Here are 100 books that The Conscious Caregiver fans have personally recommended if you like
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I was first a clinical social worker and then a social work professor with research focus on older adults. Over the past few years, as I have been writing my own memoir about caring for my parents, I’ve been drawn to memoirs and first-person stories of aging, illness, and death. The best memoirs on these topics describe the emotional transformation in the writer as they process their loss of control, loss of their own or a loved one’s health, and their fear, pain, and suffering. In sharing these stories, we help others empathize with what we’ve gone through and help others be better prepared for similar events in their own lives.
This graphic memoir by Roz Chast is one of my favorite books of all time. I completely relate to the story, which focuses on Chast’s relationship with her parents as they age and become less capable of managing independently.
The book depicts her repeated efforts to coax her parents to face the reality of their aging and failing health as she gradually does more and more to help them, a situation I’m very familiar with and wrote about in my recent memoir. As an only child (like me), she must deal with every crisis and decision.
Her drawings add humor and emphasis to the story, but the prose alone vividly portrays her frustrations and heartbreak as Chast faces complication after complication and loss after loss in her parents’ final few years.
#1 New York Times Bestseller 2014 National Book Award Finalist Winner of the inaugural 2014 Kirkus Prize in nonfiction Winner of the National Book Critics Circle Award Winner of the 2014 Books for a Better Life Award Winner of the 2015 Reuben Award from National Cartoonists Society
In her first memoir, New Yorker cartoonist Roz Chast brings her signature wit to the topic of aging parents. Spanning the last several years of their lives and told through four-color cartoons, family photos, and documents, and a narrative as rife with laughs as it is with tears, Chast's memoir is both comfort…
During my decades of working with caregivers as a dementia care expert, I have heard many accounts of what the experience is like—from the sad and hollow to experiences rich in significance. Everyone faces obstacles when caring for a loved one; some of these obstacles come in the form of uncomfortable or painful emotional histories or past unresolved conflicts. After each opportunity to raise awareness and understanding about how dementia impacts individuals, their families, and their communities, I have been gratified to witness enhanced feelings of hope and comfort for all involved. It is my hope that through this book I will enter your home or your professional caregiving setting and work alongside you.
The 36-Hour Day is a comprehensive guide for caregivers that is often recommended by physicians to the families caring for a loved one with any cause of dementia symptoms or cognitive decline. I found the information provided very practical on the medical, legal, financial, and emotional aspects of caring for an individual presenting any level of dementia symptoms.
The clinical insights provided were very helpful, and the information for the caregiver throughout on the value of accessing outside help is such an important reminder for them to not try and navigate this dementia care journey alone!
Combining practical advice with specific examples on how to cope with the challenges associated with caring for a loved one with dementia symptoms make this an excellent guide for the family caregiver.
Through five editions, The 36-Hour Day has been an essential resource for families who love and care for people with Alzheimer disease. Whether a person has Alzheimer disease or another form of dementia, he or she will face a host of problems. The 36-Hour Day will help family members and caregivers address these challenges and simultaneously cope with their own emotions and needs. Featuring useful takeaway messages and informed by recent research into the causes of and the search for therapies to prevent or cure dementia, this edition includes new information on * devices to make life simpler and safer…
I have been a medical social worker for over 40 years working with people who have had a catastrophic illness. I counseled them and their family members. Because of this experience, I have a lot of knowledge, experience, and training regarding the challenges caregivers face. In addition, I was the primary caregiver for my parents and helped take care of 2 friends helping them to die with dignity. Finally, I am the author of an 8-time award-winning book called Role Reversal How to Take Care of Yourself and Your Aging Parents. I have written hundreds of articles on health-related topics including aging and caregiving.
Virginia Morris has been a leading expert in the field of aging and caregiving. I have high respect for her experience and her work. This book is a comprehensive guide that explores emotional, psychological, and physical challenges that arise when the ultimate role reversal happens. It is a difficult transition for all concerned and this resource offers great information, tips, and scenarios that will resonate with all caregivers.
The book that answers all the questions you hoped you’d never have to ask.
Hailed as “an excellent resource” by the Family Caregiver Alliance, How to Care for Aging Parents is an indispensable source of information and support.
Now completely revised and updated, this compassionate, comprehensive caregiver’s bible tackles all the touch subjects, from how to avoid becoming your parent’s “parent,” to understanding what happens to the body in old age, to getting help finding, and paying for, a nursing home.
When love is not enough—and regrettably, it never is—this is the essential guide.
Who Will Take Care of Me When I'm Old?
By
Joy Loverde,
Everything you need to know to plan for your own safe, financially secure, healthy, and happy old age.
For those who have no support system in place, the thought of aging without help can be a frightening, isolating prospect. Whether you have friends and family ready and able to help…
I have been a medical social worker for over 40 years working with people who have had a catastrophic illness. I counseled them and their family members. Because of this experience, I have a lot of knowledge, experience, and training regarding the challenges caregivers face. In addition, I was the primary caregiver for my parents and helped take care of 2 friends helping them to die with dignity. Finally, I am the author of an 8-time award-winning book called Role Reversal How to Take Care of Yourself and Your Aging Parents. I have written hundreds of articles on health-related topics including aging and caregiving.
Rick Lauber is another caregiving expert that I turn to for information and advice when I was a caregiver. This book is jam-packed with practical guidelines, tips, and resources for caregivers. It helps caregivers assess their needs and what care options are available to them as they care for the needs of their loved one changes and their ability to be a caregiver also changes.
You may be among the tens of millions of Americans who provide care for your parent — or you may be among the ten of millions who will. So many children are caught unprepared when physical and mental health declines in aging parents. Life cannot readily prepare you to furnish excellent eldercare while balancing the demands on your time. This book provides practical tips, realistic guidance, encouragement and insight into the time ahead. Among other things, it answers: • How do you decide when your parent stays at home or moves to assisted living? • What should you expect when…
My mom was an anthropologist, and when I was two, she took me to Sri Lanka, the island off the tip of India. After years of insisting that I wanted nothing to do with any social science, let alone anthropology, I ended up in graduate school studying… anthropology. Long story. Having taken up the family mantel, I returned to the village where I lived as a child and asked what had changed in the intervening years. Since then, my Sri Lankan interlocutors have suggested book topics that include labor migration, the use and abuse of alcohol, the aftermath of the Indian Ocean Tsunami, and the challenges of aging.
When American families hire “market proxies” to do care work, it leads to all sorts of tangled relationships. In this book, Cati Coe explores the experiences of immigrant Ghanaian home health workers in the US. Care work, although often monotonous and difficult, is also incredibly intimate, meaningful, and personal. These migrants provide crucial services for American elders, but many of them feel so unwelcome that they return to Africa when they retire. I love the gritty details that this book provides as it explores the paradoxes of discrimination and exploitation that Black African women face in the care work industry. If you like this book as much as I do, consider reading Coe’s subsequent book, which follows retired Ghanaian care workers back to Africa.
Finalist, 2020 Elliott P. Skinner Award, given by the Association of Africanist Anthropology
Examines why African care workers feel politically excluded from the United States
Care for America's growing elderly population is increasingly provided by migrants, and the demand for health care labor is only expected to grow. Because of this health care crunch and the low barriers to entry, new African immigrants have adopted elder care as a niche employment sector, funneling their friends and relatives into this occupation. However, elder care puts care workers into racialized, gendered, and age hierarchies, making it difficult for them to achieve social…
I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.
Caring for an aging relative is an incredible honor and, let’s be honest, an incredible burden. When I became the caregiver for an elder cousin, this book gave me the information and tools I needed to get him the best care possible and then, in the end, to spring him from the hospital so he could die at home, as he wished.
This is very much a medical guide written by a physician specializing in geriatrics and palliative care, and I love the detail she provides on both chronic and acute illnesses, as well as how to choose a care facility.
An indispensable, comprehensive reference for family caregivers.
Caregivers hold the key to the health, well-being, and happiness of their aging relatives, partners, or friends. The Caregiver's Encyclopedia provides you with all of the information you need to take the best care of your loved one-from making major medical decisions to making sure you don't burn out.
Written by Muriel R. Gillick, MD, a geriatrician with more than 30 years' experience caring for older people, this book highlights the importance of understanding your friend's or family member's overall health. With compassion and expertise, this book will help you "think like a…
My book is fantastical historical fiction about two characters who're wrestling with the monstrosity of their grief.
It takes you into London high society, where Ambrose tries to forget about how much he misses Bennett and how much he dreads becoming as cold as their Grandfather. It takes you to…
With more than 6-million Americans living with Alzheimer’s, my story is a shared narrative. Because reading creates empathy, I work to widen the perspective of my writing and include voices different from my own. Thanks to neuroplasticity, healthy brains have the ability to keep changing and learning. Each one of these books offers a helpful nudge in a new direction. My essays and articles have appeared in numerous publications including the Washington Post, Luxe, and Variable West, and are listed as notable in the 2019 Best American Science and Nature Writing. I’m currently at work on a second memoir about motherhood and the way travel cultivates a willing acceptance of uncertainty.
I was a new mother when I read this Alzheimer’s memoir and immediately felt that I’d found a friend. Elizabeth Cohen is funny, lyrical, and sometimes (understandably) frustrated as she takes on the bruising balance of managing a career while simultaneously caring for her aging father and her young daughter. The book is a testimony to the healing power of story and provided a valuable model to me as I sought to make sense of my own family experience by committing my memories to the page.
'Daddy walks around, dropping pieces of language behind him, the baby following, picking them up. He asks for 'the liquid substance from the spigot'. She asks for 'wawa'. He wants a tissue to wipe his 'blowing device'. She says 'Wipe, Mummy' and points to her runny nose. The brain of my father and the brain of my daughter have crossed. On their ways to opposite sides of life, they have made an X-On his way out of life, Daddy has passed her the keys.' Soon after her daughter's first birthday, her husband walked out of their rambling old house in…
I founded the All-Weather Friend, which is about helping friends get through difficult situations. My first book, Alzheimer’s: A Crash Course for Friends and Relatives, tells how to help people living with dementia. I’ve had hard times in my life—my husband’s brain tumor and suicide, my father’s dementia, infertility, miscarriage, my brother’s sudden death, and other things that flooded me with grief. But my life is filled with joy; I’ve learned that joy comes from God and from a compassionate connection with friends and people we love. I write and speak about “informed compassion.” I hope you’ll visit my website, where there’s a great dementia resource page with contributions by many readers.
The author, a retired bishop and professor emeritus
at Duke Divinity School, has not only written this book to tell about his
journey as a caregiver to his wife, who died of frontotemporal lobe dementia, but also provides (free of charge) a set of truly excellent companion videos
churches can use to educate their congregations about dementia.
Carder writes
about the transformation in his understanding of love as he learned new ways of
relating to his wife, realizing that she, in her infirmity, had become his
teacher about love.
Dementia diseases represent a crisis of faith for many family members and congregations. Magnifying this crisis is the way people with dementia tend to be objectified by both medical and religious communities. They are recipients of treatment and projects for mission. Ministry is done to and for them rather than with them.
While acknowledging the devastation of dementia diseases, Ken Carder draws on his own experience as a caregiver, hospice chaplain, and pastoral practitioner to portray the gifts as well as the challenges accompanying dementia diseases. He confronts the deep personal and theological questions created by loving people with dementia…
I grew up in the Disability Rights movement in Canada, fighting for my brother’s right to go to school, to receive medical care, and to be part of our community. For decades, disabled people were institutionalized away from their families and communities, warehoused instead of schooled. My uncle Robert died of neglect in one of these terrible places as a child. My family has been involved in supporting a class action lawsuit against the Ontario government for its responsibility. Since then, the right to education has been better established, and the institutions were closed. But I continue to fight for inclusion and against ableism in education, healthcare, and across our culture.
Though it came out in the Summer of 2022, and had a headstart on the other books on my list, Just Careis in conversation with the rest of this list, and is just as relevant to our current moment, when we might agree that we have a crisis of care. Nishida shows that care dynamics exist within a brutal social order that determines who survives and who deteriorates. Along with the other books on this list, the research methods are creatively mixed here, with interviews, focus groups, and participant observation with care workers and people with disabilities. Just Care documents how people with disabilities work together to reimagine care. We are all enmeshed in a healthcare industry with giant cracks and fissures exposed by the pandemic, and in which we will all move between caregiving, receiving, or both. ReadJust Care to better understand imbalances in care, as well…
Just Care is Akemi Nishida's thoughtful examination of care injustice and social justice enabled through care. The current neoliberal political economy has turned care into a business opportunity for the healthcare industrial complex and a mechanism of social oppression and control. Nishida analyzes the challenges people negotiate whether they are situated as caregivers, receivers, or both. Also illuminated is how people with disabilities come together to assemble community care collectives and bed activism (resistance and visions emerging from the space of bed) to reimagine care as a key element for social change.
In May 1941, Bartlesville, Oklahoma, hums with talk of spring flowers, fishing derbies, and the growing war in Europe. And for the residents of a quiet neighborhood boarding house, the winds of change are blowing.
Self-proclaimed spinster, Bessie Blackwell, is the reluctant owner of a new pair of glasses. The…
When our two sons were younger, I ran a book club for moms. We met at the local library branch once a month—an excuse to get out of the house for some adult conversation. I frequently offer book suggestions to friends and family because I keep my finger on the pulse of what books moms want to read, especially in the summertime at the beach. Typically, I read three to four beach reads on vacation, and I like a variety of genres. I gravitate towards stories with some element of romance, fitting since I’m a sweet romance writer who loves a good book.
My proximity to DC attracts me to political and psychological suspense, like the latest release by this bestselling sister writing team.
An insider’s look into the lives of the power players in the nation’s capital, this story grabs your attention with the family drama and medical mystery. D.C. philanthropist Sloane Chase undergoes surgery and wakes up thinking her home health aide is trying to steal her new husband, ruin her reputation, and claim her social standing.
The story culminates with a political twist ripped from modern-day headlines, which makes for the ultimate beach read this summer.
A D.C. philanthropist suspects that her seemingly perfect employee is secretly plotting to steal her husband, her reputation—even her life—in this seductive novel of psychological suspense from the internationally bestselling author of The Last Mrs. Parrish.
“A deadly cocktail of medical mystery, family drama, and psychological suspense.”—Chandler Baker, New York Times bestselling author of Whisper Network
In this town, anyone is replaceable. . . .
After a tragic chain of events led to the deaths of their spouses two years ago, D.C. philanthropist Sloane Chase and Senator Whit Montgomery are finally starting to move on. The horrifying ordeal drew them…
