The most recommended books on ableism

In this historical fiction verse novel set in 1987, we meet Calvin Johnston and his brothers. The brothers all have hemophilia and have contracted HIV through blood transfusions.

Calvin and his family live in Ashland, the “Friendliest Little Town,” but many of the people in Ashland react out of fear rather than friendship when they learn of the Johnston brothers’ diagnosis. I grew up in a small, sheltered town like Ashland, and I have to wonder how our village (and young me) would’ve reacted to a similar situation.

One of the things I love most about books is that they give me a chance to try on someone else’s life for a bit. Blood Brothers turned me inside out, broke my heart, and allowed me a chance to reflect and grow.

Rob Sanders’ lyrical writing, coupled with supporting information at the back of the book, makes this an amazing option… show more.

Black Disability Politics also just came out in early Fall 2022, and I was very excited to receive my print copy. The book shows how Black people have long engaged with disability as a political issue tightly tied to race and racism. This, however, has not been the story told in disability studies or in mainstream histories of the Disability Rights movement. Schalk deeply explores archives (for instance those of the Black Panther Party) and layers these findings across interviews with contemporary Black disabled community organizers, to recognize the richness and power of Black disability politics. This book is full of surprises, memorable archival anecdotes, and powerful conversations between Schalk and others. You should read this book! If a goal within ableist and white supremacist society is liberation, Schalk shows how essential it is to engage in antiracist, feminist, and anti-ableist political and cultural coalition.

We are incredibly lucky to have so much important work in disability studies and disability justice coming out in the Fall of 2022. The Future Is Disabled is Leah Lakshmi Piepzna-Samarasinha’s much-anticipated follow-up to Care Work: Dreaming Disability Justice. Written during lockdown, this is an urgent and beautiful book, shifting from love letters to songs, recipes for survival, and provocative questions. For instance and central to this work, the book asks: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? The truth is that disabled people have had to weather an unprecedented assault on their value and had to assume huge risks over the past few years, as Nishida also shows. As with Kerschbaum, Nishida, and Schalk’s books, Piepzna-Samarasinha converses with disabled people to carefully document the many ways they have kept and are keeping each other—and the… show more.

Year of the Tiger challenged me to make the most of my life despite difficulties. The author’s commitment to using her life to impact society despite severe disability is inspiring.

The author refused to accept ‘no’ from authorities when they said they could not accommodate her needs, and her doggedness has helped pave the way for others. She vividly showed how the accommodations provided through the Americans With Disabilities Act have been a life changer for her and so many others.

This was an informative and inspiring introduction to a world that I previously understood little of, a different kind of memoir, one I highly recommend.

This book, for me, is important as the first trade nonfiction picture book about the fight for the Americans with Disabilities Act (ADA). I hope and assume more books on this topic are in the pipeline, as there is so much more to share with kids about this crucial social justice movement! Jennifer Keenan’s story is great for kids because she was a kid herself when she crawled up the U.S. Capitol steps to fight for disability rights. This book offers an inspiring, personal entryway into the disability rights movement and the importance of having laws and systems to back up beliefs about access for all.

So many of us, especially as teenagers, have felt the need to hide what’s different about us from classmates and friends. This spare, lovely verse novel captures those feelings perfectly. Natalie, who lives with chronic pain and frequent bone dislocations due to Ehlers-Danlos Syndrome, is so invested in this facade that she hides her wheelchair and forces herself to walk in school despite the pain and damage to her joints.

But secretiveness is, of course, born of shame. And disability, Natalie eventually learns with the help of a fiery, self-possessed disabled friend, isn’t what’s shameful. Inaccessibility is. Ableism is. Eventually, the two girls join forces to confront both in their school community, making this book a call to action and self-acceptance. I also find it to be an unputdownable page-turner.

A comet is about to strike the Earth. Denise, an autistic teenager in the near-future Netherlands, struggles to secure a place for herself, her mother, and her sister on a generation ship bound to escape the coming devastation. Duyvis deconstructs myths about ableism, family relationships, survival dilemmas, and the value of human lives in this wrenching but compassionate and ultimately hopeful book.

This book broke my heart. It forced me to really interrogate why we push kids to be smart in a particular way to the detriment of their mental health. By the time I was done, I was angry with all the ways that our culture of parenting and childhood pulled us away from finding true happiness and mattering to each other.

It drove me to see how the most widespread habits of our achievement culture are alarmingly exclusionary and ableist, making those who can’t live up to narrow standards of achievement feel lost and without purpose. 

Though it came out in the Summer of 2022, and had a headstart on the other books on my list, Just Care is in conversation with the rest of this list, and is just as relevant to our current moment, when we might agree that we have a crisis of care. Nishida shows that care dynamics exist within a brutal social order that determines who survives and who deteriorates. Along with the other books on this list, the research methods are creatively mixed here, with interviews, focus groups, and participant observation with care workers and people with disabilities. Just Care documents how people with disabilities work together to reimagine care. We are all enmeshed in a healthcare industry with giant cracks and fissures exposed by the pandemic, and in which we will all move between caregiving, receiving, or both. Read Just Care to better understand imbalances in care, as well… show more.

Steph has a way with words, that will make you laugh and cry at the same time.

Her survival guide to therapy takes us on a journey that I entirely identify with – trying to find therapy for all of our ‘problems’ from therapists who don’t really get it. I learned so much (and know now what to do) and enjoyed myself along the way.