Both of my parents were diagnosed with Alzheimer’s on the same day. The time period from the beginning hints of subtle oddities in their behavior and cognition, through their diagnosis and until their deaths was a decade. I worked full time as an elementary teacher during their illness and had always read to solve problems. Therefore, I sought any authors who would share their personal experiences with me. These stories sustained me. They saved me. They allowed me to know I was not alone. From that experience grew my own memoir, Alzheimer’s Daughter.
Susan Landeis dealt with rejection and jealousy from her own mom as she was a little girl and through her teenage years. What does one do when an estranged parent is diagnosed with dementia and needs care? It is a rare individual who reacts with the kindness and forgiveness of Landeis. Because of that generosity and love, or perhaps because her mother forgot the meanness and rejection she inflicted on her daughter in years past, Susan and her mom grew a beautiful relationship during those caregiving years, giving them both comfort in the end.
Susan always knew her relationship with her mother was different from that of other mothers and daughters. As a young girl, she struggled to cope with her mother's unpredictable behavior, rejection, and abandonment. At the age of sixteen, she left home and put it all behind her. Years later, her mother was diagnosed with a devastating illness, and Susan was suddenly faced with the difficult decision to care for both of her parents. In this inspiring, soul-searching memoir, Susan tells the story of a troubled childhood, her struggles as an adult, and her determination to find peace with her mother…
I have been a medical social worker for over 40 years working with people who have had a catastrophic illness. I counseled them and their family members. Because of this experience, I have a lot of knowledge, experience, and training regarding the challenges caregivers face. In addition, I was the primary caregiver for my parents and helped take care of 2 friends helping them to die with dignity. Finally, I am the author of an 8-time award-winning book called Role Reversal How to Take Care of Yourself and Your Aging Parents. I have written hundreds of articles on health-related topics including aging and caregiving.
Rick Lauber is another caregiving expert that I turn to for information and advice when I was a caregiver. This book is jam-packed with practical guidelines, tips, and resources for caregivers. It helps caregivers assess their needs and what care options are available to them as they care for the needs of their loved one changes and their ability to be a caregiver also changes.
You may be among the tens of millions of Americans who provide care for your parent — or you may be among the ten of millions who will. So many children are caught unprepared when physical and mental health declines in aging parents. Life cannot readily prepare you to furnish excellent eldercare while balancing the demands on your time. This book provides practical tips, realistic guidance, encouragement and insight into the time ahead. Among other things, it answers: • How do you decide when your parent stays at home or moves to assisted living? • What should you expect when…
I have worked in senior living for over 25 years. I was the administrative director of both an assisted living facility as well as a memory care facility and then I worked for over 18 years in one of the top national Life Care Communities in the country. During this time, I helped thousands of families navigate the complex and confusing world of senior living. I wrote my book to help families make educated and informed decisions and know what they could do before a crisis! It is not if your parents will need help, it is when! I am passionate about passing on the knowledge of my years in this field.
An excellent workbook full of all the information you will need to stay organized and manage the medical and financial information you need to have on hand or give to family members who are either helping you or will be in the future.
You don’t need to reinvent the wheel; this book will provide you with needed reminders about what kind of information you need to gather before a crisis!
Trusted for more than three decades by family caregivers and professionals alike, this comprehensive and reassuring caregiving guide offers the crucial information you need to look after your elders and plan for the future.
“The most complete resource between two covers.”—Woman’s Day
Being a caregiver for aging parents, close friends and family, and other elders in your life is an overwhelming experience, whether you are one who has stepped into this role without warning or one who is also contemplating their own care plan. Now in its fourth edition, The Complete Eldercare Planner will help you navigate today’s complex caregiving…
During my decades of working with caregivers as a dementia care expert, I have heard many accounts of what the experience is like—from the sad and hollow to experiences rich in significance. Everyone faces obstacles when caring for a loved one; some of these obstacles come in the form of uncomfortable or painful emotional histories or past unresolved conflicts. After each opportunity to raise awareness and understanding about how dementia impacts individuals, their families, and their communities, I have been gratified to witness enhanced feelings of hope and comfort for all involved. It is my hope that through this book I will enter your home or your professional caregiving setting and work alongside you.
The 36-Hour Day is a comprehensive guide for caregivers that is often recommended by physicians to the families caring for a loved one with any cause of dementia symptoms or cognitive decline. I found the information provided very practical on the medical, legal, financial, and emotional aspects of caring for an individual presenting any level of dementia symptoms.
The clinical insights provided were very helpful, and the information for the caregiver throughout on the value of accessing outside help is such an important reminder for them to not try and navigate this dementia care journey alone!
Combining practical advice with specific examples on how to cope with the challenges associated with caring for a loved one with dementia symptoms make this an excellent guide for the family caregiver.
Through five editions, The 36-Hour Day has been an essential resource for families who love and care for people with Alzheimer disease. Whether a person has Alzheimer disease or another form of dementia, he or she will face a host of problems. The 36-Hour Day will help family members and caregivers address these challenges and simultaneously cope with their own emotions and needs. Featuring useful takeaway messages and informed by recent research into the causes of and the search for therapies to prevent or cure dementia, this edition includes new information on * devices to make life simpler and safer…
As both a lifelong traveler and reader, I cannot start an adventure without a great book. Having owned a Kindle since 2008, I consistently carry a virtual library, curating an assortment of captivating reads for every journey. As a travel journalist, I fly multiple times a month, which amplifies my need and understanding of the perfect in-flight companions; stories that transport and captivate. As an author with a memoir to my name, I appreciate the transformative power of storytelling. This blend of literary passion, frequent travel, and personal authorship has led me on my search for engaging, unforgettable books that mesmerize the reader.
Each of Lisa Genova’s books brings her deep understanding of neuroscience into the portrayal of a family's journey with a medical issue, making the novel both heart-wrenching and enlightening.
This book is an emotionally charged novel about a renowned pianist confronting the devastating progression of ALS. It captures the complexities of love, loss, and redemption.
I was especially drawn to this book since my aunt had a similar progression with the same illness. Genova’s compelling exploration of the human spirit and the transformative power of compassion always brings me to tears. As you soar through the skies, let this book be your poignant and immersive literary escape.
An accomplished concert pianist, Richard received standing ovations from audiences all over the world in awe of his rare combination of emotional resonance and flawless technique. Every finger of his hands was a finely calibrated instrument, dancing across the keys and striking each note with exacting precision. That was eight months ago.
Richard now has ALS, and his entire right arm is paralyzed. His fingers are impotent, still, devoid of possibility. The loss of his hand feels like a death, a loss of true love, a divorce-his divorce.
I’ve published more than 30 books in this genre, and more are on the way. I am passionate about it because I started writing Sapphic romance myself after reading a few really great books in the genre for the first time and the books that made me want to write myself were the ones that made me laugh and had great character development to go along with the laughter. The books I write today are often funny, some are sarcastic, and they’re focused on characters. These books also fit that bill.
I listened to this book, so it helped that it had a great narrator in Melissa Moran. Since I usually listen to books before bed, you can understand that finding a good book that makes me laugh probably wouldn’t help me get much sleep, and this is one of those books. The story is a fake romance, which is a trope in this genre that everyone seems to love. Lacey is dry and sarcastic, which is my favorite kind of character, and it takes place on a TV show set, so if you’re into celebrities and Hollywood romances like my Celebrities Series, this one is for you. I’ve probably listened to this book at least 5 times already.
Coming out is easier when you’ve got someone by your side. At least that’s how the hyper-private Quinn Kincaid sees it. When her publicist suggests a good old-fashioned sham of a Hollywood relationship, Quinn reluctantly agrees. And that’s how the star of Jordan’s Appeal, TV’s highest rated legal drama, ends up with a fake girlfriend—the very real, very sexy, and very gay soap star, Lacey Matthews.
The two clash immediately, and often hilariously, as they figure out how to fake a budding romance. And of course, things are never as simple as they seem. A freak accident, some reluctant caregiving,…
After my dad died, I didn’t know where to turn. People felt uncomfortable talking to a seventeen-year-old girl about her dead dad. They felt even more uncomfortable talking to me about it one, two, ten years later. Still, I couldn’t, can’t, stop thinking about it. I turned, then, to books. These books made and make me feel seen. They aren’t about “moving on” or “letting go” but the ways in which leaning into grief’s deep well connects us to love’s true depths. These books are honest and pure, and if you don’t know what to say to a friend who’s mourning, let these authors speak for you.
Joy might not be the first thing you think of when
considering grief, but then maybe you haven’t read Ross Gay.
Gay understands
that joy exists because of grief, not as a counterbalance, but in a deeply
reciprocal relationship. As his father is dying, he presses their faces
together, and in his father’s freckles, he sees seeds, a garden. It is just one
instance in this book where Gay recognizes that what grows from loss is love.
His book clarifies what I know to be true: that when we fall into the hole of
loss, we find ourselves in a deep well of love.
A collection of gorgeously written and timely pieces in which prize-winning poet and author Ross Gay considers the joy we incite when we care for each other, especially during life's inevitable hardships.
In "We Kin" he thinks about the garden (especially around August, when the zucchini and tomatoes come on) as a laboratory of mutual aid; in "Share Your Bucket" he explores skate-boarding's reclamation of public space; he considers the costs of masculinity in "Grief Suite"; and in "Through My Tears I Saw," he recognizes what was healed in caring for his father as he was dying.
Juggling roles as a professor, nurse practitioner, author, mother, and grandmother would seem to limit my reading time but instead, I always have a book in my car, on my phone, or in my hands. I read broadly and enjoy all genres, from fiction to nonfiction, poetry to medical comics, as well as the creative essay columns nursing journals are beginning to embrace. In particular, I gravitate toward resources that help nurses create a positive relational workplace where their best efforts can be even more effective. Whether it’s ending the RN-RA (relational aggression) Rut, using poetry to express feelings about caregiving, or writing creatively about the many aspects of nursing, I am ready to read! And of course, the best part of reading is having a discussion with colleagues or friends about what exactly that book was about…
This story about four patients cared for by nurse practitioner and acclaimed poet Cortney Davis reminds me a bit of pandemic narratives in that she works in a public clinic with individuals whose financial, emotional, or social situation puts them at risk. Since her patients are all female, their needs are related to gynecology, but the bigger story is Cortney’s ability to connect with them on a humanistic level and share their hopes, concerns, and fears.
"I cannot ignore the reality of the body, its glorious beginnings and its subtle endings," writes Cortney Davis in this intimate and startlingly original account of her work at a women's clinic. A poet and nurse-practitioner with twenty five years' experience, Davis reveals the beauty of the body's workings by unfolding the lives of four patients who struggle with its natural cycles and unexpected surprises: pregnancy and childbirth, illness and recovery, sexual dysfunction and sexual joy. An abundance of solid medical information imbues every graceful line.
Davis's eternal question to herself is: How do you help someone to not merely…
I have been teaching college students about aging since I was in my late 20s. The audacity! Now that I am officially in the “young-old” category I used to describe to my students, I more fully appreciate the social constructions of aging that affect elders, the medical conditions that can derail plans for “a good old age,” and the challenges we all face in attempting to live with meaning and purpose as we grow older. In addition to teaching, writing about, and researching various aspects of aging, especially aging with various type of dementia, my work has addressed the positive and negative ways religious faith can shape how people cope with aging.
Janet Ramsey’s experiences as a chaplain, therapist, and family caregiver have taught her that people living with dementia deeply desire interactions with others that uphold their dignity and offer them love and forgiveness. She interviewed many dementia caregivers and throughout the book, she lets them express what dignity and grace mean in their everyday interactions with loved ones. Each chapter concludes with a reflection on a different Psalm, reflections that speak directly to the challenges and opportunities for growth that come with caregiving. Readers need not be Christian or in any way religious to appreciate the warmth and humanity conveyed throughout this book.
"I'm a stranger in a strange land," sighed the dignified gentleman Janet L. Ramsey met walking down the care-center hallway. Those words, her first glimpse of the confusion that comes with dementia, led her into a lifetime of work with older adults.
If you have been diagnosed with dementia or you are accompanying someone with this illness, you may find yourself on a journey that began with a sudden diagnosis and an acute sense of panic. Or perhaps your journey started gradually, as you noticed changes in yourself or in your partner or parent.…
I have been an educator for over 20 years teaching elementary-aged children. The environment is a passion of mine. After reading the book Plastic Ocean and meeting the author Charles Moore, I realized that the issues facing our environment are going to be best solved by the upcoming generation of children. They understand how important it is to preserve our planet. Combining my love of writing with my education background, I started writing books to teach children about the environment and inspire them to make lasting changes. I love recommending books that have the same mission. Small actions equal great changes!
We’re all looking for ways to teach our children to care for each other as well as our planet. This is a wonderful way to engage kids and get them thinking about the greater good. Filled with fun ideas, children are empowered to make a difference. I love the discussion questions to prompt thinking and the place for children to write down their own ideas.
This engaging book provides over 40 powerful ideas on how kids and the people who love them can make a difference. Using kid-friendly text and beautiful illustrations, the focus is on three key areas: empathy and kindness, racial and gender equality, and caring for the environment. We know from research that ‘doing good is good for you’. The participant benefits both mentally and physically. Encouraging a mindset of giving and being part of positive change when a child is young, benefits both the child and their future. The aim of this book is to introduce kids to the many positive…
