“Everyone’s got something,” my mom used to say about my cerebral palsy. I knew kids who wore glasses or had mouthfuls of metal, but those somethings seemed normal compared to my leg brace, my limp, and my inability to run. When Judy Blume’s Deenie came out on my eleventh birthday, it was the very gift I needed: the story of a girl, a diagnosis, a brace. Reading it, I felt seen and understood, which led me to believe I might have a story to tell. Now, I’m thrilled to share these books by disabled authors about disabled kids leading authentic, relatable lives. I had Deenie. Today’s lucky young readers have these.
The candor and vulnerability of seventh-grader Al Schneider grabbed me from the start. Her best and only friend is drifting away, she hasn’t told anyone she likes girls, and a constant urgent need to poop has taken over her life. When Al learns she has Crohn’s disease, she is terrified at first, but then the unexpected happens.
Her diagnosis brings a new group of friends into her life. They call themselves the Bathroom Club, and they’re warm, funny, understanding, and, above all, welcoming. What a gift to a kid who, until now, has found it “mortifying just to be alive and have a body.” What a gift to readers who have yet to discover that, if you let it, disability can offer entry into a rich, vibrant, and accepting community.
Twelve-year-old Al Schneider is too scared to talk about the two biggest things in her life:
1. Her stomach hurts all the time and she has no idea why. 2. She's almost definitely 100% sure she likes girls.
So she holds it in... until she can't. After nearly having an accident of the lavatorial variety in gym class, Al finds herself getting a colonoscopy and an answer - she has Crohn's disease.
But rather than solving all her problems, Al's diagnosis just makes everything worse. It's scary and embarrassing. And worst of all, everyone wants her to talk about it…
What makes this novel so compelling to me is how it captures the exuberance and intensity of teen friendships. That intensity has really revved for seventeen-year-old Andrea now that she’s realized she’s in love with her best friend Hailee. Unfortunately, she’s certain—partly because of her cerebral palsy—that Hailee couldn’t possibly feel the same.
Despite these doubts, Andrea has confidence and sass, which makes her a great model for readers with disabilities. That, along with her loyal, affectionate friend group, are my favorite aspects of the book. Andrea’s friends adore her, even as she makes a mess of things in an attempt to fall out of love. Also, they treat her disability matter-of-factly, as does the author. Andrea’s C.P. is real and present but never takes over the story.
1. Blueberries 2. Art show in ShoeHorn 3. Lizzo concert 4. Thrift shop pop-up 5. Skinny Dipping at the lake house 6. Amusement Park Day! 7. Drew Barrymarathon 8. Paintball day
Oh, and ….
9. Fall out of love with Hailee.
Andrea Williams has got this. The Best Summer Ever. Last summer, she spent all her time in bed, recovering from the latest surgery for her cerebral palsy. She’s waited too long for adventure and thrills to enter her life. Together with her crew of ride-or-die friends, and the best parents anyone could ask…
Being a poet, I love verse novels, and this one grows richer every time I read it. Seventh-grader Selah works hard to follow rigid, self-imposed rules so she’ll be seen as a “normal” girl in school, someone who doesn’t get overwhelmed by crowds or noise or jump from unexpected touch as though she’s been shocked.
What’s amazing about Selah is that, when keeping to those rules proves impossible and she gets in trouble, she trusts herself. With a few clues, she comes to understand she’s on the autism spectrum and finds simple tools that make a big difference.
She also starts expressing herself by writing poems. It moves me so much that poetry is represented here as a source of strength and that being unique is recognized as an asset.
A debut novel-in-verse about understanding and celebrating your own difference. Selah knows her rules for being normal.
This means keeping her feelings locked tightly inside, despite the way they build up inside her as each school day goes on, so that she has to run to the bathroom and hide in the stall until she can calm down. Selah feels like a dragon stuck in a world of humans, but she knows how to hide it.
Until the day she explodes and hits a fellow student.
As her comfortable, familiar world crumbles around her, Selah starts to figure out more…
So many of us, especially as teenagers, have felt the need to hide what’s different about us from classmates and friends. This spare, lovely verse novel captures those feelings perfectly. Natalie, who lives with chronic pain and frequent bone dislocations due to Ehlers-Danlos Syndrome, is so invested in this facade that she hides her wheelchair and forces herself to walk in school despite the pain and damage to her joints.
But secretiveness is, of course, born of shame. And disability, Natalie eventually learns with the help of a fiery, self-possessed disabled friend, isn’t what’s shameful. Inaccessibility is. Ableism is. Eventually, the two girls join forces to confront both in their school community, making this book a call to action and self-acceptance. I also find it to be an unputdownable page-turner.
Sometimes in high school, all you want is to be invisible. Being invisible might be the biggest problem of all for Natalie. She has a disability that causes chaos to her body on the inside but leaves her unmarked on the outside. She's learned to hide her pain so well that you would never guess she's not the same Natalie as she was before she got sick. But after having surgery, Natalie must return to school in a wheelchair. Now, Natalie has to decide if the painful consequences of pretending to be healthy are worth keeping the last of her…
I know a book has me in its grips when the world the characters inhabit feels as real as my own. This was so true for me with Cursed that when I got to the part where ninth-grader Ricky has a falling out with her dorky yet incredibly wise, solicitous friend Oliver, it upset me enough to affect my sleep.
Life’s thrown a lot at Ricky by the time we meet her. The end of her parents’ marriage, friends who ditched her when she got sick, bullies at her new school, and, through it all, debilitating pain from juvenile arthritis. She’s understandably angry. She’s also smart, determined, and funny as hell. I loved being in on her private jokes and innermost thoughts, watching her evolve, and ultimately evolving with her.
A debut novel for fans of The Fault in Our Stars that thoughtfully and humorously depicts teen Ricky Bloom's struggles with a recent chronic illness diagnosis.
"Silverstein sheds a powerful light on disease and how managing it can bring out one’s inner warrior. A blistering coming-of-age tale that will propel readers into Ricky’s corner." -Booklist
As if her parents' divorce and sister's departure for college weren't bad enough, fourteen-year-old Ricky Bloom has just been diagnosed with a life-changing chronic illness. Her days consist of cursing everyone out, skipping school--which has become a nightmare--daydreaming…
This verse novel is about sixteen-year-old Cara who has cerebral palsy. Self-conscious about her limp, she’s convinced her disability is why boys always place her in the friend zone. Now, she has a new crush, Josh. They’re both huge fans of a popular mystery podcast and, as it happens, Cara has a real-life mystery of her own. She’s never been curious about the donor who’s her biological father, but now that Josh is interested in learning his identity, she’s all in.
As Cara starts exploring, she stumbles upon a family secret that just might explain the feeling she’s always had that something important is missing from her life. But with this knowledge, her life may never be the same again.
I’m an OB/GYN, passionate about adventuring beyond what’s expected. This has led me to pivot multiple times in my career, now focusing on writing. I’ve written a play, The Post-Roe Monologues, to elevate women’s stories. I cherish the curiosity that drives outer and inner exploration, and I love memoirs that skillfully weave the two. The books on this list feature extraordinary women who took risks, left comfort and safety, and battled vulnerability to step into the unknown. These authors moved beyond the stories they’d believed about themselves–or that others told about them. They invite you to think about living fuller and bigger lives.
Tap Dancing on Everest, part coming-of-age memoir, part true-survival adventure story, is about a young medical student, the daughter of a Holocaust survivor raised in N.Y.C., who battles self-doubt to serve as the doctor—and only woman—on a remote Everest climb in Tibet.
The team attempts a new route up the East Face without the use of supplemental oxygen, Sherpa support, or chance for rescue. When three climbers disappear during their summit attempt, Zieman reaches the knife edge of her limits and digs deeply to fight for the climbers’ lives and to find her voice.
The plan was outrageous: A small team of four climbers would attempt a new route on the East Face of Mt. Everest, considered the most remote and dangerous side of the mountain, which had only been successfully climbed once before. Unlike the first large team, Mimi Zieman and her team would climb without using supplemental oxygen or porter support. While the unpredictable weather and high altitude of 29,035 feet make climbing Everest perilous in any condition, attempting a new route, with no idea of what obstacles lay ahead, was especially audacious. Team members were expected to push themselves to their…
