The most recommended books on dementia

Who picked these books? Meet our 55 experts.

55 authors created a book list connected to dementia, and here are their favorite dementia books.
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Book cover of Little Sister

Susan Wadds Author Of What the Living Do

From my list on flip the script on women’s sexuality, pleasure, and cultural roles.

Why am I passionate about this?

In my writing and in my life, I look at life and relationships in terms of what is and isn’t expected or acceptable. I’ve been fascinated by how pleasure itself has become a dirty word and how it can be exploited and used. Women have so much more potential and are so much more complex than what is given to us by media and social constructs. I write to expose the underside of identity, beliefs, and especially how past encounters color and shape our ability to experience pleasure.

Susan's book list on flip the script on women’s sexuality, pleasure, and cultural roles

Susan Wadds Why did Susan love this book?

I loved this book because it challenged ideas about relationships and motherhood.

For me, the issues around guilt and feelings of self-worth came through strongly. I loved this book because the writing was lyrical and clear, and made me suspend my disbelief to the point where I totally believed the premise that one could inhabit another’s body—and made me wonder if the burden of guilt can actually cause such dire consequences.

By Barbara Gowdy,

Why should I read it?

1 author picked Little Sister as one of their favorite books, and they share why you should read it.

What is this book about?

A New York Times Book Review Editor's Choice
One of Kirkus Reviews' Best Books of 2017

"[A] supernatural domestic thriller and a crackling tour de force." ―The New York Times

Thunderstorms are rolling across the summer sky. Every time one breaks, Rose Bowan loses consciousness and has vivid, realistic dreams about being in another woman's body. 

Is Rose merely dreaming? Or is she, in fact, inhabiting a stranger? Disturbed yet entranced, she sets out to discover what is happening to her, leaving the cocoon of her family’s small repertory cinema for the larger, upended world of someone wildly different from…


Book cover of Granny Needs My Help: A Child's Look at Dementia and Alzheimer's

Anne O'Brien Carelli Author Of I'll Remember, Poppy

From my list on dementia and Alzheimer’s disease for children.

Why am I passionate about this?

As an educator, author of children’s books, and caregiver of a loved one with dementia, I felt that I had to write a story about the disease from a child’s point of view. When I became a caregiver, I was struck by the lack of information for children and the misconceptions of the public about the disease. I wanted to create a story that reassures children and gives them guidance on how they can help be a caregiver. I added the Author’s Note to provide accurate information to adults so that more people are aware of the signs of dementia and to build understanding and compassion. 


Anne's book list on dementia and Alzheimer’s disease for children

Anne O'Brien Carelli Why did Anne love this book?

This sensitive, charming book shows how a child learns about what is going on in her granny’s brain.

It addresses the emotions that a young child may feel when they witness confusing changes in a loved one’s behavior. This story provides a wonderful opportunity to discuss dementia and what to do if a child has concerns or questions. 

By Deborah L Mills,

Why should I read it?

1 author picked Granny Needs My Help as one of their favorite books, and they share why you should read it.

What is this book about?

Are you looking for a picture book to talk about dementia or Alzheimer's with a child? This Alzheimer’s book for children explains Alzheimer’s dementia in kid-friendly terms. The book presents memory loss in an easy-to-understand narrative.  

Boys and girls alike will benefit from this “must have” children’s read. Alzheimer's has an impact on families around the world. This book allows a family to face this challenge together and make the most of every available moment.  

In Granny Needs My Help: A Child's Look at Dementia and Alzheimer's the main character Zéh is excited, happy, and challenged as she helps and…


Book cover of The Three Graces

Diane Chandler Author Of The Road to Donetsk

From Diane's 3 favorite reads in 2023.

Why am I passionate about this?

Author Creative writing tutor Open-minded reader Helicopter mum Always looking for the laugh

Diane's 3 favorite reads in 2023

Diane Chandler Why did Diane love this book?

The Three Graces is set in Tuscany, and I could feel the sunshine on my face as I read this sumptuous novel.

Set over just two weeks in May, with the planning of a wedding at its heart, it embraces a huge cast of characters (young and old, rich and poor, kind and mean) and a wide range of issues (including racism, refugees, immigration and generation rent versus baby boomers). All of which are woven skillfully into a delightful story.

The eponymous Three Graces are three elderly ladies who have moved separately to Tuscany to live out their retirement. "Between them, they had 4 breasts, 5 eyes, and 3 hip replacements." Ultimately, this is a tale of friendship. 

By Amanda Craig,

Why should I read it?

2 authors picked The Three Graces as one of their favorite books, and they share why you should read it.

What is this book about?

'Hugely entertaining' Telegraph

'She's such a skilful storyteller who vividly dramatises our lives with wit, wisdom and compassion'
BERNARDINE EVARISTO

'I revelled in The Three Graces - such an intriguing cast, so convincingly presented, and a narrative that continually surprises'
PENELOPE LIVELY

'A brilliant piece of storytelling... it should be the book everybody's reading this summer'
ANDREW O'HAGAN

'Gorgeous and generous... rich with characters and suffused with sunlight'
LISSA EVANS

When Enzo shoots an illegal migrant from his bedroom one night, it triggers a series of events that embroil old and young, rich and poor, native and foreign. His elderly…


Book cover of The Complete Eldercare Planner: Where to Start, Which Questions to Ask, and How to Find Help

Joy Loverde

New book alert!

What is my book about?

Trusted for more than three decades by family caregivers and professionals alike, this comprehensive and reassuring caregiving guide offers the crucial information you need to look after your elders and plan for the future.

Being a caregiver for aging parents, close friends and family, and other elders in your life is an overwhelming experience, whether you are one who has stepped into this role without warning or one who is also contemplating their own care plan. Now in its fourth edition, The Complete Eldercare Planner will help you navigate today’s complex caregiving landscape while addressing your unique needs.

By Joy Loverde,

Why should I read it?

1 author picked The Complete Eldercare Planner as one of their favorite books, and they share why you should read it.

What is this book about?

Trusted for more than three decades by family caregivers and professionals alike, this comprehensive and reassuring caregiving guide offers the crucial information you need to look after your elders and plan for the future.

“The most complete resource between two covers.”—Woman’s Day
 
Being a caregiver for aging parents, close friends and family, and other elders in your life is an overwhelming experience, whether you are one who has stepped into this role without warning or one who is also contemplating their own care plan. Now in its fourth edition, The Complete Eldercare Planner will help you navigate today’s complex caregiving…


Book cover of The Validation Breakthrough: Simple Techniques for Communicating with People with Alzheimer's-Type Dementia

Laura Wayman Author Of A Loving Approach to Dementia Care: Making Meaningful Connections While Caregiving

From my list on dementia and how to find joy while caregiving.

Why am I passionate about this?

During my decades of working with caregivers as a dementia care expert, I have heard many accounts of what the experience is like—from the sad and hollow to experiences rich in significance. Everyone faces obstacles when caring for a loved one; some of these obstacles come in the form of uncomfortable or painful emotional histories or past unresolved conflicts. After each opportunity to raise awareness and understanding about how dementia impacts individuals, their families, and their communities, I have been gratified to witness enhanced feelings of hope and comfort for all involved. It is my hope that through this book I will enter your home or your professional caregiving setting and work alongside you. 

Laura's book list on dementia and how to find joy while caregiving

Laura Wayman Why did Laura love this book?

Sensitive and insightful, The Validation Breakthrough is an essential resource for families, friends, neighbors, home health aides, doctors, nurses, social workers, and long-term care staff.

I learned as I read this book the necessity of walking beside the elderly in the final life stage. I learned empathy and to listen and talk with them, rather than patronizing them or telling them what to do. And I learned a very different understanding of why those with dementia symptoms do the things that they do-how the decline in cognitive abilities affects them in a very individual way, and to better understand the reasons behind their disorientation and sometimes challenging behavior.

The Validation Breakthrough was the foundation for my dementia care programs and method, and I often recommend this to all my family and professional clients to help raise their dementia awareness.

By Naomi Feil,

Why should I read it?

1 author picked The Validation Breakthrough as one of their favorite books, and they share why you should read it.

What is this book about?

Validation is a practical way of communicating with and managing problem behaviour in older adults with Alzheimer's-type dementia. It helps reduce stress, enhance dignity, and increase happiness. Since its inception in 1989, Validation has helped thousands of professional and family caregivers improve their relationships with residents and loved ones with dementia. Caregivers who use these techniques validate older adults' expressed feelings, rather than focusing on disorientation and confusion.

In this Anniversary Edition of The Validation Breakthrough, you'll learn how to re-create relationships between confused older adults and their caregivers. be caring and non-judgmental understand and handle challenging behaviours interpret non-verbal…


Book cover of The Quickening

E.B. Moore Author Of Loose in the Bright Fantastic

From my list on humor about surviving family and dementia.

Why am I passionate about this?

Throughout my life I found the trick to getting through rough patches meant isolating dark thoughts. I got them out by creating something (artworks, poems, stories), and looked forward to new horizons, though these works could easily be misinterpreted by those around me. When I was fifteen, after my father died and we were forced off the farm, I created a series of disturbing drawings that won the school's art prize and were displayed at graduation. A friend of my mother saw the exhibit and said, “Oh Dorothy, I’m so sorry.” It gave us a laugh later when Mother realized this method of cleansing beat finding a psychiatrist, and the cost couldn’t be beat.

E.B.'s book list on humor about surviving family and dementia

E.B. Moore Why did E.B. love this book?

This exquisitely written, dark saga of family intrigue is worth reading over and over, and I do.

The protagonist’s devotion to family and the land that feed her, both physically and emotionally, is rich and consuming.

Events are seen from her point of view and her antagonist’s, giving opposing slants that generate an exquisite tension throughout the book.

This story was instrumental in my education as a writer, as was the author, both showing the use of deep interiority in every character, and a setting that made me live within the story.

By Michelle Hoover,

Why should I read it?

1 author picked The Quickening as one of their favorite books, and they share why you should read it.

What is this book about?

A July 2010 Indie Next Pick

Enidina Current and Mary Morrow live on neighboring farms in the flat, hard country of the upper Midwest during the early 1900s. This hardscrabble life comes easily to some, like Eddie, who has never wanted more than the land she works and the animals she raises on it with her husband, Frank. But for the deeply religious Mary, farming is an awkward living and at odds with her more cosmopolitan inclinations. Still, Mary creates a clean and orderly home life for her stormy husband, Jack, and her sons, while she adapts to the isolation…


Book cover of Belongings: Poems

Gabriel Spera Author Of Twisted Pairs: Poems

From my list on for people who enjoy poetry that looks like poetry.

Why am I passionate about this?

I can’t guess how many great poems I have committed to memory. In waiting rooms, or in the checkout line, I recite them to myself. In this way, poetry helps me not only understand the world we live in, but live in it without going crazy. And while I love all poetry, I’ve always found that poetry in traditional forms—with meter and rhyme—is easier to remember. That’s one reason why I’ve always been drawn to formal verse. In my own poetry, I strive to uphold that tradition, while inventing new forms that spring organically from the subject at hand. I trust these books will demonstrate I’m not alone.

Gabriel's book list on for people who enjoy poetry that looks like poetry

Gabriel Spera Why did Gabriel love this book?

In line after line, Gilbert proves that poetry—more than any other medium—has the power to fully encapsulate the human condition and express emotions that very often seem beyond the power of speech.

I read this book as a lament and elegy. The title poem charts her mother’s descent into dementia and death, all recounted with a journalist’s sense of detail and an artist’s sense of compassion. I love the way her deft handling of form—in this case, a sonnet sequence—drags the reader into the slow decline.

The fourteen poems create sort of a meta (or mega) sonnet, with the last line of one poem repeated or echoed in the first line of the next. Every page has a line or phrase that stops me cold—I just have to reread it and let it fully sink in. Gilbert is well known for her books of feminist criticism, but in my view,…

By Sandra M. Gilbert,

Why should I read it?

1 author picked Belongings as one of their favorite books, and they share why you should read it.


Book cover of In Love: A Memoir of Love and Loss

Mark Steven Porro Author Of A Cup of Tea on the Commode: My Multi-Tasking Adventures of Caring for Mom. And How I Survived to Tell the Tale

From my list on books that do not flinch when dealing with difficult circumstances.

Why am I passionate about this?

Family history has always fascinated me. I didn’t want mine to be buried with my loved ones. So, out of curiosity, I asked relatives lots of questions. If unsatisfied, I sought answers elsewhere. I traveled as far as Celle San Vito, Italy, where my grandfather was born, to solve a one-hundred-year-old mystery, and I filmed it for others to enjoy. I’ve memorialized momentous family events in poems, handmade greeting cards, memory books, screenplays, a documentary, and now, in my memoir A Cup of Tea on the Commode. The books on my list are about “family.” I’ve been moved by each, and I hope they move you as well.

Mark's book list on books that do not flinch when dealing with difficult circumstances

Mark Steven Porro Why did Mark love this book?

Amy’s story is filled with many welcome laughs to break up the many dramatic moments. And I thank her for that.

It’s a beautiful yet tragic love story. After a terminal diagnosis, her husband chose to leave this world with dignity. Amy supports his decision, knowing she’ll spend the rest of her days alone. It raises many questions. “What would I do in this situation?” Could I make the same sacrifice? Could I support my spouse if she chose the same?

I love that we are with them every step of the way. In our country, why can’t we decide how and when to leave this world when faced with a terminal diagnosis? We do this with our pets. I don’t know why we can’t do this for our loved ones instead of draining them of their dignity and the family of their finances. 

By Amy Bloom,

Why should I read it?

3 authors picked In Love as one of their favorite books, and they share why you should read it.

What is this book about?

New York Times Bestseller

A poignant love letter to Bloom's husband and a passionate outpouring of grief, In Love reaffirms the power and value of human relationships.

In January 2020, Amy Bloom travelled with her husband Brian to Switzerland, where he was helped by Dignitas to end his life while Amy sat with him and held his hand. Brian was terminally ill and for the last year of his life Amy had struggled to find a way to support his wish to take control of his death, to not submerge 'into the darkness of an expiring existence'.

Written with piercing…


Book cover of Dementia from the Inside: A Doctor's Personal Journey of Hope

Marianne Sciucco Author Of Blue Hydrangeas

From my list on living with dementia.

Why am I passionate about this?

I am a registered nurse, author, and dementia daughter. As a nurse and hospital case manager, I spent many years caring for people living with dementia and their families. This inspired me to write a novel, Blue Hydrangeas, an Alzheimer’s love story. I soon encountered difficulties marketing my book. I reached out to two other dementia daughters I’d met online who had also written books on the subject from personal experience and together we founded the non-profit organization AlzAuthors.com. Our mission is to carefully vet resources – stories of personal caregiving – to help busy caregivers find the information and inspiration they need for their own journeys. To date, we are 300+ authors strong.

Marianne's book list on living with dementia

Marianne Sciucco Why did Marianne love this book?

Jennifer Bute is a medical doctor living in the United Kingdom. After being diagnosed with dementia she had to retire from her practice and moved into an assisted living facility. Here, she continues caring for others by offering seminars on living with dementia and writing about her journey on her blog and on Facebook, as well as in this beautiful book. Her story is brave and inspiring and dispels many myths about living with dementia.

By Jennifer Bute,

Why should I read it?

1 author picked Dementia from the Inside as one of their favorite books, and they share why you should read it.

What is this book about?

Jennifer Bute, author of Dementia from the Inside, was a highly qualified senior doctor in a large clinical practice, whose patients included those with dementia. Then she began to notice symptoms in herself. She was finally given a diagnosis of Young Onset Dementia in 2009.

After resigning as a GP, Jennifer resolved to explore what could be done to slow the progress of dementia. She and Louise Morse decided to co-write this book, Dementia from the Inside as a practical resource for those who are living with dementia.

The book tells readers what it's like to live with dementia, how…


Book cover of The Nostalgia Factory: Memory, Time and Ageing

Nicci Gerrard Author Of The Last Ocean: What Dementia Teaches Us about Love

From my list on explore dementia and the mystery of the human mind.

Why am I passionate about this?

I am a novelist, a journalist, a humanist celebrant, and coauthor with my husband of the best-selling Nicci French thrillers. Witnessing my father’s dementia and his slow-motion dying radically transformed the way I think about what it is to be human. In 2014, I founded John’s Campaign which seeks to make the care of those who are vulnerable and powerless more compassionate, and which is now a national movement in the UK. In 2016, I won the Orwell Prize for Journalism for ‘exposing Britain’s social evils' in the pieces I wrote exploring the nature of dementia.

Nicci's book list on explore dementia and the mystery of the human mind

Nicci Gerrard Why did Nicci love this book?

Drowse Draaisma is a memory specialist, and this lucid, eloquent and humorous book celebrates the rich and fruitful pleasures of memory in later life (and takes the sting out of the natural forgetfulness that comes as we grow older). It combines science, psychology, anecdotes, advice, and it is above all a work of spirit and optimism.  

By Douwe Draaisma,

Why should I read it?

1 author picked The Nostalgia Factory as one of their favorite books, and they share why you should read it.

What is this book about?

With a storyteller's gift and a scientist's insights, Draaisma celebrates the unique pleasures of the aging memory

You cannot call to mind the name of a man you have known for 30 years. You walk into a room and forget what you came for. What is the name of that famous film you've watched so many times? These are common experiences, and as we grow older we tend to worry about these lapses. Is our memory failing? Is it dementia? Douwe Draaisma, a renowned memory specialist, here focuses on memory in later life. Writing with eloquence and humor, he explains…


Book cover of A Tattoo on My Brain: A Neurologist's Personal Battle Against Alzheimer's Disease

Jason Karlawish Author Of The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease Into a Crisis and What We Can Do about It

From my list on making sense of Alzheimer’s disease and dementia.

Why am I passionate about this?

I’m a physician and a writer. Together, they create a matrix of practice, research, and writing. I care for patients at the Penn Memory Center and am a professor at the University of Pennsylvania, where I teach and study topics at the intersections of bioethics, aging, and the neurosciences. I wrote The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It and the novel Open Wound: The Tragic Obsession of Dr. William Beaumont and essays for The New York Times, The Washington Post, Forbes, The Hill, STAT, and The Philadelphia Inquirer. I raise whippets, and I’m a passionate reader of the physician and poet John Keats. 

Jason's book list on making sense of Alzheimer’s disease and dementia

Jason Karlawish Why did Jason love this book?

This first-person account of living with a biomarker-defined diagnosis of Alzheimer’s disease is a clearly written story of two very distinct, even antagonistic experiences. There’s the highly subjective experience of being a patient and the highly objective experience of being a physician who has diagnosed and cared for persons with the same disease. In one book is one narrative of two perspectives embodied in one person. The result is an unadorned account of what it’s like to lose one’s mind just a little bit at a time. Case in point is his account of apathy. I’m routinely prescribing this book to my patients. 

By Daniel Gibbs, Teresa H. Barker,

Why should I read it?

1 author picked A Tattoo on My Brain as one of their favorite books, and they share why you should read it.

What is this book about?

Dr Daniel Gibbs is one of 50 million people worldwide with an Alzheimer's disease diagnosis. Unlike most patients with Alzheimer's, however, Dr Gibbs worked as a neurologist for twenty-five years, caring for patients with the very disease now affecting him. Also unusual is that Dr Gibbs had begun to suspect he had Alzheimer's several years before any official diagnosis could be made. Forewarned by genetic testing showing he carried alleles that increased the risk of developing the disease, he noticed symptoms of mild cognitive impairment long before any tests would have alerted him. In this highly personal account, Dr Gibbs…