Here are 100 books that Black Disability Politics fans have personally recommended if you like
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I grew up in the Disability Rights movement in Canada, fighting for my brother’s right to go to school, to receive medical care, and to be part of our community. For decades, disabled people were institutionalized away from their families and communities, warehoused instead of schooled. My uncle Robert died of neglect in one of these terrible places as a child. My family has been involved in supporting a class action lawsuit against the Ontario government for its responsibility. Since then, the right to education has been better established, and the institutions were closed. But I continue to fight for inclusion and against ableism in education, healthcare, and across our culture.
This recently-released memoir is by Alice Wong, who directs the important Disability Visibility Project, which you should also check out! This book blends a variety of approaches and media to create a series of snapshots and provocations from Alice Wong’s life, mainly narrated through the relationships of care and community she has built. Through this memoir, you’ll get a history of disability activism over the past two decades, but you will also meet an incredibly funny, creative, and dedicated activist.
NATIONAL BESTSELLER • ONE OF USA TODAY'S MUST-READ BOOKS • This groundbreaking memoir offers a glimpse into an activist's journey to finding and cultivating community and the continued fight for disability justice, from the founder and director of the Disability Visibility Project
“Alice Wong provides deep truths in this fun and deceptively easy read about her survival in this hectic and ableist society.” —Selma Blair, bestselling author of Mean Baby
In Chinese culture, the tiger is deeply revered for its confidence, passion, ambition, and ferocity. That same fighting spirit resides in Alice Wong.
I grew up in the Disability Rights movement in Canada, fighting for my brother’s right to go to school, to receive medical care, and to be part of our community. For decades, disabled people were institutionalized away from their families and communities, warehoused instead of schooled. My uncle Robert died of neglect in one of these terrible places as a child. My family has been involved in supporting a class action lawsuit against the Ontario government for its responsibility. Since then, the right to education has been better established, and the institutions were closed. But I continue to fight for inclusion and against ableism in education, healthcare, and across our culture.
I was lucky to get the opportunity to read an advance copy of Dr. Kerschbaum's latest monograph, Signs of Disability (in the press and available in both print and open access in Fall 2022). The book focuses on the signs of disability we can recognize everywhere around us: yellow diamond-shaped “deaf person in area” road signs, that wheelchair parking icon, the telltale shapes of hearing aids, or white-tipped canes sweeping across footpaths. But even though the signs are ubiquitous, Kerschbaum argues that disability may still not be perceived as anything but a token or an apparition. This engaging, accessible book builds on Kerschbaum’s already-award-winning scholarship on difference and discourse, constructing new research methods and approaches, but also building community on these pages. Drawing on a set of thirty-three research interviews, as well as written narratives by disabled people, this book builds a new system of signs and significance for disability.…
How can we learn to notice the signs of disability?
We see indications of disability everywhere: yellow diamond-shaped "deaf person in area" road signs, the telltale shapes of hearing aids, or white-tipped canes sweeping across footpaths. But even though the signs are ubiquitous, Stephanie L. Kerschbaum argues that disability may still not be perceived due to a process she terms "dis-attention."
To tell better stories of disability, this multidisciplinary work turns to rhetoric, communications, sociology, and phenomenology to understand the processes by which the material world becomes sensory input that then passes through perceptual apparatuses to materialize phenomena-including disability. By…
I grew up in the Disability Rights movement in Canada, fighting for my brother’s right to go to school, to receive medical care, and to be part of our community. For decades, disabled people were institutionalized away from their families and communities, warehoused instead of schooled. My uncle Robert died of neglect in one of these terrible places as a child. My family has been involved in supporting a class action lawsuit against the Ontario government for its responsibility. Since then, the right to education has been better established, and the institutions were closed. But I continue to fight for inclusion and against ableism in education, healthcare, and across our culture.
Though it came out in the Summer of 2022, and had a headstart on the other books on my list, Just Careis in conversation with the rest of this list, and is just as relevant to our current moment, when we might agree that we have a crisis of care. Nishida shows that care dynamics exist within a brutal social order that determines who survives and who deteriorates. Along with the other books on this list, the research methods are creatively mixed here, with interviews, focus groups, and participant observation with care workers and people with disabilities. Just Care documents how people with disabilities work together to reimagine care. We are all enmeshed in a healthcare industry with giant cracks and fissures exposed by the pandemic, and in which we will all move between caregiving, receiving, or both. ReadJust Care to better understand imbalances in care, as well…
Just Care is Akemi Nishida's thoughtful examination of care injustice and social justice enabled through care. The current neoliberal political economy has turned care into a business opportunity for the healthcare industrial complex and a mechanism of social oppression and control. Nishida analyzes the challenges people negotiate whether they are situated as caregivers, receivers, or both. Also illuminated is how people with disabilities come together to assemble community care collectives and bed activism (resistance and visions emerging from the space of bed) to reimagine care as a key element for social change.
I grew up in the Disability Rights movement in Canada, fighting for my brother’s right to go to school, to receive medical care, and to be part of our community. For decades, disabled people were institutionalized away from their families and communities, warehoused instead of schooled. My uncle Robert died of neglect in one of these terrible places as a child. My family has been involved in supporting a class action lawsuit against the Ontario government for its responsibility. Since then, the right to education has been better established, and the institutions were closed. But I continue to fight for inclusion and against ableism in education, healthcare, and across our culture.
We are incredibly lucky to have so much important work in disability studies and disability justice coming out in the Fall of 2022. The Future Is Disabled is Leah Lakshmi Piepzna-Samarasinha’s much-anticipated follow-up toCare Work: Dreaming Disability Justice.Written during lockdown, this is an urgent and beautiful book, shifting from love letters to songs, recipes for survival, and provocative questions. For instance and central to this work, the book asks: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? The truth is that disabled people have had to weather an unprecedented assault on their value and had to assume huge risks over the past few years, as Nishida also shows. As with Kerschbaum, Nishida, and Schalk’s books, Piepzna-Samarasinha converses with disabled people to carefully document the many ways they have kept and are keeping each other—and the…
In The Future Is Disabled, Leah Laksmi Piepzna-Samarasinha asks some provocative questions: What if, in the near future, the majority of people will be disabled―and what if that’s not a bad thing? And what if disability justice and disabled wisdom are crucial to creating a future in which it’s possible to survive fascism, climate change, and pandemics and to bring about liberation
Building on the work of her game changing book Care Work: Dreaming Disability Justice, Piepzna-Samarasinha writes about disability justice at the end of the world, documenting the many ways disabled people kept and are keeping each other―and the…
I'm writer, educator, disability advocate, and mother of a teenage son with multiple disabilities. Since my son’s diagnosis with autism at age three, I've been on a quest to not only understand the way that his unique brain works, but also to advocate for a more just and equitable world for people with disabilities and their families. When researching my book The Little Gate-Crasher, I discovered how much my great-grandmother was a powerful advocate for her son Mace who was born with a form of dwarfism. Our society has evolved in the last one hundred years in terms of inclusion and accessibility—and yet, people with disabilities and their loved ones are often isolated.
Written with clear down-to-earth language, disability advocate Emily Ladau had written a guide that could revolutionize the way that people think about disability and how to interact with people who have disabilities. Because our society has kept people with disabilities separate for so long, this kind of book is essential in leading us towards inclusion.
An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more inclusive place
ONE OF THE BEST BOOKS OF THE YEAR: NPR, Booklist • “A candid, accessible cheat sheet for anyone who wants to thoughtfully join the conversation . . . Emily makes the intimidating approachable and the complicated clear.”—Rebekah Taussig, author of Sitting Pretty: The View from My Ordinary, Resilient, Disabled Body
People with disabilities are the world’s largest minority, an estimated 15 percent…
There have always been disabled people shaping my worldview and understanding, however, I am an expert only about my own disabilities. Disabled storytellers, including Helen Keller, sometimes utilize tactical silence to scream… I value that! However, barriers confronting the disabled require broad and sometimes loud collective action from many people in many communities and not just a marginalized few. Disability activism is a complex, tactical fight over time for self-determination that touches all of us at some point. COVID, world events, and experiencing some barriers disabled and marginalized groups face all the time have compelled me to share a few of my favorite reads related to disability and inclusion.
As a student at San Francisco State University, I took Paul Longmore’s HIST 490 “Disability in America” course and it quite simply changed how I interpret United States history. The autobiographical title essay in Why I Burned My Book presents foundational logic for understanding legal and cultural barriers impacting the disabled, and how capitalism impacts minority groups. Nobody speaks better on disability than the disabled. Longmore creates a model built upon the work of earlier disability scholars-activist in presenting “Catch-22” paradigms in oppressive laws related to race and gender impacting minority groups. When I read Longmore’s ideas, I can again look into his insightful eyes flashing sparks of humor, defiance, anger, and joy. My book about Helen Keller simply would not exist without Longmore’s passionate investment in students.
One of my long-standing interests, as a political philosopher, has been to examine the deployment of state power and the state forms (what I call states of affairs) the capitalist mode of production takes in order to preserve its economic order. Since I completed my doctorate, which was on the articulation of settler-colonial power in relationship to remaining settler states, I have largely been invested in thinking politics: how dominant politics maintain the current order, how counter-hegemonic politics disrupt this order.
I find Puar’s work to be very useful even if the theoretical framework she uses is different from, though adjacent to, mine. Usually I find the “biopolitical” analysis cloying and idealist, but Puar has developed her own materialist use of this framework that I have learned a lot from. In The Right to MaimPuar examines the liberal state’s use of maiming and debilitation as part of the reproduction of its hegemony. Not only does she examine the way a liberal disability discourse functions to exclude marginalized and targeted populations—proposing a vector of disability, debility, and capacity—she also interrogates how maiming functions in capitalist, colonial, and imperialist state policing. Moreover, her case study of Palestine, based on her own fieldwork, makes the more abstract aspects of her theory concrete.
In The Right to Maim Jasbir K. Puar brings her pathbreaking work on the liberal state, sexuality, and biopolitics to bear on our understanding of disability. Drawing on a stunning array of theoretical and methodological frameworks, Puar uses the concept of "debility"-bodily injury and social exclusion brought on by economic and political factors-to disrupt the category of disability. She shows how debility, disability, and capacity together constitute an assemblage that states use to control populations. Puar's analysis culminates in an interrogation of Israel's policies toward Palestine, in which she outlines how Israel brings Palestinians into biopolitical being by designating them…
Like my main character, I’m a Norwegian writer with ties to the US, who grew up with various chronic illnesses. I discovered the reason for much of my trouble when I was diagnosed with endometriosis. Isolated and in pain, I have always turned to books. I craved seeing my life reflected. Since Please Read This Leaflet Carefully came out, I’ve heard from many readers. I hope that it can help people who haven’t seen themselves in art before. This list addresses the needs of a life with chronic illness and pain: guidance, darkness, humor, comfort, and poetry. I hope these books will help you as much as they did me.
I was absolutely stunned when I read "Unspeakable Conversations" by Harriet McBryde Johnson, one of the many brilliant pieces included in this reader. My edition is from 2010, but new and updated editions have come out since. It explores questions of interdependency and independence, gender, the body, sexuality, biases in science and medicine, and physical disabilities, and investigates issues around pain, mental disability, and invisible disabilities.
Becoming familiar with some disability theories has been invaluable to me. My capacity to read myself as disabled has grown and still fluctuates. To know that sharp minds have been working on this and that it isn’t only a private issue but a political and theoretical one, one that can be marked by joy and humor as well as grief, struggle, and hardship, is immensely helpful.
The fifth edition of The Disability Studies Reader addresses the post-identity theoretical landscape by emphasizing questions of interdependency and independence, the human-animal relationship, and issues around the construction or materiality of gender, the body, and sexuality. Selections explore the underlying biases of medical and scientific experiments and explode the binary of the sound and the diseased mind. The collection addresses physical disabilities, but as always investigates issues around pain, mental disability, and invisible disabilities as well. Featuring a new generation of scholars who are dealing with the most current issues, the fifth edition continues the Reader's tradition of remaining timely,…
My love of helping others to heal started early. From the garden I started when I was 8-years-old to the baby ducks I found a home for when I was 10, I have always been passionate about nurturing life. I feel deep empathy for the complexities of others’ pain and am compelled to stand against the context of injustice that causes it. Using this keen understanding of why people suffer, my unique and varied training, rooted ethics, and 25 years of trauma-informed clinical experience, I now help the helpers release what they don't want, recover their energetic bandwidth, and grok a socially conscious life of overflowing joy.
This is an anthology for teens that explores disability from a fictional lens, so that it entertains as it teaches tolerance and compassion. Each short story’s author lives with a disability and writes about first loves, friendship, hardship, and adventure. Unbroken is for teen readers to step into the shoes of teens with disabilities so that they can understand other experiences besides their own. Understanding differences and recognizing one’s own positionality and privilege helps teen find their own agency, purpose, and empowered hope for the future.
This anthology explores disability in fictional tales told from the viewpoint of disabled characters, written by disabled creators. With stories in various genres about first loves, friendship, war, travel, and more, Unbroken will offer today's teen readers a glimpse into the lives of disabled people in the past, present, and future.
The contributing authors are award winners, bestsellers, and newcomers including Kody Keplinger, Kristine Wyllys, Francisco X. Stork, William Alexander, Corinne Duyvis, Marieke Nijkamp, Dhonielle Clayton, Heidi Heilig, Katherine Locke, Karuna Riazi, Kayla Whaley, Keah Brown, and Fox Benwell. Each author identifies as disabled along a physical, mental, or neurodiverse…
In the years since I was 15, I have been writing and publishing books. After graduating from Florida Virtual School in 2014, I am currently pursuing a liberal arts degree with a focus on disabilities education. I'm passionate about literature, and I've dedicated myself to educating others about disabilities through my love of literature. Furthermore, I own a radio station and produce several podcasts related to disability. I contribute to seven different sites, including the mighty thought catalog and unwritten, where I talk about my life as a 27-year-old with a disability. I am also an advocate for disability rights, as well as a writer and author for disability issues.
When I look back at my journey, I feel that this book was the beginning of my survival guide in a world that wasn't made for me. It lets readers with disabilities, such as myself, realize that it's OK to do things in society in a different way. This is because it's not your disability that defines who you are. We provided me with the proper written representation I needed. Reading about how he helps himself really boosts the self-esteem of children with disabilities, especially cerebral palsy.
