Here are 100 books that How to Be Sick fans have personally recommended if you like
How to Be Sick.
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I became aware of the struggles of the LGBTQ community as a 22-year-old touring the Dachau concentration camp in Germany, where hundreds of gay men were imprisoned—my mother was a Holocaust survivor who survived Auschwitz. A month later, in October 1978, after I returned to San Francisco, Supervisor Harvey Milk and Mayor George Moscone were murdered. As a hippie, San Francisco seemed extremely tolerant, but after the murders, I realized there was a monumental struggle for “unalienable rights” in the LGBTQ community. I started photographing LGBTQ political events and, for six years, documented the “gay liberation movement” as it exploded across the streets of New York and San Francisco.
I found this to be a phenomenally original and imaginative dive into the tragic period of the AIDS epidemic.
I was gripped by the complex relationship between the different couples, the relationships between the characters, and “queerness” even if they were not. I learned about that dark period in American social history through the entwined lives of a few emotionally charged and engrossing characters.
Winner of the Pulitzer Prize for Drama Angels in America: A Gay Fantasia on National Themes includes Part One, Millennium Approaches and Part Two, Perestroika
“Glorious. A monumental, subversive, altogether remarkable masterwork…Details of specific catastrophes may have changed since this Reagan-era AIDS epic won the Pulitzer and the Tony, but the real cosmic and human obsessions—power, religion, sex, responsibility, the future of the world—are as perilous, yet as falling-down funny, as ever.” –Linda Winer, Newsday
"A vast, miraculous play... provocative, witty and deeply upsetting... a searching and radical rethinking of American political drama." - Frank Rich, New York Times
Like my main character, I’m a Norwegian writer with ties to the US, who grew up with various chronic illnesses. I discovered the reason for much of my trouble when I was diagnosed with endometriosis. Isolated and in pain, I have always turned to books. I craved seeing my life reflected. Since Please Read This Leaflet Carefully came out, I’ve heard from many readers. I hope that it can help people who haven’t seen themselves in art before. This list addresses the needs of a life with chronic illness and pain: guidance, darkness, humor, comfort, and poetry. I hope these books will help you as much as they did me.
This collection, published by Bloodaxe Books, categorizes poems loosely by theme and contains a treasure trove of the best poems to help you keep on living when life is too hard. There is a wide range of themes, as well as some uplifting poems that explore everything beautiful about being alive.
Staying Alive is an international anthology of 500 life-affirming poems fired by belief in the human and the spiritual at a time when much in the world feels unreal, inhuman and hollow. These are poems of great personal force connecting our aspirations with our humanity, helping us stay alive to the world and stay true to ourselves. Many people turn to poetry only at unreal times, whether for consolation in loss or affirmation in love, or when facing other extremes and anxieties. Staying Alive includes many of the great modern love poems and elegies, but it also shows the power…
Like my main character, I’m a Norwegian writer with ties to the US, who grew up with various chronic illnesses. I discovered the reason for much of my trouble when I was diagnosed with endometriosis. Isolated and in pain, I have always turned to books. I craved seeing my life reflected. Since Please Read This Leaflet Carefully came out, I’ve heard from many readers. I hope that it can help people who haven’t seen themselves in art before. This list addresses the needs of a life with chronic illness and pain: guidance, darkness, humor, comfort, and poetry. I hope these books will help you as much as they did me.
This is the first book where I read about experiences of childhood illness similar to my own. Reading it was both shocking and deeply cathartic in a way that felt almost dangerous. It is also a cold hard look at class, age, and intergenerational trauma in relation to health and healthcare in the US. It exists in its own category in my mind. All I can say is read it, just not on a bad pain day.
Diagnosed with cancer at age twelve and perilously pregnant at eighteen, surviving surgeries and violent accidents: sometimes you can't believe Bee Lavender is still alive; sometimes you think nothing could kill her. Bee Lavender holds nothing back as she recounts her life spent in and out of hospitals and her subsequent dissociation from her own body and emotions. She struggles with health problems from birth, which are compounded by her surroundings, including frequent encounters with street fights, domestic violence and poverty. Her voice is as strong as the front she puts up for the multitude of doctors she sees, and…
Like my main character, I’m a Norwegian writer with ties to the US, who grew up with various chronic illnesses. I discovered the reason for much of my trouble when I was diagnosed with endometriosis. Isolated and in pain, I have always turned to books. I craved seeing my life reflected. Since Please Read This Leaflet Carefully came out, I’ve heard from many readers. I hope that it can help people who haven’t seen themselves in art before. This list addresses the needs of a life with chronic illness and pain: guidance, darkness, humor, comfort, and poetry. I hope these books will help you as much as they did me.
I was absolutely stunned when I read "Unspeakable Conversations" by Harriet McBryde Johnson, one of the many brilliant pieces included in this reader. My edition is from 2010, but new and updated editions have come out since. It explores questions of interdependency and independence, gender, the body, sexuality, biases in science and medicine, and physical disabilities, and investigates issues around pain, mental disability, and invisible disabilities.
Becoming familiar with some disability theories has been invaluable to me. My capacity to read myself as disabled has grown and still fluctuates. To know that sharp minds have been working on this and that it isn’t only a private issue but a political and theoretical one, one that can be marked by joy and humor as well as grief, struggle, and hardship, is immensely helpful.
The fifth edition of The Disability Studies Reader addresses the post-identity theoretical landscape by emphasizing questions of interdependency and independence, the human-animal relationship, and issues around the construction or materiality of gender, the body, and sexuality. Selections explore the underlying biases of medical and scientific experiments and explode the binary of the sound and the diseased mind. The collection addresses physical disabilities, but as always investigates issues around pain, mental disability, and invisible disabilities as well. Featuring a new generation of scholars who are dealing with the most current issues, the fifth edition continues the Reader's tradition of remaining timely,…
I am a school psychologist and Christian who has lived with multiple debilitating chronic illnesses for 25 years. As a result, I am all too familiar with how disruptive and life-changing they can be to our daily lives. Yet few books exist that offer practical guidance for living with chronic illness. And even fewer of these books are for Christian readers. Written with different areas of expertise and angles, my book and the books below fill this gap. I hope you enjoy these books as much as I have!
I was drawn to this meticulously written book in part because the author is a professor of pharmacy and my father is a retired pharmacist. I found myself thoroughly enjoying, underlining, and learning from the wealth of insight into living with chronic illness. The author offers excellent tips for navigating relationships, the medical field, and evaluating treatment options.
While this book (like mine) is written for readers of all faiths, I appreciated and related to the testimony in the final chapter in which the author discusses the importance of his Christian faith and how it has helped him find meaning and purpose through suffering.
How do you live well when the physical foundation of your life is crumbling? This is the challenge for millions who live with diseases for which there is no cure. These incurable ailments produce a life of constant pain, fatigue, numbness, dizziness, and other debilitating symptoms that create chronic suffering. Can you thrive in life while experiencing the suffering persistent sickness provokes? In When There Is No Cure, Dr. Craig Svensson guides readers to a path of thriving when life’s journey includes an incurable ailment. Drawing on his expertise as a pharmacist-scientist, as well as a fellow sufferer with several…
I am a school psychologist and Christian who has lived with multiple debilitating chronic illnesses for 25 years. As a result, I am all too familiar with how disruptive and life-changing they can be to our daily lives. Yet few books exist that offer practical guidance for living with chronic illness. And even fewer of these books are for Christian readers. Written with different areas of expertise and angles, my book and the books below fill this gap. I hope you enjoy these books as much as I have!
As part of the Chronic Joy Thrive Series, President and Co-founder of Chronic Joy Ministry Cindee Snider Re offers a very useful book that consists of part devotional and part workbook. This is not a book to be simply read and passively absorbed; it is a book in which you will fill in the blanks on Bible verses, journal your thoughts, and answer reflection questions as they relate to your chronic illness and walk with Christ. Whether you use this alone or in a group setting, I found it comforting that Cindee walks alongside you, sharing experiences, scriptural insights, and pointing you to whom you can trust. No doubt this will strengthen your faith while dealing with the challenge of chronic illness.
Discovering Hope is a 10-chapter study inviting you to embrace a new perspective, celebrate the small victories, wrestle with difficult questions, and learn to laugh again. Often.No matter how dark the days, how wild the storm, how deep the valley or how long with winter, there is hope. There is always hope.
I am a school psychologist and Christian who has lived with multiple debilitating chronic illnesses for 25 years. As a result, I am all too familiar with how disruptive and life-changing they can be to our daily lives. Yet few books exist that offer practical guidance for living with chronic illness. And even fewer of these books are for Christian readers. Written with different areas of expertise and angles, my book and the books below fill this gap. I hope you enjoy these books as much as I have!
As noted in the final chapter of my own book, laughing is something I need to do more. Chronic illness is debilitating as it can (and does) drain my energy and zap my mood. As part of the Sick and Tired series, I thoroughly enjoyedLaughter for the Sick and Tired as it is lighthearted, the humor is clean, the author is a great storyteller, and reading this resulted in several belly laughs.
Amazon Bestselling author Kimberly Rae, who lives with five annoying (and sometimes serious) health conditions, shares her medical mishaps and just plain weird experiences, such as:
*When her blood tests were lost at the hospital and she almost got treated for a random stranger’s liver problem. *When the doctor’s Central IV went up to her jugular instead of down, and he told her he’d fix it tomorrow! *Strange medical adventures from countries around the world.
Along with jokes, fun facts, and stories from other chronically ill friends, Laughter for the Sick & Tired may be just the dose of medicine…
As a woman who suffers from chronic illness, I am interested in sharing my experience and learning about other women who also suffer and survive their chronic conditions. I have had endometriosis, a painful disease, since I was a teenager. I’ve always enjoyed stories about different kinds of chronic illnesses, and I appreciate the way pain and sickness can be translated into memorable books.
O’Rourke blends personal anecdotes, meticulous research, and compelling conviction as she argues that how we treat chronic illness needs to change.
She unpacks the complex nature of autoimmune conditions offering the history of Western Medicine’s approach to illness and even shedding a light on why so many sick people are often left without definitive diagnoses or helpful treatment plans. This is a multi-dimensional portrait of autoimmune disease and chronic illness that I could not put down.
What does it mean to live a good life in a world shared with a multitude of other beings? I’ve spent my career exploring this question, in both my personal and my professional life. In my work as a bioethicist, I’ve researched and written about how to integrate environmental values into health care and medical research; how to think through (and survive) caring for a companion animal who is nearing the end of life; and why keeping pets is ethically problematic. My most current project—in collaboration with my canine companion Bella—is about ethics in human-dog relationships.
Bailey’s book is about a friendship (one-sided perhaps) between a woman and a snail. She describes her growing affection for a woodland snail who is trapped inside with her during a long illness. Although Bailey isn’t offering commentary on pet-keeping, her book suggests a compelling alternative to loving animals—especially creatures we bring in from the wild—by making them into our pets. She shows us how to encounter another creature with curiosity, wonder, and respect.
While an illness keeps her bedridden, Elisabeth Bailey watches a wild snail that has taken up residence in a terrarium alongside her bed. She enters the rhythm of life of this mysterious creature, and comes to a greater understanding of her own confined place in the world. In a work that beautifully demonstrates the rewards of closely observing nature, she shares the inspiring and intimate story of her close encounter with Neohelix albolabris - a common woodland snail.
Intrigued by the snail's world - from its strange anatomy to its mysterious courtship activities - she becomes a fascinated and amused…
As a woman who suffers from chronic illness, I am interested in sharing my experience and learning about other women who also suffer and survive their chronic conditions. I have had endometriosis, a painful disease, since I was a teenager. I’ve always enjoyed stories about different kinds of chronic illnesses, and I appreciate the way pain and sickness can be translated into memorable books.
Huber is an author and teacher whom I adore, and I am lucky enough to call friend and mentor, but her writing will make everyone fall in love with her.
Heartfelt, lyrical, brutally honest, and funny, this collection of essays will give you new insight into what it means to live in chronic pain. She writes in a way that makes illness and pain itself almost beautiful. If you want poetic writing, a compelling narrative, and an experimental approach to understanding the pain that is an inextricable part of life for some of us, this book is for you.
Rate your pain on a scale of one to ten. What about on a scale of spicy to citrus? Is it more like a lava lamp or a mosaic? Pain, though a universal element of human experience, is dimly understood and sometimes barely managed. Pain Woman Takes Your Keys, and Other Essays from a Nervous System is a collection of literary and experimental essays about living with chronic pain. Sonya Huber moves away from a linear narrative to step through the doorway into pain itself, into that strange, unbounded reality. Although the essays are personal in nature, this collection is…
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