Like the Bach sisters in my novel Things We Do For Love, my sisters and I have cared for our mother, who battles Alzheimer's. Witnessing her transformation from a vibrant powerhouse to someone resembling the Walking Dead has been heart-wrenching. Despite the emotional rollercoaster, this journey has deeply connected us with our mother. Delving into the depths of her being has been a privilege, offering profound insights into her true essence. This challenging experience has unfolded as a disguised blessing. In this journey, we've discovered the beauty of unconditional love that binds our family together. It reflects the central question of my novel: What truly makes a happy family?
This book inspired me to write my own account of dealing with my mum’s Alzheimer’s.
This darkly comic yet gripping novel reveals the humorous aspects of the disease. Maud, an eighty-year-old who grapples with forgetting even the cup of tea she just made or recognising her own daughter, surprisingly unravels a seventy-year-old mystery.
The story delicately weaves warm and uplifting moments with touches of comedy, anxiety, and sheer terror that arise when one realises the advancing years and the struggle to be heard in a society that often overlooks the elderly. The portrayal of dementia in this novel is both sympathetic and profoundly moving, capturing the emotional complexity of the experience.
Maud's character is both exasperating and compelling, embodying the kind of older protagonist I yearn to encounter more in literature.
NOW A MAJOR BBC DRAMA A SUNDAY TIMES TOP FIVE BESTSELLER
How do you solve a mystery when you can't remember the clues?
Maud is forgetful. She makes a cup of tea and doesn't remember to drink it. She goes to the shops and forgets why she went. Sometimes her home is unrecognizable - or her daughter Helen seems a total stranger.
But there's one thing Maud is sure of: her friend Elizabeth is missing. The note in her pocket tells her so. And no matter who tells her to stop going on about it, to leave it alone, to…
An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.
Andrea Couture’s father, a well-known, recently retired surgeon, develops Alzheimer’s at the age of 67. As someone who also lost a parent at a young age, Embracing What Remainstouched a deep place in my heart. I connected with how she processed her emotions through her writing. I also appreciated the way she balances her grief over his disease with the gratitude and joy she discovers in each moment. This is a beautifully written memoir!
***Finalist in Next Generation Indie Book Awards***
Andrea struggles to mourn a man who is still alive as she witnesses her father decline into the depths of Alzheimer’s. Denial and devastation color her life when she learns her father, Richard, a recently retired surgeon, is diagnosed with Alzheimer’s at the age of 67. Her dream to grow closer with him is crushed as the reality of his disease is fully realized. Andrea, a mother of three young children, learns to balance motherhood with daughterhood as she grapples to accept her father’s fate. Andrea rides an unpredictable wave…
I have been teaching college students about aging since I was in my late 20s. The audacity! Now that I am officially in the “young-old” category I used to describe to my students, I more fully appreciate the social constructions of aging that affect elders, the medical conditions that can derail plans for “a good old age,” and the challenges we all face in attempting to live with meaning and purpose as we grow older. In addition to teaching, writing about, and researching various aspects of aging, especially aging with various type of dementia, my work has addressed the positive and negative ways religious faith can shape how people cope with aging.
Rabbi Dayle Friedman’s wisdom about aging can be appreciated by people of all religions and no religion. Her honest engagement with some of the most difficult issues aging persons face leaves readers with hope rather than despair. Her many years as a chaplain for people living in long-term care with dementia undergird her suggestions on how to make sense of what she calls “dementia’s brokenness”. She concludes each chapter with a spiritual practice readers can employ to engage more deeply with the chapter’s topics, and also at the end of each chapter, she offers readers a blessing for their own efforts to flourish as they age.
Growing Older Can Be a Time of Growing in Depth and Wisdom
"My sense is that the whole journey beyond midlife is a mysterious blend of light and dark, wholeness and fragility…. We have a chance beyond midlife to become the person we were truly meant to be. We can draw on everything we have experienced so far to contribute to the people around us and the wider world, and to find strength and resilience amid the challenges." ―from the Introduction
Whether you are fifty-five or seventy-five, approaching retirement or age one hundred, growing older brings remarkable opportunities but often…
Trusted for more than three decades by family caregivers and professionals alike, this comprehensive and reassuring caregiving guide offers the crucial information you need to look after your elders and plan for the future.
Being a caregiver for aging parents, close friends and family, and other elders in your life is an overwhelming experience, whether you are one who has stepped into this role without warning or one who is also contemplating their own care plan. Now in its fourth edition, The Complete Eldercare Planner will help you navigate today’s complex caregiving landscape while addressing your unique needs.
Trusted for more than three decades by family caregivers and professionals alike, this comprehensive and reassuring caregiving guide offers the crucial information you need to look after your elders and plan for the future.
“The most complete resource between two covers.”—Woman’s Day
Being a caregiver for aging parents, close friends and family, and other elders in your life is an overwhelming experience, whether you are one who has stepped into this role without warning or one who is also contemplating their own care plan. Now in its fourth edition, The Complete Eldercare Planner will help you navigate today’s complex caregiving…
For nearly 7 years I watched my father decline from Alzheimer’s. It was perhaps the most difficult journey I’ve ever taken. My book, My Father’s Brain, is a memoir of my relationship with my father as he succumbed to his disease, but it is also a scientific and historical inquiry into the fragility of the brain. In the book, I set my father’s descent into dementia alongside my own journey, as a doctor, writer, and son, toward understanding this mysterious and devastating disease.
Corkin, a research psychologist, presents a fascinating case study of her patient, Henry Molaison, a man with no memory. Molaison—or H.M., as he was known in the scientific literature until his death in 2008—was a 27-year-old with severe epilepsy when he underwent radical brain surgery in 1953 to cure his intractable seizures.
Though Molaison’s seizures largely abated after the operation, he developed an even bigger problem, which manifested almost immediately after his surgery. Daily events vanished from his mind almost as soon as they had occurred.
Like most patients living with dementia, he could form no new long-term memories. With no new memories, he lived in a perpetual present, disconnected from his past (or at least the past after his surgery) and his future.
In 1953, 27-year-old Henry Gustave Molaison underwent an experimental psychosurgical" procedure,a targeted lobotomy,in an effort to alleviate his debilitating epilepsy. The outcome was unexpected,when Henry awoke, he could no longer form new memories, and for the rest of his life would be trapped in the moment. But Henry's tragedy would prove a gift to humanity. As renowned neuroscientist Suzanne Corkin explains in Permanent Present Tense , she and her colleagues brought to light the sharp contrast between Henry's crippling memory impairment and his preserved intellect. This new insight that the capacity for remembering is housed in a specific brain area…
I am a caregiver who became an author. Both my parents had dementia. I found few books written from a personal perspective to give me guidance, so the journal I kept ultimately became the book I wished I could have read during our dementia journey. The journey didn’t end for me with the death of my parents. It led me to form a non-profit with two other dementia authors. This passion project has become a global community of authors who have written about Alzheimer’s and dementia from personal experience. Now more than 300 strong, we provide quality resources for caregivers and others concerned about dementia. Learn more at AlzAuthors.com.
I was drawn in by Marianne Sciucco’s novel about a man caring for his wife with Alzheimer’s. It’s a love story between a long-married couple, one of whom has dementia. It’s about a husband’s determination to honor his wife’s request to stay in their home, even though his own health is failing. It’s about the magic of the day they “escape.” I loved this book because it showed me that love endures despite dementia; despite what life throws our way.
What if the person who knew you best and loved you most forgot your face, and couldn't remember your name? The PromiseA care facility is everyone's solution for what to do about Sara, but her husband, Jack, can't bear to live without her. He is committed to saving his marriage, his wife, and their life together from the devastation of Alzheimer’s disease. He and Sara retired years ago to the house of their dreams, and operated it as a Cape Cod bed and breakfast named Blue Hydrangeas. Jack has made an impossible promise: He and Sara will stay together in…
Throughout my life I found the trick to getting through rough patches meant isolating dark thoughts. I got them out by creating something (artworks, poems, stories), and looked forward to new horizons, though these works could easily be misinterpreted by those around me. When I was fifteen, after my father died and we were forced off the farm, I created a series of disturbing drawings that won the school's art prize and were displayed at graduation. A friend of my mother saw the exhibit and said, “Oh Dorothy, I’m so sorry.” It gave us a laugh later when Mother realized this method of cleansing beat finding a psychiatrist, and the cost couldn’t be beat.
This story is a twist on a familiar Lewis Carroll tale.
It is unsettling in a dementia-like way, spinning the reader from the known into the unknown with just enough of the old story to keep them from tipping completely off balance, hope and dark humor always alive.
This book helped me with the twisting of fact and fiction in my own books, where I used many of my own family incidents (and fears), but gave them to fictional characters with their own generational slant.
In a warren of crumbling buildings and desperate people called the Old City, there stands a hospital with cinderblock walls which echo with the screams of the poor souls inside.In the hospital, there is a woman. Her hair, once blonde, hangs in tangles down her back. She doesn't remember why she's in such a terrible place-just a tea party long ago, and long ears, and blood...Then, one night, a fire at the hospital gives the woman a chance to escape, tumbling out of the hole that imprisoned her, leaving her free to uncover the truth about what happened to her…
An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.
As a writer and lover of memoir myself, the fact that I still remember how I felt after reading Green Vanilla Tea the first time, says a lot. The tremendous sadness of the book is woven so tightly with the love and appreciation of family in this book, I felt transported. Marie Williams shares the tragic story of her husband’s frontal temporal dementia as they are raising two teenage boys. Her beautiful prose describes a journey that is messy, tender, and sacred. This book changed my concept of love – stretching and renewing me!
Green Vanilla Tea is a true story of love and courage in the face of a deadly and little understood illness. With literary finesse, compassion, and a powerful gift of storytelling, Marie Williams writes poignantly of her husband Dominic’s struggles with early onset dementia and amyotrophic lateral sclerosis (ALS) at the age of 40, and how their family found hope amidst the wreckage of a mysterious neurological condition.
As the condition develops and progresses, the normally devoted family man and loving partner seems to disappear beneath an expressionless facade, erratic behavior, and a relentless desire to wander that often leaves…
The inspiration to write about Alzheimer’s came from my own life. My grandfather had the disease. He and I were very close and it broke my heart when I realized I’d been forgotten. He only remembered my voice, that it sounded like a little girl he used to know. I wanted to capture the truth of that in a story. Sadly, dementia is so common, but for some reason, we don’t talk about Alzheimer’s as openly as we do other diseases. Kids need to be able to have everyday conversations about what they might be experiencing in regards to whomever they know with the disease. My hope is that books like Flowers can help.
Stark-McGinnis tackles Alzheimer’s of a parent, in this case, a mother. The disease is already well-progressed as we meet Cassie; her mother has already forgotten her name. Told in the present tense interspersed with a series of flashbacks to before Cassie’s Mom had the disease, we see all that has been lost. Linking memories to math, in that each can be broken down into more finite parts, Cassie draws “memory sketches” in the hopes that connecting all the dots in Mom’s life will make her remember. It doesn’t of course, but with her father, Cassie finds a path toward acceptance.
From the acclaimed author of Extraordinary Birds, a powerful story about family, friendship, and the light that can be found even in the darkest of places.
Cassie's always looked up to her mom, a vibrant woman bursting with grand ideas. Together they planned to check off every dream on their think-big bucket list, no matter how far the adventures took them. The future seemed unlimited.
But then came the diagnosis, and Mom started to lose her memories. Even the ones Cassie thought she'd never forget. Even Cassie's name.
Cassie tries her hardest to keep Mom happy . . . to…
I am a novelist, a journalist, a humanist celebrant, and coauthor with my husband of the best-selling Nicci French thrillers. Witnessing my father’s dementia and his slow-motion dying radically transformed the way I think about what it is to be human. In 2014, I founded John’s Campaign which seeks to make the care of those who are vulnerable and powerless more compassionate, and which is now a national movement in the UK. In 2016, I won the Orwell Prize for Journalism for ‘exposing Britain’s social evils' in the pieces I wrote exploring the nature of dementia.
There cannot be a more brilliant or more shattering evocation of what it feels like to gradually realise you are forgetting yourself and vanishing from your own life: the mind observes the mind’s deterioration. Bernleff’s pioneering novel, published in 1984, follows the journey of its narrator Maarten from the first days of confusion into a darkness of self-loss. A beautiful, poignant masterpiece about memory and forgetting.
Everyday Maarten notices his increasing forgetfulness, but his attempts to conceal it are fruitless. This novel shows the strength of the bond keeping him and his wife together, the result of a lifetime of loving, so that they manage to find a way to carry on in the face of deterioration.
Throughout my life I found the trick to getting through rough patches meant isolating dark thoughts. I got them out by creating something (artworks, poems, stories), and looked forward to new horizons, though these works could easily be misinterpreted by those around me. When I was fifteen, after my father died and we were forced off the farm, I created a series of disturbing drawings that won the school's art prize and were displayed at graduation. A friend of my mother saw the exhibit and said, “Oh Dorothy, I’m so sorry.” It gave us a laugh later when Mother realized this method of cleansing beat finding a psychiatrist, and the cost couldn’t be beat.
As a kid, I loved this funny and frightening book about the terrible things that happen to bratty children (the same could be inferred for bratty octogenarians).
I’m sure my parents hoped these tales would encourage more reasonable behavior. Instead, these tales set me on a path to writing dark stories. In this case, the contrast of humor and the horrifying is addictive, and characters in any kind of book that combine these traits are always compelling.
The illustrations in the version published by John C. Winston Company are particularly quirky, increasing the impact of each story. This book probably had more influence on my book than I realized during the writing.
This work has been selected by scholars as being culturally important and is part of the knowledge base of civilization as we know it.
This work is in the public domain in the United States of America, and possibly other nations. Within the United States, you may freely copy and distribute this work, as no entity (individual or corporate) has a copyright on the body of the work.
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