100 books like Just Care

This recently-released memoir is by Alice Wong, who directs the important Disability Visibility Project, which you should also check out! This book blends a variety of approaches and media to create a series of snapshots and provocations from Alice Wong’s life, mainly narrated through the relationships of care and community she has built. Through this memoir, you’ll get a history of disability activism over the past two decades, but you will also meet an incredibly funny, creative, and dedicated activist.

Black Disability Politics also just came out in early Fall 2022, and I was very excited to receive my print copy. The book shows how Black people have long engaged with disability as a political issue tightly tied to race and racism. This, however, has not been the story told in disability studies or in mainstream histories of the Disability Rights movement. Schalk deeply explores archives (for instance those of the Black Panther Party) and layers these findings across interviews with contemporary Black disabled community organizers, to recognize the richness and power of Black disability politics. This book is full of surprises, memorable archival anecdotes, and powerful conversations between Schalk and others. You should read this book! If a goal within ableist and white supremacist society is liberation, Schalk shows how essential it is to engage in antiracist, feminist, and anti-ableist political and cultural coalition.

I was lucky to get the opportunity to read an advance copy of Dr. Kerschbaum's latest monograph, Signs of Disability (in the press and available in both print and open access in Fall 2022). The book focuses on the signs of disability we can recognize everywhere around us: yellow diamond-shaped “deaf person in area” road signs, that wheelchair parking icon, the telltale shapes of hearing aids, or white-tipped canes sweeping across footpaths. But even though the signs are ubiquitous, Kerschbaum argues that disability may still not be perceived as anything but a token or an apparition. This engaging, accessible book builds on Kerschbaum’s already-award-winning scholarship on difference and discourse, constructing new research methods and approaches, but also building community on these pages. Drawing on a set of thirty-three research interviews, as well as written narratives by disabled people, this book builds a new system of signs and significance for disability.… show more.

We are incredibly lucky to have so much important work in disability studies and disability justice coming out in the Fall of 2022. The Future Is Disabled is Leah Lakshmi Piepzna-Samarasinha’s much-anticipated follow-up to Care Work: Dreaming Disability Justice. Written during lockdown, this is an urgent and beautiful book, shifting from love letters to songs, recipes for survival, and provocative questions. For instance and central to this work, the book asks: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? The truth is that disabled people have had to weather an unprecedented assault on their value and had to assume huge risks over the past few years, as Nishida also shows. As with Kerschbaum, Nishida, and Schalk’s books, Piepzna-Samarasinha converses with disabled people to carefully document the many ways they have kept and are keeping each other—and the… show more.

This book, for me, is important as the first trade nonfiction picture book about the fight for the Americans with Disabilities Act (ADA). I hope and assume more books on this topic are in the pipeline, as there is so much more to share with kids about this crucial social justice movement! Jennifer Keenan’s story is great for kids because she was a kid herself when she crawled up the U.S. Capitol steps to fight for disability rights. This book offers an inspiring, personal entryway into the disability rights movement and the importance of having laws and systems to back up beliefs about access for all.

Written with clear down-to-earth language, disability advocate Emily Ladau had written a guide that could revolutionize the way that people think about disability and how to interact with people who have disabilities. Because our society has kept people with disabilities separate for so long, this kind of book is essential in leading us towards inclusion.

In ​Look Up! by Jung Jin Ho the reader slowly comes to understand that the main character is a child sitting on a small balcony outside a tall building in a wheelchair. This child is lonely and isolated. The reader can feel the angry emotion coming off the pages as the child feels frustrated that no one sees them. Everyone on the streets below goes about their day and never notices the child even when she pleads, “Look up!” Jin-Ho uses a black and white color scheme and a combination of lines and objects to evoke melancholy emotions… until the last page when color is used to show happiness, contentedness, and relief. Someone has finally “looked up” and seen more than a wheelchair

Izzy is a nice girl. She’s pretty, popular, and smart. But one ride with a drunk driver changes her entire life. With one leg amputated, she must embrace a new life and find new friends who see her as more than a girl with a handicap. I liked Izzy so much, and it was thrilling to see her believably move on with her life. I see disabled young people with different eyes since reading Izzy’s story.

All the characters in this book felt totally real and the situations they find themselves in and live through are honest.  And I’m not just talking about the main characters here – all the supporting characters have their own personalities and don’t resort to stereotypes as shorthand.  The romance developed organically and felt like something healthy that both Josh and Skylar needed in order to really accept who they are.

I was so engrossed by this poignant memoir that I inhaled it one day. Hay describes how he lost all his hearing in his 20s due to a rare disease that causes tumors that required removal over many surgeries with major side effects and long and difficult rehabs. Honestly, I don’t know how he achieved all that he did while juggling a demanding job and three children.  

Delightfully woven throughout his account is a tale of his musical journey as he is determined to commit to memory the lyrics of his favorite songs while going deaf. I had fun learning about the music that informed his generation. I was also moved by the love between him and his devoted wife, Nora, who unfailingly stood beside him every step of the way.  

It is a poignant account of bravery and resilience as he works hard to live a life as normal… show more.