30 books like Love, Hope, Lyme

By Fred Diamond,

Here are 30 books that Love, Hope, Lyme fans have personally recommended if you like Love, Hope, Lyme. Shepherd is a community of 11,000+ authors and super readers sharing their favorite books with the world.

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Book cover of Toxic: Heal Your Body from Mold Toxicity, Lyme Disease, Multiple Chemical Sensitivities, and Chronic Environmental Illness

Dorothy Kupcha Leland Author Of Finding Resilience: A Teen's Journey Through Lyme Disease

From my list on people with Lyme disease who can’t get well.

Why am I passionate about this?

Nineteen years ago, my 13-year-old daughter became wracked in severe pain for no discernible reason. She found walking, lying flat, or sitting up straight impossible. She had a host of other bizarre physical symptoms, too. The doctors we consulted not only didn’t help us, they decided she was faking it. We had to step outside the medical mainstream to discover she had chronic Lyme disease. After many difficult years, she got better, and I began working to change the system. As president of LymeDisease.org, a national Lyme advocacy and research organization, I write and speak on behalf of Lyme patients and their families.

Dorothy's book list on people with Lyme disease who can’t get well

Dorothy Kupcha Leland Why did Dorothy love this book?

This is one of the first books I recommend to Lyme patients who email me for advice about getting better. It’s a sad fact that most people with chronic Lyme disease don’t have “just” Lyme disease. Their condition is complicated by toxic mold exposure, environmental chemicals, other infectious bacteria and viruses, and/or a highly sensitized nervous system.

Whether they’ve been diagnosed with Lyme disease or not, I think anyone with complex health problems that they just can’t resolve could benefit from reading this book.

By Neil Nathan,

Why should I read it?

2 authors picked Toxic as one of their favorite books, and they share why you should read it.

What is this book about?

Millions of people are suffering from chronic illnesses that, unbeknownst to them, are the result of exposure to environmental toxins and infectious agents such as mold and Borrelia, which causes Lyme disease. Millions. Because the symptoms of these illnesses are so varied and unusual, many of these individuals have sought medical care only to be dismissed, as if what they are experiencing is “in their head.” Many (if not most) have tried to tough it out and continue to function without hope of improvement. Unfortunately, their illnesses are very real.

Toxic is a book of hope for these individuals, their…


Book cover of Recovery from Lyme Disease: The Integrative Medicine Guide to Diagnosing and Treating Tick-Borne Illness

Dorothy Kupcha Leland Author Of Finding Resilience: A Teen's Journey Through Lyme Disease

From my list on people with Lyme disease who can’t get well.

Why am I passionate about this?

Nineteen years ago, my 13-year-old daughter became wracked in severe pain for no discernible reason. She found walking, lying flat, or sitting up straight impossible. She had a host of other bizarre physical symptoms, too. The doctors we consulted not only didn’t help us, they decided she was faking it. We had to step outside the medical mainstream to discover she had chronic Lyme disease. After many difficult years, she got better, and I began working to change the system. As president of LymeDisease.org, a national Lyme advocacy and research organization, I write and speak on behalf of Lyme patients and their families.

Dorothy's book list on people with Lyme disease who can’t get well

Dorothy Kupcha Leland Why did Dorothy love this book?

Dr. Daniel Kinderlehrer was already a prominent holistic physician when he became quite sick. None of the many doctors he consulted could figure out what was ailing him or how to help him in any way.

He turned out to have persistent Lyme disease—which can be notoriously hard to diagnose—and the experience spun his life and career in a completely different direction. I like this book because he shares so much of his personal story and imparts excellent information about the immune system, healing the gut, detoxifying the body, and treating infections.

By Daniel A. Kinderlehrer,

Why should I read it?

1 author picked Recovery from Lyme Disease as one of their favorite books, and they share why you should read it.

What is this book about?

From the foreword by world-leading Lyme expert Joseph J. Burrascano, Jr., MD:

A detailed and thoughtful road map is sorely needed. And it is in this context that I am so pleased that we have this book by Dr. Kinderlehrer. I wish I'd had a book like this back in the day to guide me! It covers just about everything-the infections, diagnostic tests, treatments, and yes, the all-important terrain. It gives the reader an in-depth, but easily understandable, guide through the many subtleties of tick-borne illnesses. I am impressed with the knowledge presented and grateful for this information, which has…


Book cover of Brain Inflamed: Uncovering the Hidden Causes of Anxiety, Depression, and Other Mood Disorders in Adolescents and Teens

Dorothy Kupcha Leland Author Of Finding Resilience: A Teen's Journey Through Lyme Disease

From my list on people with Lyme disease who can’t get well.

Why am I passionate about this?

Nineteen years ago, my 13-year-old daughter became wracked in severe pain for no discernible reason. She found walking, lying flat, or sitting up straight impossible. She had a host of other bizarre physical symptoms, too. The doctors we consulted not only didn’t help us, they decided she was faking it. We had to step outside the medical mainstream to discover she had chronic Lyme disease. After many difficult years, she got better, and I began working to change the system. As president of LymeDisease.org, a national Lyme advocacy and research organization, I write and speak on behalf of Lyme patients and their families.

Dorothy's book list on people with Lyme disease who can’t get well

Dorothy Kupcha Leland Why did Dorothy love this book?

Anxiety, depression, and other mood disorders are on the rise globally. And although this book's title specifies young people, I think Dr. Bock’s message can apply to just about anyone at any age. He presents case studies of children and teens who came to him after being on a laundry list of psych meds—with no improvement and often getting worse.

Many of these kids turn out to have thyroid problems, or low Vitamin D, or celiac, or yes, Lyme disease. And after he treats them for these underlying issues, often their supposed "psych" symptoms improve. If you or any member of your family struggles with mental health issues, I particularly recommend this book.

By Kenneth Bock,

Why should I read it?

1 author picked Brain Inflamed as one of their favorite books, and they share why you should read it.

What is this book about?

From renowned integrative family physician Dr Kenneth Bock, a groundbreaking approach to understanding and treating mental health among adolescents and teens.

Over the past decade, the number of 12- to 17-year-olds suffering from mental health disorders has more than doubled. While adolescents and teens are notorious for mood swings and rebellion, parents today are navigating new terrain as their children are increasingly at risk of struggling with a mental health issue. But the question remains: What is causing this epidemic of illness?

In Brain Inflamed, acclaimed integrative doctor Dr Kenneth Bock shares a revolutionary new view of adolescent and teen…


Book cover of Why Can't I Get Better?: Solving the Mystery of Lyme and Chronic Disease

Dorothy Kupcha Leland Author Of Finding Resilience: A Teen's Journey Through Lyme Disease

From my list on people with Lyme disease who can’t get well.

Why am I passionate about this?

Nineteen years ago, my 13-year-old daughter became wracked in severe pain for no discernible reason. She found walking, lying flat, or sitting up straight impossible. She had a host of other bizarre physical symptoms, too. The doctors we consulted not only didn’t help us, they decided she was faking it. We had to step outside the medical mainstream to discover she had chronic Lyme disease. After many difficult years, she got better, and I began working to change the system. As president of LymeDisease.org, a national Lyme advocacy and research organization, I write and speak on behalf of Lyme patients and their families.

Dorothy's book list on people with Lyme disease who can’t get well

Dorothy Kupcha Leland Why did Dorothy love this book?

If you had 16 nails sticking in the bottom of your foot, removing only one of them wouldn't fix your problem, would it? That's the question posed by Dr. Richard Horowitz, one of the top Lyme-treating doctors in the world.

In his “16-Point Differential Diagnostic Map” for evaluating chronically ill patients, he looks at many different factors that can prevent you from getting well. Lyme is a complex illness and you might not even realize there is a connection between different things you are experiencing. His book is a good reference manual for many symptoms and physical disorders.

By Richard I. Horowitz,

Why should I read it?

1 author picked Why Can't I Get Better? as one of their favorite books, and they share why you should read it.

What is this book about?

When Dr. Richard Horowitz moved to the Hudson Valley over a decade ago to start his own medical practice, he didn't know that he would be jumping into the centre of one of the fiercest, most heated medical disputes being waged today. The ongoing debate over Lyme disease as a chronic illness has made it difficult for sufferers to find care, as doctors are in many cases unable or unwilling to diagnose it. This is how once-treatable infections can become chronic, causing disabling conditions that may never be cured. In a field where the number of cases is growing each…


Book cover of The Lady's Handbook for Her Mysterious Illness: A Memoir

Suzannah Weiss Author Of Subjectified: Becoming a Sexual Subject

From my list on change how you think of women’s bodies.

Why am I passionate about this?

I am a feminist writer and sexologist. My recent book narrates my search for sexual empowerment and presents my vision for a world where no woman is objectified. I teach courses on topics including orgasms, neurodiversity, and childbirth. I also coach people on their sex and love lives, empowering them to take control over their relationships. I am now working on a new book that imparts my long and winding triumph over chronic illness and reveals that having a female body is not a curse but a blessing. 

Suzannah's book list on change how you think of women’s bodies

Suzannah Weiss Why did Suzannah love this book?

This book provides an answer to the looming modern-day question of why so many women are chronically ill. Author Sarah Ramey tells the moving story of her own chronic illness while putting the pieces together as to what so many women are suffering from and how we can help.

As someone who has dealt with chronic illness myself, this book illuminated not only what was happening in my body but also what was happening within my culture that needed to be overhauled along with my own life.

By Sarah Ramey,

Why should I read it?

1 author picked The Lady's Handbook for Her Mysterious Illness as one of their favorite books, and they share why you should read it.

What is this book about?

'A visceral, scathing, erudite read that digs deep into how modern medicine continues to fail women and what can be done about it' Booklist

The darkly funny memoir of Sarah Ramey's years-long battle with a mysterious illness that doctors thought was all in her head - but wasn't. A revelation and an inspiration for millions of women whose legitimate health complaints are ignored.

In her harrowing, defiant and unforgettable memoir, Sarah Ramey recounts the decade-long saga of how a seemingly minor illness in her senior year of college turned into a prolonged and elusive condition that destroyed her health but…


Book cover of The Invisible Kingdom: Reimagining Chronic Illness

Rebecca Dimyan Author Of Chronic: A Memoir

From my list on chronic illness to laugh, cry, and everything in between.

Why am I passionate about this?

As a woman who suffers from chronic illness, I am interested in sharing my experience and learning about other women who also suffer and survive their chronic conditions. I have had endometriosis, a painful disease, since I was a teenager. I’ve always enjoyed stories about different kinds of chronic illnesses, and I appreciate the way pain and sickness can be translated into memorable books. 

Rebecca's book list on chronic illness to laugh, cry, and everything in between

Rebecca Dimyan Why did Rebecca love this book?

O’Rourke blends personal anecdotes, meticulous research, and compelling conviction as she argues that how we treat chronic illness needs to change.

She unpacks the complex nature of autoimmune conditions offering the history of Western Medicine’s approach to illness and even shedding a light on why so many sick people are often left without definitive diagnoses or helpful treatment plans. This is a multi-dimensional portrait of autoimmune disease and chronic illness that I could not put down.

By Meghan O'Rourke,

Why should I read it?

1 author picked The Invisible Kingdom as one of their favorite books, and they share why you should read it.

What is this book about?

A NEW YORK TIMES BESTSELLER

FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION

Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue

“Remarkable.” –Andrew Solomon, The New York Times Book Review

"At once a rigorous work of scholarship and a radical act of empathy.”—Esquire

"A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal

"Essential."—The Boston Globe

A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and…


Book cover of Sick: A Memoir

Rebecca Dimyan Author Of Chronic: A Memoir

From my list on chronic illness to laugh, cry, and everything in between.

Why am I passionate about this?

As a woman who suffers from chronic illness, I am interested in sharing my experience and learning about other women who also suffer and survive their chronic conditions. I have had endometriosis, a painful disease, since I was a teenager. I’ve always enjoyed stories about different kinds of chronic illnesses, and I appreciate the way pain and sickness can be translated into memorable books. 

Rebecca's book list on chronic illness to laugh, cry, and everything in between

Rebecca Dimyan Why did Rebecca love this book?

Although I may be biased in recommending my former mentor’s book, this memoir about Khakpour’s experience with mysterious illnesses and addictions is a must read.

Written in sharp, often poetic prose, the author offers an intimate portrait of a chronically ill woman of color navigating the frustrating world of doctors, tests, theories, medications, and doubt. The reader is pulled into this dark, gritty story of benzodiazepine abuse, debilitating symptoms, economic hardship, and, ultimately, diagnosis.

I love every book ever written by Khakpour, however, Sick is my absolute favorite (so far!) Not only could I relate to her experience in many ways, I adore her willingness to share all the messy, difficult pieces of her life.

By Porochista Khakpour,

Why should I read it?

1 author picked Sick as one of their favorite books, and they share why you should read it.

What is this book about?

A Best Book of the Year: Real Simple, Entropy, Mental Floss, Bitch Media, The Paris Reivew, and LitHub.

Time Magazine's Best Memoirs of 2018 • Boston Globe's 25 Books We Can't Wait to Read in 2018  •  Buzzfeed's 33 Most Exciting New Books  • GQ Best Non Fiction Book of 2018  • Bustle’s 28 Most Anticipated Nonfiction Books of 2018 list  •  Nylon’s 50 Books We Can’t Wait to Read in 2018  • Electric Literature’s 46 Books to Read By Women of Color in 2018 

“Porochista Khakpour’s powerful memoir, Sick, reads like a mystery and a reckoning with a love…


Book cover of Spillover: Animal Infections and the Next Human Pandemic

John Langdon Author Of The Science of Human Evolution: Getting it Right

From my list on tell us who we are.

Why am I passionate about this?

My sister once remarked that listening to our mother’s stories about living during World War II made it sound like we missed something really exciting. That is what history has always been for me–something I missed out on, for better or worse. What would it really have been like? Could I have survived? Family genealogies bring history to me on a personal level; archaeology and paleontology extend that wonder much deeper into the past. During the time I taught anatomy and human evolution at the University of Indianapolis, I tried to be as interdisciplinary as possible, both in study and teaching. I continue this in my retirement. 

John's book list on tell us who we are

John Langdon Why did John love this book?

This book is less about who we are than how we relate to nature. It is important for all of us to be reminded periodically that humans are only actors in a much larger and more powerful environment that operates beyond our control. Many books have been written in the past 50 years about the next pandemic, and David Quammen’s account of how diseases spread from animals to humans is one of the best. For me, it puts the daily feed of political bickering and distant violence in a refreshing perspective, mixed with a level of invigorating nervousness. 

Experiences with HIV and SARS should have taught us how vulnerable we are to new diseases. The 2014-2016 Ebola outbreak in West Africa, which killed over 14,000 people, demonstrated how irrational and self-destructive we can behave when fear takes grip. Why, then, were we so unprepared, either medically or psychologically, to face…

By David Quammen,

Why should I read it?

4 authors picked Spillover as one of their favorite books, and they share why you should read it.

What is this book about?

In 2020, the novel coronavirus gripped the world in a global pandemic and led to the death of hundreds of thousands. The source of the previously unknown virus? Bats. This phenomenon-in which a new pathogen comes to humans from wildlife-is known as spillover, and it may not be long before it happens again.

Prior to the emergence of our latest health crisis, renowned science writer David Quammen was traveling the globe to better understand spillover's devastating potential. For five years he followed scientists to a rooftop in Bangladesh, a forest in the Congo, a Chinese rat farm, and a suburban…


Book cover of Lyme: The First Epidemic of Climate Change

Carrie Firestone Author Of The First Rule of Climate Club

From my list on non-fiction to inspire community conversations.

Why am I passionate about this?

I'm co-founder of a grassroots social justice, civic engagement, and service organization called ForwardCT, which I started with my friend and current state representative Eleni Kavros DeGraw with the intention of mobilizing community-centered action. Our work centers on these four pillars: Connect, Inform, Serve, and Lead. Those pillars guide my work as chair of my town’s Clean Energy Commission, as teacher and facilitator of workshops and events, and as an author of books for young people. I'm drawn to the powerful use of storytelling as a tool for starting conversations, stirring up “good trouble,” and inspiring activism. Read a book, approach your library or town to host a community conversation, leave with actionable takeaways, repeat!

Carrie's book list on non-fiction to inspire community conversations

Carrie Firestone Why did Carrie love this book?

I chose Lyme: The First Epidemic of Climate Change because I live in Connecticut and my own family and friend group have been gravely impacted by tick-borne infections. In fact, the subplot of my novel focuses on the frustrating story of a family seeking answers to this “mystery” illness.

We are at a moment where climate change is accelerating new and worsening pathogenic diseases and public health isn’t catching up fast enough. Mary Beth Pfeiffer provides a well-researched glimpse into the politics and pain of tick-borne infections in a climate-changing world.

I recommend this book as a community conversation starter because, more and more, citizens are coming together to share medical resources and put pressure on the public health community to act. 

By Mary Beth Pfeiffer,

Why should I read it?

1 author picked Lyme as one of their favorite books, and they share why you should read it.

What is this book about?

"Superbly written and researched." -Booklist
"Builds a strong case." -Kirkus
Lyme disease is spreading rapidly around the globe as ticks move into places they could not survive before. The first
epidemic to emerge in the era of climate change, the disease infects half a million people in the US and Europe each year,
and untold multitudes in Canada, China, Russia, and Australia.
Mary Beth Pfeiffer shows how we have contributed to this growing menace, and how modern medicine has
underestimated its danger. She tells the heart-rending stories of families destroyed by a single tick bite, of children
disabled, and of…


Book cover of This Is How I Save My Life: From California to India, a True Story Of Finding Everything When You Are Willing To Try Anything

Emily A. Francis Author Of The Taste of Joy: Mediterranean Wisdom for a Life Worth Savoring

From my list on encouragement for creative and spiritual souls.

Why am I passionate about this?

I have expertise on this theme because I've devoted the last almost thirty years of my life to body healing and a soulful path. I've studied the physical body and have a bachelor’s and a master’s degree to reflect those studies. But I needed a deeper understanding and I wanted to find healing laws that didn't apply to the average set of eyes. I spent a lot of years in pain, suffering from severe anxiety and panic, and I needed any help I could get to help me rebuild myself and reclaim my life into something powerful and independent. These books served as my guides in the creation of a brave and soulful path. 

Emily's book list on encouragement for creative and spiritual souls

Emily A. Francis Why did Emily love this book?

I am recommending this book because it’s a must-read for every single person who has something in their life that needs to be recovered and healed. I became friends with Amy after finding her books and she is truly the real deal. A young woman who had end-stage Lyme disease with no more hope of surviving it, went to India for a possible life-saving stem cell treatment that had an equal chance of killing her as it did of saving her. She takes us with her through India and through her treatment. When she went through all of this, she was not yet a writer, she was just trying to save her life. Now she shares with the world everything she had to learn in order to do that. Her story is heartwarming, terrifying, hilarious, and also heartbreaking. If you or anyone you know is faced with some sort of…

By Amy B. Scher,

Why should I read it?

1 author picked This Is How I Save My Life as one of their favorite books, and they share why you should read it.

What is this book about?

"A heartwarming and inspiring story that will change the way you look at life." -Vikas Swarup, New York Times bestselling author of Slumdog Millionaire

"An Eat Pray Love-like memoir." -Pam Grout, #1 New York Times bestselling author of E-Squared

When doctors have all but given up, when a diagnosis eludes you, and when every test result raises more questions than answers, how do you save yourself?

By the time Amy B. Scher was twenty-eight-years-old, she had lived through almost a decade of misdiagnoses, excruciating pain, brain lesions, bone marrow biopsies, blood transfusions, and multiple hospital stays to treat her late-stage,…


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