I have always been fascinated with bodies: the meaning we make of them; the suffering, joy, and indignities we receive through them; the outer limits of what we can do to and with them. I’ve worked in careers that have asked a lot of my own body, and I write about the brutalities humans inflict upon our own and other bodies. My work is obsessed with questions of how and why we endure suffering. Also, I’ve done a lot of dumb shit to and with my own body that has given me (in addition to a lifetime of medical problems) a highly specific perspective about intensity, hazard, and pain.
If I could only have one book for the rest of my life it would be this one.
The ur-text of braided essays, and of essay collections, LJ asks us to look at pain, obsession, care, and empathy through radically surprising lenses. In my favorite of the collected essays, “The Devil’s Bait,” she creates a sense of quantum reality that demands that the reader see their own skepticism and ableism, while at the same time implanting a persistent anxiety around the possibility that they might in fact be vulnerable to the very thing they are judging.
From personal loss to phantom diseases, The Empathy Exams is a bold and brilliant collection, winner of the Graywolf Press Nonfiction Prize
A Publishers Weekly Top Ten Essay Collection of Spring 2014
Beginning with her experience as a medical actor who was paid to act out symptoms for medical students to diagnose, Leslie Jamison's visceral and revealing essays ask essential questions about our basic understanding of others: How should we care about each other? How can we feel another's pain, especially when pain can be assumed, distorted, or performed? Is empathy a tool by which to test or even grade…
I’m an autistic science fiction writer myself, and I’ve been reviewing autistic science fiction, fantasy, and horror books for over a decade on my “Autistic Book Party” blog. I’ve learned a huge amount in this time about authors like me and what we have to offer the book world. Autistic people are called unimaginative, but that description couldn’t be more wrong – many of us use our imaginations as a richly detailed escape and coping mechanism. There are many more of us out there today than anyone else realizes, from famous, award-winning names to obscure authors using their unique view of the world to create works of imagination, insight, and beauty.
A comet is about to strike the Earth. Denise, an autistic teenager in the near-future Netherlands, struggles to secure a place for herself, her mother, and her sister on a generation ship bound to escape the coming devastation. Duyvis deconstructs myths about ableism, family relationships, survival dilemmas, and the value of human lives in this wrenching but compassionate and ultimately hopeful book.
A thrilling, thought-provoking novel from one of young-adult literature's boldest new talents.
January 29, 2035. That's the day the comet is scheduled to hit-the big one. Denise and her mother and sister, Iris, have been assigned to a temporary shelter outside their hometown of Amsterdam to wait out the blast, but Iris is nowhere to be found, and at the rate Denise's drug-addicted mother is going, they'll never reach the shelter in time. A last-minute meeting leads them to something better than a temporary shelter-a generation ship, scheduled to leave Earth behind to colonize new worlds after the comet hits.…
Year of the Tiger challenged me to make the most of my life despite difficulties. The author’s commitment to using her life to impact society despite severe disability is inspiring.
The author refused to accept ‘no’ from authorities when they said they could not accommodate her needs, and her doggedness has helped pave the way for others. She vividly showed how the accommodations provided through the Americans With Disabilities Act have been a life changer for her and so many others.
This was an informative and inspiring introduction to a world that I previously understood little of, a different kind of memoir, one I highly recommend.
NATIONAL BESTSELLER • ONE OF USA TODAY'S MUST-READ BOOKS • This groundbreaking memoir offers a glimpse into an activist's journey to finding and cultivating community and the continued fight for disability justice, from the founder and director of the Disability Visibility Project
“Alice Wong provides deep truths in this fun and deceptively easy read about her survival in this hectic and ableist society.” —Selma Blair, bestselling author of Mean Baby
In Chinese culture, the tiger is deeply revered for its confidence, passion, ambition, and ferocity. That same fighting spirit resides in Alice Wong.
I am an autistic female myself and have worked in the field of autism for 20 years. I’ve written several books on the subject of autism, have an MA in Autism and delivered many hundreds of conference presentations (several of which can be found on Youtube). Frankly, I know my stuff as I live and breathe the world of autistic women. I have an autistic daughter, all of my female friends are autistic and I have diagnosed hundreds of females as autistic.
Steph has a way with words, that will make you laugh and cry at the same time.
Her survival guide to therapy takes us on a journey that I entirely identify with – trying to find therapy for all of our ‘problems’ from therapists who don’t really get it. I learned so much (and know now what to do) and enjoyed myself along the way.
"This is the book that would've saved me nine different therapists, decades of self-analysis, thousands of pounds, twelve different doctors and untold amounts of pain, frustration and trauma - in spending a lifetime looking for the right answers in the wrong places I've become an accidental expert."
In this candid, witty and insightful exploration into therapy, Steph Jones uses her professional and lived experiences as a late diagnosed autistic woman and therapist, as well as consulting therapists from across the world and tapping into the autistic community, to create the ultimate autistic survival guide to therapy.
I grew up in the Disability Rights movement in Canada, fighting for my brother’s right to go to school, to receive medical care, and to be part of our community. For decades, disabled people were institutionalized away from their families and communities, warehoused instead of schooled. My uncle Robert died of neglect in one of these terrible places as a child. My family has been involved in supporting a class action lawsuit against the Ontario government for its responsibility. Since then, the right to education has been better established, and the institutions were closed. But I continue to fight for inclusion and against ableism in education, healthcare, and across our culture.
We are incredibly lucky to have so much important work in disability studies and disability justice coming out in the Fall of 2022. The Future Is Disabled is Leah Lakshmi Piepzna-Samarasinha’s much-anticipated follow-up toCare Work: Dreaming Disability Justice.Written during lockdown, this is an urgent and beautiful book, shifting from love letters to songs, recipes for survival, and provocative questions. For instance and central to this work, the book asks: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? The truth is that disabled people have had to weather an unprecedented assault on their value and had to assume huge risks over the past few years, as Nishida also shows. As with Kerschbaum, Nishida, and Schalk’s books, Piepzna-Samarasinha converses with disabled people to carefully document the many ways they have kept and are keeping each other—and the…
In The Future Is Disabled, Leah Laksmi Piepzna-Samarasinha asks some provocative questions: What if, in the near future, the majority of people will be disabled―and what if that’s not a bad thing? And what if disability justice and disabled wisdom are crucial to creating a future in which it’s possible to survive fascism, climate change, and pandemics and to bring about liberation
Building on the work of her game changing book Care Work: Dreaming Disability Justice, Piepzna-Samarasinha writes about disability justice at the end of the world, documenting the many ways disabled people kept and are keeping each other―and the…
I have spent 20+ years working on the question of how social and environmental change happens, from my long-time career in progressive politics to my current work writing about the most pressing issues of our time through an economic lens, and occasionally talking about them on my podcast, also called Wallet Activism. So I know well how intimidating it can feel to get involved, whether it’s worrying your voice isn’t needed (trust me, it is!) or not knowing the nuts and bolts of where to start. But we have so much power when we act collectively, and I want you to feel personally invited to take action.
There are a bunch of great anti-racism books out there, but few are all about taking action, as Sophie’s book is. Because I’m guessing if you’ve made it this far into my recommendation list, you are already familiar with anti-racism and many of the systemic problems we must address, and just want someone to point you in the right direction to do the work. This is a great book for that! It’s short but packed with practical tips.
'Gives you the information you need to begin, or continue, your understanding of what it means to be a true anti-racist ally' Pippa Vosper
Do you want to be an anti-racist ally?
This punchy, pocket-sized guide shows you how, whether you're using your voice for the first time, or are looking for ways to keep the momentum and make long lasting change.
Sophie Williams' no-holds-barred posts about racism and Black Lives Matter on @officialmillennialblack have taken the online world by storm. Sharp, simple and insightful, they get to the heart of anti-racist principles and show us all how to truly…
I grew up in the Disability Rights movement in Canada, fighting for my brother’s right to go to school, to receive medical care, and to be part of our community. For decades, disabled people were institutionalized away from their families and communities, warehoused instead of schooled. My uncle Robert died of neglect in one of these terrible places as a child. My family has been involved in supporting a class action lawsuit against the Ontario government for its responsibility. Since then, the right to education has been better established, and the institutions were closed. But I continue to fight for inclusion and against ableism in education, healthcare, and across our culture.
Black Disability Politicsalso just came out in early Fall 2022, and I was very excited to receive my print copy. The book shows how Black people have long engaged with disability as a political issue tightly tied to race and racism. This, however, has not been the story told in disability studies or in mainstream histories of the Disability Rights movement. Schalk deeply explores archives (for instance those of the Black Panther Party) and layers these findings across interviews with contemporary Black disabled community organizers, to recognize the richness and power of Blackdisability politics. This book is full of surprises, memorable archival anecdotes, and powerful conversations between Schalk and others. You should read this book! If a goal within ableist and white supremacist society is liberation, Schalk shows how essential it is to engage in antiracist, feminist, andanti-ableist political and cultural coalition.
In Black Disability Politics Sami Schalk explores how issues of disability have been and continue to be central to Black activism from the 1970s to the present. Schalk shows how Black people have long engaged with disability as a political issue deeply tied to race and racism. She points out that this work has not been recognized as part of the legacy of disability justice and liberation because Black disability politics differ in language and approach from the mainstream white-dominant disability rights movement. Drawing on the archives of the Black Panther Party and the National Black Women's Health Project alongside…
I'm writer, educator, disability advocate, and mother of a teenage son with multiple disabilities. Since my son’s diagnosis with autism at age three, I've been on a quest to not only understand the way that his unique brain works, but also to advocate for a more just and equitable world for people with disabilities and their families. When researching my book The Little Gate-Crasher, I discovered how much my great-grandmother was a powerful advocate for her son Mace who was born with a form of dwarfism. Our society has evolved in the last one hundred years in terms of inclusion and accessibility—and yet, people with disabilities and their loved ones are often isolated.
Written with clear down-to-earth language, disability advocate Emily Ladau had written a guide that could revolutionize the way that people think about disability and how to interact with people who have disabilities. Because our society has kept people with disabilities separate for so long, this kind of book is essential in leading us towards inclusion.
An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more inclusive place
ONE OF THE BEST BOOKS OF THE YEAR: NPR, Booklist • “A candid, accessible cheat sheet for anyone who wants to thoughtfully join the conversation . . . Emily makes the intimidating approachable and the complicated clear.”—Rebekah Taussig, author of Sitting Pretty: The View from My Ordinary, Resilient, Disabled Body
People with disabilities are the world’s largest minority, an estimated 15 percent…
I grew up in the Disability Rights movement in Canada, fighting for my brother’s right to go to school, to receive medical care, and to be part of our community. For decades, disabled people were institutionalized away from their families and communities, warehoused instead of schooled. My uncle Robert died of neglect in one of these terrible places as a child. My family has been involved in supporting a class action lawsuit against the Ontario government for its responsibility. Since then, the right to education has been better established, and the institutions were closed. But I continue to fight for inclusion and against ableism in education, healthcare, and across our culture.
I was lucky to get the opportunity to read an advance copy of Dr. Kerschbaum's latest monograph, Signs of Disability (in the press and available in both print and open access in Fall 2022). The book focuses on the signs of disability we can recognize everywhere around us: yellow diamond-shaped “deaf person in area” road signs, that wheelchair parking icon, the telltale shapes of hearing aids, or white-tipped canes sweeping across footpaths. But even though the signs are ubiquitous, Kerschbaum argues that disability may still not be perceived as anything but a token or an apparition. This engaging, accessible book builds on Kerschbaum’s already-award-winning scholarship on difference and discourse, constructing new research methods and approaches, but also building community on these pages. Drawing on a set of thirty-three research interviews, as well as written narratives by disabled people, this book builds a new system of signs and significance for disability.…
How can we learn to notice the signs of disability?
We see indications of disability everywhere: yellow diamond-shaped "deaf person in area" road signs, the telltale shapes of hearing aids, or white-tipped canes sweeping across footpaths. But even though the signs are ubiquitous, Stephanie L. Kerschbaum argues that disability may still not be perceived due to a process she terms "dis-attention."
To tell better stories of disability, this multidisciplinary work turns to rhetoric, communications, sociology, and phenomenology to understand the processes by which the material world becomes sensory input that then passes through perceptual apparatuses to materialize phenomena-including disability. By…
I grew up in the Disability Rights movement in Canada, fighting for my brother’s right to go to school, to receive medical care, and to be part of our community. For decades, disabled people were institutionalized away from their families and communities, warehoused instead of schooled. My uncle Robert died of neglect in one of these terrible places as a child. My family has been involved in supporting a class action lawsuit against the Ontario government for its responsibility. Since then, the right to education has been better established, and the institutions were closed. But I continue to fight for inclusion and against ableism in education, healthcare, and across our culture.
Though it came out in the Summer of 2022, and had a headstart on the other books on my list, Just Careis in conversation with the rest of this list, and is just as relevant to our current moment, when we might agree that we have a crisis of care. Nishida shows that care dynamics exist within a brutal social order that determines who survives and who deteriorates. Along with the other books on this list, the research methods are creatively mixed here, with interviews, focus groups, and participant observation with care workers and people with disabilities. Just Care documents how people with disabilities work together to reimagine care. We are all enmeshed in a healthcare industry with giant cracks and fissures exposed by the pandemic, and in which we will all move between caregiving, receiving, or both. ReadJust Care to better understand imbalances in care, as well…
Just Care is Akemi Nishida's thoughtful examination of care injustice and social justice enabled through care. The current neoliberal political economy has turned care into a business opportunity for the healthcare industrial complex and a mechanism of social oppression and control. Nishida analyzes the challenges people negotiate whether they are situated as caregivers, receivers, or both. Also illuminated is how people with disabilities come together to assemble community care collectives and bed activism (resistance and visions emerging from the space of bed) to reimagine care as a key element for social change.
