Here are 61 books that The Future Is Disabled fans have personally recommended if you like
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I grew up in the Disability Rights movement in Canada, fighting for my brother’s right to go to school, to receive medical care, and to be part of our community. For decades, disabled people were institutionalized away from their families and communities, warehoused instead of schooled. My uncle Robert died of neglect in one of these terrible places as a child. My family has been involved in supporting a class action lawsuit against the Ontario government for its responsibility. Since then, the right to education has been better established, and the institutions were closed. But I continue to fight for inclusion and against ableism in education, healthcare, and across our culture.
This recently-released memoir is by Alice Wong, who directs the important Disability Visibility Project, which you should also check out! This book blends a variety of approaches and media to create a series of snapshots and provocations from Alice Wong’s life, mainly narrated through the relationships of care and community she has built. Through this memoir, you’ll get a history of disability activism over the past two decades, but you will also meet an incredibly funny, creative, and dedicated activist.
NATIONAL BESTSELLER • ONE OF USA TODAY'S MUST-READ BOOKS • This groundbreaking memoir offers a glimpse into an activist's journey to finding and cultivating community and the continued fight for disability justice, from the founder and director of the Disability Visibility Project
“Alice Wong provides deep truths in this fun and deceptively easy read about her survival in this hectic and ableist society.” —Selma Blair, bestselling author of Mean Baby
In Chinese culture, the tiger is deeply revered for its confidence, passion, ambition, and ferocity. That same fighting spirit resides in Alice Wong.
I grew up in the Disability Rights movement in Canada, fighting for my brother’s right to go to school, to receive medical care, and to be part of our community. For decades, disabled people were institutionalized away from their families and communities, warehoused instead of schooled. My uncle Robert died of neglect in one of these terrible places as a child. My family has been involved in supporting a class action lawsuit against the Ontario government for its responsibility. Since then, the right to education has been better established, and the institutions were closed. But I continue to fight for inclusion and against ableism in education, healthcare, and across our culture.
Black Disability Politicsalso just came out in early Fall 2022, and I was very excited to receive my print copy. The book shows how Black people have long engaged with disability as a political issue tightly tied to race and racism. This, however, has not been the story told in disability studies or in mainstream histories of the Disability Rights movement. Schalk deeply explores archives (for instance those of the Black Panther Party) and layers these findings across interviews with contemporary Black disabled community organizers, to recognize the richness and power of Blackdisability politics. This book is full of surprises, memorable archival anecdotes, and powerful conversations between Schalk and others. You should read this book! If a goal within ableist and white supremacist society is liberation, Schalk shows how essential it is to engage in antiracist, feminist, andanti-ableist political and cultural coalition.
In Black Disability Politics Sami Schalk explores how issues of disability have been and continue to be central to Black activism from the 1970s to the present. Schalk shows how Black people have long engaged with disability as a political issue deeply tied to race and racism. She points out that this work has not been recognized as part of the legacy of disability justice and liberation because Black disability politics differ in language and approach from the mainstream white-dominant disability rights movement. Drawing on the archives of the Black Panther Party and the National Black Women's Health Project alongside…
I grew up in the Disability Rights movement in Canada, fighting for my brother’s right to go to school, to receive medical care, and to be part of our community. For decades, disabled people were institutionalized away from their families and communities, warehoused instead of schooled. My uncle Robert died of neglect in one of these terrible places as a child. My family has been involved in supporting a class action lawsuit against the Ontario government for its responsibility. Since then, the right to education has been better established, and the institutions were closed. But I continue to fight for inclusion and against ableism in education, healthcare, and across our culture.
I was lucky to get the opportunity to read an advance copy of Dr. Kerschbaum's latest monograph, Signs of Disability (in the press and available in both print and open access in Fall 2022). The book focuses on the signs of disability we can recognize everywhere around us: yellow diamond-shaped “deaf person in area” road signs, that wheelchair parking icon, the telltale shapes of hearing aids, or white-tipped canes sweeping across footpaths. But even though the signs are ubiquitous, Kerschbaum argues that disability may still not be perceived as anything but a token or an apparition. This engaging, accessible book builds on Kerschbaum’s already-award-winning scholarship on difference and discourse, constructing new research methods and approaches, but also building community on these pages. Drawing on a set of thirty-three research interviews, as well as written narratives by disabled people, this book builds a new system of signs and significance for disability.…
How can we learn to notice the signs of disability?
We see indications of disability everywhere: yellow diamond-shaped "deaf person in area" road signs, the telltale shapes of hearing aids, or white-tipped canes sweeping across footpaths. But even though the signs are ubiquitous, Stephanie L. Kerschbaum argues that disability may still not be perceived due to a process she terms "dis-attention."
To tell better stories of disability, this multidisciplinary work turns to rhetoric, communications, sociology, and phenomenology to understand the processes by which the material world becomes sensory input that then passes through perceptual apparatuses to materialize phenomena-including disability. By…
I grew up in the Disability Rights movement in Canada, fighting for my brother’s right to go to school, to receive medical care, and to be part of our community. For decades, disabled people were institutionalized away from their families and communities, warehoused instead of schooled. My uncle Robert died of neglect in one of these terrible places as a child. My family has been involved in supporting a class action lawsuit against the Ontario government for its responsibility. Since then, the right to education has been better established, and the institutions were closed. But I continue to fight for inclusion and against ableism in education, healthcare, and across our culture.
Though it came out in the Summer of 2022, and had a headstart on the other books on my list, Just Careis in conversation with the rest of this list, and is just as relevant to our current moment, when we might agree that we have a crisis of care. Nishida shows that care dynamics exist within a brutal social order that determines who survives and who deteriorates. Along with the other books on this list, the research methods are creatively mixed here, with interviews, focus groups, and participant observation with care workers and people with disabilities. Just Care documents how people with disabilities work together to reimagine care. We are all enmeshed in a healthcare industry with giant cracks and fissures exposed by the pandemic, and in which we will all move between caregiving, receiving, or both. ReadJust Care to better understand imbalances in care, as well…
Just Care is Akemi Nishida's thoughtful examination of care injustice and social justice enabled through care. The current neoliberal political economy has turned care into a business opportunity for the healthcare industrial complex and a mechanism of social oppression and control. Nishida analyzes the challenges people negotiate whether they are situated as caregivers, receivers, or both. Also illuminated is how people with disabilities come together to assemble community care collectives and bed activism (resistance and visions emerging from the space of bed) to reimagine care as a key element for social change.
I'm writer, educator, disability advocate, and mother of a teenage son with multiple disabilities. Since my son’s diagnosis with autism at age three, I've been on a quest to not only understand the way that his unique brain works, but also to advocate for a more just and equitable world for people with disabilities and their families. When researching my book The Little Gate-Crasher, I discovered how much my great-grandmother was a powerful advocate for her son Mace who was born with a form of dwarfism. Our society has evolved in the last one hundred years in terms of inclusion and accessibility—and yet, people with disabilities and their loved ones are often isolated.
Written with clear down-to-earth language, disability advocate Emily Ladau had written a guide that could revolutionize the way that people think about disability and how to interact with people who have disabilities. Because our society has kept people with disabilities separate for so long, this kind of book is essential in leading us towards inclusion.
An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more inclusive place
ONE OF THE BEST BOOKS OF THE YEAR: NPR, Booklist • “A candid, accessible cheat sheet for anyone who wants to thoughtfully join the conversation . . . Emily makes the intimidating approachable and the complicated clear.”—Rebekah Taussig, author of Sitting Pretty: The View from My Ordinary, Resilient, Disabled Body
People with disabilities are the world’s largest minority, an estimated 15 percent…
I’ve lived most of my life with invisible disabilities that affect my daily activities, and I hope to encourage nuanced, empowering, and inclusive conversations about disabilities with my book, So Much More to Helen! All of my nonfiction picture books—Miep and the Most Famous Diary, Winged Wonders, Cougar Crossing, Ocean Soup, Make Way for Animals!, and more—are about “solutionaries” who help people, animals, and the planet. They’ve won Golden Kite and Eureka! Nonfiction Honor Awards, starred reviews, and spots on best book and state reading lists. Mostly, I hope they inspire compassion, curiosity, and action.
This book, for me, is important as the first trade nonfiction picture book about the fight for the Americans with Disabilities Act (ADA). I hope and assume more books on this topic are in the pipeline, as there is so much more to share with kids about this crucial social justice movement! Jennifer Keenan’s story is great for kids because she was a kid herself when she crawled up the U.S. Capitol steps to fight for disability rights. This book offers an inspiring, personal entryway into the disability rights movement and the importance of having laws and systems to back up beliefs about access for all.
2021 Schneider Family Book Award Young Children's Honor Book (American Library Association) Experience the true story of lifelong activist Jennifer Keelan-Chaffins and her participation in the Capitol Crawl in this inspiring autobiographical picture book. This beautifully illustrated story includes a foreword from Jennifer and backmatter detailing her life and the history of the disability rights movement. This is the story of a little girl who just wanted to go, even when others tried to stop her. Jennifer Keelan was determined to make a change-even if she was just a kid. She never thought her wheelchair could slow her down, but…
I never really thought much about how limited and exclusionary our society’s ideas about intelligence are until my daughter, who has Down syndrome, was required to take her first IQ test before she started kindergarten. That experience led me to research the history of the IQ test and how it has shaped our culture’s ideas about intelligence in pernicious ways. I am a college professor who is working to change the educational and employment opportunities available to people with intellectual disabilities. I hope you enjoy the books on this list. May they lead you to reconsider what you think it means to be smart.
This book broke my heart. It forced me to really interrogate why we push kids to be smart in a particular way to the detriment of their mental health. By the time I was done, I was angry with all the ways that our culture of parenting and childhood pulled us away from finding true happiness and mattering to each other.
It drove me to see how the most widespread habits of our achievement culture are alarmingly exclusionary and ableist, making those who can’t live up to narrow standards of achievement feel lost and without purpose.
The definitive book on the rise of “toxic achievement culture” overtaking our kids' and parents' lives, and a new framework for fighting back
In the ever more competitive race to secure the best possible future, today’s students face unprecedented pressure to succeed. They jam-pack their schedules with AP classes, fill every waking hour with resume-padding activities, and even sabotage relationships with friends to “get ahead.” Family incomes and schedules are stretched to the breaking point by tutoring fees and athletic schedules. Yet this drive to optimize performance has only resulted in skyrocketing rates of…
I’ve always been curious about people and the way they interact. When I was a small child, all our neighbors had their back doors wide open to catch the summertime breeze; they’d get the sense they were being watched… by my small face pressed against the screen door, listening and learning. My parents would get called..” She’s doing it again.” As an introvert, a performing artist, and a coach, I’ve learned to tune my ears to the messaging beneath the words—the unspoken truth in the interaction. And I truly believe that if we can learn to be more effective and compassionate listeners—our world will change for the better.
One of the most powerful benefits of skilled listening is building trust. Empathy is essential to creating trusting relationships. Jamison is a trained actor, and deep listening and empathy are essential to the craft of acting.
This book spans her experiences, from her work in medical training to her research on incarceration, reality TV, and street violence. I was struck by the heartfulness and clarity in Jamison's writing about what she has witnessed and experienced. She pulls no punches.
The stories in this book provide a clarion call for our species to regain our empathy for each other through skilled and intentional listening to connect, extend understanding, and ensure our survival.
From personal loss to phantom diseases, The Empathy Exams is a bold and brilliant collection, winner of the Graywolf Press Nonfiction Prize
A Publishers Weekly Top Ten Essay Collection of Spring 2014
Beginning with her experience as a medical actor who was paid to act out symptoms for medical students to diagnose, Leslie Jamison's visceral and revealing essays ask essential questions about our basic understanding of others: How should we care about each other? How can we feel another's pain, especially when pain can be assumed, distorted, or performed? Is empathy a tool by which to test or even grade…
I am an autistic female myself and have worked in the field of autism for 20 years. I’ve written several books on the subject of autism, have an MA in Autism and delivered many hundreds of conference presentations (several of which can be found on Youtube). Frankly, I know my stuff as I live and breathe the world of autistic women. I have an autistic daughter, all of my female friends are autistic and I have diagnosed hundreds of females as autistic.
Steph has a way with words, that will make you laugh and cry at the same time.
Her survival guide to therapy takes us on a journey that I entirely identify with – trying to find therapy for all of our ‘problems’ from therapists who don’t really get it. I learned so much (and know now what to do) and enjoyed myself along the way.
"This is the book that would've saved me nine different therapists, decades of self-analysis, thousands of pounds, twelve different doctors and untold amounts of pain, frustration and trauma - in spending a lifetime looking for the right answers in the wrong places I've become an accidental expert."
In this candid, witty and insightful exploration into therapy, Steph Jones uses her professional and lived experiences as a late diagnosed autistic woman and therapist, as well as consulting therapists from across the world and tapping into the autistic community, to create the ultimate autistic survival guide to therapy.
I’m an autistic science fiction writer myself, and I’ve been reviewing autistic science fiction, fantasy, and horror books for over a decade on my “Autistic Book Party” blog. I’ve learned a huge amount in this time about authors like me and what we have to offer the book world. Autistic people are called unimaginative, but that description couldn’t be more wrong – many of us use our imaginations as a richly detailed escape and coping mechanism. There are many more of us out there today than anyone else realizes, from famous, award-winning names to obscure authors using their unique view of the world to create works of imagination, insight, and beauty.
A comet is about to strike the Earth. Denise, an autistic teenager in the near-future Netherlands, struggles to secure a place for herself, her mother, and her sister on a generation ship bound to escape the coming devastation. Duyvis deconstructs myths about ableism, family relationships, survival dilemmas, and the value of human lives in this wrenching but compassionate and ultimately hopeful book.
A thrilling, thought-provoking novel from one of young-adult literature's boldest new talents.
January 29, 2035. That's the day the comet is scheduled to hit-the big one. Denise and her mother and sister, Iris, have been assigned to a temporary shelter outside their hometown of Amsterdam to wait out the blast, but Iris is nowhere to be found, and at the rate Denise's drug-addicted mother is going, they'll never reach the shelter in time. A last-minute meeting leads them to something better than a temporary shelter-a generation ship, scheduled to leave Earth behind to colonize new worlds after the comet hits.…
