My Stroke of Insight: A Brain Scientist's Personal Journey
Life caught me by surprise when our youngest son was born with a birth defect that launched our family into the world of surgeries, and treatments. After experiencing the management of chronic care for our child firsthand, I realized how important it is to share personal stories and experiences. It enables empathy and a deeper understanding and appreciation of what patients and families go through. Autobiographical accounts of patients and families are still very limited. We need more people to come forward and share their own patient/family experiences in order to promote the betterment of healthcare and healing through relating with others and learning from others’ experiences.
A story of the first year of life of a baby who was born with a rare birth defect which occurs with a frequency of one in approximately 5000 babies born. A vivid description of the journey of a family that was shocked and overwhelmed by the fear of the unknown, and the perils of the surgeries and treatments that would follow. The story is a detailed account of the medical aspects (surgeries, recoveries, complications, infections, and treatment regimens) while often encountering a “not so friendly” medical system at times as well as dealing with psycho-social aspects of life.
The book provides valuable tips and suggestions so that others may benefit from the author’s experience. Learn about the journey with its trials and tribulations as experienced through the patient / parent’s perspective and appreciate the blessing of a normally functioning healthy human body.
Shepherd is readers supported. When you buy through links on our website, we may earn an affiliate commission. This is how we fund this project for readers and authors (learn more).
We think you will like Refuge: An Unnatural History of Family and Place, No Cure for Being Human: (And Other Truths I Need to Hear), and Memoir of a Debulked Woman: Enduring Ovarian Cancer if you like this list.
From Rick's list on The best books to read about resistance.
Finishing out the nonfiction—though I leave thousands undiscussed here—is Terry Tempest Williams’ seminal Refuge: An Unnatural History of Place. Bold and original in its direct comparisons between the personal and the ecological, the memoir chronicles the deterioration of Williams’ beloved mother, Diane Tempest, to ovarian cancer at the same time their shared landscape, the Bear River marshes of the Great Salt Lake where three generations of the Tempest had gloried in birding expeditions, were succumbing to record flooding. The memoir also details the exposure of Williams and her mother—her entire family—to radioactive fallout from the U.S. government’s atomic testing in the 1950s. Passionate, eloquent, fiery, informative, and wise, it’s a must-read.
From Laura's list on The best books about personal resilience: taking risks, falling, and getting back up.
Kate Bowler has everything going for her—dream career, family—until she is diagnosed with Stage IV colon cancer at the age of thirty-five. In No Cure for Being Human, Kate gives us a close-up look into her tumultuous (and often humorous) journey. She challenges some of the go-to responses to our mortality and asks: When there just isn’t enough time, how does one spend it? Kate helps us feel our raw humanity, unfiltered. Her truth is painful, poignant, and, joyful. A call to living with eyes, and hearts, wide open.
From Helen's list on The best books about getting through cancer treatment.