimated 15 percent…
“Everyone’s got something,” my mom used to say about my cerebral palsy. I knew kids who wore glasses or had mouthfuls of metal, but those somethings seemed normal compared to my leg brace, my limp, and my inability to run. When Judy Blume’s Deenie came out on my eleventh birthday, it was the very gift I needed: the story of a girl, a diagnosis, a brace. Reading it, I felt seen and understood, which led me to believe I might have a story to tell. Now, I’m thrilled to share these books by disabled authors about disabled kids leading authentic, relatable lives. I had Deenie. Today’s lucky young readers have these.
So many of us, especially as teenagers, have felt the need to hide what’s different about us from classmates and friends. This spare, lovely verse novel captures those feelings perfectly. Natalie, who lives with chronic pain and frequent bone dislocations due to Ehlers-Danlos Syndrome, is so invested in this facade that she hides her wheelchair and forces herself to walk in school despite the pain and damage to her joints.
But secretiveness is, of course, born of shame. And disability, Natalie eventually learns with the help of a fiery, self-possessed disabled friend, isn’t what’s shameful. Inaccessibility is. Ableism is. Eventually, the two girls join forces to confront both in their school community, making this book a call to action and self-acceptance. I also find it to be an unputdownable page-turner.
Sometimes in high school, all you want is to be invisible. Being invisible might be the biggest problem of all for Natalie. She has a disability that causes chaos to her body on the inside but leaves her unmarked on the outside. She's learned to hide her pain so well that you would never guess she's not the same Natalie as she was before she got sick. But after having surgery, Natalie must return to school in a wheelchair. Now, Natalie has to decide if the painful consequences of pretending to be healthy are worth keeping the last of her…
In
this historical fiction verse novel set in 1987, we meet Calvin Johnston and
his brothers. The brothers all have hemophilia and have contracted HIV through
blood transfusions.
Calvin and his family live in Ashland, the “Friendliest
Little Town,” but many of the people in Ashland react out of fear rather than
friendship when they learn of the Johnston brothers’ diagnosis. I grew up in a
small, sheltered town like Ashland, and I have to wonder how our village (and young
me) would’ve reacted to a similar situation.
One of the things I love most
about books is that they give me a chance to try on someone else’s life for a
bit. Blood Brothers turned me inside out, broke my heart, and allowed me
a chance to reflect and grow.
Rob Sanders’ lyrical writing, coupled with
supporting information at the back of the book, makes this an amazing option…
Written and illustrated by Rob Sanders. This award-winning novel is about Calvin Johnston and how his secret is out. He and his brothers are tainted. Untouchable. And the bad blood flowing through their veins is threatening to kill them. So are some of their neighbors in Ashland, the “Friendliest Little Town” in Florida. The Johnston brothers are kicked out of everything―school, baseball, scouts, even church. Ashland’s anger has erupted into a fireball of hate. The only silver lining is that Calvin’s best friend Izzy lives 65 miles away at the beach, and has no idea about his secret. But news…
