100 books like The XX Brain

As a techno-optimist, I believe that technology can make us better!  Technology should make us stronger and healthier, technology should enable us to do things we couldn’t do without it, and technology should create an equitable future. In 25 years, I want superhuman eyesight, joints, and memory.  I want to travel with family and friends both physically and virtually through the metaverse. And I want to make sure that all of our data is used responsibly and ethically to optimize our home and community.  All of the books I selected (including mine!) build on these themes painting a picture of a future that is optimistic, and show us how we can be active participants in creating the future we want to see.  

As a techno-optimist, I believe that technology can make us better!  Technology should make us stronger and healthier, technology should enable us to do things we couldn’t do without it, and technology should create an equitable future. In 25 years, I want superhuman eyesight, joints, and memory.  I want to travel with family and friends both physically and virtually through the metaverse. And I want to make sure that all of our data is used responsibly and ethically to optimize our home and community.  All of the books I selected (including mine!) build on these themes painting a picture of a future that is optimistic, and show us how we can be active participants in creating the future we want to see.  

As a techno-optimist, I believe that technology can make us better!  Technology should make us stronger and healthier, technology should enable us to do things we couldn’t do without it, and technology should create an equitable future. In 25 years, I want superhuman eyesight, joints, and memory.  I want to travel with family and friends both physically and virtually through the metaverse. And I want to make sure that all of our data is used responsibly and ethically to optimize our home and community.  All of the books I selected (including mine!) build on these themes painting a picture of a future that is optimistic, and show us how we can be active participants in creating the future we want to see.  

My whole life has been about the power of making. I’m a writer and educator specialising in craft. Previously, I worked at the Crafts Council in London, and now I write for craft magazines with a particular interest in the connective nature of craft in communities and the relationship between craft and wellbeing. I’m also a parent to a learning-disabled adult, so understand learning differences (and care). I recently started Quickthorn Books to showcase more makers. I run workshops in darning, crochet, knitting, and, most recently, making rag rugs. I’m proud to be a trustee of Heritage Crafts, and I can usually be found knitting in the corner.

Children’s stories about memory loss, Alzheimer’s, and dementia resonate with me because I know firsthand how difficult it is to care for someone with this disease. My Aunt Luella had Alzheimer’s, and I cared for her in my home. When my aunt no longer remembered me, my heart ached. I felt hopeless, afraid. I can only imagine how difficult it is for a child to watch as a beloved grandparent forgets them. I found these five books to be helpful and inspiring. They offer hope. They embrace the love that still exists.

The inspiration to write about Alzheimer’s came from my own life. My grandfather had the disease. He and I were very close and it broke my heart when I realized I’d been forgotten. He only remembered my voice, that it sounded like a little girl he used to know. I wanted to capture the truth of that in a story. Sadly, dementia is so common, but for some reason, we don’t talk about Alzheimer’s as openly as we do other diseases. Kids need to be able to have everyday conversations about what they might be experiencing in regards to whomever they know with the disease. My hope is that books like Flowers can help.

An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.   

I have been teaching college students about aging since I was in my late 20s. The audacity! Now that I am officially in the “young-old” category I used to describe to my students, I more fully appreciate the social constructions of aging that affect elders, the medical conditions that can derail plans for “a good old age,” and the challenges we all face in attempting to live with meaning and purpose as we grow older. In addition to teaching, writing about, and researching various aspects of aging, especially aging with various type of dementia, my work has addressed the positive and negative ways religious faith can shape how people cope with aging.

I’m a physician and a writer. Together, they create a matrix of practice, research, and writing. I care for patients at the Penn Memory Center and am a professor at the University of Pennsylvania, where I teach and study topics at the intersections of bioethics, aging, and the neurosciences. I wrote The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It and the novel Open Wound: The Tragic Obsession of Dr. William Beaumont and essays for The New York Times, The Washington Post, Forbes, The Hill, STAT, and The Philadelphia Inquirer. I raise whippets, and I’m a passionate reader of the physician and poet John Keats. 

For nearly 7 years I watched my father decline from Alzheimer’s. It was perhaps the most difficult journey I’ve ever taken. My book, My Father’s Brain, is a memoir of my relationship with my father as he succumbed to his disease, but it is also a scientific and historical inquiry into the fragility of the brain. In the book, I set my father’s descent into dementia alongside my own journey, as a doctor, writer, and son, toward understanding this mysterious and devastating disease.