Here are 100 books that Making Loss Matter fans have personally recommended if you like
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I founded the All-Weather Friend, which is about helping friends get through difficult situations. My first book, Alzheimer’s: A Crash Course for Friends and Relatives, tells how to help people living with dementia. I’ve had hard times in my life—my husband’s brain tumor and suicide, my father’s dementia, infertility, miscarriage, my brother’s sudden death, and other things that flooded me with grief. But my life is filled with joy; I’ve learned that joy comes from God and from a compassionate connection with friends and people we love. I write and speak about “informed compassion.” I hope you’ll visit my website, where there’s a great dementia resource page with contributions by many readers.
Moments of joy are often all that can be had by
people in the later stages of dementia when life is lived moment by forgotten
moment. What people may not realize, though, is that while the memories of
joyful moments (an ice cream cone, petting a dog, looking at pictures, taking a
walk) may be quickly forgotten, the emotion of joy will linger.
Brackey tells
us how to create moments of joy for our loved ones with dementia and that
people with dementia have much to teach us about ourselves.
The beloved best seller has been revised and expanded for the fifth edition.
Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer's, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or…
I founded the All-Weather Friend, which is about helping friends get through difficult situations. My first book, Alzheimer’s: A Crash Course for Friends and Relatives, tells how to help people living with dementia. I’ve had hard times in my life—my husband’s brain tumor and suicide, my father’s dementia, infertility, miscarriage, my brother’s sudden death, and other things that flooded me with grief. But my life is filled with joy; I’ve learned that joy comes from God and from a compassionate connection with friends and people we love. I write and speak about “informed compassion.” I hope you’ll visit my website, where there’s a great dementia resource page with contributions by many readers.
The author, a retired bishop and professor emeritus
at Duke Divinity School, has not only written this book to tell about his
journey as a caregiver to his wife, who died of frontotemporal lobe dementia, but also provides (free of charge) a set of truly excellent companion videos
churches can use to educate their congregations about dementia.
Carder writes
about the transformation in his understanding of love as he learned new ways of
relating to his wife, realizing that she, in her infirmity, had become his
teacher about love.
Dementia diseases represent a crisis of faith for many family members and congregations. Magnifying this crisis is the way people with dementia tend to be objectified by both medical and religious communities. They are recipients of treatment and projects for mission. Ministry is done to and for them rather than with them.
While acknowledging the devastation of dementia diseases, Ken Carder draws on his own experience as a caregiver, hospice chaplain, and pastoral practitioner to portray the gifts as well as the challenges accompanying dementia diseases. He confronts the deep personal and theological questions created by loving people with dementia…
I founded the All-Weather Friend, which is about helping friends get through difficult situations. My first book, Alzheimer’s: A Crash Course for Friends and Relatives, tells how to help people living with dementia. I’ve had hard times in my life—my husband’s brain tumor and suicide, my father’s dementia, infertility, miscarriage, my brother’s sudden death, and other things that flooded me with grief. But my life is filled with joy; I’ve learned that joy comes from God and from a compassionate connection with friends and people we love. I write and speak about “informed compassion.” I hope you’ll visit my website, where there’s a great dementia resource page with contributions by many readers.
While there are many great memoirs about
Alzheimer’s, this one is unique. It’s almost an adult picture book that quickly
gives a realistic sense of what living with mid-stage Alzheimer’s is like.
Henderson, a former history professor, carried a tape recorder around with him,
documenting his daily thoughts and struggles. Photographer Nancy Andrews made
stunning black-and-white photos to accompany Henderson’s observations.
It takes
little time to read Henderson’s book, but the understanding it conveys is remarkable. It may be hard to find since it is over 20 years old, but it’s
worth the effort.
Tap Dancing on Everest, part coming-of-age memoir, part true-survival adventure story, is about a young medical student, the daughter of a Holocaust survivor raised in N.Y.C., who battles self-doubt to serve as the doctor—and only woman—on a remote Everest climb in Tibet.
I founded the All-Weather Friend, which is about helping friends get through difficult situations. My first book, Alzheimer’s: A Crash Course for Friends and Relatives, tells how to help people living with dementia. I’ve had hard times in my life—my husband’s brain tumor and suicide, my father’s dementia, infertility, miscarriage, my brother’s sudden death, and other things that flooded me with grief. But my life is filled with joy; I’ve learned that joy comes from God and from a compassionate connection with friends and people we love. I write and speak about “informed compassion.” I hope you’ll visit my website, where there’s a great dementia resource page with contributions by many readers.
Reading this book is like sitting in on a support
group. It’s a collection of quotes about living with dementia from people who
are doing just that.
I love it for churches starting a memory ministry because
these quotes could be quickly read aloud in worship services, as a “ministry
moment,” or read round-robin style in groups beginning to learn about dementia.
I like the collection of many voices speaking out candidly and poignantly about
this difficult journey.
Betsy Peterson spent fourteen years caring for her husband who was suffering from dementia, an experience that put her in touch with others inside the struggle to have or to care for someone with the disease. A combination of contributions from patients, their families, friends, and caregivers, Voices of Alzheimer's gathers the poignant stories, funny quotes, and priceless encouragement that Peterson heard and that helped her along the way. Capturing the many dimensions of the Alzheimer experience-the challenges, the struggles, the humour, and even the rewards-a Voices presents a varied, and realistic, look at what it's like to be affected…
I have been teaching college students about aging since I was in my late 20s. The audacity! Now that I am officially in the “young-old” category I used to describe to my students, I more fully appreciate the social constructions of aging that affect elders, the medical conditions that can derail plans for “a good old age,” and the challenges we all face in attempting to live with meaning and purpose as we grow older. In addition to teaching, writing about, and researching various aspects of aging, especially aging with various type of dementia, my work has addressed the positive and negative ways religious faith can shape how people cope with aging.
Rabbi Dayle Friedman’s wisdom about aging can be appreciated by people of all religions and no religion. Her honest engagement with some of the most difficult issues aging persons face leaves readers with hope rather than despair. Her many years as a chaplain for people living in long-term care with dementia undergird her suggestions on how to make sense of what she calls “dementia’s brokenness”. She concludes each chapter with a spiritual practice readers can employ to engage more deeply with the chapter’s topics, and also at the end of each chapter, she offers readers a blessing for their own efforts to flourish as they age.
Growing Older Can Be a Time of Growing in Depth and Wisdom
"My sense is that the whole journey beyond midlife is a mysterious blend of light and dark, wholeness and fragility…. We have a chance beyond midlife to become the person we were truly meant to be. We can draw on everything we have experienced so far to contribute to the people around us and the wider world, and to find strength and resilience amid the challenges." ―from the Introduction
Whether you are fifty-five or seventy-five, approaching retirement or age one hundred, growing older brings remarkable opportunities but often…
Throughout my life I found the trick to getting through rough patches meant isolating dark thoughts. I got them out by creating something (artworks, poems, stories), and looked forward to new horizons, though these works could easily be misinterpreted by those around me. When I was fifteen, after my father died and we were forced off the farm, I created a series of disturbing drawings that won the school's art prize and were displayed at graduation. A friend of my mother saw the exhibit and said, “Oh Dorothy, I’m so sorry.” It gave us a laugh later when Mother realized this method of cleansing beat finding a psychiatrist, and the cost couldn’t be beat.
As a kid, I loved this funny and frightening book about the terrible things that happen to bratty children (the same could be inferred for bratty octogenarians).
I’m sure my parents hoped these tales would encourage more reasonable behavior. Instead, these tales set me on a path to writing dark stories. In this case, the contrast of humor and the horrifying is addictive, and characters in any kind of book that combine these traits are always compelling.
The illustrations in the version published by John C. Winston Company are particularly quirky, increasing the impact of each story. This book probably had more influence on my book than I realized during the writing.
This work has been selected by scholars as being culturally important and is part of the knowledge base of civilization as we know it.
This work is in the public domain in the United States of America, and possibly other nations. Within the United States, you may freely copy and distribute this work, as no entity (individual or corporate) has a copyright on the body of the work.
Scholars believe, and we concur, that this work is important enough to be preserved, reproduced, and made generally available to the public. To ensure a quality reading experience, this work has been…
The end of life is still a forbidden topic. Today, Baby Boomers, the largest population group in American history, are facing death. And nobody wants to talk about it!
Join Brad Stuart, M.D. as he shows how he learned the truth about dying over…
As an educator, author of children’s books, and caregiver of a loved one with dementia, I felt that I had to write a story about the disease from a child’s point of view. When I became a caregiver, I was struck by the lack of information for children and the misconceptions of the public about the disease. I wanted to create a story that reassures children and gives them guidance on how they can help be a caregiver. I added the Author’s Note to provide accurate information to adults so that more people are aware of the signs of dementia and to build understanding and compassion.
This sensitive, charming book shows how a child learns about what is going on in her granny’s brain.
It addresses the emotions that a young child may feel when they witness confusing changes in a loved one’s behavior. This story provides a wonderful opportunity to discuss dementia and what to do if a child has concerns or questions.
Are you looking for a picture book to talk about dementia or Alzheimer's with a child? This Alzheimer’s book for children explains Alzheimer’s dementia in kid-friendly terms. The book presents memory loss in an easy-to-understand narrative.
Boys and girls alike will benefit from this “must have” children’s read. Alzheimer's has an impact on families around the world. This book allows a family to face this challenge together and make the most of every available moment.
In Granny Needs My Help: A Child's Look at Dementia and Alzheimer's the main character Zéh is excited, happy, and challenged as she helps and…
I am a caregiver who became an author. Both my parents had dementia. I found few books written from a personal perspective to give me guidance, so the journal I kept ultimately became the book I wished I could have read during our dementia journey. The journey didn’t end for me with the death of my parents. It led me to form a non-profit with two other dementia authors. This passion project has become a global community of authors who have written about Alzheimer’s and dementia from personal experience. Now more than 300 strong, we provide quality resources for caregivers and others concerned about dementia. Learn more at AlzAuthors.com.
I was drawn in by Marianne Sciucco’s novel about a man caring for his wife with Alzheimer’s. It’s a love story between a long-married couple, one of whom has dementia. It’s about a husband’s determination to honor his wife’s request to stay in their home, even though his own health is failing. It’s about the magic of the day they “escape.” I loved this book because it showed me that love endures despite dementia; despite what life throws our way.
What if the person who knew you best and loved you most forgot your face, and couldn't remember your name? The PromiseA care facility is everyone's solution for what to do about Sara, but her husband, Jack, can't bear to live without her. He is committed to saving his marriage, his wife, and their life together from the devastation of Alzheimer’s disease. He and Sara retired years ago to the house of their dreams, and operated it as a Cape Cod bed and breakfast named Blue Hydrangeas. Jack has made an impossible promise: He and Sara will stay together in…
As an old age psychiatrist, I was naturally interested in dementia. But I’m also trained to doctoral level in philosophy. I’ve been both an honorary professor of philosophy of ageing (at Newcastle) and a professor of old age psychiatry (at Bristol). Whilst training in psychiatry at Oxford, I came across the work of Tom Kitwood. Subsequently, I’ve become great friends with Steve Sabat. His work and Kitwood’s brought home to me the complexity of personhood and its relevance to how we care for and think about people living with dementia. And the more you consider it, the more the notion of personhood broadens out to include citizenship and human rights.
To be honest, I might have overlooked this book had I not had the good fortune to meet Mark, one of its editors, at various very enjoyable academic events in Europe – made exciting by Mark’s incisive contributions. The book exemplifies the movement I have previously gestured at. The broadening effect here is achieved by situating dementia as a cultural phenomenon. How is dementia represented in popular culture: in fiction, in art, film, the media, and so forth? More importantly, how are we to understand and what sort of critiques can be applied to the narratives that emerge from these cultural representations and expressions? There is much to be gained from approaching dementia from an aesthetic viewpoint. The variety of topics in this book and their treatment is refreshing and incredibly stimulating.
How are individual and social ideas of late-onset dementia shaped and negotiated in film, literature, the arts, and the media? And how can the symbolic forms provided by popular culture be adopted and transformed by those affected in order to express their own perspectives? This international and interdisciplinary volume summarizes central current research trends and opens new theoretical and empirical perspectives on dementia in popular culture. It includes contributions by internationally renowned scholars from the humanities, social and cultural gerontology, age(ing) studies, cultural studies, philosophy, and bioethics. Contributions by Lucy Burke, Marlene Goldman, Annette Leibing and others.
I am a registered nurse, author, and dementia daughter. As a nurse and hospital case manager, I spent many years caring for people living with dementia and their families. This inspired me to write a novel, Blue Hydrangeas, an Alzheimer’s love story. I soon encountered difficulties marketing my book. I reached out to two other dementia daughters I’d met online who had also written books on the subject from personal experience and together we founded the non-profit organization AlzAuthors.com. Our mission is to carefully vet resources – stories of personal caregiving – to help busy caregivers find the information and inspiration they need for their own journeys. To date, we are 300+ authors strong.
Michael was an executive in a Fortune 500 company when he was diagnosed with early-onset Alzheimer’s at age 49. What followed was a cascade of losses: career, income, purpose. Not one to give up easily, Michael turned his efforts and energy to dementia advocacy, speaking across the country and internationally at conferences and before Congress. His book tells the story of his newfound passion and work with raw honesty.
Imagine having a mysterious illness take over your mind. Over the next 10 years, you try to navigate a health care and social system that is not equipped to address what is happening to you. As you slowly lose your ability to think and remember, you have to try to hide the losses to protect you and your family financially. You encounter doctors who are at best baffled, and order a series of nonspecific, redundant, and uninformative studies. If you want to know what it is like to walk in the shoes of one person with Alzheimer’s, read this book,…