Here are 100 books that Permanent Present Tense fans have personally recommended if you like
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For nearly 7 years I watched my father decline from Alzheimer’s. It was perhaps the most difficult journey I’ve ever taken. My book, My Father’s Brain, is a memoir of my relationship with my father as he succumbed to his disease, but it is also a scientific and historical inquiry into the fragility of the brain. In the book, I set my father’s descent into dementia alongside my own journey, as a doctor, writer, and son, toward understanding this mysterious and devastating disease.
A British neuroscientist, Jebelli travels around the world to discover the latest in dementia research.
He goes to Papua New Guinea, Japan, India, and China to learn about experimental (but mostly futile) treatments, including stem cells, blood transfusions and repurposed cancer drugs.
In the end, he acknowledges how little medicine currently has to offer patients living with dementia, even as he holds out hope (far-fetched, in my view) for a cure in 10 years.
For readers of Atul Gawande, Siddhartha Mukherjee, and Henry Marsh, a riveting, gorgeously written biography of one of history's most fascinating and confounding diseases -- Alzheimer's -- from its discovery more than 100 years ago to today's race towards a cure.
Alzheimer's is the great global epidemic of our time, affecting millions worldwide -- there are more than 5 million people diagnosed in the US alone. And as our population ages, scientists are working against the clock to find a cure.
Neuroscientist Joseph Jebelli is among them. His beloved grandfather had Alzheimer's and now he's written the book he needed…
For nearly 7 years I watched my father decline from Alzheimer’s. It was perhaps the most difficult journey I’ve ever taken. My book, My Father’s Brain, is a memoir of my relationship with my father as he succumbed to his disease, but it is also a scientific and historical inquiry into the fragility of the brain. In the book, I set my father’s descent into dementia alongside my own journey, as a doctor, writer, and son, toward understanding this mysterious and devastating disease.
Swinton, chair in divinity and religious studies at the University of Aberdeen, focuses on the ways the standard model of dementia, which views the disease almost exclusively as a consequence of brain damage, is incomplete.
Patients with dementia, Swinton notes, can have varying degrees of brain damage. Some whose autopsies revealed significant damage manifested little clinical impairment while alive. Others with only minor neuropathology had full-blown symptoms.
Therefore, Swinton argues, it is clear that social environments, through implicit messaging or explicit neglect, worsen the demented condition. What is called for is an approach based on respect and dignity.
Dementia is one of the most feared diseases in Western society today. Some have even gone so far as to suggest euthanasia as a solution to the perceived indignity of memory loss and the disorientation that accompanies it.
In this book John Swinton develops a practical theology of dementia for caregivers, people with dementia, ministers, hospital chaplains, and medical practitioners as he explores two primary questions:
Who am I when I've forgotten who I am?
What does it mean to love God and be loved by God when I have forgotten who God is? Offering compassionate and carefully considered theological…
For nearly 7 years I watched my father decline from Alzheimer’s. It was perhaps the most difficult journey I’ve ever taken. My book, My Father’s Brain, is a memoir of my relationship with my father as he succumbed to his disease, but it is also a scientific and historical inquiry into the fragility of the brain. In the book, I set my father’s descent into dementia alongside my own journey, as a doctor, writer, and son, toward understanding this mysterious and devastating disease.
Thomas’s 2015 novel revolves around Eileen Leary, a tough Irish American nurse yearning to break the middle-class mold in which her life is set when her husband, Ed, a neuroscientist, develops early-onset Alzheimer’s.
Thomas describes his slow deterioration and the ravages inflicted on Eileen and their son, Connell, in drawn-out moments and exquisite detail. In an especially harrowing scene, Eileen stays up all night watching her once brilliant husband struggle with the simple task of tabulating the final grades in his community college class.
Though the narrative sometimes gets bogged down in minutiae, it is as unsparing an account of Alzheimer’s as I have ever read.
SHORTLISTED FOR THE JAMES TAIT BLACK PRIZE LONGLISTED FOR THE GUARDIAN FIRST BOOK AWARD NOMINATED FOR THE FOLIO PRIZE NAMED A NOTABLE BOOK OF THE YEAR BY THE NEW YORK TIMES
A stunning, heartbreaking debut - 'We Are Not Ourselves' is both the intimate story of a family and an epic of the American Century.
Eileen Leary wants more. Raised in a downtrodden area of new York by hard-drinking, Irish immigrant parents, she dreams of another life: a better job, a bigger house, more respectable friends, a happy family. When she meets Ed Leary, a brilliant young scientist, she thinks…
Tap Dancing on Everest, part coming-of-age memoir, part true-survival adventure story, is about a young medical student, the daughter of a Holocaust survivor raised in N.Y.C., who battles self-doubt to serve as the doctor—and only woman—on a remote Everest climb in Tibet.
For nearly 7 years I watched my father decline from Alzheimer’s. It was perhaps the most difficult journey I’ve ever taken. My book, My Father’s Brain, is a memoir of my relationship with my father as he succumbed to his disease, but it is also a scientific and historical inquiry into the fragility of the brain. In the book, I set my father’s descent into dementia alongside my own journey, as a doctor, writer, and son, toward understanding this mysterious and devastating disease.
In Scar Tissue, a 1993 Booker Prize finalist, an unnamed narrator gives a first-person account of the precipitous decline of his mother from dementia (though her condition is never explicitly named).
“She remembers captions of New Yorker cartoons,” he says, lamenting that “it is what happened five minutes ago that is slipping away.” It is a predicament with which dementia caregivers are all too familiar.
Yet, despite his mother’s descent into oblivion, the narrator insists she be treated with dignity. “You keep telling me what has been lost,” he tells her neurologist, “and I keep telling you something remains.”
Chronicles one woman's descent into Alzheimer's disease and her sons' painful witness to the tragedy, which is enhanced by their careers in philosophy and neurology and by strengthened family bonds
As an educator, author of children’s books, and caregiver of a loved one with dementia, I felt that I had to write a story about the disease from a child’s point of view. When I became a caregiver, I was struck by the lack of information for children and the misconceptions of the public about the disease. I wanted to create a story that reassures children and gives them guidance on how they can help be a caregiver. I added the Author’s Note to provide accurate information to adults so that more people are aware of the signs of dementia and to build understanding and compassion.
This sensitive, charming book shows how a child learns about what is going on in her granny’s brain.
It addresses the emotions that a young child may feel when they witness confusing changes in a loved one’s behavior. This story provides a wonderful opportunity to discuss dementia and what to do if a child has concerns or questions.
Are you looking for a picture book to talk about dementia or Alzheimer's with a child? This Alzheimer’s book for children explains Alzheimer’s dementia in kid-friendly terms. The book presents memory loss in an easy-to-understand narrative.
Boys and girls alike will benefit from this “must have” children’s read. Alzheimer's has an impact on families around the world. This book allows a family to face this challenge together and make the most of every available moment.
In Granny Needs My Help: A Child's Look at Dementia and Alzheimer's the main character Zéh is excited, happy, and challenged as she helps and…
Children’s stories about memory loss, Alzheimer’s, and dementia resonate with me because I know firsthand how difficult it is to care for someone with this disease. My Aunt Luella had Alzheimer’s, and I cared for her in my home. When my aunt no longer remembered me, my heart ached. I felt hopeless, afraid. I can only imagine how difficult it is for a child to watch as a beloved grandparent forgets them. I found these five books to be helpful and inspiring. They offer hope. They embrace the love that still exists.
Granny Can’t Remember Me is told through the child’s eyes. Six-year-old Joey talks about having two grandmas, one who lives in Florida, and one who lives a few blocks away.
His nearby Granny doesn’t remember him, but she does remember stories of when she was young, and when his mother was a child. Joey loves hearing her stories, and playing cards with her. He loves Granny and knows deep down that she loves him, too.
This story was written by a doctor whose mother and father-in-law both had Alzheimer’s. As I read it, I was reminded of my aunt who also had Alzheimer’s. She regaled me with tales of her youth but had no memories of her present. Children will relate to this story as it’s told from a child’s point of view.
Granny Can’t Remember Me is a lighthearted picture book about Alzheimer’s disease and dementia told from the perspective of a six-year-old boy, appropriate for children in preschool through early elementary school (ages 3 – 8). Granny can’t remember that Joey likes soccer and rockets and dogs. Granny can’t remember much of anything. But with Granny’s stories of her Three Best Days, Joey knows she loves him just the same.Alzheimer’s disease is more and more common, and many young children experience this sometimes scary and sad family situation. Granny Can’t Remember Me shows a boy’s acceptance and love for his grandmother…
Everybody knows that all animals—bats, bears, sharks, ponies, and people—start out as a single cell: the fertilized egg. But how does something no bigger than the period at the end of this sentence give rise to the remarkable complexity of each of these creatures?
By Andrew E. Budson and Maureen K. O'Connor
Author
Why are we passionate about this?
As a neurologist and neuropsychologist team who have spent their entire clinical, teaching, and research careers focused on individuals and their families experiencing memory loss, Alzheimer’s disease, and dementia, our goal is simple. We want to empower individuals and their families with the tools they need to manage memory loss, Alzheimer’s disease, and dementia. We work to balance pharmacological and nonpharmacological management, as well as the needs of the individual with those of their family. Reading books like the ones in our list plus articles in medical journals keeps us current with the progress in the science of dementia and the humanity of individuals and families living with the disease.
Now in its 7th edition, this book is the classic guide to caregiving for individuals with dementia. Comprehensive, and filled with stories and anecdotes, it is packed with valuable information on dementia and the behaviors that dementia engenders. We have read it several times and have recommended it to hundreds if not thousands of families.
With over 3.5 million copies sold, the bestselling guide to understanding and caring for people with dementia is now completely revised and updated!
For 40 years, The 36-Hour Day has been the leading work in the field for caregivers of those with dementia. Written by experts with decades of experience caring for individuals with memory loss, Alzheimer's, and other dementias, the book is widely known for its authoritativeness and compassionate approach to care. Featuring everything from the causes of dementia to managing its early stages to advice on caring for those in the later stages of the disease, it is…
As a practicing clinical psychologist, teacher of psychotherapy theory and technique, and author (Barbarians at the PTA, Madmen on the Couch, Money Talks) who writes about the psychopathology of daily life for various online and print publications, I am a participant in/observer of mom culture. I love a juicy mother-child story.
While Moriarity is known for Big Little Lies and more recent works, this earlier novel pulls no punches in telling the story of Alice, a perpetually dissatisfied and grumbling suburban mom who lives a comfortable and privileged life but feels chronically annoyed by the daily grind of parenting, household, volunteering, and keeping up with the competition.
Readers will recognize her descent into a rabbit hole fuelled by the stresses of competitive parenting. The jokes are sharp, characters relatable and the payoff of psychological growth makes for a worthwhile read.
From the bestselling author behind the addictive, award-winning HBO sensation BIG LITTLE LIES comes the compelling and thought-provoking story of love, life and memory
'Gripping, thought-provoking and funny' MARIE CLAIRE ______________
How can ten years of your life just disappear?
Alice is twenty-nine.
She adores sleep, chocolate, and her ramshackle new house.
She's newly engaged to the wonderful Nick, and is pregnant with her first baby. But there's just one problem.
That was ten years ago . . .
Alice slipped in her step-aerobics class, hit her head and lost a decade.
Ten-year-old me once looked in the bathroom mirror wondering who I would become. I tried to memorize the patterns in the tiles to hold on to that moment and carry it with me. My fascination with memory and the past permeates my novels. I love a good cold case—and my August Monet thriller trilogy is all about how the past weaves through the present—informing it, haunting it, transporting secrets. Maybe it’s our long, dark winters, but I see this same fascination in the novels of my fellow Canadian thriller writers. Many have created messy characters haunted by their messy pasts. Here’s a list of my favourites.
A thriller with a kick-ass premise: Chloe wakes up on the side of a highway not knowing who the heck she is or how she got there.
It’s a haunting, scary, unnerving story about a woman trying to figure out what could have happened to completely wipe out her memory. What I love about the novel is how Wong’s relentless pace matches lockstep with her protagonist’s frenzied and fractured state of mind.
Bits of the past begin to slip through the cracks as Chloe searches for the truth. I love that Wong chose to tell the story from Chloe’s POV so we’re only privy to what this messy character remembers—or chooses to tell us that she remembers. Twisted, damaged characters with secrets are my cup of tea.
“A chilling, nerve-jangling journey into lost memories and unforgettable terrors. Sandra Wong knows what scares us all—and what we can never forget.” —Tess Gerritsen, New York Times–bestselling author of Listen to Me
A jolting psychological suspense novel from an up-and-coming Chinese-Canadian crime writer about missing parents, a winning lottery ticket and the lies we tell ourselves in order to survive.
Some things are better left forgotten . . .
When a woman wakes up with amnesia beside a mountain highway, confused and alone, she fights to regain her identity, only to learn that her parents have disappeared—not long after her…
After Dr. Shawn Jennings, a busy family physician, suffered a brainstem stroke on May 13, 1999, he woke from a coma locked inside his body, aware and alert but unable to communicate or move. Once he regained limited movement in his left…
As we watch the news–the increasing number of earthquakes, volcanoes, wars, inflation, the rapid progress of AI, unelected elites deciding they know best for the world, and more–we don’t know how to process it all, and it leaves us feeling anxious. My passion for helping my readers not just escape but actually live better fuels me. I created this retelling of the Book of Revelations from the POV of celestial warriors and fallen angels in the unseen realms of our world to allow my readers to “make more sense” of the world and be at peace.
Talk about crazy experiments! Maze Runner is an epic quest combined with a nod to those who love solving puzzles on steroids. This is truly an end-of-the-world scenario, or I surely hope it is. While I can see some mad scientists excited about such an experiment today, it is still frowned upon. Thank goodness. But Maze Runner explores “science” gone rogue.
Indifference again plays a central role in the plot as those outside the experiment use a variety of psychological warfare techniques to keep the participants engaged in the game. The reader feels sorry for them having to overcome everything that’s thrown at them or die. I loved how the group of teens had to work together to figure out what was going on and then face the difficulty of extracting themselves from the maze. Ultimately, I loved that friendship and working together triumphed at the end of the day.
The first book in the New York Times bestselling Maze Runner series - now a series of major movies starring Dylan O'Brien!
SEE THE FILMS. READ THE BOOKS. ENTER THE MAZE ...
When the doors of the lift crank open, the only thing Thomas remembers is his first name. But he's not alone.
He's surrounded by boys who welcome him to the Glade - a walled encampment at the centre of a bizarre and terrible stone maze. Like Thomas, the Gladers don't know why or how they came to be there - or what's happened to the world outside.
