100 books like The Space Between Lost and Found

By Sandy Stark-McGinnis,

Here are 100 books that The Space Between Lost and Found fans have personally recommended if you like The Space Between Lost and Found. Shepherd is a community of 11,000+ authors and super readers sharing their favorite books with the world.

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Book cover of Hour of the Bees

Carla Kessler Author Of Terracolina: A Place to Belong

From my list on where kids who believe in nature make a difference.

Why am I passionate about this?

As a child, one of my favorite places was in the top branches of a tree. From up there I could watch the world pass by, remaining invisible. I could make up stories about the world below and no one would challenge me. The second best place for me was inside the story of a book, the kind that took you to magical places where children always found a way to win the day. I knew when I “grew up” I would write one of those empowering books. I became a middle school teacher and have since read many wonderful books for this age. Enjoy my list of favorites.  

Carla's book list on where kids who believe in nature make a difference

Carla Kessler Why did Carla love this book?

Carolina walks a fine line between reality and magic, a state of mind many a struggling child understands.

Stuck with her grandfather, whose mind is failing, she finds a special connection to the fantastical stories he tells of a lake and bees and a tree, all connected with love of family and one’s roots. She forms a special bond with her “crazy” grandfather.

His stories about the tree with the magical power to bring people back together especially rings true. Who doesn’t believe in the magic of trees, especially old trees with deep roots (I still do). When Carolina rescues her grandfather from the old folks home and convinces her parents not to sell the family ranch, everything comes together.

Reality and magic really do belong together.

By Lindsay Eagar,

Why should I read it?

4 authors picked Hour of the Bees as one of their favorite books, and they share why you should read it. This book is for kids age 10, 11, 12, and 13.

What is this book about?

A beautifully written debut novel that weaves together magic and reality, about a girl's relationship with her mentally ill grandfather.

This powerful debut novel delicately blurs the line between truth and fiction as Carol unravels the fantastical stories of her mentally ill grandfather. When she and her family move to his deserted ranch in order to transfer him to a care home, Carol struggles to cope with the suffocating heat and the effects of her grandfather's dementia. Bees seem to be following her around, but the drought means this is impossible. She must be imagining things. Yet when her grandfather…


Book cover of Forever This Summer

Shannon Wiersbitzky Author Of What Flowers Remember

From my list on when a loved one has Alzheimers dementia.

Why am I passionate about this?

The inspiration to write about Alzheimer’s came from my own life. My grandfather had the disease. He and I were very close and it broke my heart when I realized I’d been forgotten. He only remembered my voice, that it sounded like a little girl he used to know. I wanted to capture the truth of that in a story. Sadly, dementia is so common, but for some reason, we don’t talk about Alzheimer’s as openly as we do other diseases. Kids need to be able to have everyday conversations about what they might be experiencing in regards to whomever they know with the disease. My hope is that books like Flowers can help.

Shannon's book list on when a loved one has Alzheimers dementia

Shannon Wiersbitzky Why did Shannon love this book?

Forever This Summer is a lovely tale about the power of a family coming together in a tough time. Georgia, her Mama, and the happenings in and around the Sweetings Family Diner are relatable. As Georgia and her Mama look to help Aunt Vie, who is suffering from Alzheimer’s, she learns her own family history. It’s a different take on the notion of memories. Aunt Vie’s memories are disappearing and being replaced by those of Georgia’s as she visits the people and places that made the women in her life who they are. 

By Leslie C. Youngblood,

Why should I read it?

1 author picked Forever This Summer as one of their favorite books, and they share why you should read it. This book is for kids age 8, 9, 10, and 11.

What is this book about?

Georgie has no idea what to expect when she, Mama, and Peaches are plopped down in the middle of small town USA--aka Bogalusa, Louisiana--where Mama grew up and Great Aunt Vie needs constant care.

Georgie wants to help out at the once famous family diner that served celebrities like the Jackson 5 and the Supremes, but everyone is too busy to show her the ropes and Mama is treating her like a baby, not letting her leave her sight. When she finally gets permission to leave on her own, Georgie makes friends with Markie--a foster kid who'd been under Aunt…


Book cover of Sticky Notes

Shannon Wiersbitzky Author Of What Flowers Remember

From my list on when a loved one has Alzheimers dementia.

Why am I passionate about this?

The inspiration to write about Alzheimer’s came from my own life. My grandfather had the disease. He and I were very close and it broke my heart when I realized I’d been forgotten. He only remembered my voice, that it sounded like a little girl he used to know. I wanted to capture the truth of that in a story. Sadly, dementia is so common, but for some reason, we don’t talk about Alzheimer’s as openly as we do other diseases. Kids need to be able to have everyday conversations about what they might be experiencing in regards to whomever they know with the disease. My hope is that books like Flowers can help.

Shannon's book list on when a loved one has Alzheimers dementia

Shannon Wiersbitzky Why did Shannon love this book?

Sticky Notes centers on a parent who has early-onset Alzheimer’s and is told from the perspective of a 10-year-old boy, Foster. The voice is a genuine one and the writing is heartfelt, as Foster compares his own forgetting to Dad’s forgetting and sometimes convinces himself that there is no need to worry. The confusion and lack of clear discussion with Foster about what is happening is a real challenge for many dealing with the disease. As the forgetting gets worse and Dad begins to change, Touchell documents the family changes that Foster and his mother go through too, with a sensitive touch. 

By Dianne Touchell,

Why should I read it?

1 author picked Sticky Notes as one of their favorite books, and they share why you should read it. This book is for kids age 9, 10, 11, and 12.

What is this book about?

For fans of The Thing About Jellyfish, a touching story about the power of love and family in the face of a parent's early-onset Alzheimer's disease.

Ten-year-old Foster has always loved listening to his dad's stories. But lately, Dad's memory hasn't been so great, and Mom's placed sticky notes around the house to help him. As Dad's condition worsens, it's Foster who will need to look deep into his heart and remember for them both.

Sticky Notes is a touching story about the power of love and family in the face of a parent's Alzheimer's disease, and a moving reminder…


Book cover of Pop

Shannon Wiersbitzky Author Of What Flowers Remember

From my list on when a loved one has Alzheimers dementia.

Why am I passionate about this?

The inspiration to write about Alzheimer’s came from my own life. My grandfather had the disease. He and I were very close and it broke my heart when I realized I’d been forgotten. He only remembered my voice, that it sounded like a little girl he used to know. I wanted to capture the truth of that in a story. Sadly, dementia is so common, but for some reason, we don’t talk about Alzheimer’s as openly as we do other diseases. Kids need to be able to have everyday conversations about what they might be experiencing in regards to whomever they know with the disease. My hope is that books like Flowers can help.

Shannon's book list on when a loved one has Alzheimers dementia

Shannon Wiersbitzky Why did Shannon love this book?

This book is also from a boy’s vantage point, and with a twist, dementia that is a result of too many concussions in the game of football. When Marcus moves to a new town, he befriends Charlie, an ex-NFL’er who mistakenly believes Marcus is a college buddy. Lots of themes come together in this story; family secrecy, a desire to fit in, and even the line between right and wrong depending on the motivation. This book doesn’t shy away from tough topics, including the idea that some people, if given the choice, would choose to die rather than live with the disease. 

By Gordon Korman,

Why should I read it?

1 author picked Pop as one of their favorite books, and they share why you should read it. This book is for kids age 12, 13, 14, and 15.

What is this book about?

Pop delivers suspense, humor, sports action, and a compelling look at the damage those "pop"s in football can cause

Gordon Korman's books appeal to a wide range of kids and adults and can pull in even reluctant readers. Share Pop in your home or classroom; sports fans in particular won't be able to put it down.

When Marcus moves to a new town in the dead of summer, he doesn't know a soul. While practicing football for impending tryouts, he strikes up a friendship with a man named Charlie, the best football player Marcus has ever seen. He can't believe…


Book cover of Never Coming Back

Ellen Barker Author Of East of Troost

From my list on dogs as supporting characters.

Why am I passionate about this?

Dogs make great supporting characters, adding drama or humor or pathos, and revealing so much about the humans in the story. I discovered this in writing my first novel: The narrator’s dog keeps her grounded when things go wrong and makes it possible for her to keep going through difficult times. For the reader, he provides levity and depth without turning it into a book about a dog. I had a great model – I used my own dog Boris, even appropriating his name. I think of the fictional Boris as real-life Boris’s best self.

Ellen's book list on dogs as supporting characters

Ellen Barker Why did Ellen love this book?

I loved everything about this book, from the story arc to Alison McGhee's turn of phrase and use of language.

Her descriptions of people and scenes range from hilarious to tear-inducing, with a side of quirky.

The best thing, though, is the story itself, Clara going back to the place she was never going back to, and dealing not only with her mother's dementia but with the things that made her leave town in the first place.

In this story, the dog is named Dog and he died before the story begins. The blue ceramic urn with his ashes is one of the very few things her mother kept for her – a talisman.

Soul-searching, gripping, and so very well written, this is one of my favorite books of this century. 

By Alison McGhee,

Why should I read it?

1 author picked Never Coming Back as one of their favorite books, and they share why you should read it.

What is this book about?

“[A] poignant meditation on the relationship between a mother and daughter” from the New York Times bestselling author of Shadow Baby (Publishers Weekly).
 
When Clara Winter left her rural Adirondack town for college, she never looked back. Her mother, Tamar, a fiercely independent but loving woman who raised Clara on her own, all but pushed her out the door, forcing Clara to build a new life for herself, far from her roots, far from her high school boyfriend, far from the life she had always known. Now more than a decade has passed, and Clara, a successful writer, has been…


Book cover of In Pursuit of Memory: The Fight Against Alzheimer's

Sandeep Jauhar Author Of My Father's Brain: Life in the Shadow of Alzheimer's

From my list on the complexities of Alzheimer's and dementia.

Why am I passionate about this?

For nearly 7 years I watched my father decline from Alzheimer’s. It was perhaps the most difficult journey I’ve ever taken. My book, My Father’s Brain, is a memoir of my relationship with my father as he succumbed to his disease, but it is also a scientific and historical inquiry into the fragility of the brain. In the book, I set my father’s descent into dementia alongside my own journey, as a doctor, writer, and son, toward understanding this mysterious and devastating disease.

Sandeep's book list on the complexities of Alzheimer's and dementia

Sandeep Jauhar Why did Sandeep love this book?

A British neuroscientist, Jebelli travels around the world to discover the latest in dementia research.

He goes to Papua New Guinea, Japan, India, and China to learn about experimental (but mostly futile) treatments, including stem cells, blood transfusions and repurposed cancer drugs.

In the end, he acknowledges how little medicine currently has to offer patients living with dementia, even as he holds out hope (far-fetched, in my view) for a cure in 10 years.

By Joseph Jebelli,

Why should I read it?

1 author picked In Pursuit of Memory as one of their favorite books, and they share why you should read it.

What is this book about?

For readers of Atul Gawande, Siddhartha Mukherjee, and Henry Marsh, a riveting, gorgeously written biography of one of history's most fascinating and confounding diseases -- Alzheimer's -- from its discovery more than 100 years ago to today's race towards a cure.

Alzheimer's is the great global epidemic of our time, affecting millions worldwide -- there are more than 5 million people diagnosed in the US alone. And as our population ages, scientists are working against the clock to find a cure.

Neuroscientist Joseph Jebelli is among them. His beloved grandfather had Alzheimer's and now he's written the book he needed…


Book cover of Stammered Songbook: A Mother's Book of Hours

Nicci Gerrard Author Of The Last Ocean: What Dementia Teaches Us about Love

From my list on explore dementia and the mystery of the human mind.

Why am I passionate about this?

I am a novelist, a journalist, a humanist celebrant, and coauthor with my husband of the best-selling Nicci French thrillers. Witnessing my father’s dementia and his slow-motion dying radically transformed the way I think about what it is to be human. In 2014, I founded John’s Campaign which seeks to make the care of those who are vulnerable and powerless more compassionate, and which is now a national movement in the UK. In 2016, I won the Orwell Prize for Journalism for ‘exposing Britain’s social evils' in the pieces I wrote exploring the nature of dementia.

Nicci's book list on explore dementia and the mystery of the human mind

Nicci Gerrard Why did Nicci love this book?

Erwin Mortier is a poet, and this slim, intense volume is a haunting memorial to his mother in her final months. She died of early-onset dementia, and Mortier struggles to find adequate words for a condition that is profoundly connected to the failure of language and the connection of the self to the world.

By Erwin Mortier, Paul Vincent (translator),

Why should I read it?

1 author picked Stammered Songbook as one of their favorite books, and they share why you should read it.

What is this book about?

'My mother, a house that is slowly collapsing, a bridge dancing to a tremor.'

It started when she could no longer remember the word for 'book'. Then her mind, her language and her identity began to slip away.

This is Erwin Mortier's moving, exquisitely observed memoir of his mother's descent into dementia, as a once-flamboyant woman who loved life and pleasure becomes a shuffling, ghostlike figure wandering through the house. Piecing together the fragments of her lost life, and his own childhood, Mortier asks: what do we become when we lose the repertoire of habits and words that make us…


Book cover of Green Vanilla Tea: One Family's Extraordinary Journey of Love, Hope, and Remembering

Ann Campanella Author Of Motherhood: Lost and Found: A memoir

From my list on inspiring memoirs about Alzheimer’s and Dementia.

Why am I passionate about this?

An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.   

Ann's book list on inspiring memoirs about Alzheimer’s and Dementia

Ann Campanella Why did Ann love this book?

As a writer and lover of memoir myself, the fact that I still remember how I felt after reading Green Vanilla Tea the first time, says a lot. The tremendous sadness of the book is woven so tightly with the love and appreciation of family in this book, I felt transported. Marie Williams shares the tragic story of her husband’s frontal temporal dementia as they are raising two teenage boys. Her beautiful prose describes a journey that is messy, tender, and sacred. This book changed my concept of love – stretching and renewing me!

By Marie Williams,

Why should I read it?

1 author picked Green Vanilla Tea as one of their favorite books, and they share why you should read it.

What is this book about?

Green Vanilla Tea is a true story of love and courage in the face of a deadly and little understood illness. With literary finesse, compassion, and a powerful gift of storytelling, Marie Williams writes poignantly of her husband Dominic’s struggles with early onset dementia and amyotrophic lateral sclerosis (ALS) at the age of 40, and how their family found hope amidst the wreckage of a mysterious neurological condition.
 
As the condition develops and progresses, the normally devoted family man and loving partner seems to disappear beneath an expressionless facade, erratic behavior, and a relentless desire to wander that often leaves…


Book cover of Leaving Tinkertown

Ann Campanella Author Of Motherhood: Lost and Found: A memoir

From my list on inspiring memoirs about Alzheimer’s and Dementia.

Why am I passionate about this?

An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.   

Ann's book list on inspiring memoirs about Alzheimer’s and Dementia

Ann Campanella Why did Ann love this book?

Leaving Tinkertown is a romp of a memoir that takes the reader behind the scenes of Tinkertown, her father’s colorful roadside attraction in New Mexico. As Ross Ward descends into Alzheimer's, we learn what it was like growing up with this man and how Tanya’s complicated but tender history with him both repels and pulls her back home. Tanya’s writing is gorgeous, and this memoir is both vivid and heartbreaking! It’s a story you won’t soon forget.

By Tanya Ward Goodman,

Why should I read it?

1 author picked Leaving Tinkertown as one of their favorite books, and they share why you should read it.

What is this book about?

When Tanya Ward Goodman came home to New Mexico to visit her dad at the end of 1996, he was fifty-five years old and just beginning to show symptoms of the Alzheimer's disease that would kill him six years later. Early onset dementia is a shock and a challenge to every family, but the Wards were not an ordinary family. Ross Ward was an eccentric artist and collector whose unique museum, Tinkertown, brought visitors from all over the world to the Sandia Mountains outside Albuquerque. In this book Tanya tells Ross's story and her own, sharing the tragedy and the…


Book cover of Finding the Right Words: A Story of Literature, Grief, and the Brain

Jason Karlawish Author Of The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease Into a Crisis and What We Can Do about It

From my list on making sense of Alzheimer’s disease and dementia.

Why am I passionate about this?

I’m a physician and a writer. Together, they create a matrix of practice, research, and writing. I care for patients at the Penn Memory Center and am a professor at the University of Pennsylvania, where I teach and study topics at the intersections of bioethics, aging, and the neurosciences. I wrote The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It and the novel Open Wound: The Tragic Obsession of Dr. William Beaumont and essays for The New York Times, The Washington Post, Forbes, The Hill, STAT, and The Philadelphia Inquirer. I raise whippets, and I’m a passionate reader of the physician and poet John Keats. 

Jason's book list on making sense of Alzheimer’s disease and dementia

Jason Karlawish Why did Jason love this book?

This book is a kind of detective story. It returns to the scene of a long-ago committed crime, namely the incomplete diagnosis and substandard care Jerry Weinstein received in an indifferent health care system and a culture haunted by stigmas. The authors are a masterful team. Bruce Miller is a neurologist at the University of California, San Francisco’s Memory and Aging Center. He’s a widely-recognized expert in the diagnosis and classification of neurodegenerative diseases. Cindy Weinstein is a professor of English literature who focuses on the 19th century American novel. Weinstein’s expertise is Herman Melville, the master of narratives of dissection.

Jerry, Cindy’s father, died in 1997 after a years-long struggle with an inadequately diagnosed and neglected dementia. Together, physicians and literary scholars reconstruct what happened. By putting words to the problem, they make sense of what was painful nonsense. This is the book to understand the value of…

By Cindy Weinstein, Bruce L. Miller,

Why should I read it?

1 author picked Finding the Right Words as one of their favorite books, and they share why you should read it.

What is this book about?

The moving story of an English professor studying neurology in order to understand and come to terms with her father's death from Alzheimer's.

In 1985, when Cindy Weinstein was a graduate student at UC Berkeley, her beloved father, Jerry, was diagnosed with early-onset Alzheimer's disease. He was fifty-eight years old. Twelve years later, at age seventy, he died having lost all of his memories-along with his ability to read, write, and speak.

Finding the Right Words follows Weinstein's decades-long journey to come to terms with her father's dementia as both a daughter and an English professor. Although her lifelong love…


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