As a woman who suffers from chronic illness, I am interested in sharing my experience and learning about other women who also suffer and survive their chronic conditions. I have had endometriosis, a painful disease, since I was a teenager. I’ve always enjoyed stories about different kinds of chronic illnesses, and I appreciate the way pain and sickness can be translated into memorable books.
Huber is an author and teacher whom I adore, and I am lucky enough to call friend and mentor, but her writing will make everyone fall in love with her.
Heartfelt, lyrical, brutally honest, and funny, this collection of essays will give you new insight into what it means to live in chronic pain. She writes in a way that makes illness and pain itself almost beautiful. If you want poetic writing, a compelling narrative, and an experimental approach to understanding the pain that is an inextricable part of life for some of us, this book is for you.
Rate your pain on a scale of one to ten. What about on a scale of spicy to citrus? Is it more like a lava lamp or a mosaic? Pain, though a universal element of human experience, is dimly understood and sometimes barely managed. Pain Woman Takes Your Keys, and Other Essays from a Nervous System is a collection of literary and experimental essays about living with chronic pain. Sonya Huber moves away from a linear narrative to step through the doorway into pain itself, into that strange, unbounded reality. Although the essays are personal in nature, this collection is…
I am a school psychologist and Christian who has lived with multiple debilitating chronic illnesses for 25 years. As a result, I am all too familiar with how disruptive and life-changing they can be to our daily lives. Yet few books exist that offer practical guidance for living with chronic illness. And even fewer of these books are for Christian readers. Written with different areas of expertise and angles, my book and the books below fill this gap. I hope you enjoy these books as much as I have!
I was drawn to this meticulously written book in part because the author is a professor of pharmacy and my father is a retired pharmacist. I found myself thoroughly enjoying, underlining, and learning from the wealth of insight into living with chronic illness. The author offers excellent tips for navigating relationships, the medical field, and evaluating treatment options.
While this book (like mine) is written for readers of all faiths, I appreciated and related to the testimony in the final chapter in which the author discusses the importance of his Christian faith and how it has helped him find meaning and purpose through suffering.
How do you live well when the physical foundation of your life is crumbling? This is the challenge for millions who live with diseases for which there is no cure. These incurable ailments produce a life of constant pain, fatigue, numbness, dizziness, and other debilitating symptoms that create chronic suffering. Can you thrive in life while experiencing the suffering persistent sickness provokes? In When There Is No Cure, Dr. Craig Svensson guides readers to a path of thriving when life’s journey includes an incurable ailment. Drawing on his expertise as a pharmacist-scientist, as well as a fellow sufferer with several…
Like my main character, I’m a Norwegian writer with ties to the US, who grew up with various chronic illnesses. I discovered the reason for much of my trouble when I was diagnosed with endometriosis. Isolated and in pain, I have always turned to books. I craved seeing my life reflected. Since Please Read This Leaflet Carefully came out, I’ve heard from many readers. I hope that it can help people who haven’t seen themselves in art before. This list addresses the needs of a life with chronic illness and pain: guidance, darkness, humor, comfort, and poetry. I hope these books will help you as much as they did me.
This is the first book where I read about experiences of childhood illness similar to my own. Reading it was both shocking and deeply cathartic in a way that felt almost dangerous. It is also a cold hard look at class, age, and intergenerational trauma in relation to health and healthcare in the US. It exists in its own category in my mind. All I can say is read it, just not on a bad pain day.
Diagnosed with cancer at age twelve and perilously pregnant at eighteen, surviving surgeries and violent accidents: sometimes you can't believe Bee Lavender is still alive; sometimes you think nothing could kill her. Bee Lavender holds nothing back as she recounts her life spent in and out of hospitals and her subsequent dissociation from her own body and emotions. She struggles with health problems from birth, which are compounded by her surroundings, including frequent encounters with street fights, domestic violence and poverty. Her voice is as strong as the front she puts up for the multitude of doctors she sees, and…
At just fifty-four, my husband Steve was diagnosed with early-onset Alzheimer’s disease in 2004. After practicing as a physician specializing in newborn intensive care for thirty years, I found myself at the opposite end of the spectrum, learning everything I could about Alzheimer’s. In 2008, Steve had a dramatic improvement in his symptoms lasting nearly four years from consuming ketogenic coconut oil and MCT oil, a low-carb whole food diet, and later a ketone ester developed at the NIH. I knew that if Steve improved many others would as well, and have been compelled to share this information by speaking and writing about ketones as an alternative fuel for the brain.
There has been a massive shift since the early twentieth century in our diets from the whole foods that served our ancestors well to ultra-processed foods that appear on shelf after shelf in our grocery stores, even in the infant and toddler section.
The author of Metabolic, Robert Lustig MD, is an endocrinologist with a passion for healthy nutrition, and he teaches us the many reasons why consuming a diet of ultra-processed foods is so damaging to the health of our bodies and our brains. Lustig explains how switching over from a convenience food diet to a whole food diet can help prevent type 2 diabetes and lead to many other health benefits.
His advice hit home with me because I went through that very process in 2006 and have reaped the benefits.
Did you know that 62% of the food in our supermarkets is not only processed but 'ultra-processed' (ingredients from other foods are combined to make something 'new', often in colours that do not exist in nature) and that data shows that by eating this kind of food over time we are literally slowly poisoning ourselves?
In the hard-hitting, ground-breaking tradition of his NY Times bestseller FAT CHANCE, which revealed the dangers of sugar, Dr Robert Lustig persuasively presents a stark expose of how our addiction to processed foods (aided and abetted by the food industry, big ag, big pharma, institutional…
What does it mean to live a good life in a world shared with a multitude of other beings? I’ve spent my career exploring this question, in both my personal and my professional life. In my work as a bioethicist, I’ve researched and written about how to integrate environmental values into health care and medical research; how to think through (and survive) caring for a companion animal who is nearing the end of life; and why keeping pets is ethically problematic. My most current project—in collaboration with my canine companion Bella—is about ethics in human-dog relationships.
Bailey’s book is about a friendship (one-sided perhaps) between a woman and a snail. She describes her growing affection for a woodland snail who is trapped inside with her during a long illness. Although Bailey isn’t offering commentary on pet-keeping, her book suggests a compelling alternative to loving animals—especially creatures we bring in from the wild—by making them into our pets. She shows us how to encounter another creature with curiosity, wonder, and respect.
While an illness keeps her bedridden, Elisabeth Bailey watches a wild snail that has taken up residence in a terrarium alongside her bed. She enters the rhythm of life of this mysterious creature, and comes to a greater understanding of her own confined place in the world. In a work that beautifully demonstrates the rewards of closely observing nature, she shares the inspiring and intimate story of her close encounter with Neohelix albolabris - a common woodland snail.
Intrigued by the snail's world - from its strange anatomy to its mysterious courtship activities - she becomes a fascinated and amused…
Like my main character, I’m a Norwegian writer with ties to the US, who grew up with various chronic illnesses. I discovered the reason for much of my trouble when I was diagnosed with endometriosis. Isolated and in pain, I have always turned to books. I craved seeing my life reflected. Since Please Read This Leaflet Carefully came out, I’ve heard from many readers. I hope that it can help people who haven’t seen themselves in art before. This list addresses the needs of a life with chronic illness and pain: guidance, darkness, humor, comfort, and poetry. I hope these books will help you as much as they did me.
How to Be Sick is a soothing and strengthening book that offers tools that are useful for any creature living a life with a human body and heart. It contains many Buddhist-inspired mindfulness techniques that I use daily, such as ways to adjust one’s thoughts and approach, ways to work with acceptance and grief, and ways to find pleasure and joy when they are hard to come by.
A brand-new edition of the best-selling classic with added and updated practices.
In 2001, Toni Bernhard got sick and, to her and her partner’s bewilderment, stayed that way. As they faced the confusion, frustration, and despair of a life with sudden limitations—a life that was vastly different from the one they’d thought they’d have together—Toni had to learn how to be sick. In spite of her many physical and energetic restrictions (and sometimes, because of them), Toni learned how to live a life of equanimity, compassion, and joy. This book reminds us that our own inner freedom is limitless, regardless…
A big motivation for writing Cursedwas what I saw as a dearth of authentic disability and chronic illness rep in books for kids. Where were the characters who were angry, messy, scared? Where were the kids in real pain—physically, emotionally, socially—who maybe weren’t surrounded by supportive friends and family and maybe didn’t handle their diagnoses with grace? When I was first diagnosed with juvenile arthritis at thirteen, I was all of the above—and then some. I’ve identified as disabled for 30+ years and am active in various disability groups and spaces. It’s my pleasure to champion kids’ books with authentic disability and chronic illness representation.
It was such a pleasure to read about a teen navigating high school with arthritis, as I had. Better yet, a sweet, awkward romance is the heart of this book rather than its focus being on Isabel’s chronic illness. In my experience, life with chronic illness is just that—life, with all its ups, downs, pleasures, absurdities, etc. Sasha is a swoon-worthy love interest, and neither character’s chronic illness is downplayed or mined for soapy dramatics. There’s an authenticity here, particularly in the often mundane hospital scenes, that signifies this is an author who’s sharing, to at least some degree, her own lived experiences.
All the women in her family are heartbreakers, and she's destined to become one, too, if she's not careful. But when she goes to the hospital for her RA infusion, she meets a gorgeous, foul-mouthed boy who has her rethinking the no-dating rule and ready to risk everything.
Aleksander is chronically ill, too, and there's a softer side underneath all his jokes. Isabel finds herself unraveling the secrets of a real person, rather than crowd-sourcing her decisions through her online column Sick Girl Wants to Know.
They fall for each other hard and fast, but Isabel has known all along…
As a woman who suffers from chronic illness, I am interested in sharing my experience and learning about other women who also suffer and survive their chronic conditions. I have had endometriosis, a painful disease, since I was a teenager. I’ve always enjoyed stories about different kinds of chronic illnesses, and I appreciate the way pain and sickness can be translated into memorable books.
O’Rourke blends personal anecdotes, meticulous research, and compelling conviction as she argues that how we treat chronic illness needs to change.
She unpacks the complex nature of autoimmune conditions offering the history of Western Medicine’s approach to illness and even shedding a light on why so many sick people are often left without definitive diagnoses or helpful treatment plans. This is a multi-dimensional portrait of autoimmune disease and chronic illness that I could not put down.
I am a school psychologist and Christian who has lived with multiple debilitating chronic illnesses for 25 years. As a result, I am all too familiar with how disruptive and life-changing they can be to our daily lives. Yet few books exist that offer practical guidance for living with chronic illness. And even fewer of these books are for Christian readers. Written with different areas of expertise and angles, my book and the books below fill this gap. I hope you enjoy these books as much as I have!
As noted in the final chapter of my own book, laughing is something I need to do more. Chronic illness is debilitating as it can (and does) drain my energy and zap my mood. As part of the Sick and Tired series, I thoroughly enjoyedLaughter for the Sick and Tired as it is lighthearted, the humor is clean, the author is a great storyteller, and reading this resulted in several belly laughs.
Amazon Bestselling author Kimberly Rae, who lives with five annoying (and sometimes serious) health conditions, shares her medical mishaps and just plain weird experiences, such as:
*When her blood tests were lost at the hospital and she almost got treated for a random stranger’s liver problem. *When the doctor’s Central IV went up to her jugular instead of down, and he told her he’d fix it tomorrow! *Strange medical adventures from countries around the world.
Along with jokes, fun facts, and stories from other chronically ill friends, Laughter for the Sick & Tired may be just the dose of medicine…
I am a school psychologist and Christian who has lived with multiple debilitating chronic illnesses for 25 years. As a result, I am all too familiar with how disruptive and life-changing they can be to our daily lives. Yet few books exist that offer practical guidance for living with chronic illness. And even fewer of these books are for Christian readers. Written with different areas of expertise and angles, my book and the books below fill this gap. I hope you enjoy these books as much as I have!
Licensed Counselor Esther Smith masterfully offers an impressive Christian devotional for chronic illness sufferers that takes only a few minutes per day to read. I find myself referring back to it for strength, wisdom, and biblical insights. The chapter for each day includes a Bible verse pertaining to a topic, a faith-based discussion, reflection questions, and suggested actions.
There is so much to love about this book: it is practical, relatable, quick and easy to read, and comforting.
Is chronic illness taking over your heart as much as your body? Physical symptoms and limitations change all aspects of life, leading to losses and to unique challenges that are difficult to navigate. Writing from her own experience with these issues, Esther Smith focuses heavily on encouragement and practical application, showing you how to release guilt and shame, ask for help, balance work and rest, and get through days of difficult symptoms. Each day, you will be encouraged as you consider how God uses illness in sanctifying, kingdom-advancing ways to display his glory and work in your heart.
