100 books like Iveliz Explains It All

As a person who has lived with chronic illness and disability for over a decade, I've often found it difficult to advocate for myself because I was afraid and because I just didn’t know that I had a right to speak up. Not just in medical settings but also with family and friends. So often, others with “authority” think they know what’s best for us, but in the end, we know our bodies best. I’ve learned to set boundaries, say no, and advocate for myself as a means of survival. These five books are wonderful examples of strong girls and young women using their voices to protect their bodily agency and build their body confidence.

I wrestled with big questions as a child, particularly concerning gender inequality. I was aware of the issue as young as 7 years old. I didn’t even feel comfortable challenging the way things were until I was a young adult. Thus began my journey of researching, studying, and embracing women’s rights and gender equality. I feel very passionate about presenting those big questions earlier in the lives of girls, so they start feeling comfortable challenging the places where things don’t make sense, or the areas where inequality still exists. There is a need for more books like these in the market, but I hope you enjoy this list!

As a person who has lived with chronic illness and disability for over a decade, I've often found it difficult to advocate for myself because I was afraid and because I just didn’t know that I had a right to speak up. Not just in medical settings but also with family and friends. So often, others with “authority” think they know what’s best for us, but in the end, we know our bodies best. I’ve learned to set boundaries, say no, and advocate for myself as a means of survival. These five books are wonderful examples of strong girls and young women using their voices to protect their bodily agency and build their body confidence.

As I mention in my book picks, I’m a romantic. I love stories with characters who have big emotions, even more so if they face unique challenges. And I have always loved reading – I was the kid lugging 12 books home from the library. (Technically, we were only allowed six at a time, but I used my brother’s library account and checked out his share too!) Reading that many books, I discovered that a lot of the plots get repeated, so I’m always on the lookout for something fresh. In my previous Young Adult novels, I’ve tried to put my own stamp on romance by focusing on queer protagonists and kids of color.

An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.   

The inspiration to write about Alzheimer’s came from my own life. My grandfather had the disease. He and I were very close and it broke my heart when I realized I’d been forgotten. He only remembered my voice, that it sounded like a little girl he used to know. I wanted to capture the truth of that in a story. Sadly, dementia is so common, but for some reason, we don’t talk about Alzheimer’s as openly as we do other diseases. Kids need to be able to have everyday conversations about what they might be experiencing in regards to whomever they know with the disease. My hope is that books like Flowers can help.

As a neurologist and neuropsychologist team who have spent their entire clinical, teaching, and research careers focused on individuals and their families experiencing memory loss, Alzheimer’s disease, and dementia, our goal is simple. We want to empower individuals and their families with the tools they need to manage memory loss, Alzheimer’s disease, and dementia. We work to balance pharmacological and nonpharmacological management, as well as the needs of the individual with those of their family. Reading books like the ones in our list plus articles in medical journals keeps us current with the progress in the science of dementia and the humanity of individuals and families living with the disease. 

As an old age psychiatrist, I was naturally interested in dementia. But I’m also trained to doctoral level in philosophy. I’ve been both an honorary professor of philosophy of ageing (at Newcastle) and a professor of old age psychiatry (at Bristol). Whilst training in psychiatry at Oxford, I came across the work of Tom Kitwood. Subsequently, I’ve become great friends with Steve Sabat. His work and Kitwood’s brought home to me the complexity of personhood and its relevance to how we care for and think about people living with dementia. And the more you consider it, the more the notion of personhood broadens out to include citizenship and human rights.

I have been teaching college students about aging since I was in my late 20s. The audacity! Now that I am officially in the “young-old” category I used to describe to my students, I more fully appreciate the social constructions of aging that affect elders, the medical conditions that can derail plans for “a good old age,” and the challenges we all face in attempting to live with meaning and purpose as we grow older. In addition to teaching, writing about, and researching various aspects of aging, especially aging with various type of dementia, my work has addressed the positive and negative ways religious faith can shape how people cope with aging.

Dogs make great supporting characters, adding drama or humor or pathos, and revealing so much about the humans in the story. I discovered this in writing my first novel: The narrator’s dog keeps her grounded when things go wrong and makes it possible for her to keep going through difficult times. For the reader, he provides levity and depth without turning it into a book about a dog. I had a great model – I used my own dog Boris, even appropriating his name. I think of the fictional Boris as real-life Boris’s best self.