Life caught me by surprise when our youngest son was born with a birth defect that launched our family into the world of surgeries, and treatments. After experiencing the management of chronic care for our child firsthand, I realized how important it is to share personal stories and experiences. It enables empathy and a deeper understanding and appreciation of what patients and families go through. Autobiographical accounts of patients and families are still very limited. We need more people to come forward and share their own patient/family experiences in order to promote the betterment of healthcare and healing through relating with others and learning from others’ experiences.
This book is near and dear to me because of the topic it is based on. Anorectal malformation is a rare congenital defect that affects one in 5000 babies born. The book does a great job of bringing to light the real-life stories and experiences of patients and their families as they learn to navigate the healthcare system while aiming for the best outcome for their babies. The book gives a platform for raising awareness of birth defects such as anorectal malformations and tries to overcome the stigma associated with them. The book is a great compilation of stories of patients with anorectal malformations and serves as a great resource for other patients faced with a similar diagnosis.
This book describes with raw honesty and deep emotion the journeys that families go on when their child is born with an Imperforate Anus (IA) also known as Anorectal Malformation (ARM). It is a rare congenital condition that affects ONE in 5000 births which is very rarely talked about or known in the wider community. It reveals the many difficulties both emotionally and physically that babies, children and adults living with IA/ARM endure. It is a book filled with love, courage, resilience and hope. It shows the importance of having access to good information and medical staff who are compassionate…
My mother wanted me to be a physician, but as a child I was very squeamish about human biology and knew that wasn't for me. In college I was exposed to economics and found it, and the policy debates about national health insurance, fascinating. So, maybe with my mother’s wishes in the back of my mind, I became a health economist. I was privileged to direct a large randomized trial called the RAND Health Insurance Experiment, which varied the cost of medical care to families. This project lasted more than a decade and got me so deep into the economics of health and medical care that I became a professor of health policy and management.
Another classic book that describes the history of American medicine and organized medicine’s interactions with the political process.
It is necessary background to understand the predominance of employment-based health insurance and why the 2010 Affordable Care Act was such a breakthrough. Starr is a Princeton sociologist who participated in the 1990s debate on the failed Clinton health insurance plan.
Winner of the Pulitzer Prize and the Bancroft Prize in American History, The Social Transformation of American Medicine is a landmark history of the American health care system, examining how the roles of doctors, hospitals, health plans, and government programs has evolved over the last two centuries. Beginning in 1730 and coming up to the present day, renowned sociologist Paul Starr traces the transformation of our national health care system into a private corporate medical institution that dominates the field and threatens the sovereignty of the medical profession. In this new and revised edition, Paul Starr will bring his research…
I’m a philosopher fascinated by science and its relationship to society, who science benefits and who it harms; why scientists get some things right and some things wrong; and which scientific results make their way into the physician’s office, the courtroom, and the school textbook. Science impacts all facets of our lives: our health, our relationships with others, and our understanding of our place in our community and in the universe. I’ve spent decades investigating this relationship between science and society; these are some of the books I’ve found most influential in thinking about how we, as humans, impact the environment around us, which in turn circles back and impacts us.
The United States spends far more on healthcare than any other wealthy nation; and yet, on basic measures of health, infant mortality; life expectancy; and rates of chronic illness, Americans have some of the worst outcomes. Why?
In his book, Sandro Galea answers that question. The problem, he shows, is that the nation invests enormous amounts of money in the treatment and search for cures for diseases after those health conditions are already quite advanced, which is both extremely expensive and limited in efficacy.
Meanwhile, the nation invests relatively little in fostering a healthy environment, giving people free and easy access to preventive healthcare; providing economic security; ensuring children have nutritious diets; and prioritizing the cleanliness of air and drinking water.
This book shows how that is a formula for making people sick and then throwing money at the problem after it’s too late to help those most in need.
In WELL, physician Sandro Galea examines what Americans miss when they fixate on healthcare: health.
Americans spend more money on health than people anywhere else in the world. And what do they get for it? Statistically, not much. Americans today live shorter, less healthy lives than citizens of other rich countries, and these trends show no signs of letting up.
The problem, physician Sandro Galea argues, is that Americans focus on the wrong things when they think about health. Our national understanding of what constitutes "being well" is centered on medicine -- the lifestyles we adopt to stay healthy, the…
Allen Klein is the world’s only “Jollytologist®”. Through his books, workshops, and keynote speeches, for the past 30-plus years, he has been showing audiences worldwide how to use humor and positivity to deal with life’s not-so-funny stuff. He is a pioneer in the therapeutic humor field and a recipient of a Lifetime Achievement Award from the Association for Applied and Therapeutic Humor. Comedian Jerry Lewis has said that Klein is “a noble and vital force watching over the human condition.”
Another pioneer in the therapeutic humor field: this one written for the health professions. In spite of that, any reader can get a lot from this book. It introduces the benefits of humor not only as a healing tool for the patient, but as a stress management tool for the health professional as well. Certainly, any reader dealing with stress can benefit from the coping characteristics of humor.
Extensive coverage of humor in interpersonal relationships, patient education and the work environment greatly enhance the value of this book to all health care professionals. Humor and the Health Professions introduces the benefits of humor not only as a healing tool for the patient, but as a stress management tool for the health professional as well.
Wendy Moore is a journalist and author of five non-fiction books on medical and social history. Her writing has appeared in the Guardian, Times, Observer and Lancet. Her new book is about Endell Street Military Hospital which was run and staffed by women in London in the First World War.
History is just “one damned thing after another” is a common phrase. For me this is the book which has led me to my next project. Cahill traces the story of the women who went to Russia in 1916 with the voluntary outfit the Scottish Women’s Hospitals. Set up by a Scottish surgeon, Elsie Inglis, the SWH became the biggest women’s medical organisation serving abroad in the war. The SWH women ran hospitals in France, Serbia and Russia. Here Cahill tells the story of their astonishing adventures in Russia – driving ambulances close to the firing line, retreating with the Serbian and Russian armies, surviving the cold, food shortages and the Russian Revolution – through the women’s own words. It’s staggering stuff – and great material for my next book about one of those incredible women pioneers.
Shipped from UK, please allow 10 to 21 business days for arrival. First Published by PENTLAND, EDINBURGH, 1999 BETWEEN THE LINES: Letters and Diaries from Elsie Inglis's Russian Unit. Arranged and edited by Audrey Fawcett Cahill. 372 p., ill., maps A very good, near fine soft-cover copy.
In my younger days, as the son of a medical professor and a public health nurse, I was more interested in healing society than patients. But my political interests and research agenda as a professor of political science ultimately led back to medicine. I found that profit-maximizing market competition in health care failed miserably to promote value in therapeutics and economize on society’s scarce resources. I became aware of the neglect of public health to prevent disease for vulnerable groups in society and save money as well as lives. Pervasive and enduring economic conflicts of interest in the medical-industrial complex bear primary responsibility for severe deficits in quality, equality, and economy in American health care.
If you think that medical journals published by respected medical societies are full of good science, think again.
For me, Abramson’s Sickeningnailed the case for a conclusion that the net effect of the many hundreds of medical journals published here and around the world is to subtract from the sum of human medical knowledge.
Abramson, as an expert witness in criminal and civil cases against drug companies, draws in part on subpoenaed documents to expose how medical science, as part of the entire medical-industrial complex, is corrupted from start to finish by the drug industry’s funding of most clinical trials, their control over the data analysis, and even their ghost-writing of articles submitted to journals.
New and disturbing was the withholding of clinical trials’ raw data from journals’ peer reviewers. Instead, they get biased summaries bearing drug manufacturers’ fingerprints.
The inside story of how Big Pharma’s relentless pursuit of ever-higher profits corrupts medical knowledge—misleading doctors, misdirecting American health care, and harming our health.
The United States spends an excess $1.5 trillion annually on health care compared to other wealthy countries—yet the amount of time that Americans live in good health ranks a lowly 68th in the world. At the heart of the problem is Big Pharma, which funds most clinical trials and therefore controls the research agenda, withholds the real data from those trials as corporate secrets, and shapes most of the information relied upon by health care professionals.…
I’m the global health reporter for The New York Times, the latest iteration in 30 years as a foreign correspondent. I’ve covered wars and humanitarian disasters, but it’s health stories that have always drawn me most. Health stories are intimate and personal, but they’re also about politics and economics, and social norms – about power. I’ve written about the Zika virus crisis in Brazil, child malnutrition in India, teen suicide in the Arctic – but no story has drawn me in and kept me riveted like Africa’s AIDS pandemic has over the past 25 years. I intend to keep reporting on it until the day a cure is found.
Wait, this book isn’t about Africa! No: it’s a biography of Dr. Paul Farmer, a co-founder of the medical humanitarian agency Partners in Health who died in 2022, and who had a major influence on how I, and thousands of others, think about providing healthcare in low-resource settings.
This extremely readable biography of Farmer focuses mostly on his work in Haiti – where Farmer did pioneering work on HIV treatment – and while it’s the other side of the world, it’s a crucial text for rethinking how we understand structural inequalities and access to health care.
The seeds of Farmer’s radical approach were taken by many idealistic medical workers into African HIV programs and indeed when he died, he was in Rwanda, where he co-founded the University of Global Health Equity.
Tracy Kidder's critically acclaimed adult nonfiction work, Mountains Beyond Mountains has been adapted for young people by Michael French. In this young adult edition, readers are introduced to Dr. Paul Farmer, a Harvard-educated doctor with a self-proclaimed mission to transform healthcare on a global scale. Farmer focuses his attention on some of the world's most impoverished people and uses unconventional ways in which to provide healthcare, to achieve real results and save lives.
Plus, Nicole's
6, 8, and 14-year-old's favorite books.
Why did Nicole love this book?
The authors wanted to understand why compassion and empathy had left the hearts of healthcare workers and find ways to revive them. To do this, Dr. Trzeciak took two years off work to study the literature on compassion and empathy in medicine.
His book, full of powerful examples, makes us understand the importance of compassion as a therapeutic tool, which has the advantage of being free and universal. His approach leads him to conclude that it only takes a few seconds in a medical interview for compassion to live on with all its magical effects.
A must-read for all healthcare professionals and their patients.
A 34-year-old man fighting for his life in the Intensive Care Unit is on an artificial respirator for over a month. Could it be that his chance of getting off the respirator is not how much his nurses know, but rather how much they care?
A 75-year-old woman is heroically saved by a major trauma center only to be discharged and fatally struck by a car while walking home from the hospital. Could a lack of compassion from the hospital staff have been a factor in her death?
Compelling new research shows that health care is in the midst of…
Born and raised in the Chicago area, I worked in the automotive industry as a car salesperson and racing team manager, financial services as a Registered Representative, and a member of the Chicago Board Options Exchange. An expat in Panama since 2004, I worked in business development for several healthcare products and co-founded an air medical transport service. Over the last decade, I’ve represented two businesses delivering protective medical care to high-net-worth individuals where I learned care’s gold standard from former White House physicians. My research included the books I recommend here and inspired me to write the Expat Health Guide for current and future expats.
I found Fixing the Primary Care Crisis as I was researching the root cause of America’s healthcare problems. Dr. Schimpff shares keen, frontline insights into how we arrived at a crisis point. He dials in on time with the patient as a critical factor, and how primary care was devastated over many decades by government and insurance intrusion. That he became a medical mentor is another fortunate outcome from discovering his book. He helped refine my thinking and incorporated it into my book. Fixing the Primary Care Crisisis the first book I recommend for understanding what we have now and solutions for fixing it. I was very proud to have him as my first Winning Healthcare Food Fights podcast guest.
In this deeply researched yet controversial book, Stephen C. Schimpff, MD explains why our healthcare delivery system serves us so poorly and costs so much, and why government and insurer policy has not only failed to improve care delivery but has actually made it worse. Primary care physicians have been forced into a non-sustainable business model that drives them to schedule an unreasonable number of patient visits per day. Too many visits means not enough time per patient, forcing those physicians to instead refer a patient to a specialist, order a test, or write a prescription when more time would…
I am the former president of Pfizer Global Research, where I led research groups around the globe in finding new medicines to treat cancer, addiction, AIDS, immunological diseases, and pain. After retiring from Pfizer, I have been closely involved with biotech companies that also are seeking breakthrough drugs. This industry is a crucial part of the healthcare ecosystem, as evidenced by the remarkable response and, ultimately, the crushing of the COVID-19 pandemic. Yet, it is not just underappreciated but is treated with scorn by many. This booklist provides sources from which the reader can gain a full understanding of the value of the biopharmaceutical industry, the challenges it faces, and its importance to the world’s health.
Legislators and healthcare insurers are seeking ways to slash healthcare costs, often focusing on cutting the costs of medicines through schemes like price controls. Yet, drugs make up only about 13 percent of the money paid on healthcare. This book does a great job of explaining what is behind the pricing of new drugs but, more importantly, shows that all life-saving drugs eventually become low-cost generics – truly a Great American Drug Deal.
This book scrutinizes all players in the healthcare industry and offers new ideas for cost-saving measures, such as closing loopholes, dealing with bad actors, and educating consumers. If you want to understand how best to balance innovation and affordability, this book is a must-read.
Developing life-changing drugs is risky and expensive—but that’s not what makes them unaffordable.Drug pricing is a staple of every news cycle and political debate. And while we’ve struggled for decades to agree on solutions that serve all patients without jeopardizing the invention of new medicines, many Americans suffer because they can’t afford the drugs they need.Do we really have to choose between affordability and innovation?In The Great American Drug Deal, scientist and industry expert Peter Kolchinsky answers this question with a decisive No. The pharmaceutical industry’s commitment to creating new lifesaving drugs destined to become inexpensive generics can be balanced…
