Why am I passionate about this?
I’ve had a severe hearing loss since birth and grew up dependent on lipreading and hearing aids. I’ve witnessed profound change in technology, from the large primitive hearing aid I had as a child, to digital and assistive listening technologies and the availability of cochlear implants. I’ve painfully navigated my way through public schools, and later at jobs, with an invisible disability. Today I am grateful for connectivity to the phone, captioning for movies and Zoom which enables me to lipread! I finally found my way to a life of creativity as a painter and writer.
Claudia's book list on living with a severe hearing loss
Why did Claudia love this book?
I was so engrossed by this poignant memoir that I inhaled it one day. Hay describes how he lost all his hearing in his 20s due to a rare disease that causes tumors that required removal over many surgeries with major side effects and long and difficult rehabs. Honestly, I don’t know how he achieved all that he did while juggling a demanding job and three children.
Delightfully woven throughout his account is a tale of his musical journey as he is determined to commit to memory the lyrics of his favorite songs while going deaf. I had fun learning about the music that informed his generation. I was also moved by the love between him and his devoted wife, Nora, who unfailingly stood beside him every step of the way.
It is a poignant account of bravery and resilience as he works hard to live a life as normal…
1 author picked Soundtrack of Silence as one of their favorite books, and they share why you should read it.
As a child, Matt Hay didn't know his hearing wasn't the way everyone else processed sound - and like a lot of kids who do workarounds to fit in, even the school nurse didn't catch his condition at the annual hearing and vision checks. But as a prospective college student who couldn't pass the entrance requirements for West Point, Hay's condition, generated by a tumour, was unavoidable: his hearing was going, and fast.
Soundtrack of Silence was his determined compensation for his condition: a typical Midwestern kid growing up in the 1980s, whose life events were pegged to pop music,…