87 books like Sizwe's Test

I found the total dedication of Dr. Paul Farmer to solving the medical needs of the poor in Haiti, Peru, and elsewhere in the developing world through a combination of grassroots effort and high-level policymaking inspiring, to say the least.

The author of this biographical classic is a master of detail who captures the protagonist's complex essence and the stark medical reality facing the poorest of the poor. His story demonstrates how one person can profoundly affect the world, in this case, solving global health problems despite enduring tremendous personal sacrifice.   

This book is exactly what the title promises, and a great place to start.

It’s written by a Swazi health economist who has worked on HIV in Africa for more than 30 years; I have learned a lot from Whiteside and his research over my years of covering this issue. The book looks at the biology and epidemiology of HIV, and also at all the ways it shapes societies.

Whiteside takes complicated concepts of population dynamics, sexual networking, AIDS, and geopolitical security and explains them briskly, clearly, concisely. His focus is the global AIDS epidemic, but his own work and the book are both deeply rooted in Africa.

I’m going to say right off the top that this book is not well written: it’s turgid and florid and hard to follow. But it’s also recent, unlike most of the books on my list, and it’s the first comprehensive accounting of PEPFAR, the extraordinary US intervention into the African pandemic.

It’s impossible to understand the huge shift in the dynamic of the pandemic without understanding how massively George Bush’s decision to support HIV treatment in Africa changed – well, everything – and Bass is the first writer to try to really dig into that story.

Craig Timberg was a reporting colleague when I was a correspondent in South Africa, and became a friend, one with whom I often passionately disagreed.

That’s why I suggest this book: it offers a very different perspective than mine. Craig and his co-author Halperin, an epidemiologist whose work had a big influence on Craig’s thinking, draw a clear through-line for how Western powers created the sparks of the African epidemic then vigorously fanned them.

A significant chunk of the book focuses on solutions (Halperin is a vociferous champion of male circumcision as an intervention to drive down the spread of the virus). It’s a brisk read that makes complex epidemiological dynamics accessible.

A big mistake in much radical analysis is to characterize problems in dualistic terms that externalize responsibility from Africa (Rodney, of course, is wide open to that critique). Thus, colonialism is not just irredeemably bad but simple to identify and directly related to white skin. The end of formal colonialism provided new targets in sometimes caricature form: black-skin-white-mask neocolonialism and neoliberalism, notably. Such things undoubtedly exist. However, Kenworthy’s brilliant, gob-smacking analysis of the unintended consequences of life-saving technologies reveals levels of complexity and complicity that belie easy dualisms. How does something that promises liberation from mass suffering and death (anti-retroviral drugs) become a machine to entrench corrupt elites and opportunistic NGOs, to sell cheap textiles in America, and to exploit poor women’s unremunerated care work? Read, weep, and lose your illusions about corporate social responsibility.

This is a memoir that has really stayed with me. It is beautifully written and a compulsive read.

Dr. Verghese describes the world of the deep south on the precipice of the AIDS epidemic. It is his story of being a young doctor, but also the story of the explosion in HIV cases far from the coastal cities that were the epicenters of the epidemic. I found myself crying over the cases he described, and feeling his heart-ache as he battled for individuals with HIV to gain acceptance, support, and treatments in their communities. 

This is an amazing book if you want to understand that disease isn’t just medical, it’s also cultural.

Contagious really describes how culture influences how we understand illness and how that affects treatment and care of individuals, including who we blame and how we understand risk.

People like to think of medicine and science as being detached and objective, but this book shows that simply isn’t true. 

One of the best academic books written at convergence of the HIV/AIDS and COVID-19 pandemics is The Virus Touch.

Here, Bishnupriya Ghosh showcases how “epidemic media” inform how epidemics are understood and experienced—making this text so relevant right now. She looks at how media—images, numbers, and digital models—whether generated by scientists, artists, or activists enable us to see and understand viruses and bear witness to their effects in new ways.

What is unique about Ghosh’s scholarship is how looks to the environment to study health which illustrates the complex and tangled relationships between epidemics, humans, animals, and media. Ghosh’s rich examples, ranging from modelling viruses to reading test results to tracking infection rates and mortality numbers, ensure that Virus Touch speaks to diverse readers.

Marty Fink’s book is one of the best examples of recent and groundbreaking scholarship on HIV/AIDS.

Fink examines HIV/AIDS histories through critical disability studies discourse to show in a compelling and very readable way how queer and trans people in the 1980s and early 1990s came together to take care of each other when faced with stark and far-reaching state violence.

This book has deep contemporary relevance showing how multifaceted HIV care-giving narratives continue to inform how individuals and our wider society makes sense of gender, disability, and kinship.

Such work is essential in this political moment where we are seeing ever-more challenges to bodily self-determination, for women, queer and, especially for trans people. 

Jill Nalder is one of the great heroes of the AIDS crisis in eighties Britain. Her story features in the TV series It’s A Sin. This is her memoir and it’s an uplifting and heartbreaking read. Jill is one of those miraculous allies for gay men who fought to get more information about AIDS distributed more widely. It’s thanks to people like her that AIDS is no longer a death sentence.