100 books like Why I Burned My Book and Other Essays on Disability

We do not know the toll that the COVID pandemic will have in the future, we collectively only know the trauma it has wrought. Most of the disabled people I have known, including Paul Longmore, became disabled from poliovirus attacking child populations. Polio was a vector for societal transformation as the disabled constructed new lives abruptly altered by the disease. This book focuses on polio survivors. Wilson surveyed over 150 polio narratives focusing on the Silent Generation and the Baby Boomers (1930-1960) to learn about experiences over lifetimes. While some experienced temporary paralysis, others faced lifetime disability dealing with the disability industry, public relations campaigns, and rehabilitation programs. Survivors fought for accessibility and the ability to work in mainstream occupations. This book offers layered experiences still relevant today.

Paul Longmore assigned Everyone Here Spoke Sign Language for the “Disability in America” course I took. As a folklorist this book hooked me. It is totally unique, combining science (genetics), history, maritime culture, and community. It consolidates sign language “oral histories” documenting a Deaf community’s cultural heritage in Martha’s Vineyard passed through generations. Everyone Here Spoke Sign Language offers an essential message from this tight-knit community where deafness was more a trait than a disability. Understanding how Helen Keller had a Deafblind destiny shaped by her times (as earlier were Deafblind woman should be women Julia Brace and Laura Bridgman), I sometimes wonder if Keller would have been less stressed if she had not been pressured by proponents of auralism like Alexander Graham Bell to learn to speak aloud.

My personal creativity is not tidy… I believe nobody creates in a vacuum. The disabled contribute intelligence, perspective, and expression to all modes of creative production. Understanding how to utilize talent from any historically marginalized group means learning how to communicate with folks with diverse abilities and backgrounds. Utilizing respectful language and practices with diverse communities will draw and engage audiences with more vibrant storytelling in today’s world. This practical guide includes case studies designed to guide theater companies to create inclusive productions with the disabled in central and creative roles. Disability and Theatre illustrates how in the theater, where “all the world is a stage”, as in our own lives, creative processes emerge when people with different abilities work together… that is just good living.

I believe a society’s resilience does not happen by coddling, oppressing, or marginalizing the disabled (or any minority group), but by fostering holistic, inclusive communities that move in cinque. We Move Together is a picture book about disability justice designed for intergenerational sharing. It is appropriate for all ages as it simply states we as a society move best together no matter of disability, race, gender, or age. The brilliance of this straightforward assertion is its universal intersectionality. The book contains helpful explanations of statements in the verses along with resources for learning more in the back. I love this message! Removing barriers to access, communication, work, relationships, and living independent and self-determined lives helps everyone and fosters healthy democracy.

I find Puar’s work to be very useful even if the theoretical framework she uses is different from, though adjacent to, mine. Usually I find the “biopolitical” analysis cloying and idealist, but Puar has developed her own materialist use of this framework that I have learned a lot from. In The Right to Maim Puar examines the liberal state’s use of maiming and debilitation as part of the reproduction of its hegemony. Not only does she examine the way a liberal disability discourse functions to exclude marginalized and targeted populations—proposing a vector of disability, debility, and capacity—she also interrogates how maiming functions in capitalist, colonial, and imperialist state policing. Moreover, her case study of Palestine, based on her own fieldwork, makes the more abstract aspects of her theory concrete.  

I was absolutely stunned when I read "Unspeakable Conversations" by Harriet McBryde Johnson, one of the many brilliant pieces included in this reader. My edition is from 2010, but new and updated editions have come out since. It explores questions of interdependency and independence, gender, the body, sexuality, biases in science and medicine, and physical disabilities, and investigates issues around pain, mental disability, and invisible disabilities.

Becoming familiar with some disability theories has been invaluable to me. My capacity to read myself as disabled has grown and still fluctuates. To know that sharp minds have been working on this and that it isn’t only a private issue but a political and theoretical one, one that can be marked by joy and humor as well as grief, struggle, and hardship, is immensely helpful. 

Black Disability Politics also just came out in early Fall 2022, and I was very excited to receive my print copy. The book shows how Black people have long engaged with disability as a political issue tightly tied to race and racism. This, however, has not been the story told in disability studies or in mainstream histories of the Disability Rights movement. Schalk deeply explores archives (for instance those of the Black Panther Party) and layers these findings across interviews with contemporary Black disabled community organizers, to recognize the richness and power of Black disability politics. This book is full of surprises, memorable archival anecdotes, and powerful conversations between Schalk and others. You should read this book! If a goal within ableist and white supremacist society is liberation, Schalk shows how essential it is to engage in antiracist, feminist, and anti-ableist political and cultural coalition.

I was lucky to get the opportunity to read an advance copy of Dr. Kerschbaum's latest monograph, Signs of Disability (in the press and available in both print and open access in Fall 2022). The book focuses on the signs of disability we can recognize everywhere around us: yellow diamond-shaped “deaf person in area” road signs, that wheelchair parking icon, the telltale shapes of hearing aids, or white-tipped canes sweeping across footpaths. But even though the signs are ubiquitous, Kerschbaum argues that disability may still not be perceived as anything but a token or an apparition. This engaging, accessible book builds on Kerschbaum’s already-award-winning scholarship on difference and discourse, constructing new research methods and approaches, but also building community on these pages. Drawing on a set of thirty-three research interviews, as well as written narratives by disabled people, this book builds a new system of signs and significance for disability.… show more.

When I look back at my journey, I feel that this book was the beginning of my survival guide in a world that wasn't made for me. It lets readers with disabilities, such as myself, realize that it's OK to do things in society in a different way. This is because it's not your disability that defines who you are. We provided me with the proper written representation I needed. Reading about how he helps himself really boosts the self-esteem of children with disabilities, especially cerebral palsy.

This is an anthology for teens that explores disability from a fictional lens, so that it entertains as it teaches tolerance and compassion. Each short story’s author lives with a disability and writes about first loves, friendship, hardship, and adventure. Unbroken is for teen readers to step into the shoes of teens with disabilities so that they can understand other experiences besides their own. Understanding differences and recognizing one’s own positionality and privilege helps teen find their own agency, purpose, and empowered hope for the future.