The most recommended books about leprosy

There’s a serene, almost dreamlike quality to The Samurai’s Garden which drew me in right away.

On the eve of WWII, a young man recovering from tuberculosis spends the year at his family’s summer home in Japan. There are actually two gardens in the story: one is the lush green one at his home, and the other is a stone garden in the pine forests, tended by Sachi, a woman who has lived with leprosy for decades.

Though both gardens lead to transformation, Sachi’s garden in particular teaches the narrator that as long as there is beauty in the world, there is life. I loved this novel’s luminous writing and vivid sense of place. It’s a beautiful testament to human loyalty and the healing power of nature.

I have read a lot of history and archaeology books and more often than not they can be a little dull, dry and in some cases work better than a sleeping tablet.

Not with this book, here you learn about parts of medieval England you just wouldn’t think about, written from a more personal point of view its less about political stuff like kings, queens, and those pesky archbishops and much more on the practicalities of living in medieval England.

Would you know what to eat, wear, or where to go to the toilet? Would you know how to address a lord or lady? Would you know what to do if you got sick? This is a vital guide for all time travelers!

A tropical forest in Africa is the epicentre of a bizarre and very troubling phenomenon. Through a sort of “leak” in space-time, everything is slowly turning to crystal, and this “disease” will eventually seep out into the rest of the world. An English doctor goes on an Apocalypse Now-style journey into the forest to try and understand. Ballard’s sci-fi classic is as weird and thought-provoking as always, and the forest itself is a palpable presence throughout. 

Amanda Skenandore’s beautiful and insightful novel about a silent film star who was sent to live in a Louisiana Leper Colony in the 1920s. The book is rich and full of surprising historical details. While it might seem like a downer – it is funny and heartwarming, with a beautiful coming-of-age story and romance at its heart.  Absolutely fascinating.

Ellis Peters—the penname of Edith Pargeter—wrote eighteen Brother Cadfael mysteries as well as a set of Inspector Felese Mysteries and a separate Trilogy.

All her stories take place during the twelve years when two English monarchs (King Steven and his cousin the Empress Maud) are fighting each other for the throne. Brother Cadfael is a monk who lives in the Abbey of Shrewsbury. A marriage has been arranged between an aging nobleman and a young woman (Iveta, a wealthy heiress), coerced by her greedy guardians. Both parties arrive at the Abbey where the wedding is to take place.

Unbeknownst to her guardians, Iveta has fallen in love with Joscelin, a squire to the bridegroom (Picard). The night before the wedding, Picard goes to visit his long-held mistress and on his return to the Abbey, he is killed. Joscelin is immediately suspected and hunted by the sheriff and his men. He… show more.

I met Alan Brennert at a book reading and have been a fan ever since. Molokai is the Hawaiian island where lepers were isolated below towering cliffs. The saga of the colony, Kalaupapa, is revealed by Rachel Kalama, a little Hawaiian girl diagnosed with leprosy in 1892. Wrenched from her home, she is quarantined on Kalaupapa. In spite of this tragic life Rachel survives and forms friendships among the memorable, ostracized characters. She grows up and even marries; in 1940 a cure is found.

Ohana, family, is a recurring theme as the residents make their own connections. As a frequent visitor to Hawaii, I’ve come to love not just the setting but respect the culture. I found this to be a beautifully written, engrossing story.

Have your tissues ready!

Alexis, a present-day heroine, travels to her mother’s childhood home in Greece, intent upon learning the family’s hidden story. Arriving there, she spies the island of Spinalonga, once an actual leper colony. Hislop then switches time periods, taking the reader to the mid-twentieth century, when leprosy and war tore families apart.

I found Hislop’s writing gentle yet wrenching, and I was heartbroken by scenes between mothers and children who had to separate forever due to illness. But I was moved, too, by the strength, resilience, and capacity for love shown by many of the characters.

I enjoy novels that are based on history, with protagonists who are tested to their very limits. I won’t soon forget this book, and I bet you won’t either!

Graham Greene is considered by many to be the acknowledged master of expat tales. This is actually one of his lesser-known novels. It tells the story of Querry, an internationally famous architect suffering from terminal ennui. Life no longer holds meaning for him, or even pleasure. He takes a boat up river in Africa to its last stop, a leper village in the Congo. There, he attempts to lose himself by helping the indigenous afflicted, and in so doing begins to cure his own ills as well. But fate and the white community can’t let well enough alone. 

This book begins with a broken and scorned man, his world having come apart at the seams after contracting leprosy.

Donaldson’s craft at portraying Covenant’s bitterness and vitriol toward life because of his plight is a palpable thing. When Covenant is transported to “The Land” by the magic of his wedding ring, which he refuses to part with despite the emotional pain it engenders, he is hailed as the second coming of Berek Halfhand, a legendary figure in this realm he considers to be a dream.

Such is his weakness, confusion, and rage at his plight in the real world, that when he begins to be healed by the natural powers of “The Land,” he ravages the people around him, even as they push him toward their belief that he is there to save them from The Despiser.

This is the first in Antonia Hodgson’s so-good-you-could-eat-it Thomas Hawkins series. It’s set in London in 1727 and the plot revolves around a likeable rake, Hawkins, whose dedication to dice, booze, and women leads him to ruin – but with the help of others. Finding himself in the notorious Marshalsea Prison – think Alcatraz but without the water and with leprosy and lice instead – and you have the makings of a wonderful prison-break type story. Hodgson’s characters – Hawkins, but also his love interest, Kitty Sparks – aren’t just alive but bring the past alive with them. It’s like Henry Fielding’s Tom Jones with the vividness of the Sixties, but then, if you know anything about eighteenth-century London, you’ll know that it was pretty wild place. This, after all, was long before the Victorians came along with their rather puritan social mores.

The Chronicles of Thomas Covenant the Unbeliever is a fantastic tale of two worlds. There is the Land, a mystical place of good versus evil, with inhabitants who use supernatural means to summon help against the darkness, and our world where the writer Thomas Covenant lives as an outcast to keep his leprosy in remission and to avoid his hostile neighbors. When he is magically transported to the Land and its people beg him to fight the evil for them, he refuses, believing it is a suicidal delusion that will reactivate his disease and kill him. The troubled hero Covenant could not be more compelling, or his dilemma better written, especially as the true-blue inhabitants of the Land struggle to understand why he can’t do the right thing.

Also published in 1893, the same year as Chekhov’s Sakhalin Island. Marsden, a London-born nurse, found her vocation tending to sick and abandoned Russians. The book offers a remarkable portrait of the remotest reaches of the Russian Empire, as well as the author’s indomitable spirit.

I love the unexpected beauty and horror of this book which is a collection of stories and a novella. The title also made me wonder, how do you escape a leper colony? Author Tiphanie Yanique is a Caribbean writer whose stunningly poetic voice haunted me long after I finished reading her book. As I read it, I imagined the narrator's Caribbean accent soaking into every syllable. In the key short story, Yanique sets us down in a leper colony on a deserted island for the dying and yet manages to leave room for the miraculous as well. Describing one leper she says, "And when a man with no hands claims that he can fly, you listen."

This is one of my all-time favorite books! Raised in India by missionary parents, Dr. Brand saw firsthand the effects of leprosy on the body. He trained as a doctor in England and returned to India where he pioneered the concept of the “gift of pain”—the idea that lepers’ “rotting” extremities resulted from the loss of sensation and subsequent infection, not the disease itself. A renowned surgeon, he was the first in the world to use reconstructive surgery on lepers, techniques he later applied to diabetics.

The book goes through the body, system by system, relating the physical body to the body of Christ. My favorite parts are Dr. Brand’s vivid stories of treating the “outcasts” society shuns but God does not.