My favorite books on aging and end-of-life decisions and care

Why am I passionate about this?

Karen Thornber is Harry Tuchman Levin Professor in Literature and Professor of East Asian Languages and Civilizations at Harvard. Her work brings humanistic insights to global challenges.  Thornber is the author of the award-winning scholarly books Empire of Texts in Motion and Ecoambiguity as well as most recently Global Healing: Literature, Advocacy, Care. Current projects include books on gender justice in Asia, mental health, inequality/injustice, sustainability/climate change, and indigeneity.

I wrote...

Global Healing: Literature, Advocacy, Care

By Karen Laura Thornber,

Book cover of Global Healing: Literature, Advocacy, Care

What is my book about?

Global Healing reveals just how much of the suffering experienced by individuals with adverse health conditions comes not from the health conditions themselves but instead from how people are treated by society, medical and health professionals, and even friends and family members. Far from being integrated into communities of care where they are treated respectfully and in ways that promote healing and enable wellbeing, individuals with adverse health conditions are all too frequently stigmatized, dehumanized, and silenced. This is particularly true of people who are already subjected to structural violence because of their age, class, ethnicity, gender, race, religion, sexuality, or other factors. Global Healing is especially relevant as we emerge from the COVID-19 pandemic.

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The books I picked & why

Book cover of Elderhood: Redefining Aging, Transforming Medicine, Reimagining Life

Karen Laura Thornber Why did I love this book?

Professor-physician-writer Louise Aronson’s Elderhood is a powerful study of aging in the United States. The book argues passionately and convincingly for the necessity of integrating medical science and care for individuals of all ages, and especially those closer to the end of life. This impressive volume moves seamlessly among memoir, critique, the history and current state of medicine and medical practice, literature, popular culture, anthropology, sociology, and philosophy, highlighting the importance of respecting and being inspired by individuals of all ages, as seeing old age as far more than bodily decline.

By Louise Aronson,

Why should I read it?

2 authors picked Elderhood as one of their favorite books, and they share why you should read it.

What is this book about?

Finalist for the Pulitzer Prize in General Nonfiction
Longlisted for the Andrew Carnegie Medal for Excellence in Nonfiction
Winner of the WSU AOS Bonner Book Award

The New York Times bestseller from physician and award-winning writer Louise Aronson--an essential, empathetic look at a vital but often disparaged stage of life, as revelatory as Atul Gawande's Being Mortal.

For more than 5,000 years, "old" has been defined as beginning between the ages of 60 and 70. That means most people alive today will spend more years in elderhood than in childhood, and many will be elders for 40 years or more.…


Book cover of The Soul of Care: The Moral Education of a Husband and a Doctor

Karen Laura Thornber Why did I love this book?

Professor and psychiatrist Arthur Kleinman’s The Soul of Care movingly explicates the practical, emotional, and moral aspects of caregiving. Based on Kleinman’s experiences as the primary caregiver for his late wife Joan after she developed early-onset Alzheimer’s disease, this book skillfully reveals caregiving – however grueling, however much about enduring the unendurable – as resonating with emotional, moral, and, for many, religious meaning, and ultimately enabling us to realize our humanity most fully. Moreover, inspired by the work of Anne-Marie Slaughter, Kleinman poignantly argues for the importance of recognizing care as a basic human right.

By Arthur Kleinman,

Why should I read it?

1 author picked The Soul of Care as one of their favorite books, and they share why you should read it.

What is this book about?

A moving memoir and an extraordinary love story that shows how an expert physician became a family caregiver and learned why care is so central to all our lives and yet is at risk in today's world.

When Dr. Arthur Kleinman, an eminent Harvard psychiatrist and social anthropologist, began caring for his wife, Joan, after she was diagnosed with early-onset Alzheimer's disease, he found just how far the act of caregiving extended beyond the boundaries of medicine. In The Soul of Care: The Moral Education of a Husband and a Doctor, Kleinman delivers a deeply humane and inspiring story of…


Book cover of Inheritance from Mother

Karen Laura Thornber Why did I love this book?

This expertly translated novel draws from the prolific Japanese writer Mizumura Minae’s experiences caring for her aging parents and eloquently exposes the vulnerability of women whose elderly family members require substantial care. To be sure, financial security mitigates precarity as does having professional caregivers who respect the family’s wishes concerning the medical treatment of their ailing loved ones. At the same time, Inheritance emphasizes that with so many younger individuals already overextended – whether because of their own health concerns, spousal conflicts, childcare responsibilities, employment challenges, and other factors – there are few reserves with which to compassionately care for others.

By Minae Mizumura, Juliet Winters Carpenter (translator),

Why should I read it?

1 author picked Inheritance from Mother as one of their favorite books, and they share why you should read it.

What is this book about?

Now in paperback, this Osaragi Jiro Award-winning novel demystifies the notion of the selfless Japanese mother and the adult daughter honor-bound to care for her.

Mitsuki Katsura, a Japanese woman in her mid-fifties, is a French-language instructor at a private university in Tokyo. Her husband, whom she met in Paris, is a professor at another private university. He is having an affair with a much younger woman.

In addition to her husband's infidelity, Mitsuki must deal with her ailing eighty-something mother, a demanding, self-absorbed woman who is far from the image of the patient, self-sacrificing Japanese matriarch. Mitsuki finds herself…


Book cover of Longevity Park

Karen Laura Thornber Why did I love this book?

This expertly translated Chinese novel tells the compelling story of a family in Beijing with an aging patriarch. Narrated largely from the perspective of the rural nurse hired to care for him, Longevity Park reveals the many difficulties facing Chinese individuals as they age as well as the difficulties facing Chinese families with an aging loved one. These challenges resonate with those of individuals and families globally, including pervasive stigmas against the elderly, particularly those who are not as agile mentally or physically as they once were; and the particular hurdles facing family members with their own mental health and other concerns. Zhou’s novel also eloquently describes the many hurdles facing healthcare providers.

By Zhou Daxin,

Why should I read it?

1 author picked Longevity Park as one of their favorite books, and they share why you should read it.

What is this book about?

China is ageing. Its shrinking households, overworked and overstretched, struggle to carry the burden of care for their elderly. Retired Beijing judge Uncle Xiao is one among millions of old\-timers who face a hopeless choice: accept a lonely decline, or chase dubious miracle cures. Then into his life steps Miss Zhong, a young rural nurse with her own share of problems. The two have little in common, but as time delivers tragedies they learn that family can take many forms. Will this unlikely pair weather lifes storms together, and will Xiao find warmth in his sunset years?


Book cover of The Ones with Purpose

Karen Laura Thornber Why did I love this book?

South African writer Nozizwe Cynthia Jele’s exceptional novel The Ones with Purpose features a family grappling with the death from breast cancer of their oldest sister, eldest daughter, wife, and mother Fikile. The novel depicts caring health professionals who plead with the family to take Fikile home where she can die peacefully, without further intervention. Fikile too begs her loved ones to let her go. But her mother cannot accept that her eldest daughter is dying. Jele’s novel depicts a caring family torn apart by cancer and highlights the importance of making certain that a family’s desperation does not augment the suffering of their dying loved one.

By Nozizwe Cynthia Jele,

Why should I read it?

1 author picked The Ones with Purpose as one of their favorite books, and they share why you should read it.

What is this book about?

With her sister, Fikile, dead from breast cancer, her father long gone, her mother emerging from years of slumber, and her younger brother, Mbuso, consumed with rage that refuses to settle, Anele Mbuza has no choice but to collect herself and grow up. Or does she? Because, if truth be told, she has not signed up to be her family's caretaker. Surely her dreams are valid? The Ones with Purpose is a remarkable story of family, disappointment, sacrifice, forgiveness, and love.


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God on a Budget: and other stories in dialogue

By J.M. Unrue,

Book cover of God on a Budget: and other stories in dialogue

J.M. Unrue Author Of The Festival of Sin: and other tales of fantasy

New book alert!

Why am I passionate about this?

I’m an old guy. I say this with a bit of cheek and a certain amount of incongruity. All the books on my list are old. That’s one area of continuity. Another, and I’ll probably stop at two, is that they all deal with ordinary people caught in extraordinary circumstances—those curveballs of life we flail at with an unfamiliar bat; the getting stuck on the Interstate behind a semi and some geezer in a golf cap hogging the passing lane in a Buick Le Sabre. No one makes it through this life unscathed. How we cope does more to define us than a thousand smiles when things are rosy. Thus endeth the lesson.

J.M.'s book list on showing that somebody has it worse than you do

What is my book about?

Nine Stories Told Completely in Dialogue is a unique collection of narratives, each unfolding entirely through conversations between its characters. The book opens with "God on a Budget," a tale of a man's surreal nighttime visitation that offers a blend of the mundane and the mystical. In "Doctor in the House," readers are plunged into the emotionally charged moment when an oncologist delivers a life-altering diagnosis to a patient. The collection then shifts to "Prisoner 8086," a story about the unlikely friendship that blossoms between a prison volunteer and a habitual offender, exploring themes of redemption and human connection.

The heart of the book continues with "The Reunion," a touching narrative about high school sweethearts reuniting, stirring up poignant memories and unspoken feelings. "The Therapy Session" adds a lighter touch, presenting a serio-comic exchange between a therapist and a challenging patient. In "The Fishing Trip," a father imparts crucial life lessons to his daughter during an eventful outing, leading to unexpected consequences. "Mortality" offers a deeply personal moment as a mother shares a cherished, secret story from her past with her son.

The collection then takes a romantic turn in "The Singles Cruise," where two individuals find connection amidst shared stories on a cruise for singles. Finally, "Jesus and Buddha in the Garden of Eden" provides a satirical, thought-provoking encounter in the afterlife between two spiritual figures. The book concludes with "The Breakup," a nuanced portrayal of a young couple's separation, told from both perspectives, encapsulating the complexities of relationships and the human experience.

God on a Budget: and other stories in dialogue

By J.M. Unrue,

What is this book about?

Nine Stories Told Completely in Dialogue is a unique collection of narratives, each unfolding entirely through conversations between its characters. The book opens with "God on a Budget," a tale of a man's surreal nighttime visitation that offers a blend of the mundane and the mystical. In "Doctor in the House," readers are plunged into the emotionally charged moment when an oncologist delivers a life-altering diagnosis to a patient. The collection then shifts to "Prisoner 8086," a story about the unlikely friendship that blossoms between a prison volunteer and a habitual offender, exploring themes of redemption and human connection.

The…


5 book lists we think you will like!

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