I am a debut novelist writing stories that peel back the layers of complex and often fraught relationships with those who are closest to us, family relationships being among the most intriguing to me. I wrote a novel focused on a single father and his daughter in part as a tribute to my own incredible father, who has dedicated his life to bettering life for my mother, my brother, and me. I also think father-daughter stories go largely unwritten and uncelebrated, so Our Best Intentions is my attempt to fill that void.
The story of thirty-year-old, recently unengaged Ruth Young, who moves back in with her parents for a transitional year to help care for her father, Howard Young, a history professor recently diagnosed with Alzheimer’s.
Khong’s novel, written as a diary, contains astute vignettes on a daughter's understanding, misunderstanding, and re-learning to love her father. The novel addresses the heavy topic of caring for one’s aging parent, who is in the throes of dementia. And while the Fosters will, at times, make you weep, they remarkably are also able to elicit a chuckle in the next breath.
'Khong is a magician ... Brilliant' Lauren Groff, author of Fates and Furies
'Khong's first novel sneaks up on you - just like life, illness and heartbreak. And love. A million small, human and often deeply funny details gather force to tell a tale that is ultimately, incredibly poignant' Miranda July, author of The First Bad Man
Ruth is thirty and her life is falling apart: she and her fiance are moving house, but he's moving out to live with another woman; her career is going nowhere; and then she learns…
I am a caregiver who became an author. Both my parents had dementia. I found few books written from a personal perspective to give me guidance, so the journal I kept ultimately became the book I wished I could have read during our dementia journey. The journey didn’t end for me with the death of my parents. It led me to form a non-profit with two other dementia authors. This passion project has become a global community of authors who have written about Alzheimer’s and dementia from personal experience. Now more than 300 strong, we provide quality resources for caregivers and others concerned about dementia. Learn more at AlzAuthors.com.
I was drawn in by Marianne Sciucco’s novel about a man caring for his wife with Alzheimer’s. It’s a love story between a long-married couple, one of whom has dementia. It’s about a husband’s determination to honor his wife’s request to stay in their home, even though his own health is failing. It’s about the magic of the day they “escape.” I loved this book because it showed me that love endures despite dementia; despite what life throws our way.
What if the person who knew you best and loved you most forgot your face, and couldn't remember your name? The PromiseA care facility is everyone's solution for what to do about Sara, but her husband, Jack, can't bear to live without her. He is committed to saving his marriage, his wife, and their life together from the devastation of Alzheimer’s disease. He and Sara retired years ago to the house of their dreams, and operated it as a Cape Cod bed and breakfast named Blue Hydrangeas. Jack has made an impossible promise: He and Sara will stay together in…
My book, No Safe Haven was written about the American Civil War, most specifically about the Battle of Gettysburg. It was a story I came across while on vacation in Gettysburg. I have a Bachelor of Arts degree in English and History and the historical novel genre is one I love. It gives me an opportunity to explore past worlds and try to learn the lessons of the past to apply to the present and hopefully to the future. When I learned about Tillie Pierce’s experience surviving the Battle of Gettysburg, I knew I had to tell her story.
This book is a wonderful coming-of-age book in a series. It is a heartfelt story of a young girl who is faced with the slow death from Alzheimer’s Disease of her next-door neighbor who is also a surrogate grandmother. As she helps care for the woman, she draws closer to the woman’s grandson and learns hard lessons about love and loss. I personally loved this book because I could feel the emotional tug of the story. It’s also a quick read, great for a beach day or an afternoon of reading.
"Without knowing or caring where I’d wind up, I sneaked out of the house and took off running." Wendy Robichaud is on schedule to have everything she wants in high school: two loyal best friends, a complete and happy family, and a hunky boyfriend she’s had a crush on since eighth grade—until she and Mrs. Villaturo look at old photo albums together. That’s when Mrs. V sees her dead husband and hints at a scandal down in Cajun country. Faster than you can say “crawdad,” Wendy digs into the scandal. She risks losing boyfriend David by befriending Mrs. V’s cute…
An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.
I can’t even imagine having both parents diagnosed with Alzheimer’s on the same day. But Jean Lee handles this situation with grace and devotion. Through her parents’ letters, she shares their love story. Ed and Ibby have a beautiful bond as do their daughters, yet the girls face a challenging road of caregiving that is sad, humorous, and touching, but always a model for how to love well. In Jean’s book, she casts a spell of nostalgia, faith, and whimsy, pulling the reader into a circle of intimacy.
What would you do if both parents were diagnosed with Alzheimer’s?At the time of their diagnosis, Ed Church struggles to his feet, yelling, “How dare you use the A. word with me,” while Ibby wags her finger at the doctor scolding, “Shame on you.”They protect each other, Ibby by asserting, “We’re not leaving our home,” and Ed reassuring, “We’re just fine.”About his driving Ed defends, “I’m an excellent driver, I’ve never had an accident.” When their daughter, Rosie, finds dings in Ed’s car, he dismisses, “Someone must have bumped into me.”After Rosie moves them to assisted living, convinced they are…
The inspiration to write about Alzheimer’s came from my own life. My grandfather had the disease. He and I were very close and it broke my heart when I realized I’d been forgotten. He only remembered my voice, that it sounded like a little girl he used to know. I wanted to capture the truth of that in a story. Sadly, dementia is so common, but for some reason, we don’t talk about Alzheimer’s as openly as we do other diseases. Kids need to be able to have everyday conversations about what they might be experiencing in regards to whomever they know with the disease. My hope is that books like Flowers can help.
Sticky Notes centers on a parent who has early-onset Alzheimer’s and is told from the perspective of a 10-year-old boy, Foster. The voice is a genuine one and the writing is heartfelt, as Foster compares his own forgetting to Dad’s forgetting and sometimes convinces himself that there is no need to worry. The confusion and lack of clear discussion with Foster about what is happening is a real challenge for many dealing with the disease. As the forgetting gets worse and Dad begins to change, Touchell documents the family changes that Foster and his mother go through too, with a sensitive touch.
For fans of The Thing About Jellyfish, a touching story about the power of love and family in the face of a parent's early-onset Alzheimer's disease.
Ten-year-old Foster has always loved listening to his dad's stories. But lately, Dad's memory hasn't been so great, and Mom's placed sticky notes around the house to help him. As Dad's condition worsens, it's Foster who will need to look deep into his heart and remember for them both.
Sticky Notes is a touching story about the power of love and family in the face of a parent's Alzheimer's disease, and a moving reminder…
I
have always been a huge Terry Pratchett fan and this biography, by his personal
assistant of many years, speaks so strongly with Pratchett’s voice.
A great
deal of it is derived from Pratchett’s notes on the autobiography that he began
when he was tragically diagnosed with early-onset Alzheimer’s disease. Wilkins’
text takes us from Pratchett’s early childhood (when the headmaster of his
school decided he wasn’t going to amount to much) through the beginnings of
Discworld, and on to his collaboration with Neil Gaiman on Good Omens, among other adventures.
The chapter titles themselves
are Pratchettian: Chapter 3 is called “Smutty Magazines, Unfinished Custard and
the School Uniform of Satan.” Just go read it.
WINNER OF THE 2023 LOCUS AWARD FOR NON-FICTION WINNER OF THE BRITISH SCIENCE FICTION ASSOCIATION AWARD FOR BEST NON-FICTION
'Always readable, illuminating and honest. It made me miss the real Terry.' - Neil Gaiman
'Sometimes joyfully, sometimes painfully, intimate . . . it is wonderful to have this closeup picture of the writer's working life.' - Frank Cottrell-Boyce, Observer
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At the time of his death in 2015, award-winning and bestselling author Sir Terry Pratchett was working on his finest story yet - his own.
The creator of the phenomenally bestselling Discworld series, Terry Pratchett was known and loved around…
As an educator, author of children’s books, and caregiver of a loved one with dementia, I felt that I had to write a story about the disease from a child’s point of view. When I became a caregiver, I was struck by the lack of information for children and the misconceptions of the public about the disease. I wanted to create a story that reassures children and gives them guidance on how they can help be a caregiver. I added the Author’s Note to provide accurate information to adults so that more people are aware of the signs of dementia and to build understanding and compassion.
What a wonderful way to help children understand that residents in nursing homes and assisted living centers led rich, interesting lives.
So many children have loved ones who are in long-term care facilities and this beautiful book shows children how they can build friendships with residents. I highly recommend this if a loved one can’t communicate but appreciates a visit from a young child.
Oak Grove Retirement Home recently got a new resident named Mrs. Inez. She doesn't talk much, and doesn't seem to like her surroundings, but she has a lot of photos on her wall that show she had a life full of memories to be shared. She wants to be left alone, it seems, but that doesn't stop one special little girl from wanting to be her friend.
I am a registered nurse, author, and dementia daughter. As a nurse and hospital case manager, I spent many years caring for people living with dementia and their families. This inspired me to write a novel, Blue Hydrangeas, an Alzheimer’s love story. I soon encountered difficulties marketing my book. I reached out to two other dementia daughters I’d met online who had also written books on the subject from personal experience and together we founded the non-profit organization AlzAuthors.com. Our mission is to carefully vet resources – stories of personal caregiving – to help busy caregivers find the information and inspiration they need for their own journeys. To date, we are 300+ authors strong.
Gerda Saunders was diagnosed with cerebral microvascular disease, the leading cause of dementia after Alzheimer’s disease, a few days before her sixty-first birthday. This forced her to confront her mortality and to write an end-of-life plan she could live with. Gerda is a brave, inspiring woman. Her book is a rich, thoughtful accounting of life with dementia.
A "courageous and singular book" (Andrew Solomon), Memory's Last Breath is an unsparing, beautifully written memoir -- "an intimate, revealing account of living with dementia" (Shelf Awareness).
Based on the "field notes" she keeps in her journal, Memory's Last Breath is Gerda Saunders' astonishing window into a life distorted by dementia. She writes about shopping trips cut short by unintentional shoplifting, car journeys derailed when she loses her bearings, and the embarrassment of forgetting what she has just said to a room of colleagues. Coping with the complications of losing short-term memory, Saunders, a former university professor, nonetheless embarks on…
I am a caregiver who became an author. Both my parents had dementia. I found few books written from a personal perspective to give me guidance, so the journal I kept ultimately became the book I wished I could have read during our dementia journey. The journey didn’t end for me with the death of my parents. It led me to form a non-profit with two other dementia authors. This passion project has become a global community of authors who have written about Alzheimer’s and dementia from personal experience. Now more than 300 strong, we provide quality resources for caregivers and others concerned about dementia. Learn more at AlzAuthors.com.
Ann Campanella’s memoir details her journey through caregiving for her mother with Alzheimer’s at the same time she was struggling to start her own family. I felt it all: the anxiety, the frustration, as well as the pain, as she watched her mother decline while coping with an inability to conceive. Ann’s book reminded me to appreciate life’s joys, no matter how small, whether riding a beloved horse, marveling at a sunset, smelling a beautiful flower, or offering a simple hug.
Ann Campanella, a freelance writer and horsewoman, returns to North Carolina after a several year absence. In her mid thirties and ready to start a family, she is used to setting goals and accomplishing them. But when Ann experiences a series of miscarriages at the same time her mother shows signs of Alzheimer’s, she plunges into an emotional journey that leads her to a deeper understanding of herself and what it means to love.
"One of the best Alzheimer's books of all time." - Book Authority
I founded the All-Weather Friend, which is about helping friends get through difficult situations. My first book, Alzheimer’s: A Crash Course for Friends and Relatives, tells how to help people living with dementia. I’ve had hard times in my life—my husband’s brain tumor and suicide, my father’s dementia, infertility, miscarriage, my brother’s sudden death, and other things that flooded me with grief. But my life is filled with joy; I’ve learned that joy comes from God and from a compassionate connection with friends and people we love. I write and speak about “informed compassion.” I hope you’ll visit my website, where there’s a great dementia resource page with contributions by many readers.
Reading this book is like sitting in on a support
group. It’s a collection of quotes about living with dementia from people who
are doing just that.
I love it for churches starting a memory ministry because
these quotes could be quickly read aloud in worship services, as a “ministry
moment,” or read round-robin style in groups beginning to learn about dementia.
I like the collection of many voices speaking out candidly and poignantly about
this difficult journey.
Betsy Peterson spent fourteen years caring for her husband who was suffering from dementia, an experience that put her in touch with others inside the struggle to have or to care for someone with the disease. A combination of contributions from patients, their families, friends, and caregivers, Voices of Alzheimer's gathers the poignant stories, funny quotes, and priceless encouragement that Peterson heard and that helped her along the way. Capturing the many dimensions of the Alzheimer experience-the challenges, the struggles, the humour, and even the rewards-a Voices presents a varied, and realistic, look at what it's like to be affected…
