Here are 100 books that The Soul of Care fans have personally recommended if you like
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When I turned 80, I was in a bit of a funk until I began interviewing people in their eighties for my book. I was astonished to find how happy the vast majority of them were and what active and exciting their lives were leading. I realized that life after 70 and 80 was not the same today as in the past. As a psychotherapist, a social psychologist, a writer, a mother of four, and a grandmother of 10, I realized I was the perfect person to write about this good news. And for the last 8 years my mission has been to spread the word about aging today.
Louise Aronson was a practicing physician who worked primarily with older patients before becoming a social critic. Now she focuses on ageism in our medical institutions and well as society in general. Her book, Elderhood, is a penetrating analysis of what it means to be older in the US and a critique of the anti-aging culture we live in. Her book is filled with her own observations and stories that show the reader what needs to change in our culture and institutions. Her model of the three stages of life—childhood, adulthood, and elderhood intrigued me.
Finalist for the Pulitzer Prize in General Nonfiction Longlisted for the Andrew Carnegie Medal for Excellence in Nonfiction Winner of the WSU AOS Bonner Book Award
The New York Times bestseller from physician and award-winning writer Louise Aronson--an essential, empathetic look at a vital but often disparaged stage of life, as revelatory as Atul Gawande's Being Mortal.
For more than 5,000 years, "old" has been defined as beginning between the ages of 60 and 70. That means most people alive today will spend more years in elderhood than in childhood, and many will be elders for 40 years or more.…
Karen Thornber is Harry Tuchman Levin Professor in Literature and Professor of East Asian Languages and Civilizations at Harvard. Her work brings humanistic insights to global challenges. Thornber is the author of the award-winning scholarly books Empire of Texts in Motion and Ecoambiguity as well as most recently Global Healing: Literature, Advocacy, Care. Current projects include books on gender justice in Asia, mental health, inequality/injustice, sustainability/climate change, and indigeneity.
This expertly translated novel draws from the prolific Japanese writer Mizumura Minae’s experiences caring for her aging parents and eloquently exposes the vulnerability of women whose elderly family members require substantial care. To be sure, financial security mitigates precarity as does having professional caregivers who respect the family’s wishes concerning the medical treatment of their ailing loved ones. At the same time, Inheritance emphasizes that with so many younger individuals already overextended – whether because of their own health concerns, spousal conflicts, childcare responsibilities, employment challenges, and other factors – there are few reserves with which to compassionately care for others.
Now in paperback, this Osaragi Jiro Award-winning novel demystifies the notion of the selfless Japanese mother and the adult daughter honor-bound to care for her.
Mitsuki Katsura, a Japanese woman in her mid-fifties, is a French-language instructor at a private university in Tokyo. Her husband, whom she met in Paris, is a professor at another private university. He is having an affair with a much younger woman.
In addition to her husband's infidelity, Mitsuki must deal with her ailing eighty-something mother, a demanding, self-absorbed woman who is far from the image of the patient, self-sacrificing Japanese matriarch. Mitsuki finds herself…
Karen Thornber is Harry Tuchman Levin Professor in Literature and Professor of East Asian Languages and Civilizations at Harvard. Her work brings humanistic insights to global challenges. Thornber is the author of the award-winning scholarly books Empire of Texts in Motion and Ecoambiguity as well as most recently Global Healing: Literature, Advocacy, Care. Current projects include books on gender justice in Asia, mental health, inequality/injustice, sustainability/climate change, and indigeneity.
This expertly translated Chinese novel tells the compelling story of a family in Beijing with an aging patriarch. Narrated largely from the perspective of the rural nurse hired to care for him, Longevity Park reveals the many difficulties facing Chinese individuals as they age as well as the difficulties facing Chinese families with an aging loved one. These challenges resonate with those of individuals and families globally, including pervasive stigmas against the elderly, particularly those who are not as agile mentally or physically as they once were; and the particular hurdles facing family members with their own mental health and other concerns. Zhou’s novel also eloquently describes the many hurdles facing healthcare providers.
China is ageing. Its shrinking households, overworked and overstretched, struggle to carry the burden of care for their elderly. Retired Beijing judge Uncle Xiao is one among millions of old\-timers who face a hopeless choice: accept a lonely decline, or chase dubious miracle cures. Then into his life steps Miss Zhong, a young rural nurse with her own share of problems. The two have little in common, but as time delivers tragedies they learn that family can take many forms. Will this unlikely pair weather lifes storms together, and will Xiao find warmth in his sunset years?
Karen Thornber is Harry Tuchman Levin Professor in Literature and Professor of East Asian Languages and Civilizations at Harvard. Her work brings humanistic insights to global challenges. Thornber is the author of the award-winning scholarly books Empire of Texts in Motion and Ecoambiguity as well as most recently Global Healing: Literature, Advocacy, Care. Current projects include books on gender justice in Asia, mental health, inequality/injustice, sustainability/climate change, and indigeneity.
South African writer Nozizwe Cynthia Jele’s exceptional novel The Ones with Purpose features a family grappling with the death from breast cancer of their oldest sister, eldest daughter, wife, and mother Fikile. The novel depicts caring health professionals who plead with the family to take Fikile home where she can die peacefully, without further intervention. Fikile too begs her loved ones to let her go. But her mother cannot accept that her eldest daughter is dying. Jele’s novel depicts a caring family torn apart by cancer and highlights the importance of making certain that a family’s desperation does not augment the suffering of their dying loved one.
With her sister, Fikile, dead from breast cancer, her father long gone, her mother emerging from years of slumber, and her younger brother, Mbuso, consumed with rage that refuses to settle, Anele Mbuza has no choice but to collect herself and grow up. Or does she? Because, if truth be told, she has not signed up to be her family's caretaker. Surely her dreams are valid? The Ones with Purpose is a remarkable story of family, disappointment, sacrifice, forgiveness, and love.
I am the former president of Pfizer Global Research, where I led research groups around the globe in finding new medicines to treat cancer, addiction, AIDS, immunological diseases, and pain. After retiring from Pfizer, I have been closely involved with biotech companies that also are seeking breakthrough drugs. This industry is a crucial part of the healthcare ecosystem, as evidenced by the remarkable response and, ultimately, the crushing of the COVID-19 pandemic. Yet, it is not just underappreciated but is treated with scorn by many. This booklist provides sources from which the reader can gain a full understanding of the value of the biopharmaceutical industry, the challenges it faces, and its importance to the world’s health.
There are a lot of critics of the biopharmaceutical industry who belittle the contributions of this industry by accusing it of overselling the value of new medicines, underselling safety, and having numerous conflicts of interest with academic researchers.
This book details the importance of collaborations between doctors and industry for the development of new drugs. For anyone involved in pharmaceutical R&D, it is refreshing to read accounts about successful interactions that lead to breakthroughs.
Rather than look at healthcare as “good guys vs. bad guys,” this book gives great examples of partnerships that result in saving lives.
I am a Professor of Management at the University of York, England. My interest in ambulances and paramedic work is derived from research I have conducted into England’s National Health Service. This is a ‘free at the point of use’ service which, at its best, provides world-class care to citizens without charge. But the system is terribly underfunded. I am always struck by paramedics’ growing clinical ability, compassion, and devotion to their patients. But equally, I’m alarmed by the extent to which ambulance organizations are desperately overstretched, to the point where the system–and its workers face extreme everyday challenges.
I loved reading this book, another recent one on ambulances and paramedics. It uses qualitative sociological methods to explore the inner workings of the pre-hospital health system and its workers. Chris Prener, an experienced EMT, took an immersive, ethnographic approach to studying the sociology of ambulance work in Chapman City.
Prener shows how urban EMS is moving away from its roots as an emergency response system for critically ill and injured patients and becoming more of a community care system, mostly used by vulnerable and neglected populations. Perhaps the most interesting element of the book is its portrayal of the reluctance of ambulance practitioners to embrace these changes. A very insightful book about the messiness and conflict that often reside amid work occupations and healthcare systems.
Presents a unique view of social problems and conflicts over urban space from the cab of an ambulance.
While we imagine ambulances as a site for critical care, the reality is far more complicated. Social problems, like homelessness, substance abuse, and the health consequences of poverty, are encountered every day by Emergency Medical Services (EMS) workers. Written from the lens of a sociologist who speaks with the fluency of a former Emergency Medical Technician (EMT), Medicine at the Margins delves deeply into the world of EMTs and paramedics in American cities, an understudied element of our health care system.
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My mother wanted me to be a physician, but as a child I was very squeamish about human biology and knew that wasn't for me. In college I was exposed to economics and found it, and the policy debates about national health insurance, fascinating. So, maybe with my mother’s wishes in the back of my mind, I became a health economist. I was privileged to direct a large randomized trial called the RAND Health Insurance Experiment, which varied the cost of medical care to families. This project lasted more than a decade and got me so deep into the economics of health and medical care that I became a professor of health policy and management.
Another classic book that describes the history of American medicine and organized medicine’s interactions with the political process.
It is necessary background to understand the predominance of employment-based health insurance and why the 2010 Affordable Care Act was such a breakthrough. Starr is a Princeton sociologist who participated in the 1990s debate on the failed Clinton health insurance plan.
Winner of the Pulitzer Prize and the Bancroft Prize in American History, The Social Transformation of American Medicine is a landmark history of the American health care system, examining how the roles of doctors, hospitals, health plans, and government programs has evolved over the last two centuries. Beginning in 1730 and coming up to the present day, renowned sociologist Paul Starr traces the transformation of our national health care system into a private corporate medical institution that dominates the field and threatens the sovereignty of the medical profession. In this new and revised edition, Paul Starr will bring his research…
Carol R. Byerly is a historian specializing in the history of military medicine. She has taught American history and the history of medicine history at the University of Colorado, Boulder, was a contract historian for the U.S. Army Office of the Surgeon General, Office of History, and has also worked for the U.S. Congress and the American Red Cross. Byerly’s publications include Fever of War: The Influenza Epidemic in the U.S. Army during World War I and Good Tuberculosis Men: The Army Medical Department’s Struggle with Tuberculosis. She is currently working on a biography of Army medical officer William C. Gorgas, (1854-1920), whose public health measures, including clearing yellow fever from Panama, enabled the United States to construct the canal across the Isthmus.
One of the editors of this volume is a pioneer in the history of medicine, Charles Rosenberg, who theorizes that diseases are powerful “actors” in society. The book uses fourteen case studies to demonstrate how diseases can “frame” people in various ways, defining their lives with pain, disability, or stigma. Diseases also give rise to various institutions such as sanitariums, research laboratories and stimulate the development of medical specialties. As our scientific and social understanding of individual diseases changes over time, how a society responds to or “frames” those diseases changes as well.
In some ways disease does not exist until we have agreed that it does, by perceiving, naming, and responding to it, "" writes Charles E. Rosenberg in his introduction to this stimulating set of essays. Disease is both a biological event and a social phenomenon. Patient, doctor, family, and social institutions-including employers, government, and insurance companies-all find ways to frame the biological event in terms that make sense to them and serve their own ends. Many diseases discussed here-endstage renal disease, rheumatic fever, parasitic infectious diseases, coronary thrombosis-came to be defined, redefined, and renamed over the course of several centuries.…
I’ve been interested in medicine and how stories influence the decisions that people make for as long as I can remember. Watching family and friends make choices about their own healthcare was always fascinated to me and I was always curious as to why some narratives had more staying power than others. After getting my BA in history, I was lucky enough to talk to someone who suggested that I study folklore. I ended up with both a MA and PhD in folklore and became a professor who studies the intersection of folklore and how it affects the medical decisions we all make in our own lives and the lives of others.
Women’s voices are often trivialized in healthcare and I’m willing to bet that most women have experienced some form of medicalized sexism while receiving healthcare (I know I have).
Anika Wilson does an amazing job of listening to women’s voices and their experiences in this book, highlighting how important rumors, legend, and gossip are to healthcare.
Informal folk narrative genres such as gossip, advice, rumor, and urban legends provide a unique lens through which to discern popular formations of gender conflict and AIDS beliefs. This is the first book on AIDS and gender in Africa to draw primarily on such narratives. By exploring tales of love medicine, gossip about romantic rivalries, rumors of mysterious new diseases, marital advice, and stories of rape, among others, it provides rich, personally grounded insights into the everyday struggles of people living in an era marked by social upheaval.
I have an annoying habit of figuring out why someone says or believes what they do—and think that is more interesting than their actual ‘truth’. I try to keep this in check during social events (it can make for painful dinner table conversations if I go too far). Still, it means the general take on the medical humanities (and I’d put all the books below in that wide category) is something I’m passionate about. Why do we believe what we do about health? About disease? About the body? And why do we think medical doctors have the truth for us?
Everything is relative…and this book makes me feel like a normal person. Ivan Illich is one of the 20th century’s great thinkers (google him), and he has inspired many of the current critical studies fields that are gaining headway in the academy.
He was a man of principles. In this book, he lays out his principled reasons for why our current medical industrial complex in the West is making us unhealthy and unhappy. And what an alternative would look like. You did google him, right? So, you know what that alternative made him look like in the end…
"The medical establishment has become a major threat to health." This is the opening statement and basic contention of Ivan Illich's searing social critique. In Limits to Medicine Ivan Illich has enlarged on this theme of disabling social services, schools, and transport, which have become, through over-industrialization, harmful to man. In this radical contribution to social thinking Illich decimates the myth of the magic of the medical profession.
