Fans pick 100 books like The Problem of Alzheimer's

By Jason Karlawish, Jason Karlawish,

Here are 100 books that The Problem of Alzheimer's fans have personally recommended if you like The Problem of Alzheimer's. Shepherd is a community of 12,000+ authors and super readers sharing their favorite books with the world.

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Book cover of The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease and Other Dementias

Andrew E. Budson and Maureen K. O'Connor Author Of Six Steps to Managing Alzheimer's Disease and Dementia: A Guide for Families

From my list on to understand dementia.

Why are we passionate about this?

As a neurologist and neuropsychologist team who have spent their entire clinical, teaching, and research careers focused on individuals and their families experiencing memory loss, Alzheimer’s disease, and dementia, our goal is simple. We want to empower individuals and their families with the tools they need to manage memory loss, Alzheimer’s disease, and dementia. We work to balance pharmacological and nonpharmacological management, as well as the needs of the individual with those of their family. Reading books like the ones in our list plus articles in medical journals keeps us current with the progress in the science of dementia and the humanity of individuals and families living with the disease. 

Andrew's book list on to understand dementia

Andrew E. Budson and Maureen K. O'Connor Why did Andrew love this book?

Now in its 7th edition, this book is the classic guide to caregiving for individuals with dementia. Comprehensive, and filled with stories and anecdotes, it is packed with valuable information on dementia and the behaviors that dementia engenders. We have read it several times and have recommended it to hundreds if not thousands of families. 

By Nancy L. Mace, Peter V. Rabins,

Why should I read it?

1 author picked The 36-Hour Day as one of their favorite books, and they share why you should read it.

What is this book about?

With over 3.5 million copies sold, the bestselling guide to understanding and caring for people with dementia is now completely revised and updated!

For 40 years, The 36-Hour Day has been the leading work in the field for caregivers of those with dementia. Written by experts with decades of experience caring for individuals with memory loss, Alzheimer's, and other dementias, the book is widely known for its authoritativeness and compassionate approach to care. Featuring everything from the causes of dementia to managing its early stages to advice on caring for those in the later stages of the disease, it is…


Book cover of Creative Care: A Revolutionary Approach to Dementia and Elder Care

Jason Karlawish Author Of The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease Into a Crisis and What We Can Do about It

From my list on making sense of Alzheimer’s disease and dementia.

Why am I passionate about this?

I’m a physician and a writer. Together, they create a matrix of practice, research, and writing. I care for patients at the Penn Memory Center and am a professor at the University of Pennsylvania, where I teach and study topics at the intersections of bioethics, aging, and the neurosciences. I wrote The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It and the novel Open Wound: The Tragic Obsession of Dr. William Beaumont and essays for The New York Times, The Washington Post, Forbes, The Hill, STAT, and The Philadelphia Inquirer. I raise whippets, and I’m a passionate reader of the physician and poet John Keats. 

Jason's book list on making sense of Alzheimer’s disease and dementia

Jason Karlawish Why did Jason love this book?

Among my prescriptions to caregivers – especially those who struggle to find meaning and in creating a typical day that is safe, social, and engaged – is Anne Basting’s book. Basting, a theater arts professor, makes a persuasive case that upends the usual and customary approaches to caring for persons living with dementia. Her central premise is this: Together, caregivers and patients can create. She offers concrete ideas and steps to address some of the most vexing challenges such as when a patient asks the whereabouts of a long-ago deceased relative.

By Anne Basting,

Why should I read it?

2 authors picked Creative Care as one of their favorite books, and they share why you should read it.

What is this book about?

A MacArthur Genius Grant recipient pioneers a radical change in how we interact with older loved ones, especially those experiencing dementia, as she introduces a proven method that uses the creative arts to bring light and joy to the lives of elders.

In Creative Care, Anne Basting lays the groundwork for a widespread transformation in our approach to elder care and uses compelling, touching stories to inspire and guide us all-family, friends, and health professionals-in how to connect and interact with those living with dementia.

A MacArthur Genius Grant recipient, Basting tells the story of how she pioneered a radical…


Book cover of On Vanishing: Mortality, Dementia, and What It Means to Disappear

Susan H. McFadden Author Of Dementia-Friendly Communities: Why We Need Them and How We Can Create Them

From my list on innovative approaches to living with dementia.

Why am I passionate about this?

I have been teaching college students about aging since I was in my late 20s. The audacity! Now that I am officially in the “young-old” category I used to describe to my students, I more fully appreciate the social constructions of aging that affect elders, the medical conditions that can derail plans for “a good old age,” and the challenges we all face in attempting to live with meaning and purpose as we grow older. In addition to teaching, writing about, and researching various aspects of aging, especially aging with various type of dementia, my work has addressed the positive and negative ways religious faith can shape how people cope with aging.

Susan's book list on innovative approaches to living with dementia

Susan H. McFadden Why did Susan love this book?

Lynn Casteel Harper, currently minister for older adults at The Riverside Church in New York City, has written a compassionate book about contemporary fears of aging, dementia, and death. She shows how these fears produce greater social isolation and suffering for people living with dementia and caring for loved ones, whether in private homes or in care communities. She uses personal experiences to illustrate the way our fears of “vanishing” can be overcome when we learn to connect meaningfully with people with dementia.

By Lynn Casteel Harper,

Why should I read it?

1 author picked On Vanishing as one of their favorite books, and they share why you should read it.

What is this book about?

An essential book for those coping with Alzheimer's and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (Parul Sehgal, The New York Times).

An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On…


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Book cover of Locked In Locked Out: Surviving a Brainstem Stroke

Locked In Locked Out by Shawn Jennings,

Can there be life after a brainstem stroke?

After Dr. Shawn Jennings, a busy family physician, suffered a brainstem stroke on May 13, 1999, he woke from a coma locked inside his body, aware and alert but unable to communicate or move. Once he regained limited movement in his left…

Book cover of Dignity and Grace: Wisdom for Caregivers and Those Living with Dementia

Susan H. McFadden Author Of Dementia-Friendly Communities: Why We Need Them and How We Can Create Them

From my list on innovative approaches to living with dementia.

Why am I passionate about this?

I have been teaching college students about aging since I was in my late 20s. The audacity! Now that I am officially in the “young-old” category I used to describe to my students, I more fully appreciate the social constructions of aging that affect elders, the medical conditions that can derail plans for “a good old age,” and the challenges we all face in attempting to live with meaning and purpose as we grow older. In addition to teaching, writing about, and researching various aspects of aging, especially aging with various type of dementia, my work has addressed the positive and negative ways religious faith can shape how people cope with aging.

Susan's book list on innovative approaches to living with dementia

Susan H. McFadden Why did Susan love this book?

Janet Ramsey’s experiences as a chaplain, therapist, and family caregiver have taught her that people living with dementia deeply desire interactions with others that uphold their dignity and offer them love and forgiveness. She interviewed many dementia caregivers and throughout the book, she lets them express what dignity and grace mean in their everyday interactions with loved ones. Each chapter concludes with a reflection on a different Psalm, reflections that speak directly to the challenges and opportunities for growth that come with caregiving. Readers need not be Christian or in any way religious to appreciate the warmth and humanity conveyed throughout this book.

By Janet L Ramsey,

Why should I read it?

1 author picked Dignity and Grace as one of their favorite books, and they share why you should read it.

What is this book about?

Discovering how to live with dementia

"I'm a stranger in a strange land," sighed the dignified gentleman Janet L. Ramsey met walking down the care-center hallway. Those words, her first glimpse of the confusion that comes with dementia, led her into a lifetime of work with older adults.

If you have been diagnosed with dementia or you are accompanying someone with this illness, you may find yourself on a journey that began with a sudden diagnosis and an acute sense of panic. Or perhaps your journey started gradually, as you noticed changes in yourself or in your partner or parent.…


Book cover of Jewish Wisdom for Growing Older: Finding Your Grit and Grace Beyond Midlife

Susan H. McFadden Author Of Dementia-Friendly Communities: Why We Need Them and How We Can Create Them

From my list on innovative approaches to living with dementia.

Why am I passionate about this?

I have been teaching college students about aging since I was in my late 20s. The audacity! Now that I am officially in the “young-old” category I used to describe to my students, I more fully appreciate the social constructions of aging that affect elders, the medical conditions that can derail plans for “a good old age,” and the challenges we all face in attempting to live with meaning and purpose as we grow older. In addition to teaching, writing about, and researching various aspects of aging, especially aging with various type of dementia, my work has addressed the positive and negative ways religious faith can shape how people cope with aging.

Susan's book list on innovative approaches to living with dementia

Susan H. McFadden Why did Susan love this book?

Rabbi Dayle Friedman’s wisdom about aging can be appreciated by people of all religions and no religion. Her honest engagement with some of the most difficult issues aging persons face leaves readers with hope rather than despair. Her many years as a chaplain for people living in long-term care with dementia undergird her suggestions on how to make sense of what she calls “dementia’s brokenness”. She concludes each chapter with a spiritual practice readers can employ to engage more deeply with the chapter’s topics, and also at the end of each chapter, she offers readers a blessing for their own efforts to flourish as they age.  

By Dayle A. Friedman,

Why should I read it?

1 author picked Jewish Wisdom for Growing Older as one of their favorite books, and they share why you should read it.

What is this book about?

Growing Older Can Be a Time of Growing in Depth and Wisdom

"My sense is that the whole journey beyond midlife is a mysterious blend of light and dark, wholeness and fragility…. We have a chance beyond midlife to become the person we were truly meant to be. We can draw on everything we have experienced so far to contribute to the people around us and the wider world, and to find strength and resilience amid the challenges."
―from the Introduction

Whether you are fifty-five or seventy-five, approaching retirement or age one hundred, growing older brings remarkable opportunities but often…


Book cover of Floating in the Deep End: How Caregivers Can See Beyond Alzheimer's

Andrew E. Budson and Maureen K. O'Connor Author Of Six Steps to Managing Alzheimer's Disease and Dementia: A Guide for Families

From my list on to understand dementia.

Why are we passionate about this?

As a neurologist and neuropsychologist team who have spent their entire clinical, teaching, and research careers focused on individuals and their families experiencing memory loss, Alzheimer’s disease, and dementia, our goal is simple. We want to empower individuals and their families with the tools they need to manage memory loss, Alzheimer’s disease, and dementia. We work to balance pharmacological and nonpharmacological management, as well as the needs of the individual with those of their family. Reading books like the ones in our list plus articles in medical journals keeps us current with the progress in the science of dementia and the humanity of individuals and families living with the disease. 

Andrew's book list on to understand dementia

Andrew E. Budson and Maureen K. O'Connor Why did Andrew love this book?

Reading Patti Davis’s book is like sitting in her living room talking with her, one caregiver to another. Because she not only lived through Alzheimer’s disease and dementia with her father, Ronald Reagan, but ran a support group for a number of years, her knowledge is vast and she shares it with you. For example, chapters with titles such as, “Grief Arrives Early,” “Creative Lying,” “The Battle Over Bathing,” and “Where is the Person I Knew?” discuss important topics in relatable ways. Her story and the way she tells it also make this book a wonderful read.

By Patti Davis,

Why should I read it?

1 author picked Floating in the Deep End as one of their favorite books, and they share why you should read it.

What is this book about?

"For the decade of my father's illness, I felt as if I was floating in the deep end, tossed by waves, carried by currents but not drowning." In a singular account of battling Alzheimer's, Patti Davis eloquently weaves personal anecdotes with practical advice tailored specifically for the overlooked caregiver. After losing her father, Ronald Reagan, Davis founded a support group for family members and friends of Alzheimer's patients; drawing on those years, Davis reveals the surprising struggles and gifts of this cruel disease. From the challenges of navigating disorientation to the moments when guilt and resentments creep in, readers are…


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Book cover of Traumatization and Its Aftermath: A Systemic Approach to Understanding and Treating Trauma Disorders

Traumatization and Its Aftermath by Antonieta Contreras,

A fresh take on the difference between trauma and hardship in order to help accurately spot the difference and avoid over-generalizations.

The book integrates the latest findings in brain science, child development, psycho-social context, theory, and clinical experiences to make the case that trauma is much more than a cluster…

Book cover of Still Alice

Sharon Ricardi Author Of The Future of Alzheimer's

From my list on deepen your understanding of life past age fifty.

Why am I passionate about this?

I am passionate about aging in America. I was honored to be in health care for over 40 years; I was a leader in home care and hospital systems and was there at the birth of the assisted living movement, now so respected. I specialized in Alzheimer’s as it is the least understood common disease of seniors, one that evokes misery if not handled properly. I started the first Alzheimer’s training for homecare aides in the 90’s. In positions such as Senior Vice President of Northbridge Companies and President of Northbridge Advisory Services, I became an advocate for dementia education, advanced care, and programs for the financially challenged. 

Sharon's book list on deepen your understanding of life past age fifty

Sharon Ricardi Why did Sharon love this book?

I loved this book so much that I have recommended it more than any other book in recent years. It is so well written that no one needs to have any interest in Alzheimer’s, which is what the fictional Alice is diagnosed with, to be affected by the story.

At first, I was concerned that it was not the story of a “real” person but an amalgam of many. But the story told allowed her to take me to a more personal place of understanding the loss of self that Alice endured, the strength of character as she fought back, and the journey her family was on to try and deal with what this loss meant to her.

It was clear this stunning book should be a movie, and though I also loved the movie, I’m glad I read the book first; it goes into detail you can only get…

By Lisa Genova,

Why should I read it?

5 authors picked Still Alice as one of their favorite books, and they share why you should read it.

What is this book about?

A moving story of a woman with early onset Alzheimer's disease, now a major Academy Award-winning film starring Julianne Moore and Kristen Stewart.

Alice Howland is proud of the life she worked so hard to build. At fifty, she's a cognitive psychology professor at Harvard and a renowned expert in linguistics, with a successful husband and three grown children. When she begins to grow forgetful and disoriented, she dismisses it for as long as she can until a tragic diagnosis changes her life - and her relationship with her family and the world around her - for ever.

Unable to…


Book cover of Learning to Speak Alzheimer's: A Groundbreaking Approach for Everyone Dealing with the Disease

Sharon Ricardi Author Of The Future of Alzheimer's

From my list on deepen your understanding of life past age fifty.

Why am I passionate about this?

I am passionate about aging in America. I was honored to be in health care for over 40 years; I was a leader in home care and hospital systems and was there at the birth of the assisted living movement, now so respected. I specialized in Alzheimer’s as it is the least understood common disease of seniors, one that evokes misery if not handled properly. I started the first Alzheimer’s training for homecare aides in the 90’s. In positions such as Senior Vice President of Northbridge Companies and President of Northbridge Advisory Services, I became an advocate for dementia education, advanced care, and programs for the financially challenged. 

Sharon's book list on deepen your understanding of life past age fifty

Sharon Ricardi Why did Sharon love this book?

Over the years, I’m often asked to recommend books for caregivers about Alzheimer’s or memory loss in general. I often hesitated because so many books are so dreadfully depressing and clinical. In particular, some older books are not in keeping with the more contemporary views on a disease, which is, yes, a cruel and unrelenting villain, but there is hope to be found.

This book showcases many years of experience with thousands of people on the same journey, the opposite of the many books out there that just tell one person’s story. If I have learned anything, it is that all people with Alzheimer’s are different and experience this disease differently.

The late, great Joanne, from whom I got my dementia certification, has a much more useful and uplifting approach for families and friends of those diagnosed with Alzheimer’s. It's a classic. 

By Joanne Koenig Coste,

Why should I read it?

2 authors picked Learning to Speak Alzheimer's as one of their favorite books, and they share why you should read it.

What is this book about?

A guide to more successful communication for the millions of Americans caring for someone with dementia: “Offers a fresh approach and hope.”—NPR

Revolutionizing the way we perceive and live with Alzheimer’s, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Her accessible and comprehensive method, which she calls habilitation, works to enhance communication between carepartners and patients and has proven successful with thousands of people living with dementia.

Learning to Speak Alzheimer’s also offers hundreds of practical tips, including how to
-Cope with the…


Book cover of Somebody Stole My Iron: A Family Memoir of Dementia

Ann Campanella Author Of Motherhood: Lost and Found: A memoir

From my list on inspiring memoirs about Alzheimer’s and Dementia.

Why am I passionate about this?

An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.   

Ann's book list on inspiring memoirs about Alzheimer’s and Dementia

Ann Campanella Why did Ann love this book?

Honest and humble, Vicki Tapia shares her story in Somebody Stole My Iron of caring for both parents at the same time as they descend into dementia. Despite her mother's strong personality and her father's somewhat distant and oblivious nature, Vicki reveals the real issues of loving parents – particularly her mother – who have challenging personalities. Vicki’s loyalty in the midst of difficulty is inspiring. She also shares dementia caregiving tips at the end of each chapter, which provide comfort and affirmation for others caring for aging parents. 

By Vicki Tapia,

Why should I read it?

2 authors picked Somebody Stole My Iron as one of their favorite books, and they share why you should read it.

What is this book about?

Navigating the waters of dementia can be frightening, unleashing a myriad of emotions for everyone involved. After Vicki Tapia's mother was diagnosed with Alzheimer's disease, followed closely by her father with Parkinson's disease-related dementia, she struggled to find practical, helpful information to light her way. Somebody Stole My Iron began as a diary to help her cope, but emerged as a road map for others. It offers a glimpse into her family's life as they rode the waves of dementia, sometimes sailing, other times capsizing. This engaging memoir offers useful information from experts within the field of Alzheimer's research, personal…


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Book cover of Grand Old Unraveling: The Republican Party, Donald Trump, and the Rise of Authoritarianism

Grand Old Unraveling by John Kenneth White,

It didn’t begin with Donald Trump. When the Republican Party lost five straight presidential elections during the 1930s and 1940s, three things happened: (1) Republicans came to believe that presidential elections are rigged; (2) Conspiracy theories arose and were believed; and (3) The presidency was elevated to cult-like status.

Long…

Book cover of Motherhood: Lost and Found: A memoir

Vicki Tapia Author Of Somebody Stole My Iron: A Family Memoir of Dementia

From my list on Alzheimer’s and dementia caregiving stories.

Why am I passionate about this?

I am a caregiver who became an author. Both my parents had dementia. I found few books written from a personal perspective to give me guidance, so the journal I kept ultimately became the book I wished I could have read during our dementia journey. The journey didn’t end for me with the death of my parents. It led me to form a non-profit with two other dementia authors. This passion project has become a global community of authors who have written about Alzheimer’s and dementia from personal experience. Now more than 300 strong, we provide quality resources for caregivers and others concerned about dementia. Learn more at AlzAuthors.com.

Vicki's book list on Alzheimer’s and dementia caregiving stories

Vicki Tapia Why did Vicki love this book?

Ann Campanella’s memoir details her journey through caregiving for her mother with Alzheimer’s at the same time she was struggling to start her own family. I felt it all: the anxiety, the frustration, as well as the pain, as she watched her mother decline while coping with an inability to conceive. Ann’s book reminded me to appreciate life’s joys, no matter how small, whether riding a beloved horse, marveling at a sunset, smelling a beautiful flower, or offering a simple hug. 

By Ann Campanella,

Why should I read it?

2 authors picked Motherhood as one of their favorite books, and they share why you should read it.

What is this book about?

Ann Campanella, a freelance writer and horsewoman, returns to North Carolina after a several year absence. In her mid thirties and ready to start a family, she is used to setting goals and accomplishing them. But when Ann experiences a series of miscarriages at the same time her mother shows signs of Alzheimer’s, she plunges into an emotional journey that leads her to a deeper understanding of herself and what it means to love.

"One of the best Alzheimer's books of all time." - Book Authority


Book cover of The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease and Other Dementias
Book cover of Creative Care: A Revolutionary Approach to Dementia and Elder Care
Book cover of On Vanishing: Mortality, Dementia, and What It Means to Disappear

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Interested in Alzheimer's disease, caregiver, and dementia?

Caregiver 50 books
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