There have always been disabled people shaping my worldview and understanding, however, I am an expert only about my own disabilities. Disabled storytellers, including Helen Keller, sometimes utilize tactical silence to scream… I value that! However, barriers confronting the disabled require broad and sometimes loud collective action from many people in many communities and not just a marginalized few. Disability activism is a complex, tactical fight over time for self-determination that touches all of us at some point. COVID, world events, and experiencing some barriers disabled and marginalized groups face all the time have compelled me to share a few of my favorite reads related to disability and inclusion.
We do not know the toll that the COVID pandemic will have in the future, we collectively only know the trauma it has wrought. Most of the disabled people I have known, including Paul Longmore, became disabled from poliovirus attacking child populations. Polio was a vector for societal transformation as the disabled constructed new lives abruptly altered by the disease. This book focuses on polio survivors. Wilson surveyed over 150 polio narratives focusing on the Silent Generation and the Baby Boomers (1930-1960) to learn about experiences over lifetimes. While some experienced temporary paralysis, others faced lifetime disability dealing with the disability industry, public relations campaigns, and rehabilitation programs. Survivors fought for accessibility and the ability to work in mainstream occupations. This book offers layered experiences still relevant today.
Polio was the most dreaded disease of twentieth-century America. Whenever and wherever it struck, hospitals filled with victims of the virus. Many experienced only temporary paralysis, but others faced a lifetime of disability. "Living with Polio" is the first book to focus primarily on the personal stories of the men and women who had acute polio and lived with its crippling consequences. Writing from his own experience as a polio survivor, Daniel J. Wilson shapes this impassioned book with the testimonials of numerous polio victims, focusing on the years between 1930 and 1960. He traces entire life experiences of the…
My experience as a teacher of history, literature, art, and music placed me in close contact with young people and their friendships, passions, worries, and joys. Then I had children of my own. Teaching and parenting also made me more deeply aware of my own youth, and of the importance of relationships in the formation of the young. Each of my chosen books highlights these qualities through beautifully crafted prose. Their stories, characters, and settings have a special place in my heart, and have inspired me as a writer. And whenever I reread them, I realise I still have a lot to learn.
I’m not really a fan of Australian fiction, but I did enjoy Alan Marshall’s books.
Crippled by polio himself, Marshall had first-hand experience, which I found helpful for writing my book, especially since I Can Jump Puddles is also set in the early decades of the twentieth century.
More importantly, I find his gutsy approach to life in a tough rural environment, his no nonsense attitude, and his humour inspirational.
I grew up on Chicago’s home front during WW2. President Roosevelt wanted everyone—adults and children—to do their part for the war effort. So we neighborhood kids formed a Victory club, where we marched around singing, “Let’s Remember Pearl Harbor,” and other patriotic songs. And though we had fun, we understood the meaning of the gold stars in the windows, and knew that terrible things were happening on the other side of the world. There are so many wonderful books set during this time period, and I can never read enough of them. These books, along with my memories, are what inspire me to write historical fiction of my own.
Even though I lived across the country from San Diego where this story takes place, and even though I was several years younger than Millie McGonigle, the picture of home front USA during WW2 is familiar in many ways. Soldiers and sailors filled the streets of Chicago, and kids scanned the sky for “enemy planes.” There was the fear of polio, the struggles with rationing, and the shortage of bubble gum.
This story is filled with humor and memorable characters. But most memorable of all is Millie, who tries to deal with the death of a grandmother and her worries about the war getting closer to home. And even though she’s obsessed with drawing in her Book of Dead Things, she comes to understand what her grandmother had told her when she said, “Whatever is lost stays alive if you remember it.”
The Newbery Award-winning author of Catherine, Called Birdy and The Midwife's Apprentice tells a heartfelt and humorous story of WWII on the homefront.
Millie McGonigle lives in sunny California, where her days are filled with beach and surf. It should be perfect--but times are tough. Hitler is attacking Europe and it looks like the United States may be going to war. Food is rationed and money is tight. And Millie's sickly little sister gets all the attention and couldn't be more of a pain if she tried. It's all Millie can do to stay calm and feel in control.
I am a Bible college graduate whose faith has always been a practical matter. Because I learned to find the “so what” of the Bible, when I became a teacher of the Bible in the public schools of Rowan County, North Carolina, my elective courses had waiting lists for students to get in to. As I now teach in Maine, I found I could continue to share a practical Christian faith through my writing. The books I have listed here do the very thing that I seek in my own writing.
I laughed out loud reading The Remember Box. Though the story is serious, Sprinkle captured the concerns and problem-solving that 11-year-old girls have in a time in history, 1949, when life in the South was confusing for those families who took a stand against prejudice.
The author sprinkles Carley’s sense of humor throughout the novel, such as describing an imaginary friend her young neighbor has. You grow to love and understand Carley.
That Carley’s Uncle Stephen is a minister, and the novel describes the difficulties of applying God’s word to real-life issues, makes the book even better. As Carley deals with the loss of her mother to polio, she must decide if she wants to embrace her uncle’s Christian faith or reject it.
Summer in Job's Corner meant big trees, cool grass, and sweltering afternoons stretching endlessly under the Southern sun. Those were the days without plastic, microwaves, television, or air conditioning, a time when clocks ticked comfortingly in the night and a cool breeze was a gift. But as the long sultry summer of 1949 comes to an end, events will transform this sleepy Southern crossroads.
After losing her mother to polio, eleven-year-old Carley Marshall comes to Job's Corner to make a new start, along with her Aunt Kate and Uncle Stephen Whitfield and her cousins Abby and John. The family is…
Michael B.A. Oldstone was head of the Viral-Immunobiology Laboratory at The Scripps Research Institute, devoting his career to understanding viruses, the diseases they cause, and the host’s immune response to control these infections. His work led to numerous national and international awards, election to the National Academy of Science and the National Academy of Medicine. Oldstone served on the SAGE executive board of the World Health Organization and as a WHO consultant for the eradication of polio and measles.
In a clear presentation, Oshinsky’s presents the gripping history of the conquest of poliomyelitis. The new and advanced role of the media’s impact and widespread community participation is detailed as is the terror of polio, efforts to understand the virus, and the disease it caused. The intense and competitive effort to find a cure adds to the story. Lastly, this book describes how the polio experience led to the establishment of government oversight for new drugs.
All who lived in the early 1950s remember the fear of polio and the elation felt when a successful vaccine was found. Now David Oshinsky tells the gripping story of the polio terror and of the intense effort to find a cure, from the March of Dimes to the discovery of the Salk and Sabin vaccines-and beyond. Here is a remarkable portrait of America in the early 1950s, using the widespread panic over polio to shed light on our national obsessions and fears. Drawing on newly available papers of Jonas Salk, Albert Sabin and other key players, Oshinsky paints a…
I'm a writer for kids and YA based in Pune, India and it’s been my passion to read books for this age group, from the time I was that age. Unfortunately, when I borrowed books from my library as a boy, so many kids and YA books were either not at all “story like” (moralistic or preachy) or we had to read books from abroad. Fortunately, Indian kids and YA literature has blossomed and provided us many excellent writers, some of whom are now household names. I interviewed some of them for my podcast on books Literary Gupshup. It's my desire to make readers outside India more aware of the wonderful kids’ books in India.
Nature and wildlife are something I always enjoyed, and loved from my school days.
Flute in the Forest is a truly memorable story, mesmerizing and beautiful, rooted in the landscape of South India’s forests.
It focuses on Atiya Sardare, a daughter of a forest officer, and her treks into the forest. It is on these treks she hears the sound of a flute playing, and resolves to learn to play it.
Atiya’s flute playing calms a rogue elephant in the forest, Rangappa. I recommend it to anyone who loves a moving story.
'Thirteen-year-old Atiya will win the hearts of young readers. Although physically handicapped; her adventurous spirit takes her on lonely rambles into the wildlife sanctuary. She knows the ways of the jungle and its creatures great and small. A charming story; full of incident and good feeling. Atiya's flute has a special magic of its own.'-Ruskin Bond
Atiya Sardare lives with her dad, a forest officer. An only child, afflicted by polio, she finds solace and peace in the jungle, exploring it on short, secret, often dangerous treks. On one occasion she hears the haunting notes of a flute. It gives…
I was raised in a home where one parent was an acute alcoholic and the other parent was the child of an acute alcoholic, codependency and boundary issues flourished, and there was a touch of end-times religion to top it all off. This made me a kid who was highly tuned in to everything going on around me as a way to maintain a sense of control. Though that probably wasn’t the best thing for my emotional development, it’s turned me into a writer who strives to delve into the authentic human experience and a reader who wants that, too. The books on this list meet that bar!
This 1977 novel is one of the books that made me want to be a writer, and I’ve read it more times than I can count.
I love the fact that it’s about a tomboy who lets a new friend believe that she is a boy. The historical background of the polio epidemic is interesting (and newly relevant). And I especially like that it breaks one of the “rules” about books for kids, which is that they shouldn’t include too much about the adults. But why not? Adults had a huge impact on me as a kid, for better or worse, and they’ve always interested me as characters.
The vulnerability of thirty-three-year-old Dwayne Pickens, whose mind has never grown beyond that of a boy, leads to a disaster that unites Casey, her family, and their Southern community in an effort to keep Dwayne from being sent to the "home" he dreads.The vulnerability of thirty-three-year-old Dwayne Pickens, whose mind has never grown beyond that of a boy, leads to a disaster that unites Casey, her family, and their Southern community in an effort to keep Dwayne from being sent to the "home" he dreads
In my stories and novels, in my reading, and in my life, I'm inspired and captivated by what I call resonant places, places with deep connections to the past as well as the present moment. I grew up in a mid-century modern house my parents built. Although no other family had lived in it before, our own family—like all families—was haunted by ghosts of our past. My childhood home was bulldozed by the next owners; the house has become a ghost itself. But memories remain long after a family or a home is gone. As a writer, a reader, and a psychotherapist, I believe that memories are the seeds for both remembering and imagining.
Godwin’s psychological mystery Flora takes place in a remote, isolated house, a former mountaintop sanatorium in Tennessee.Adult narrator Helen looks back on her ten-year-old self, and her premature coming of age the summer she lived there with her young adult cousin and temporary guardian, Flora. Helen’s father has gone to do war work, her mother is dead. Flora and Helen cannot leave the mountaintop due to a polio threat in the valley. Both child and caretaker fall under the spell of a charismatic jack of all trades, Quinn. The consequences of their unconscious competition play out in the shadowy rooms of the big house.
This is a tale of psychological possession in a lonely estate; Godwin’s homage to Henry James’s Turn of the Screw. Years ago, I visited my great-aunt in her mountaintop summer home in Tennessee. Reading this book unlocked memories of that mysterious house. Good novels…
Ten-year-old Helen and her summer guardian, Flora, are isolated together in Helen's decaying family house while her father is doing secret war work in Oak Ridge during the final months of the Second World War. At three Helen lost her mother and the beloved grandmother who raised her has just died. A fiercely imaginative child, Helen is desperate to keep her house intact with all its ghosts and stories. Flora, her late mother's twenty-two-year old first cousin, who cries at the drop of a hat, is ardently determined to do her best for Helen. Their relationship and its fallout, played…
I believe the Bible is God’s Word, that Jesus Christ is the Savior of the world, and that he loves us. But after enduring years of physical, mental, and emotional pain, special needs in one of our children, two job losses, and a degenerative ankle, I’ve struggled to understand why he’s allowed it. Over the years, God has been teaching me that there is more to our suffering than meets the eye. And what we see as pointless, God promises to redeem and use for his good purposes. As I’ve grown to trust Jesus, he’s changed me, and given me comfort, hope, and joy in the midst of my sorrows.
Between suffering from polio as a child, post-polio syndrome as an adult, betrayal, the loss of a son, and a husband who left soon after – Vaneetha Risner has endured unimaginable suffering. For that reason, her honest words about suffering have left an incredible impact on me as I’ve endured my own. She doesn’t “preach” to us as if we need to get our act together, but she writes with compassion, honesty, and comfort as one who’s been there. Despite having every reason to be angry and bitter at the people who have hurt her and God himself, she is full of wisdom, grace, and joy, and shares about the hope she has that has enabled her to endure.
Twenty-one surgeries by age thirteen. Years in the hospital. Verbal and physical bullying from schoolmates. Multiple miscarriages as a young wife. The death of a child. A debilitating progressive disease. Riveting pain. Abandonment. Unwanted divorce.
Vaneetha Rendall Risner begged God for grace that would deliver her. But God offered something better: his sustaining grace.
In The Scars That Have Shaped Me, Vaneetha does more than share her stories of pain; she invites other sufferers to taste with her the goodness of a sovereign God who will carry us in our darkest of days.
“Vaneetha writes with creativity, biblical faithfulness, compelling…
I am an author fortunate to be alive because of emergency medical treatments I received as an infant, treatments not available to one of my older sisters who died as a result. That I grew up in Rochester Minnesota—home to the world-famous Mayo Clinic where my father worked as a pediatric endocrinologist—also may have increased my awareness of how illness and its medical treatments can affect a young person’s life.
Peg Kehret brings humor and a genuine can-do attitude to her memoir about being struck by polio when she was twelve years old, leaving her paralyzed in both her arms and legs. The story of her fight to recover and to walk again is enriched by her friendship with fellow patients, the generous love of her family, and the care of a determined nurse. Peg is neither saint nor grouch—just someone you like as much as you admire. This is a feel-good book about a feel-bad topic.
Peg Kehret was stricken with polio when she was twelve years old. At first paralyzed and terrified, she fought her way to recovery, aided by doctors and therapists, a loving family, supportive roommates fighting their own battles with the disease, and plenty of grit and luck. With the humor and suspense that are her trademarks, acclaimed author Peg Kehret vividly recreates the true story of her year of heartbreak and triumph.
