100 books like The Soul of Care

Louise Aronson was a practicing physician who worked primarily with older patients before becoming a social critic. Now she focuses on ageism in our medical institutions and well as society in general. Her book, Elderhood, is a penetrating analysis of what it means to be older in the US and a critique of the anti-aging culture we live in. Her book is filled with her own observations and stories that show the reader what needs to change in our culture and institutions. Her model of the three stages of life—childhood, adulthood, and elderhood intrigued me.

This expertly translated novel draws from the prolific Japanese writer Mizumura Minae’s experiences caring for her aging parents and eloquently exposes the vulnerability of women whose elderly family members require substantial care. To be sure, financial security mitigates precarity as does having professional caregivers who respect the family’s wishes concerning the medical treatment of their ailing loved ones. At the same time, Inheritance emphasizes that with so many younger individuals already overextended – whether because of their own health concerns, spousal conflicts, childcare responsibilities, employment challenges, and other factors – there are few reserves with which to compassionately care for others.

This expertly translated Chinese novel tells the compelling story of a family in Beijing with an aging patriarch. Narrated largely from the perspective of the rural nurse hired to care for him, Longevity Park reveals the many difficulties facing Chinese individuals as they age as well as the difficulties facing Chinese families with an aging loved one. These challenges resonate with those of individuals and families globally, including pervasive stigmas against the elderly, particularly those who are not as agile mentally or physically as they once were; and the particular hurdles facing family members with their own mental health and other concerns. Zhou’s novel also eloquently describes the many hurdles facing healthcare providers.

South African writer Nozizwe Cynthia Jele’s exceptional novel The Ones with Purpose features a family grappling with the death from breast cancer of their oldest sister, eldest daughter, wife, and mother Fikile. The novel depicts caring health professionals who plead with the family to take Fikile home where she can die peacefully, without further intervention. Fikile too begs her loved ones to let her go. But her mother cannot accept that her eldest daughter is dying. Jele’s novel depicts a caring family torn apart by cancer and highlights the importance of making certain that a family’s desperation does not augment the suffering of their dying loved one.

One of the editors of this volume is a pioneer in the history of medicine, Charles Rosenberg, who theorizes that diseases are powerful “actors” in society. The book uses fourteen case studies to demonstrate how diseases can “frame” people in various ways, defining their lives with pain, disability, or stigma. Diseases also give rise to various institutions such as sanitariums, research laboratories and stimulate the development of medical specialties. As our scientific and social understanding of individual diseases changes over time, how a society responds to or “frames” those diseases changes as well.

Another classic book that describes the history of American medicine and organized medicine’s interactions with the political process. 

It is necessary background to understand the predominance of employment-based health insurance and why the 2010 Affordable Care Act was such a breakthrough. Starr is a Princeton sociologist who participated in the 1990s debate on the failed Clinton health insurance plan.

Women’s voices are often trivialized in healthcare and I’m willing to bet that most women have experienced some form of medicalized sexism while receiving healthcare (I know I have).

Anika Wilson does an amazing job of listening to women’s voices and their experiences in this book, highlighting how important rumors, legend, and gossip are to healthcare. 

This is a brilliant, thoughtful analysis of how sudden death is managed and can be read as a response to Sudnow — and I do assign it for that reason. But what I really love is leaving it out in my office and seeing people’s reactions. “The myth of CPR? What?!” People are horrified. Timmermans clearly shows, and it has been well documented, that CPR works way better on television than it does in real life. But its use has become so standardized that EMTs, as well as family members, were horrified when CPR wasn’t attempted on every dead body picked up during the pandemic.

If your beloved 93-year-old great grandma was just finishing the last bites of her favorite food that you spent all day making when she slumped over – should you hold her tight, whisper that you love her, or quickly put her on her back, break… show more.

This book inspires me because it discusses the significance of taking responsibility for reflecting on the more difficult and often hidden aspects of ourselves.

It helped to open up my mind to my blind spots and increase self-awareness. Based in medicine and psychology this book promotes the kind of honest and important self-reflection that is an asset in improving leadership culture and how you relate to others, even in conflict. 

Gabor Mate’s book is reflective and deep; it offers information on how adverse experience shapes people.

The author provides rigorously researched information on how all of the intersections of our daily stressors, adverse childhood experiences, toxic work environments, world events, and internal conflicts take their tolls on our minds and bodies, while providing the tools to look within oneself to find the cure.

Simon Finger’s book, The Contagious City, is a wonderful, concise introduction to the politics of public health in early America. By focusing on Philadelphia, a city literally designed by William Penn to be healthier than European cities, Finger shows how a distinctly American view of public health developed even after that original plan failed to achieve its desired results. Finger describes the growth of the medical community in Philadelphia, its trials during the Revolution, and its failures during the 1793 yellow fever epidemic.