I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.
The COVID-19 virus swept across the world like a hurricane, and 20 survivors of the storm gathered to share the lessons they had learned.
I love how this book centers on the experiences of people living with Long Covid who not only point out the inequities of our health systems but also give practical advice about getting a diagnosis, navigating care, asking for help, and contributing to research.
You don’t have to have Long Covid to benefit. Their wise advice applies to everyone.
The first patient-to-patient guide for people living with Long COVID - with expert advice and an afterword by the leading research scientist.
For people living with Long COVID, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms, and with doctors continuing to work toward a cure, people experiencing Long COVID are often left with more questions than answers. A support group in book form, The Long COVID Survival Guide is here to help. Twenty contributors - from award-winning journalists, neuroscientists, and patient-researchers to corporate strategists, activists, and artists - share their…
A big motivation for writing Cursedwas what I saw as a dearth of authentic disability and chronic illness rep in books for kids. Where were the characters who were angry, messy, scared? Where were the kids in real pain—physically, emotionally, socially—who maybe weren’t surrounded by supportive friends and family and maybe didn’t handle their diagnoses with grace? When I was first diagnosed with juvenile arthritis at thirteen, I was all of the above—and then some. I’ve identified as disabled for 30+ years and am active in various disability groups and spaces. It’s my pleasure to champion kids’ books with authentic disability and chronic illness representation.
It was such a pleasure to read about a teen navigating high school with arthritis, as I had. Better yet, a sweet, awkward romance is the heart of this book rather than its focus being on Isabel’s chronic illness. In my experience, life with chronic illness is just that—life, with all its ups, downs, pleasures, absurdities, etc. Sasha is a swoon-worthy love interest, and neither character’s chronic illness is downplayed or mined for soapy dramatics. There’s an authenticity here, particularly in the often mundane hospital scenes, that signifies this is an author who’s sharing, to at least some degree, her own lived experiences.
All the women in her family are heartbreakers, and she's destined to become one, too, if she's not careful. But when she goes to the hospital for her RA infusion, she meets a gorgeous, foul-mouthed boy who has her rethinking the no-dating rule and ready to risk everything.
Aleksander is chronically ill, too, and there's a softer side underneath all his jokes. Isabel finds herself unraveling the secrets of a real person, rather than crowd-sourcing her decisions through her online column Sick Girl Wants to Know.
They fall for each other hard and fast, but Isabel has known all along…
As a woman who suffers from chronic illness, I am interested in sharing my experience and learning about other women who also suffer and survive their chronic conditions. I have had endometriosis, a painful disease, since I was a teenager. I’ve always enjoyed stories about different kinds of chronic illnesses, and I appreciate the way pain and sickness can be translated into memorable books.
O’Rourke blends personal anecdotes, meticulous research, and compelling conviction as she argues that how we treat chronic illness needs to change.
She unpacks the complex nature of autoimmune conditions offering the history of Western Medicine’s approach to illness and even shedding a light on why so many sick people are often left without definitive diagnoses or helpful treatment plans. This is a multi-dimensional portrait of autoimmune disease and chronic illness that I could not put down.
I am a school psychologist and Christian who has lived with multiple debilitating chronic illnesses for 25 years. As a result, I am all too familiar with how disruptive and life-changing they can be to our daily lives. Yet few books exist that offer practical guidance for living with chronic illness. And even fewer of these books are for Christian readers. Written with different areas of expertise and angles, my book and the books below fill this gap. I hope you enjoy these books as much as I have!
Licensed Counselor Esther Smith masterfully offers an impressive Christian devotional for chronic illness sufferers that takes only a few minutes per day to read. I find myself referring back to it for strength, wisdom, and biblical insights. The chapter for each day includes a Bible verse pertaining to a topic, a faith-based discussion, reflection questions, and suggested actions.
There is so much to love about this book: it is practical, relatable, quick and easy to read, and comforting.
Is chronic illness taking over your heart as much as your body? Physical symptoms and limitations change all aspects of life, leading to losses and to unique challenges that are difficult to navigate. Writing from her own experience with these issues, Esther Smith focuses heavily on encouragement and practical application, showing you how to release guilt and shame, ask for help, balance work and rest, and get through days of difficult symptoms. Each day, you will be encouraged as you consider how God uses illness in sanctifying, kingdom-advancing ways to display his glory and work in your heart.
I am a school psychologist and Christian who has lived with multiple debilitating chronic illnesses for 25 years. As a result, I am all too familiar with how disruptive and life-changing they can be to our daily lives. Yet few books exist that offer practical guidance for living with chronic illness. And even fewer of these books are for Christian readers. Written with different areas of expertise and angles, my book and the books below fill this gap. I hope you enjoy these books as much as I have!
As noted in the final chapter of my own book, laughing is something I need to do more. Chronic illness is debilitating as it can (and does) drain my energy and zap my mood. As part of the Sick and Tired series, I thoroughly enjoyedLaughter for the Sick and Tired as it is lighthearted, the humor is clean, the author is a great storyteller, and reading this resulted in several belly laughs.
Amazon Bestselling author Kimberly Rae, who lives with five annoying (and sometimes serious) health conditions, shares her medical mishaps and just plain weird experiences, such as:
*When her blood tests were lost at the hospital and she almost got treated for a random stranger’s liver problem. *When the doctor’s Central IV went up to her jugular instead of down, and he told her he’d fix it tomorrow! *Strange medical adventures from countries around the world.
Along with jokes, fun facts, and stories from other chronically ill friends, Laughter for the Sick & Tired may be just the dose of medicine…
I am a school psychologist and Christian who has lived with multiple debilitating chronic illnesses for 25 years. As a result, I am all too familiar with how disruptive and life-changing they can be to our daily lives. Yet few books exist that offer practical guidance for living with chronic illness. And even fewer of these books are for Christian readers. Written with different areas of expertise and angles, my book and the books below fill this gap. I hope you enjoy these books as much as I have!
I was drawn to this meticulously written book in part because the author is a professor of pharmacy and my father is a retired pharmacist. I found myself thoroughly enjoying, underlining, and learning from the wealth of insight into living with chronic illness. The author offers excellent tips for navigating relationships, the medical field, and evaluating treatment options.
While this book (like mine) is written for readers of all faiths, I appreciated and related to the testimony in the final chapter in which the author discusses the importance of his Christian faith and how it has helped him find meaning and purpose through suffering.
How do you live well when the physical foundation of your life is crumbling? This is the challenge for millions who live with diseases for which there is no cure. These incurable ailments produce a life of constant pain, fatigue, numbness, dizziness, and other debilitating symptoms that create chronic suffering. Can you thrive in life while experiencing the suffering persistent sickness provokes? In When There Is No Cure, Dr. Craig Svensson guides readers to a path of thriving when life’s journey includes an incurable ailment. Drawing on his expertise as a pharmacist-scientist, as well as a fellow sufferer with several…
Like my main character, I’m a Norwegian writer with ties to the US, who grew up with various chronic illnesses. I discovered the reason for much of my trouble when I was diagnosed with endometriosis. Isolated and in pain, I have always turned to books. I craved seeing my life reflected. Since Please Read This Leaflet Carefully came out, I’ve heard from many readers. I hope that it can help people who haven’t seen themselves in art before. This list addresses the needs of a life with chronic illness and pain: guidance, darkness, humor, comfort, and poetry. I hope these books will help you as much as they did me.
This collection, published by Bloodaxe Books, categorizes poems loosely by theme and contains a treasure trove of the best poems to help you keep on living when life is too hard. There is a wide range of themes, as well as some uplifting poems that explore everything beautiful about being alive.
Staying Alive is an international anthology of 500 life-affirming poems fired by belief in the human and the spiritual at a time when much in the world feels unreal, inhuman and hollow. These are poems of great personal force connecting our aspirations with our humanity, helping us stay alive to the world and stay true to ourselves. Many people turn to poetry only at unreal times, whether for consolation in loss or affirmation in love, or when facing other extremes and anxieties. Staying Alive includes many of the great modern love poems and elegies, but it also shows the power…
I am a school psychologist and Christian who has lived with multiple debilitating chronic illnesses for 25 years. As a result, I am all too familiar with how disruptive and life-changing they can be to our daily lives. Yet few books exist that offer practical guidance for living with chronic illness. And even fewer of these books are for Christian readers. Written with different areas of expertise and angles, my book and the books below fill this gap. I hope you enjoy these books as much as I have!
As part of the Chronic Joy Thrive Series, President and Co-founder of Chronic Joy Ministry Cindee Snider Re offers a very useful book that consists of part devotional and part workbook. This is not a book to be simply read and passively absorbed; it is a book in which you will fill in the blanks on Bible verses, journal your thoughts, and answer reflection questions as they relate to your chronic illness and walk with Christ. Whether you use this alone or in a group setting, I found it comforting that Cindee walks alongside you, sharing experiences, scriptural insights, and pointing you to whom you can trust. No doubt this will strengthen your faith while dealing with the challenge of chronic illness.
Discovering Hope is a 10-chapter study inviting you to embrace a new perspective, celebrate the small victories, wrestle with difficult questions, and learn to laugh again. Often.No matter how dark the days, how wild the storm, how deep the valley or how long with winter, there is hope. There is always hope.
As I formed my self-identity I considered myself a spiritual seeker, always straying beyond the boundaries of my more conservative Christian communities. As a minister’s wife, I had a wide experience of Christian-based faith and community. When my husband died instantly of a heart attack, my entire spiritual foundation seemed to crumble. This book is a memoir of my journey to rebuild a new spirituality, founded on the remnants of my original faith and expanding to meet my new and changing experience of who I am. I have a master’s degree in English so the study of literature, mythology, and poetry also strongly influenced my journey, my story, and this memoir.
Jerry’s book was recommended to me by a friend who had lost her husband three years earlier. I found that there were times in my grieving when I gained perspective by holding up the gravity of my loss against that of someone else’s. Jerry’s loss was so monumental and potentially devastating, I found myself drawn to his words again and again to encourage myself that if he could find his way through and still be grounded in faith, maybe I could too. His story shows the possibility of leaning into community and finding the internal strength to trust in healing.
With vulnerability and honesty, Jerry Sittser walks through his own grief and loss to show that new life is possible--one marked by spiritual depth, joy, compassion, and a deeper appreciation of simple and ordinary gifts. This 25th anniversary edition features a new introduction and two additional chapters, one which provides help for pastors and counselors.
Loss came suddenly for Jerry Sittser. In an instant, a tragic car accident claimed three generations of his family: his mother, his wife, and his young daughter. While most of us will not experience such a catastrophic loss in our lifetime, all of us will…
I’ve been fascinated with the science and psychology behind sugar addiction ever since I started graduate school at Princeton University. When I was deciding what to study for my dissertation. I knew my topic needed to be something big, important, and meaningful. At the time, we were starting to hear about the dangers of obesity, and I wondered if it was due to our changing food environment, which had more and more sugar in it. I never would have imagined that this project would lead me to over 20 years of research. Learn all about it in my book Sugarless.
The reason why I absolutely love this book is because he does not hold back in sharing the unfiltered truth behind processed foods and how they are destroying our health. I especially love how effortlessly Dr. Lustig draws readers in by being direct, concise, and sharing some personal experiences along the way.
Did you know that 62% of the food in our supermarkets is not only processed but 'ultra-processed' (ingredients from other foods are combined to make something 'new', often in colours that do not exist in nature) and that data shows that by eating this kind of food over time we are literally slowly poisoning ourselves?
In the hard-hitting, ground-breaking tradition of his NY Times bestseller FAT CHANCE, which revealed the dangers of sugar, Dr Robert Lustig persuasively presents a stark expose of how our addiction to processed foods (aided and abetted by the food industry, big ag, big pharma, institutional…
