The best books to explore dementia and the rich mystery of the human mind

Why am I passionate about this?

I am a novelist, a journalist, a humanist celebrant, and coauthor with my husband of the best-selling Nicci French thrillers. Witnessing my father’s dementia and his slow-motion dying radically transformed the way I think about what it is to be human. In 2014, I founded John’s Campaign which seeks to make the care of those who are vulnerable and powerless more compassionate, and which is now a national movement in the UK. In 2016, I won the Orwell Prize for Journalism for ‘exposing Britain’s social evils' in the pieces I wrote exploring the nature of dementia.


I wrote...

The Last Ocean: What Dementia Teaches Us about Love

By Nicci Gerrard,

Book cover of The Last Ocean: What Dementia Teaches Us about Love

What is my book about?

I wrote this book because of my own need to understand a disease that so profoundly affected my father and all who loved him, and because I believe there are better, kinder, and more hopeful ways of dealing with an illness that can dismantle a self. It’s a psychological, philosophical, intellectual, and emotional investigation into this loss, a collection of stories -  some of which are desolating while others are redemptive and show how brave and resilient people can be. It is also a farewell to a man who I loved and who is the book’s guide and its sweet-natured ghost.

Shepherd is reader supported. When you buy books, we may earn an affiliate commission.

The books I picked & why

Book cover of Out of Mind

Nicci Gerrard Why did I love this book?

There cannot be a more brilliant or more shattering evocation of what it feels like to gradually realise you are forgetting yourself and vanishing from your own life: the mind observes the mind’s deterioration. Bernleff’s pioneering novel, published in 1984, follows the journey of its narrator Maarten from the first days of confusion into a darkness of self-loss. A beautiful, poignant masterpiece about memory and forgetting. 

By J. Bernlef, Adrienne Dixon (translator),

Why should I read it?

1 author picked Out of Mind as one of their favorite books, and they share why you should read it.

What is this book about?

Everyday Maarten notices his increasing forgetfulness, but his attempts to conceal it are fruitless. This novel shows the strength of the bond keeping him and his wife together, the result of a lifetime of loving, so that they manage to find a way to carry on in the face of deterioration.


Book cover of Stammered Songbook: A Mother's Book of Hours

Nicci Gerrard Why did I love this book?

Erwin Mortier is a poet, and this slim, intense volume is a haunting memorial to his mother in her final months. She died of early-onset dementia, and Mortier struggles to find adequate words for a condition that is profoundly connected to the failure of language and the connection of the self to the world.

By Erwin Mortier, Paul Vincent (translator),

Why should I read it?

1 author picked Stammered Songbook as one of their favorite books, and they share why you should read it.

What is this book about?

'My mother, a house that is slowly collapsing, a bridge dancing to a tremor.'

It started when she could no longer remember the word for 'book'. Then her mind, her language and her identity began to slip away.

This is Erwin Mortier's moving, exquisitely observed memoir of his mother's descent into dementia, as a once-flamboyant woman who loved life and pleasure becomes a shuffling, ghostlike figure wandering through the house. Piecing together the fragments of her lost life, and his own childhood, Mortier asks: what do we become when we lose the repertoire of habits and words that make us…


Book cover of The Nostalgia Factory: Memory, Time and Ageing

Nicci Gerrard Why did I love this book?

Drowse Draaisma is a memory specialist, and this lucid, eloquent and humorous book celebrates the rich and fruitful pleasures of memory in later life (and takes the sting out of the natural forgetfulness that comes as we grow older). It combines science, psychology, anecdotes, advice, and it is above all a work of spirit and optimism.  

By Douwe Draaisma,

Why should I read it?

1 author picked The Nostalgia Factory as one of their favorite books, and they share why you should read it.

What is this book about?

With a storyteller's gift and a scientist's insights, Draaisma celebrates the unique pleasures of the aging memory

You cannot call to mind the name of a man you have known for 30 years. You walk into a room and forget what you came for. What is the name of that famous film you've watched so many times? These are common experiences, and as we grow older we tend to worry about these lapses. Is our memory failing? Is it dementia? Douwe Draaisma, a renowned memory specialist, here focuses on memory in later life. Writing with eloquence and humor, he explains…


Book cover of The Iceberg: A Memoir

Nicci Gerrard Why did I love this book?

This stunning memoir is the author’s recollection of the time between her husband’s diagnosis of a brain tumour that robbed him of language, and his death aged fifty-three. Time runs out for them very quickly. Sometimes the experience of tending to him is stupendously painful and hard (she is a mother of a small child as well as a wife to a dying man). Sometimes it is oddly peaceful. Every so often there are moments of euphoria. Always there is thought, imagination, empathy, care, and love. Above all, love.

By Marion Coutts,

Why should I read it?

1 author picked The Iceberg as one of their favorite books, and they share why you should read it.

What is this book about?

In 2008 the art critic Tom Lubbock was diagnosed with a brain tumour. The tumour was located in the area controlling speech and language, and would eventually rob him of the ability to speak. He died early in 2011. Marion Coutts was his wife.

In short bursts of beautiful, textured prose, Coutts describes the eighteen months leading up to her partner's death. This book is an account of a family unit, man, woman, young child, under assault, and how the three of them fought to keep it intact.

Written with extraordinary narrative force and power, The Iceberg is almost shocking…


Book cover of Somebody I Used to Know: A Memoir

Nicci Gerrard Why did I love this book?

Getting a diagnosis of dementia can be terrifying, and it was for Wendy Mitchell, who was given it when only 58. But as this lovely account of her journey towards forgetting shows, dementia can be the start of a whole new adventure. She writes with engaging wit and courage about her daily battle with the illness. Funny, loveable, undaunted, she teaches us that dementia can bring gifts as well as sorrow.

By Wendy Mitchell,

Why should I read it?

3 authors picked Somebody I Used to Know as one of their favorite books, and they share why you should read it.

What is this book about?

THE RICHARD AND JUDY BOOK CLUB PICK THE SUNDAY TIMES BESTSELLER A BBC RADIO 4 BOOK OF THE WEEK CHOSEN AS A 2018 SUMMER READ BY THE SUNDAY TIMES, FINANCIAL TIMES, DAILY TELEGRAPH, THE TIMES AND THE MAIL ON SUNDAY 'Revelatory' Guardian 'A miracle' Telegraph 'A landmark book' Financial Times Brave, illuminating and inspiring, Somebody I Used to Know gets to the very heart of what it means to be human. What do you lose when you lose your memories? What do you value when this loss reframes how you've lived, and how you will live in the future? How…


You might also like...

Creativity, Teaching, and Natural Inspiration

By Mark Doherty,

Book cover of Creativity, Teaching, and Natural Inspiration

Mark Doherty Author Of Creativity, Teaching, and Natural Inspiration

New book alert!

Why am I passionate about this?

I am a highly experienced outdoorsman, musician, songwriter, and backcountry guide who chose teaching as a day job. As a writer, however, I am a promoter of creative and literary nonfiction, especially nonfiction that features a thematic thread, whether it be philosophical, conservation, historical, or even unique experiential. The thread I used for thirty years of teaching high school and honors English was the thread of Conservation, as exemplified by authors like Aldo Leopold, Rachel Carson, Edward O. Wilson, Al Gore, Henry David Thoreau, as well as many other more contemporary authors.

Mark's book list on creative nonfiction books that entertain and teach through threaded essays and stories

What is my book about?

I have woven numerous delightful and descriptive true life stories, many from my adventures as an outdoorsman and singer songwriter, into my life as a high school English teacher. I think you'll find this work both entertaining as well as informative, and I hope you enjoy the often lighthearted repartee and dialogue that enhances the stories and experiences.

When I started teaching in the early 1990s, I brought into the classroom with me my passions for nature, folk music, and creativity. This book holds something new and engaging with every chapter and can be enjoyed by all sorts of readers, particularly those who enjoy nonfiction that employs wit, wisdom, humor, and even some down-to-earth philosophy.

Creativity, Teaching, and Natural Inspiration

By Mark Doherty,

What is this book about?

Creativity, Teaching, and Natural Inspiration follows the evolution of a high school English teacher as he develops a creative and innovative teaching style despite being juxtaposed against a public education system bent on didactic, normalizing regulations and political demands. Doherty crafts an engaging nonfiction story that utilizes memoir, anecdote, poetry, and dialogue to explore how mixing creativity and pedagogy can change the way budding students visualize creative writing: A chunk of firewood plunked on a classroom table becomes part of a sawmill, a mine timber, an Anasazi artifact...it also becomes a poem, a song, an essay, and a memoir. The…


5 book lists we think you will like!

Interested in dementia, Alzheimer's disease, and the brain?

10,000+ authors have recommended their favorite books and what they love about them. Browse their picks for the best books about dementia, Alzheimer's disease, and the brain.

Dementia Explore 92 books about dementia
Alzheimer's Disease Explore 68 books about Alzheimer's disease
The Brain Explore 155 books about the brain