Fans pick 99 books like Signs of Disability

This recently-released memoir is by Alice Wong, who directs the important Disability Visibility Project, which you should also check out! This book blends a variety of approaches and media to create a series of snapshots and provocations from Alice Wong’s life, mainly narrated through the relationships of care and community she has built. Through this memoir, you’ll get a history of disability activism over the past two decades, but you will also meet an incredibly funny, creative, and dedicated activist.

Black Disability Politics also just came out in early Fall 2022, and I was very excited to receive my print copy. The book shows how Black people have long engaged with disability as a political issue tightly tied to race and racism. This, however, has not been the story told in disability studies or in mainstream histories of the Disability Rights movement. Schalk deeply explores archives (for instance those of the Black Panther Party) and layers these findings across interviews with contemporary Black disabled community organizers, to recognize the richness and power of Black disability politics. This book is full of surprises, memorable archival anecdotes, and powerful conversations between Schalk and others. You should read this book! If a goal within ableist and white supremacist society is liberation, Schalk shows how essential it is to engage in antiracist, feminist, and anti-ableist political and cultural coalition.

Though it came out in the Summer of 2022, and had a headstart on the other books on my list, Just Care is in conversation with the rest of this list, and is just as relevant to our current moment, when we might agree that we have a crisis of care. Nishida shows that care dynamics exist within a brutal social order that determines who survives and who deteriorates. Along with the other books on this list, the research methods are creatively mixed here, with interviews, focus groups, and participant observation with care workers and people with disabilities. Just Care documents how people with disabilities work together to reimagine care. We are all enmeshed in a healthcare industry with giant cracks and fissures exposed by the pandemic, and in which we will all move between caregiving, receiving, or both. Read Just Care to better understand imbalances in care, as well… show more.

We are incredibly lucky to have so much important work in disability studies and disability justice coming out in the Fall of 2022. The Future Is Disabled is Leah Lakshmi Piepzna-Samarasinha’s much-anticipated follow-up to Care Work: Dreaming Disability Justice. Written during lockdown, this is an urgent and beautiful book, shifting from love letters to songs, recipes for survival, and provocative questions. For instance and central to this work, the book asks: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? The truth is that disabled people have had to weather an unprecedented assault on their value and had to assume huge risks over the past few years, as Nishida also shows. As with Kerschbaum, Nishida, and Schalk’s books, Piepzna-Samarasinha converses with disabled people to carefully document the many ways they have kept and are keeping each other—and the… show more.

Written with clear down-to-earth language, disability advocate Emily Ladau had written a guide that could revolutionize the way that people think about disability and how to interact with people who have disabilities. Because our society has kept people with disabilities separate for so long, this kind of book is essential in leading us towards inclusion.

I was absolutely stunned when I read "Unspeakable Conversations" by Harriet McBryde Johnson, one of the many brilliant pieces included in this reader. My edition is from 2010, but new and updated editions have come out since. It explores questions of interdependency and independence, gender, the body, sexuality, biases in science and medicine, and physical disabilities, and investigates issues around pain, mental disability, and invisible disabilities.

Becoming familiar with some disability theories has been invaluable to me. My capacity to read myself as disabled has grown and still fluctuates. To know that sharp minds have been working on this and that it isn’t only a private issue but a political and theoretical one, one that can be marked by joy and humor as well as grief, struggle, and hardship, is immensely helpful. 

I find Puar’s work to be very useful even if the theoretical framework she uses is different from, though adjacent to, mine. Usually I find the “biopolitical” analysis cloying and idealist, but Puar has developed her own materialist use of this framework that I have learned a lot from. In The Right to Maim Puar examines the liberal state’s use of maiming and debilitation as part of the reproduction of its hegemony. Not only does she examine the way a liberal disability discourse functions to exclude marginalized and targeted populations—proposing a vector of disability, debility, and capacity—she also interrogates how maiming functions in capitalist, colonial, and imperialist state policing. Moreover, her case study of Palestine, based on her own fieldwork, makes the more abstract aspects of her theory concrete.  

As a student at San Francisco State University, I took Paul Longmore’s HIST 490 “Disability in America” course and it quite simply changed how I interpret United States history. The autobiographical title essay in Why I Burned My Book presents foundational logic for understanding legal and cultural barriers impacting the disabled, and how capitalism impacts minority groups. Nobody speaks better on disability than the disabled. Longmore creates a model built upon the work of earlier disability scholars-activist in presenting “Catch-22” paradigms in oppressive laws related to race and gender impacting minority groups. When I read Longmore’s ideas, I can again look into his insightful eyes flashing sparks of humor, defiance, anger, and joy. My book about Helen Keller simply would not exist without Longmore’s passionate investment in students.

This is an anthology for teens that explores disability from a fictional lens, so that it entertains as it teaches tolerance and compassion. Each short story’s author lives with a disability and writes about first loves, friendship, hardship, and adventure. Unbroken is for teen readers to step into the shoes of teens with disabilities so that they can understand other experiences besides their own. Understanding differences and recognizing one’s own positionality and privilege helps teen find their own agency, purpose, and empowered hope for the future. 

When I look back at my journey, I feel that this book was the beginning of my survival guide in a world that wasn't made for me. It lets readers with disabilities, such as myself, realize that it's OK to do things in society in a different way. This is because it's not your disability that defines who you are. We provided me with the proper written representation I needed. Reading about how he helps himself really boosts the self-esteem of children with disabilities, especially cerebral palsy.